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Repairing the long-term damage from Accutane

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#5641 Xavier Gil

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Posted Today, 12:34 AM

I think you are very wrong here.  Unless you can tell me with 100% certainty, how accutane continues to work 10 years later, you cant rule anything out.  Good luck, because even Roche isnt telling.  Thats also why you cant rule out an "unknown" metabolite still being in your body somewhere with 100% certainty.

 

I could be wrong but I nobody has found nothing that helps after years discussing it. This forum is full of people speculating about the benefits of all kind of suplements. I have checked in other forums that the older you get the more dramatic the isotreine side effects are because of the natural aging effects. We can continue the next years acting as guinea pigs with no evidence or we can work together to spread the message.



#5642 timatron

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Posted Today, 12:38 AM

 

first it doesn't last 4 month, it last 6-8. and i already answered this question many times here, you can find it by yourself in every posts i made.

8 months??????? what planet are you on? cmon now... if you cant get even this fact straight, i cant help you.

 

From the American academy of dermatology:

 

Will isotretinoin cure me?

About 85% of patients see their skin permanently clear after one course of treatment. A course of treatment generally lasts about 4 to 5 months. 

 

The recommandations for dosage and duration of treatment haven changed over time. I took accutane 14 years ago and it was strongly recommended to reach a cumulative dose of 120mg/kg. Most people did not reach this withinn 4 months and took it longer or started a second course.

 

 

I think you will find that its taken till acne is gone. 2 mths? Great. stop. 5 years? Finally. Stop.



#5643 anonyy

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Posted Today, 12:39 AM

and you can keep your stupid studies for yourself, modern medicine is crap, they don't even understand 1/10 of how the body work, 60 years ago we didn't even had computer, modern medicine is very recent, nature and humans are here for far longer than that, we don't know better than it, modern pharmaceutical medicine is no better than it's beginning with "snake oil".

and if they knew anything about physiology they would have eradicated disease's, but instead of that they poison & kill people, humanity never had been so sick and unhealthy than today, 20% of child are obese, never had been so many cancer, diabete, heart disease, etc.. even babies start to born with cancer now. the body work as a whole, studying isolated part thinking you'll understand the root cause of health issue is highly stupid, specially when you ignore the lymphatic system. soon they'll tell us that disease are pharmaceutical deficiency, oh wait they already do that.

 

 

Life expectancy in western societies has never been higher than today. This is also because of the access to a modern healthcare system. I don`t think, that your exaggerations and simplifications are very helpful in the discussion anonyy.

 

Your wrong, first i talked about diseases, we never have been so sick, and never had been so many death by diseases than today it's a fact. And if you want to talk about life expectancy we don't know yet what modern medicine & agriculture & modern food in general will cause to our life expectancy. Old people in your life expectancy statistics ate a good diet, without modern crappy agriculture (& animal "farm") who is nothing more than handling vegetal pathology with tons of chemicals & artificial gene manipulation, we destroyed the soil, biodiversity and life thanks to the stupid companies who sold war residue as pesticide & fertilizer to make profit, wasn't enough to kill people, now we even entrust those mass murderer companies like monsanto to create foods for us into their labs, it's so funny how humans are stupid. Humans violated every single law of nature and they still don't understand why they have issues. Those guys in your statistics also lived a life with less drugs (pharmaceuticals), vaccines & other polluants, you'll see the results in life expectancy in this new generation. And you can already see  that children are far more disease afflicted than before, they even born with those disease now.


Edited by anonyy, Today, 12:51 AM.


#5644 Xavier Gil

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Posted Today, 12:45 AM

Then youre pretty much saying theres no help. What else is there? If a supp or natural chemical cant help then what are you waiting for? Another drug?

 

Noone is going to spend millions of dollars on research for us unless there is a patentable drug at the end of the tunnel. Do you think at the end of the research they find "hey, regular massages cure accutane poisoning!" or "regular exercise does too" or "crystal therapy helps accutaners!"

 

No. Those things wont be researched. And they don't help specific accutane poisoning, only general health a bit, I've tried them.

I have already found some supplements to help, which is why I will continue along this path.

 

If supplements dont work, then nothing will. Theres nothing else. And I'm not taking another drug. And if a drug DOES find to be accutane healing, there will certainly be an equivelent in nature or supplemental form.

 

As Chico said, nobody has found any suplement that works. There's a placebo effect and afterwards the degeneration comes back. If there's no solution we must accept it, but that doesn't mean that we must stay at home crying. As someone said, doctors believe that this forum is bullshit. I said AH to the last doctor that told me that. I don't know what we can reach if we create a isotretinoine association but I am sure that we will get more results than discussing in this forum about the benefits of the cannabis oil, which is totally stupid.



