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Repairing the long-term damage from Accutane

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#4181 Crank92

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  • Interests:Took (Ro)Accutane. 10 days 20mg once per day in October 2012 (200mg total). Sides - Severe emotional blunting, Severe fatigue, IBS, Sexual Dysfunction, Genital numbness.

    I've recovered fully I believe from the emotional blunting and fatigue. The gastric issues are continuing to improve with the SCD diet. The sexual dysfunction and associated ED is improved with cannabis therapy. The genital numbness persists, for now.

    If you would like my research documents on Accutanes link to sexual dysfunction/ED and/or how cannabis could be beneficial PM me your email address. The former document is very handy for convincing douchebag Dr's your sides are legitimate.
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Posted 02 January 2014 - 03:04 PM

I read something about the endocannabinoid system regulating the neuroendocrine system so I think that is why it works for us. Unfortunately that could mean we may have to be on a maintenance dose (not a full dose but a little bit before bed) of this stuff for life. Hopefully I am wrong. If anyone talks to taneabomination check in to see if he is still cured. Otherwise I will probably be moving to Colorado. As for which cannabinoid we need I have no idea. I think Cranks idea of a 1:1 ratio is probably the best bet. I am very sensitive to THC so I probably will be looking for a 2:1 ratio of CBD to THC.


Taneabomination messaged me once (about 2 weeks ago), still awaiting another reply. But it seems he is still doing swell and from what I could discern from his one brief message he is no longer using it. Indeed, I'm seriously considering a 3 month vacation to Colorado. I've got some money saved up for a big investment like another degree or a deposit on a house but I believe my health to be a worthy investment too. For now I think despite the minimal benefits if any I'll opt for a vapouriser just to chill out and consume the after vaping bud with food.





Also tanedout I've read a few places now that the brain starts developing tolerance for cannibinoids

http://www.cancer.go...fessional/page6

so you have to continually and gradually increase the dose to get a response. Same with anything really alcohol, caffeine etc.

 

I don't think that would really be a factor in this instance though, because it's not like we're getting stoned on THC (which would build up tolerance), I think it's more likely we've suffered genetic changes due to accutane, and some of, or one of the cannbinoids may be reversing a gene which has been down-regulated (aka 'switched off') by accutane resulting in our sides.

Research has shown that CBD has been shown to potentially 'switch off' the gene responsible for cancerous tumor metastasis - mentions it on the wiki page as well actually http://en.wikipedia....iki/Cannabidiol

 

If RSO does indeed result in a 'cure' like has been experienced by the 2 known users then I think they've probably had a gene(s) which has been down-regulated, 'switched back on' or 'reset back to default' if you get what I mean. Once that has happened, the affected bodily functions then slowly return to normal.

 

Is anyone else following this thread currently using RSO, or planning on doing so other than myself and Crank?! I know it's hard to get hold of but not impossible?!


Ayy I read that one of the endocabbinoid systems functions is regulation of homeostasis which clearly has been thrown off by 'tane. So yea you're probably right, although it still seems prudent to up the dose to as much as can be tolerated - what the RSO protocol prescribes anyway. Both taneabomination and accutaneispoison both weren't working during their periods of RSO so I presume they followed that regimen. So not sure if everyone can do that!


Do your part to raise awareness:

For new individuals PM'ing me, I will reply IF you report all your side effects to the links below and screenshot each one once you have completed it. PM me with your email and I will message you and you can send the screenshots over with whatever questions you like.

Report side effects to organisations here:

Rxisk
https://www.rxisk.or...ects/About.aspx
FDA
https://www.accessda...umer.reporting1
NHS
http://yellowcard.mhra.gov.uk/
Roche
http://www.roche.co....k/xxxcontactxxx

Report side effects to accutane sympathetic MP's here (UK):

mail@nickharveymp.com

vaizeye@parliament.uk

I encourage people to copy this signature into their own.


