Most efficient test is porphyrin i think. Bilirubin can test if your bile duct are congestioned by stones but you still can have damage even if there is not enough stones to show in the results yet. Those stones & more deep damage everywhere inside the body evolve in time, i wasn't in a so bad shape first month & 1-2 year after accutane (except for the libido, joint pain thing, slight depression ..), depersonalization, very low energy, huge stomach problems, ibs and more serious problem came in the long term, certainly by the accumulating congestion and the diet i had (as bad as everyone else).
My stomach problem was worsened 2 months after stopping Accutane. It's still really bad. I am going to order some probiotics online. However my celiac test came back negative. I hate it when I feel so ill and my test results say im fine. My kidney function test also says I am good. Oh dear
I have hairloss problem from the start of this awful journey. So it probably isn't because of Accutane stored in my liver/colon as my liver function test result came back fine?
So my timeline is:
First started accutane, hairloss --> two months off acctuane, stomach problems --> 4 months off Accutane, extreme fatigue --> 5 months off, developed cold sores for the first time in my life. I did nothing different in my life and my life style is healthy all along. I do stress a lot and I always do --> 7 months off Accutane, major life threathening depression mainly because of my hair loss problem, also started to have scalp tingling and ear ringing.
I have a feeling that Accutane also wrecks my ability to handle stress.
When I asked my derm, why me? He was like, well, you ARE very small so Accutane probably had a very long-lasting effect on you.
Edited by samantha303, Today, 11:54 AM.