#5645 Roland1968

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Posted Today, 01:01 AM

 

and you can keep your stupid studies for yourself, modern medicine is crap, they don't even understand 1/10 of how the body work, 60 years ago we didn't even had computer, modern medicine is very recent, nature and humans are here for far longer than that, we don't know better than it, modern pharmaceutical medicine is no better than it's beginning with "snake oil".

and if they knew anything about physiology they would have eradicated disease's, but instead of that they poison & kill people, humanity never had been so sick and unhealthy than today, 20% of child are obese, never had been so many cancer, diabete, heart disease, etc.. even babies start to born with cancer now. the body work as a whole, studying isolated part thinking you'll understand the root cause of health issue is highly stupid, specially when you ignore the lymphatic system. soon they'll tell us that disease are pharmaceutical deficiency, oh wait they already do that.

 

 

Life expectancy in western societies has never been higher than today. This is also because of the access to a modern healthcare system. I don`t think, that your exaggerations and simplifications are very helpful in the discussion anonyy.

 

Your wrong, first i talked about diseases, we never have been so sick, and never had been so many death by diseases than today it's a fact. And if you want to talk about life expectancy we don't know yet what modern medicine & agriculture & modern food in general will cause to our life expectancy. Old people in your life expectancy statistics ate a good diet, without modern crappy agriculture (& animal "farm") who is nothing more than handling vegetal pathology with tons of chemicals & artificial gene manipulation, we destroyed the soil, biodiversity and life thanks to the stupid companies who sold war residue as pesticide & fertilizer to make profit, wasn't enough to kill people, now we even entrust those mass murderer companies like monsanto to create foods for us into their labs, it's so funny how humans are stupid. Humans violated every single law of nature and they still don't understand why they have issues. Those guys in your statistics also lived a life with less drugs (pharmaceuticals), vaccines & other polluants, you'll see the results in life expectancy in this new generation. And you can already see  that children are far more disease afflicted than before, they even born with those disease now.

 

No I don't see this development. Childhood mortailty in Germany is at its lowest level in 2012. And this is the most recent data.Statistical data is not yet available for 2013.


Edited by Roland1968, Today, 01:02 AM.


#5646 anonyy

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Posted Today, 01:03 AM

I didn't talked about mortality.



#5647 Roland1968

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Posted Today, 01:08 AM

 

 

first it doesn't last 4 month, it last 6-8. and i already answered this question many times here, you can find it by yourself in every posts i made.

8 months??????? what planet are you on? cmon now... if you cant get even this fact straight, i cant help you.

 

From the American academy of dermatology:

 

Will isotretinoin cure me?

About 85% of patients see their skin permanently clear after one course of treatment. A course of treatment generally lasts about 4 to 5 months. 

 

The recommandations for dosage and duration of treatment haven changed over time. I took accutane 14 years ago and it was strongly recommended to reach a cumulative dose of 120mg/kg. Most people did not reach this withinn 4 months and took it longer or started a second course.

 

 

I think you will find that its taken till acne is gone. 2 mths? Great. stop. 5 years? Finally. Stop.

 

This would have been a good strategy. But clearly this is not what was recommended to me by the doctor. I took accutane for many weeks after the acne was gone. And from discussions with other accutane sufferers I know, I was not the only one.



I didn't talked about mortality.

 

If you don't see the link between life expectany and childhood mortality then I can not help you.



#5648 anonyy

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Posted Today, 01:10 AM

if you think it's accurate to compare childhood mortality & global life expectancy can't help you either. even a kid born with cancer can survive and die at age 10, you need to think a little deeper.


Edited by anonyy, Today, 01:11 AM.


#5649 Roland1968

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Posted Today, 01:15 AM

if you think it's accurate to compare childhood mortality & global life expectancy can't help you either. even a kid born with cancer can survive and die at age 10, you need to think a little deeper.

 

Have you read my posts at all?



#5650 anonyy

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Posted Today, 01:17 AM

You think i answer without reading what you said?

 

It's not a debate, you can't deny that children and even adults are far more afflicted by disease than last couple decade, i don't know  what you are trying to do here.


Edited by anonyy, Today, 01:25 AM.


#5651 timatron

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Posted Today, 01:22 AM

Cannabis oil is not totally stupid.

 

Anyway, here is a list of symptoms that I'm trying to find a cure or at least treatment to.

Remember, in medicine, the definition to cure, means to totally be fixed, with no more intervention.

To treat, means to manage the ongoing symptoms, usually with a little pill.

 

Trying to treat or cure:

 

IBS/diarrhoea - brought on within a month of starting roaccutane. Currently managed with fodmap diet, low histamine diet, Lauricidin sometimes, and slippery elm sometimes. Tried millions of things without benefit for a long time.

 

Wrinkly/dry/fat loss facial skin - brought on within a month of starting roaccy. This is the current one I'm trying to find a cure to, where the hell is it?? Does noone know yet??