#4182 MovingOn

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Posted 02 January 2014 - 04:37 PM

vaping is the way to go. that is all. if you cannot get the RSO. I've kind of given up on the venture for right now do to financial issues, but it will manage symptoms appropriately.  I wouldn't overdo it though because it can mess with hormones in higher doses.



#4183 Gladiatoro

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Posted 02 January 2014 - 06:32 PM

Yeah I watched it nasty indeed I watched it live , I have seen most ufc's but I never saw anything like that Anderson Silva lower leg just buckled and turned

80 degrees look gruesome the bone in his leg completely broke ,  WOW when you watch the slow motion man... most say his career is over very likely recovery could be anywhere from 1 to 2 years and he may never fight again .... a great fighter no doubt but a sad way to end a career.

Interesting journal article I came across whilst revising:

http://pmj.bmj.com/c...3.full.pdf html

Take a guess for the longest fast achieved before clicking on the link. It's long! biggrin.png

Oh and Gladitoro - completely off topic did you see UFC 168? NASTY. (purposely avoided any spoilers just in case you didn't catch it)



#4184 Ottovisual

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Posted 04 January 2014 - 02:54 PM

Really curious about RSO.

Can anyone update on that ?

#4185 tanedout

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Posted 05 January 2014 - 06:57 AM

Really curious about RSO.

Can anyone update on that ?

 

Well 2 guys on this forum have made full recoveries using it and there is no reason to doubt that both are totally genuine. In both cases it hasn't been a quick fix, and has taken months to fully recover, but they have recovered. Here is the first recovery detail from AccutaneIsPoison (from page 108 of this thread);

 

Hello everyone i am finally back after a few months with amazing news. I HAVE FOUND THE CURE!!!!!

THE CURE IS CANNABIS OIL! I posted about this months ago while i still did not know much on the topic now i have just about read every single thing on the internet and watched just about every testimonial and video on youtube. THIS OIL REVERSES CHEMO DAMAGE (accutane is poison chemo drug) AND IT CURES JUST ABOUT EVERY MEDICAL ISSUE!

I started taking the oil for ONLY A FEW DAYS and immediately i was coming back to my old self FASTER THAN EVER! Now i can i say i am 100% cured back to my old self THIS OIL IS AMAZING. If you live in the united states you see the huge explosion of legalization because people are finding out how AMAZING this plant is and how it works medical miracles for literally all conditions!

Here is some quick science-

Why does it cure or treat literally every medical issue and reverse chemo damage? Thank you ENDOCANNABINOID SYSTEM

Cannabinoid Receptors are in our skin, brain, immune system, intestines, liver, spine, ribs, white blood cells, & bone marrow (STEM CELLS) etc. Without the 600 Million+ year old Endocannabinoid System*, Stem Cells would act like a car without a driver. *Dr. Guy, Executive Chairman of GW Pharmaceuticals, London, UK

NOW, please watch these videos to see tons of further video proof of this amazing medicine!

This is HUGE playlist i designed with video after video of proof how amazing this medicine is!

https://www.youtube...._UMTtA6&index=1

It is so hard for me express how amazing this medicine is, it LITERALLY brought me from an accutane-destroyed bed ridden person back to my old self in no time!

IT IS NOW LEGAL IN 2 STATES IN THE U.S. soon to be much more so if you want to cure yourself travel there!

I can answer any questions anyone has and i want EVERYONE to know about this ASAP. THIS IS THE CURE

 

And this is the second from TaneAboninaton who then followed the same protocol, and it worked for him too (page 197 of this thread);

 

Is anyone reading this forum who suffers from sexual dysfunction due to Accutane recovered or shown improvements?

 

I was one of those unfortunate people.  I say "was" because I eventually recovered sexual function & libido returned too.

