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Repairing the long-term damage from Accutane

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#4521 MovingOn

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Posted 06 March 2014 - 05:09 PM

I am a woman lol. But yes low libido is something i struggle with



#4522 volcom3453

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Posted 06 March 2014 - 11:58 PM

I'm in the process of treating my chronic adrenal fatigue in hopes it can help restore other issues.  Will update that as well - just wanted to say it's hopefully going to be good news in a month or two!



#4523 Crank92

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    I've recovered fully I believe from the emotional blunting and fatigue. The gastric issues are continuing to improve with the SCD diet. The sexual dysfunction and associated ED is improved with cannabis therapy (read from page 200 onwards for plausible biological mechanisms). The genital numbness persists, for now.

    I still plan on doing an extended fast for the purported benefits.
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Posted 07 March 2014 - 03:27 PM

@anonyy,

 

Where and how can I do this Isotherapy?! It makes sense let me know please.


Isotherapy uses the philosophy of "like cures like", therefore to cure accutane sides - take more accutane. There's slightly more to it than that. But the absurdity in that statement should be obvious. 

If you want more info I would PM anonny, he'll also tell you that dipping your balls in hot jam is useful for hair loss.



#4524 Dubya_B

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Posted 07 March 2014 - 09:42 PM

Considering there are trace amounts isotretinoin/Accutane/13-cis-retinoic-acid found in blood as a by-product of retinoid metabolism, we are all always undertaking natural isotherapy.

 

....We've all tried it and it doesn't work.

 

The one nice thing is that since it doesn't do anything at all, there is absolutely no risk of side effects from isotherapy/homeopathy.


Edited by Dubya_B, 07 March 2014 - 09:42 PM.


#4525 Dubya_B

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Posted 07 March 2014 - 10:08 PM

For those of you who are sick of playing games, able to make the trip, and ready to take action, the date, times, and locations of both demonstrations are set:

 

 

On April 25th, 2014


The United Kingdom protest will begin at 7:30am
GMT at the following address:


Roche Products Limited (Pharmaceuticals)
Hexagon Place
6 Falcon Way, Shire Park
Welwyn Garden City
AL7 1TW
United Kingdom

 


The United States protest will begin at 7:30am EST at the following address:


FDA White Oak Campus
11120 New Hampshire Ave,
Silver Spring, MD 20904

 

(On the island at the intersection of Mahan and New Hampshire.)
7:30 would be the ideal time to be there, but please try to make it before 8:30. If you can't make it early you would still be more than welcome at any time.
If you have any friends or family who would be interested in making the trip with you, they are invited too!

A small temporary forum has also been created for discussion of finer details and transportation and hotels:
http://accutaneprote...forumotion.com/

Look forward to seeing you there!



#4526 Gladiatoro

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Posted 08 March 2014 - 08:04 AM

A fitting place for a demonstration of another approved drug courtesy  of the  FDA  a.k.a the Fear and Death Administration.



#4527 haileylyn95

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Posted 08 March 2014 - 03:12 PM

I was on accutane this last year for 9 months. Last week I was diagnosed with multiple sclerosis. When they looked at the lesions on my brain on and MRI they found that all 7 of them formed during the last 6 months of my Accutane course. I'm only 18 which seems to be really young to be diagnosed with MS. I haven't been able to find a huge amount of evidence linking accutane with MS but I have no family history and had no problem before accutane. Has anyone else been diagnosed with MS? Does anyone know of any solid links between the two?



#4528 Gladiatoro

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Posted 08 March 2014 - 10:09 PM

I'm sorry to hear that hailey , go to natural news .com there is lots of info there that can help just type in MS on the search bar up top , good luck.



#4529 acne1776

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Posted 09 March 2014 - 02:59 AM

Sorry to hear about that Haley. Unfortunately i have heard about accutane causing MS and you can find similar stories by a google search. However, Cannabis Oil is very effective in treating MS as you can see in the video below.

 



#4530 haileylyn95

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Posted 09 March 2014 - 03:10 AM

I looked into cannabis oil when we first started suspecting MS, even before it was officially diagnosed. I am happy to say that did provide a lot of relief and may be something that I continue. 



Sorry to hear about that Haley. Unfortunately i have heard about accutane causing MS and you can find similar stories by a google search. However, Cannabis Oil is very effective in treating MS as you can see in the video below.

 

I looked into cannabis oil when we first started suspecting MS, even before it was officially diagnosed. I am happy to say that did provide a lot of relief and may be something that I continue. 