 

Depression - brought on maybe a year after I stopped roaccy. Hardly an issue now, except during extreme stress.

 

Anxiety/brain fog/cant think - already had this before roaccy, but probably tripled in the years afterward. Found multiple supps to help, still experimenting.

 

Chronic fatigue - hit 2 years after. From experience with different neurotransmitter drugs, is probably actually something to do with the brain, rather than physical fatigue which is what I thought for at least 5 years. When I find my perfect cure for brain fog is when this fatigue symptom will vanish. However, I will add, I have high cortisol, and low testosterone which are both fatigue related.

 

Know of any cures for me guys? Guys?

 

I've tried hundreds of supplements to find only a few gems that help. But it was worth it so far.



#5652 Accutainted

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Posted Today, 05:12 AM

How can docs say this forum and many others are bullshit when you have hundreds of people complaining about the exact same side effects years after taking the drug. It just doesn't make sense. SO FRUSTRATING!!!
A clean easy to navigate site/forum with all the scientific studies showing negative sides of accutane is definately needed. Docs are only interested in the science not the living proof.

Edited by Accutainted, Today, 05:18 AM.


#5653 Nick Ryan

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Posted Today, 11:51 AM

I have to agree with Xavier at this point. And frankly, I'm tired of seeing the abusive comments being posted by people here.

 

The update to this point is: the people still talking here have not cured themselves, only treated their symptoms, as if they return to a "normal" diet, all of their symptoms come back. That is the only fact. Diet absolutely helps if not completely treats all side effects, but you will have to limit yourself 1 at a time and see what you can still get away with eating without experiencing side effects.

 

Joseph has left this forum as he got a solid, repeatable diet down of rice/fish/supplements that helped him, and no longer needs to visit the forum. The best advice I can give right now for immediate relief is change your diet and stop eating processed/fatty/grainy foods whenever possible and exercise/get sun/drink a lot of water.

 

Feel free to continue to postulate on a cure, but fighting over trivialities and being abusive is not what this forum should be about.

 

PM me if you have any particular diet or other questions and I'd be happy to answer them.

 

Cheers


What has worked for me in order of safety/effectiveness: Eating small portions of food (no more than 2 fistfuls at any given sitting) *and/or* Low calorie/low fat/low-to-no grain diet while minimizing all dehydrating substances.

What helps: Methyl-B12, Exercise+Water and a Humidifier in your room.

What hasn't: Everything else (so far).

What makes it worse: Multivitamins** for whatever reason. If you need to take supplements, get the single supplement as needed- multivitamins can make your symptoms worse. Do your research on each vitamin! Eating large meals, and eating highly processed/fatty foods.


#5654 Crank92

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  • Interests:Took (Ro)Accutane. 10 days 20mg once per day in October 2012 (200mg total). Sides - Severe emotional blunting, Severe fatigue, IBS, Sexual Dysfunction, Genital numbness.

    I've recovered fully I believe from the emotional blunting and fatigue. The gastric issues are continuing to improve with the SCD diet. The sexual dysfunction and associated ED is improved with cannabis therapy. The genital numbness persists, for now.

    If you would like my research documents on Accutanes link to sexual dysfunction/ED and/or how cannabis could be beneficial PM me your email address. The former document is very handy for convincing douchebag Dr's your sides are legitimate.
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Posted Today, 06:09 PM

Just a quick post:

Timatron if you're having gastric issues, give the 'Specific Carbohydrate Diet' a go. Reduced my symptoms by 90% in 3 days. After a month, sticking to the diet gave me complete resolution of symptoms. Now 2 years later, I can stray quite heavily without issues. However, I'm still not 100% but somewhere >90%


Do your part to raise awareness:

For new individuals PM'ing me, I will reply IF you report all your side effects to the links below and screenshot each one once you have completed it. PM me with your email and I will message you and you can send the screenshots over with whatever questions you like.

Report side effects to organisations here:

Rxisk
https://www.rxisk.or...ects/About.aspx
FDA
https://www.accessda...umer.reporting1
NHS
http://yellowcard.mhra.gov.uk/
Roche
http://www.roche.co....k/xxxcontactxxx

Report side effects to accutane sympathetic MP's here (UK):

mail@nickharveymp.com

vaizeye@parliament.uk

I encourage people to copy this signature into their own.


#5655 anonyy

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Posted Today, 11:56 PM

Of course if you return to a crap diet you'll feel bad again, specially if you had a bad diet for 20 years and only a good one for 6 month. When you stop eating those highly toxic foods your body defense about them fade away, and when you take them back you feel bad far more faster. 

And why go back to eating toxic food when you felt the amazingness of eating physiologicaly? for nothing in the world i'll do that.


Edited by anonyy, Today, 11:57 PM.





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