 

I must have tried a million things, spent thousands of dollars, seen doctors who shrugged their shoulders at me, also tried fasting & switching to organic, expensive supplements, etc. etc. etc. But anyone reading this needs to refer to December 2012 of this incredibly long forum.  Someone named AccutaneIsPoison posted his remedy - I tried his proposed remedy for about for 5 months, and improvements came slowly.  Also a great remedy for anyone suffering from depression (which isotretinoin can cause to the point of suicide).  Today, I'm able to have sex with my wife without use of viagra, cialis or any of that other crap.  Post accutane - I was quite dead and had no interest in sex at all.

 

Anyone interested go back to Nov/Dec 2012 posts and read the posts by AccutaneIsPoision and the research he provided on this forumj - this is real medicine and should be taken seriously.

 

I'm not aware of anyone else who has tried this protocol yet, but myself and at least one of the other guys on here are looking to follow suit.



#4186 Ottovisual

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Posted 05 January 2014 - 04:11 PM

Great.

I suffer from

Dry lips
Hair loss
Shoulder grinds

And some other symptons.
My main worry is the fact that it maybe gets worse over time. It kills you from the inside out.

I did a 5 month course with very mild symptons. Got a clean skin, perfect !
Yet 3 years after the course, I took multi vits to fight unusual slow nail growth and cracked lips.
Then it looked like it activated some accutane side effects.
My hair started falling out so after some searching on the internet I made the accutane link.

Now im taking Vit E, Taurine and Biotin.
The RSO looks promising.
I found this

http://www.apollyon....l-cannabis-oil/

It is indeed low on THC which is the main "fighter" yet it is relatively high on CBD.
Ill give this a try and keep you guys posted.
It is not the same as RSO.
Hopefully the CBD proves that nature is all we need.

#4187 Crank92

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  • Interests:Took (Ro)Accutane. 10 days 20mg once per day in October 2012 (200mg total). Sides - Severe emotional blunting, Severe fatigue, IBS, Sexual Dysfunction, Genital numbness.

    I've recovered fully I believe from the emotional blunting and fatigue. The gastric issues are continuing to improve with the SCD diet. The sexual dysfunction and associated ED is improved with cannabis therapy. The genital numbness persists, for now.

    If you would like my research documents on Accutanes link to sexual dysfunction/ED and/or how cannabis could be beneficial PM me your email address. The former document is very handy for convincing douchebag Dr's your sides are legitimate.
  • Joined: 01-October 13

Posted 05 January 2014 - 04:45 PM

Off topic; one of my mates mentioned he was on propecia the other day. Felt like pummelling his face for being such an idiot. Then realised I took accutane 
-_- Sent him a few links and told him to think about it.


Do your part to raise awareness:

For new individuals PM'ing me, I will reply IF you report all your side effects to the links below and screenshot each one once you have completed it. PM me with your email and I will message you and you can send the screenshots over with whatever questions you like.

Report side effects to organisations here:

Rxisk
https://www.rxisk.or...ects/About.aspx
FDA
https://www.accessda...umer.reporting1
NHS
http://yellowcard.mhra.gov.uk/
Roche
http://www.roche.co....k/xxxcontactxxx

Report side effects to accutane sympathetic MP's here (UK):

mail@nickharveymp.com

vaizeye@parliament.uk

I encourage people to copy this signature into their own.


#4188 grantyrob

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Posted 06 January 2014 - 01:26 PM

Hi guys,

 

I've been following this thread for a way so thought it was about time I posted.

 

I took accutane when I was 19 in 2010. I was on it for 5 months but cannot remember the dosage. Ever since I have  suffered progressively worse symptoms. The main ones are:

 

  • Hair loss
  • Dry skin
  • dry eyes
  • IBS
  • sexual dysfunction
  • neuropathy
  • depression and anxiety

 

I've tried just about every supplement. The only thing that makes me feel better is lots of exercise and using a sauna daily. Definitely keen to try cannibis oil.

 

I graduated with a pharmacology and physiology degree last year and know the important role endocannibinoids play in stem cell regulation. 