#4531 anonyy

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Posted 09 March 2014 - 01:03 PM

@anonyy,

 

Where and how can I do this Isotherapy?! It makes sense let me know please.


Isotherapy uses the philosophy of "like cures like", therefore to cure accutane sides - take more accutane. There's slightly more to it than that. But the absurdity in that statement should be obvious. 

If you want more info I would PM anonny, he'll also tell you that dipping your balls in hot jam is useful for hair loss.


You are pathetic, poor kid. Learn some physiology and came back to talk with me if you want, but right now you are just stupid and ignorant. I can't really believe that people can be so dumb really, you try to help them and they spit on you when you aren't there, poor human race with people like you. 

Isotherapy isn't a necessity, its just to speed up the process and has nothing to do with taking more accutane, as there is no more molecule in it. And it's not even 5% of the process and what i've talk of, i don't get why you are still focused on that.
I can't find any link between dipping balls and hair loss, sorry.
Next time you want to argue with me please use some more intelligent answers, thanks.

But yea i understand, you prefer taking cannabis and others drugs finding a cure to not take your responsability like a little kiddy, completely ignoring how the human body work. Continue that way it will be funny to see you whimper over and over again.

I will repeat it, accutane main problem is that he destroy the intestine, where 80% of the neurotransmitters are made, those intestine are the main filter too, accutane render it inflamed/hyperpermeable so if you continue to eat trashy food, specially gluten, dairy & refined/transformed foods you will be forever sick. There is some liver, congestion and adrenals matter but i will not tell everything again.


Edited by anonyy, 09 March 2014 - 01:16 PM.


#4532 Crank92

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    I've recovered fully I believe from the emotional blunting and fatigue. The gastric issues are continuing to improve with the SCD diet. The sexual dysfunction and associated ED is improved with cannabis therapy (read from page 200 onwards for plausible biological mechanisms). The genital numbness persists, for now.

    I still plan on doing an extended fast for the purported benefits.
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Posted 09 March 2014 - 01:32 PM

 

@anonyy,

 

Where and how can I do this Isotherapy?! It makes sense let me know please.


Isotherapy uses the philosophy of "like cures like", therefore to cure accutane sides - take more accutane. There's slightly more to it than that. But the absurdity in that statement should be obvious. 

If you want more info I would PM anonny, he'll also tell you that dipping your balls in hot jam is useful for hair loss.


You are pathetic, poor kid. Learn some physiology and came back to talk with me if you want, but right now you are just stupid and ignorant. I can't really believe that people can be so dumb really, you try to help them and they spit on you when you aren't there, poor human race with people like you. 

Isotherapy isn't a necessity, its just to speed up the process and has nothing to do with taking more accutane, as there is no more molecule in it. I can't find any link between dipping balls and hair loss, sorry.
Next time you want to argue with me please use some more intelligent answers, thanks.

But yea i understand, you prefer taking cannabis and others drugs finding a cure to not take your responsability like a little kiddy, completely ignoring how the human body work. Continue that way it will be funny to see you whimper over and over again.

I will repeat it, accutane main problem is that he destroy the intestine, where 80% of the neurotransmitters are made, those intestine are the main filter too, accutane render it inflamed/hyperpermeable so if you continue to eat trashy food, specially gluten, dairy & refined/transformed foods you will be forever sick. There is some liver, congestion and adrenals matter but i will not tell everything again.


Good to see you back friend, missed you!

I will follow you down the rabbit hole of ad hominem attacks, more for my own catharsis than anything else.

So we've gone through the physiology aspect already. To be honest this whole thing is cyclical. I've said you speak the truth, but you speak so much rubbish alongside it is why many regard your posts as irrelevant. It's like searching for a needle in a pile of sh*t.

Alongside this, your a raging hypocrite! In its most literal sense. I presume I need to provide you with the evidence as you seem blind to your own flaws. "you try to help people and they just spit on you", so what are you doing are you sinking to my level, or have you always been down there? A look back over your previous post posits the latter. If anything you're spitting up at people.

I've used science anonny to argue with you. It doesn't work. 

Another hypocritical point as you yourself tried cannabis. But hey guess what? I continue to improve whether or not I have your blessing. 

Anyway let's get to the meat of it, you pursue the ad hominem attack then I'll join in. Anonny I speculate you're some unemployed emaciated circle-jerking muppet, that or you spend the majority of the day beating off in a sock. The fact you have recovered and spend so much time on here, as compared to literally no-one else who has recovered is suggestive that I may be at least close to the truth. I also imagine I've managed to 'get lucky' with a full on flacid dick more than you have for the entirety of your existence. Actually I'll add to that, the last vagina you touched was probably the one you came out of.