#4189 JTM88

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Posted 06 January 2014 - 08:02 PM

Aussieface, 

 

How long have you had insomnia?  It's been almost 7 months post accutane, and my insomnia has gotten progressively worse.  These days, I average 1-2 hours of sleep a night max.  Lost a ton of weight.  The weird part is, I don't feel tired at all during the day time.  

 

Have you had any success with treating ur insomnia?  Any information is much appreciated. 

Currently on 20mgs for another 6-10 months for Acne/Rosacea.
I'm hoping to just stop after 6 months even on a low dose.
I have the ED, which sucks.
Constipation, which sucks.
Asthma problems
Joint pain, pretty bad as i work out alot
Insomnia [Really bad, probably be on Benzo's for the rest of my life]
Depression but not that bad the exercise really helps.
Ps ive had laser Pulse Dye and it was the biggest mistake of my life.
If you are acne prone stay away it will make it worse, beyond!



#4190 Gladiatoro

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Posted 06 January 2014 - 08:46 PM

When you say you use a sauna what kind ? Infared / traditional ? I am curious ..... your right with the exercise that works ....

Hi guys,

 

I've been following this thread for a way so thought it was about time I posted.

 

I took accutane when I was 19 in 2010. I was on it for 5 months but cannot remember the dosage. Ever since I have  suffered progressively worse symptoms. The main ones are:

 

  • Hair loss
  • Dry skin
  • dry eyes
  • IBS
  • sexual dysfunction
  • neuropathy
  • depression and anxiety

 

I've tried just about every supplement. The only thing that makes me feel better is lots of exercise and using a sauna daily. Definitely keen to try cannibis oil.

 

I graduated with a pharmacology and physiology degree last year and know the important role endocannibinoids play in stem cell regulation. 



#4191 volcom3453

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Posted 06 January 2014 - 10:35 PM

Hi fellow sufferers-

 

I wanted to drop by and share my story and difficulties in detail in hopes I share some more obscure problems, to find if people deal with those as well.  In the meantime I will be reading all of this great thread created by Indy.  If you go back to my post history you will notice I haven't visited much recently aside from a few post accutane updates regarding my perceived hair loss (from my recollection).  It's now been just about 4 years since I took my final pill of Accutane (6 months of I think 40-60mg) and I am a light dude.  I had the typical side effects most people deal with during the treatment, but seeing my face and body clear was so refreshing.  In retrospect I have notice the decline of a number of things in my health the years following immediately after (1st, 2nd yrs).

 

Fast forwarding to today, I'm halfway to 25 years old.  The physiological and mental problems I currently deal with are very debilitating.  Unfortunately, many of us share these problems.  I will outline the problems I currently deal with that I believe is caused by the toxicty or strongly influenced by the drug.

 

Severe dry eye, photophobia

When I got contacts at age 18 it really changed my confidence and made me a more outgoing, happy person.  As of pretty much last Winter my eyes are no longer able to handle wearing soft contact lenses.  Because of this I've reverted back to glasses and my confidence has decreased because my eyes are still always irritated.  I have an extreme sensitivity to light.  I'm constantly squinting because of the lack of moisture (MGD probably) in my eyes.  I believe accutane could have shrunk glands or caused inflammation that affects my meibomian glands.  I've had multiple schirmer's tests with fair results, opthamolists don't know what the deal is.  Took restasis two courses (1 3 month which I stopped due to irritation when wearing lenses, only to find out my doc never told me they can't be mixed).  Second one lasted nearly 6 months and an opthamologist took me off it.  Might as well since I don't trust it long term. 

 

I am currently researching demodex mites as a cause of blepharitis and going to be starting a rigorous treatment in hopes of improving my eye health, and eventually I am seeking a scleral lens fitting.  I recommend looking into demodex because it could be more prevalent in accutane patients with weakened immune systems. 

 

Dry mouth, nasal passage and throat

Mouth is pretty much constantly dry.  I cannot speak for very long before having to force saliva out to keep my speech somewhat normal.  My nose is always dry and feels inflamed inside the nostrils, restricting breathing.  Throat is clenched and feels dry, irritated very often.  In regards to my mouth, my teeth are also very sensitive and often feel as though they are throbbing even when I am not consuming any food or beverage.  I'm worried about losing enamel and tooth decay from the lack of saliva in my mouth.  Also to note my teeth and scleras are very slightly discolred (blueish/yellow).  Potentially caused by long course of minocycline preceding the course of tane. 

 

Recent gastrointestinal issues

Since around September I've been hit with difficulties in my digestive and gastrointestonal system.  Very frequent bloating, from constipation and incomplete evacuation to sometimes the urge to use the restroom 4-5 times a day.  Because of this I've developed internal hemmorhoids which I have been trying to deal with as well.  My stomach feels weak.  After many meals now  (even with a new healthy diet) I don't really feel too well.  Uncomfortable, feels like my body is struggling just to break down the food and get it through my system.  As someone that has never dealt with 'stomach aches' even after eating terrible food, or consuming plenty of alcohol, this is not fun to deal wtith.

 

Fatigue, soreness

There was a point about 2 years ago where I was actually feeling pretty well.  I was exercising routinely (weightlifting) and consuming protein powders and stuff like that.  Put on weight, was eating plenty, had enough energy to keep me going.  Granted I do recall some joint pains, cranial pressure while lifting, etc. I was in the best physical shape of my life.  After starting my first real job in March of 2012 I have been, for the most part, inactive.  Hardly do anything more than scattered body weight exercises.  Little to no running.  It's a bad idea to become so inactive and I definitely believe my job complicates my problems even further, ranging from back pains, fatigue, and eye strain/dryness.  I've been taking a natural product by terry naturally called Adrenaplex in hopes that it may give me a boost.  I need to get properly tested for adrenal fatigue, however.

 

Changes in personality, emotions

I'm sure this is partly due to my physiological problems, but my overall state-of-mind is not good.  My position in life is great, but I am not very happy.  I can't help but believe it's large-in-part due to all of these issues occurring inside my body, but I've developed a wider range of anxiety issues - primarily social.  I have always wanted to be liked my whole life, but I never let myself get in the way as much as I do now.  I have high anxiety in many social situations accompanied by self-consciousness and confidence issues. 

 

I went from a kid and teenager who always wanted to be doing something to a young man that more often comes up with excuses to avoid various social situations.  I often feel as though I am out of body, perceiving myself in a very negative light which ranges from judging my appearance to my actions.  This in turn leads to people (probably) being turned off.  My paranoia is also helping my type this paragraph.  The physiological problems are quite the weight on me.

 

other various effects

-pitted nails w/ apparent change in veins under them (signals some sort of problem)                   

-poor blood circulation (ice-cold extremeties)

-change in hair texture and slight thinning (changed from wavy to curly, experienced T.E. while on accutane)

-potential intracranial hypertension

-more frequent allergic skin reactions resulting in strange bumps (often on forehead and chin)

-inflammation throughout body and thickening of skin

-feelings resembling mild arthritis in hand/fingers

-as noted on the first page, i've also experienced multiple occurrences of sickness (hangover) ready to vomit for ages and it seems like i have little bile in my gallbladder.  Obviously liver related and i'm sure it affects my intestines.

 

doctor visits

Told the derm that prescribed my accutane about my dryness problems and my belief it is linked to Accutane.  Well, you know her answer there.  Did suggest srojens syndrome which I received a blood test for (came back normal).  Yeah, in her mind it's totally possible for a young guy to get srojens-like symptoms randomly.  I wasn't convinced from a blood test so I eventually saw a rheumatoligist for also.  I had more tests, thyroid tests, all came back normal from what I heard.  He didn't acknowledge the possibility of the Accutane idea until I pestered him on my second (and last) visit to research it in his spare time and call me back.  The best he had to offer me was the assurance I would have to deal with these problems for life and sent a prescription to the pharmacy in my name "Evoxac" which I, in my head, kindly said fuck you and of course never got it.