If you feel like continuing the keyboard warrior mentality, PM me and spare everyone else OUR childish bickering. As I am fully aware I'm being juvenile now. Apologies to the rest of you, but I need a vent. It's been a month now of a better functioning dick and a libido and I haven't seen the gf in 2 weeks, I'm getting worked up.



#4533 anonyy

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Posted 09 March 2014 - 02:24 PM

Tell me about the rubbish please, it's easy to say things like this without any more informations.
You didn't used science at all to argue with me, maybe some pseudo-scientific url full of misinformation but they don't really count. I didn't heard any solution from you except taking cannabis for your dick, i believe people deserve better informations than that don't you think?
I'm everytimes here? i don't believe so.
Sadly no i won't take that to pm as you choosed to begin to insult on the post with no reason when i was off here. And i don't really care about you, i only care about your false information about what i've said.
I see that you have nothing intelligent to say, you are taking this personnaly starting to argue about my private life, what weak people do.
 

Anyway if you want to believe that everything is genetic, that disease came from no reason and you need chemicals drugs or cannabis to cure you and that diet as no relation to "diseases" continue to believe that, after all what do i care if you doesnt want to understand human physiology, you will be the only one who will suffer from it.

I just tried to bring some hope here, with people like you so negative and so "everything is genetic we are doom" that some people kill themselves believing those bullshit, you are all responsible for that. I think it's a mistake to try to help people after all, they only see what they want to see and will do their best to try to discredite what you say for fun, cause i imply taking responsability and self-education about physiology and health, then arguing about your job or the price of your car to "insult" you, poor humanity, really.
Trying to discredite what i came here to say, that you can regenerate yourself from accutane, that you are not doom, that you can get back your life, and you focus on one little thing, isotherapy to discredite all of that, physiology and some techniques (that don't even came from me), and then come to talk about if i have a job, really, you are such a little kiddy it's unbelievable.


Edited by anonyy, 09 March 2014 - 03:07 PM.


#4534 Dubya_B

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Posted 09 March 2014 - 02:38 PM

I was on accutane this last year for 9 months. Last week I was diagnosed with multiple sclerosis. When they looked at the lesions on my brain on and MRI they found that all 7 of them formed during the last 6 months of my Accutane course. I'm only 18 which seems to be really young to be diagnosed with MS. I haven't been able to find a huge amount of evidence linking accutane with MS but I have no family history and had no problem before accutane. Has anyone else been diagnosed with MS? Does anyone know of any solid links between the two?

Very sorry to hear what happened. On the other hand, it is good that you found something that helps. Offers some hope in slowing or stopping this.

 

Can I ask if it appears these lesions have ceased to continue after you quit taking Accutane?

 

A few of us here think Accutane may cause such problems by decreasing a neurosteroid called allopregnanolone.

This neurosteroid tends to be much lower in patients with MS than controls and is thought to be responsible for maintaining the myelin sheath around neurons.

I suppose you already know destruction of myelin sheathing is involved in the appearance of MS lesions.



#4535 haileylyn95

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Posted 09 March 2014 - 04:46 PM

I was on accutane this last year for 9 months. Last week I was diagnosed with multiple sclerosis. When they looked at the lesions on my brain on and MRI they found that all 7 of them formed during the last 6 months of my Accutane course. I'm only 18 which seems to be really young to be diagnosed with MS. I haven't been able to find a huge amount of evidence linking accutane with MS but I have no family history and had no problem before accutane. Has anyone else been diagnosed with MS? Does anyone know of any solid links between the two?

Very sorry to hear what happened. On the other hand, it is good that you found something that helps. Offers some hope in slowing or stopping this.

 

Can I ask if it appears these lesions have ceased to continue after you quit taking Accutane?

 

A few of us here think Accutane may cause such problems by decreasing a neurosteroid called allopregnanolone.

This neurosteroid tends to be much lower in patients with MS than controls and is thought to be responsible for maintaining the myelin sheath around neurons.

I suppose you already know destruction of myelin sheathing is involved in the appearance of MS lesions.

It is too soon to tell if the lesions have stopped because I have only been off accutane for a little over a month. 

 

I'll have to look into what you've said. Because I was only diagnosed a week ago I haven't done much research yet. I've just been trying to come to terms with everything art this point. I know that the lesions are caused by myelin destruction, but I don't know anything about allopregnanolone. 