 

I've seen an ENT about my problems and to her eye nothing looked wrong.  She however did agree with me that accutane could be the culprit.  Although it was little consolation, I was happy she wasn't thick-skinned enough to believe it had no impact on my body.  I've also visited 4 eye doctors, 1 optometrist, 2 opthlamologist and 1 doc that specializes in various eye conditions.  No thanks to them I have been treating my eye problems independently.  I do a warm compress at least two times per day (check out gel masks that make this easier), lid scrubs and now I will be trying tea tree products to keep my eyes extra clean.  I also have plugs in both of my tear ducts that don't really do shit. 

 

Sorry for such an awfully long post.  I still have more to share, believe it or not.  I hope at least a few people can read this and give me their thoughts or share or mutual problems.  I have a list of natural supplements I take, a rather good diet (i need to keep improving).......until next time.  Just wanted to say that this medication was not what I thought it was.  I gave it praise and it brought me fleeting happiness for clearing my skin.  I'd rather have acne than feel like I am walking dead every day (no pun intended).


Edited by volcom3453, 06 January 2014 - 10:37 PM.

Back in 2014 in hopes of learning and helping others restore their damage caused by Accutane.

Officially done with Accutane as of 01/05/10


#4192 grantyrob

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Posted 07 January 2014 - 06:56 AM

Traditional sauna. I've never used an infrared sauna so can't say whether that would be any help.

 

When you say you use a sauna what kind ? Infared / traditional ? I am curious ..... your right with the exercise that works ....

Hi guys,

 

I've been following this thread for a way so thought it was about time I posted.

 

I took accutane when I was 19 in 2010. I was on it for 5 months but cannot remember the dosage. Ever since I have  suffered progressively worse symptoms. The main ones are:

 

  • Hair loss
  • Dry skin
  • dry eyes
  • IBS
  • sexual dysfunction
  • neuropathy
  • depression and anxiety

 

I've tried just about every supplement. The only thing that makes me feel better is lots of exercise and using a sauna daily. Definitely keen to try cannibis oil.

 

I graduated with a pharmacology and physiology degree last year and know the important role endocannibinoids play in stem cell regulation. 



#4193 Crank92

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  • Interests:Took (Ro)Accutane. 10 days 20mg once per day in October 2012 (200mg total). Sides - Severe emotional blunting, Severe fatigue, IBS, Sexual Dysfunction, Genital numbness.

    I've recovered fully I believe from the emotional blunting and fatigue. The gastric issues are continuing to improve with the SCD diet. The sexual dysfunction and associated ED is improved with cannabis therapy. The genital numbness persists, for now.

    If you would like my research documents on Accutanes link to sexual dysfunction/ED and/or how cannabis could be beneficial PM me your email address. The former document is very handy for convincing douchebag Dr's your sides are legitimate.
  • Joined: 01-October 13

Posted 07 January 2014 - 08:35 AM

Hi guys,

 

I've been following this thread for a way so thought it was about time I posted.

 

I took accutane when I was 19 in 2010. I was on it for 5 months but cannot remember the dosage. Ever since I have  suffered progressively worse symptoms. The main ones are:

 

  • Hair loss
  • Dry skin
  • dry eyes
  • IBS
  • sexual dysfunction
  • neuropathy
  • depression and anxiety

 

I've tried just about every supplement. The only thing that makes me feel better is lots of exercise and using a sauna daily. Definitely keen to try cannibis oil.

 

I graduated with a pharmacology and physiology degree last year and know the important role endocannibinoids play in stem cell regulation. 