#4536 Dubya_B

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Posted 09 March 2014 - 09:06 PM


 

I'll have to look into what you've said. Because I was only diagnosed a week ago I haven't done much research yet. I've just been trying to come to terms with everything art this point. I know that the lesions are caused by myelin destruction, but I don't know anything about allopregnanolone. 

 

There's really no solid evidence showing that Accutane can lower allopregnanolone, only that it can decrease the activity of one of the enzymes responsible for allopregnanolone production, and possibly a second enzyme also involved in its production. There has also been a study showing lowered allopregnanolone levels in the cerebrospinal fluid of patients who used a drug with a similar effect and an overlapping side effect profile with Accutane.

 

Were there any particular symptoms that prompted your doctors to perform an MRI or suspect MS?

Did you become severely depressed or notice a lack of emotion during or soon after your course of Accutane?

 

EDIT: Has this been reported to the FDA and/or the manufacturer?


Edited by Dubya_B, 09 March 2014 - 10:06 PM.


#4537 oli girl

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Posted 09 March 2014 - 09:32 PM

I am sooo sorry to hear this! I us talking back in the fall. If I remember correctly our parents didn't want you to stop Accutane. I will have to send you some info on M.S. and diet too that should help you. There are some reports of M.S. and people taking Accutane even going back to the 80's. Stay Strong!



#4538 haileylyn95

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Posted 09 March 2014 - 10:29 PM

Dubya_b thank you for that information. Everything I can learn is helpful. They did the MRI because I started getting incredibly painful headaches that had visual disturbances. sometimes everything would flip upside down and sometimes I just got double vision. They only last for 2-4 minutes but they are incredibly painful. They did the MRI and found the lesions. After that they started looking at other things happening to me. I had gotten depressed but I have a history of depression so I thought it read just that. I was also having balance problems and some back pain. All of that started about 4 months into my Accutane course but I did not really think anything of it all until recently. I also had numbness in my hands, feet, and face. That actually started after only 6 days on Accutane. They originally thought it was pernicious anemia but they now think it is related to the MS because the nerves are not damaged in my hands and feet but the numbness has continued even though my b12 has gone up. I have not reported it to the FDA or the manufacturer yet. How do I even go about doing that? 

 

Oil girl I remember us talking as well. I did want to stop but ended up continuing and finishing my course. I was pressured into it by family but I really wish I had stopped. 



#4539 Crank92

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    I've recovered fully I believe from the emotional blunting and fatigue. The gastric issues are continuing to improve with the SCD diet. The sexual dysfunction and associated ED is improved with cannabis therapy (read from page 200 onwards for plausible biological mechanisms). The genital numbness persists, for now.

    I still plan on doing an extended fast for the purported benefits.
  • Joined: 01-October 13

Posted 10 March 2014 - 02:23 AM

Haileylyn95 I am so sorry to hear this! Honestly wish I could be of more help, but I do not know nearly enough to offer anything of substance. I'll have a look around when I have some free time, but to be honest I think Oli Girl will probably send you everything I could find. That and what acne1776 posted about!

In regards to reporting side effects, just see my 'signature' below you can report it to 4 different sources including the NHS, the FDA, Roche and Rxisk. I'm not sure where you're from but this may be something that you want to look into legal compensation if possible!

 



#4540 anonyy

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Posted 10 March 2014 - 03:37 AM

M.S is just toxins/acids (same thing) attacking the myelin, they are certainly brought from diet (dairy, grains, refined/transformed food & meat mainly) or it can be mercury if you have amalgams or took some vaccine during accutane. I had this problem with mercury, accutane enhanced my amalgam poisoning symptoms by 500%. Aluminium can be a problem too i believe. Everything that exhaust the nervous system like accutane or huge stress/emotional choc can cause toxins release. Herbs for your emunctory, specially kidney and a diet with only raw fruits & vegetables, specially a lot of fresh juiced raw vegetables for the bioavailable minerals -you are surely depleted- (juiced cause raw fiber too harsh with an inflamed intestine thanks to accutane), with that you should see huge improvement in less than 6month with that.

Interesting video for you: http://tv.greenmedin...ons-wheelchair/
its a little more complicated for accutane, you need a stronger detox with some herbs & should avoid meat but it's close to it.

About mercury only the cutler protocol is effective. For aluminum malic acid (apple for example), vitamin C & magnesium are the solution.


Edited by anonyy, 10 March 2014 - 04:00 AM.





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