 
Welcome,

Glad to have another member with a relevant degree to help make heads or tails of some of the links posted here. Not that it's impossible as can she shown by many members here.

I strongly agree that exercise does have benefits, but for most it seems it's not a cure in itself. Seems to be a dose-relationship between exercise (specifically aerobic I find) and my mood and even the sexual dysfunction to an extent.

IBS wise I can offer a bit of advice. VOLCOM3453 (might benefit you too) If you are like most accutane users you will have undergone extensive anti-biotic usage and will most likely have thrown the gut flora balance completely off kilter! 'Tane could have been the final straw. In an effort to rebalance it try the Specific Carbohydrate Diet (SCD) or Gut & Psychology Syndrome (GAPS) they're both essentially the same. They're developed for Chrons, Ulcerative Colitis and antibiotic induced diarrhoea. You'll know within 1-2 weeks if it's working (even as short as 2 days if you're lucky). Regulars on the forum might be a bit bored of me repeating it. But this thing keeps me 100% regular. Throw in anything else e.g. some rice/bread/potatoes I'll be bloated, enjoying some diarrhoea etc. It's getting better now which is great. However, it seems 'tane has messed up other peoples guts in different ways JoBuchignagi seemed to be very fat sensitive and couldn't consume to be what seemed more than a couple of grams of fat at a time. Try what you like and see what works. If you've got any questions on it, fire away.
If you doubt the efficacy of specific diets, go check the amazon reviews for the SCD. The original book for SCD is 'Breaking The Vicious Cycle' by Elaine Gottschall. Sure it's not peer reviewed but it's still evidence of sorts.

Cannabis Oil seems to be the best bet for the neurological problems currently. For the others I'm not yet sure! I've read about people curing their Chrons disease with RSO and I've seen mention of the endocabbinoid system within scientific literature in regards to Chrons. Seems to be fairly broad spectrum. Is there any chance you happen to live in the US, either somewhere it would be possible to get a medicinal use card - or Colorado? We really need more case studies on RSO in regards to accutane sides. Although 2 out of 2 is this far promising!


Edited by Crank92, 07 January 2014 - 08:38 AM.

Do your part to raise awareness:

For new individuals PM'ing me, I will reply IF you report all your side effects to the links below and screenshot each one once you have completed it. PM me with your email and I will message you and you can send the screenshots over with whatever questions you like.

Report side effects to organisations here:

Rxisk
https://www.rxisk.or...ects/About.aspx
FDA
https://www.accessda...umer.reporting1
NHS
http://yellowcard.mhra.gov.uk/
Roche
http://www.roche.co....k/xxxcontactxxx

Report side effects to accutane sympathetic MP's here (UK):

mail@nickharveymp.com

vaizeye@parliament.uk

I encourage people to copy this signature into their own.


#4194 Roland1968

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Posted 07 January 2014 - 09:57 AM

Hi all,

 

my main problem is the dry, thin and sensitive skin even after 10 years post accutane, Do you still think, that RSO would help in my case?



#4195 acne1776

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Posted 07 January 2014 - 10:24 AM

RSO absolutely cures Crohns I've seen several videos confirming it. I think the real question is whether the sexual dysfunction, anxiety, and depression (all stemming from the same disorder) is a neurological issue in itself or whether Accutane just screwed our hormones and neurosteroids synthesized from hormones up so much that we have cognitive and sexual problems as a result of that. That is something that the PFS foundation is working on but the answer would help determine the optimal amount of CBD in the RSO.

 

@Roland I do think RSO would help with your skin. I think the real question is if you should apply it topically or ingest it. I would probably lean towards ingesting it.


Edited by acne1776, 07 January 2014 - 10:25 AM.


#4196 Roland1968

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Posted 07 January 2014 - 11:04 AM

I agree - ingesting is the way to go. I just need to get a hold of Rick Simpson Oil. RSO is illegal in Germany but I am already working on a possible source. And then I will try it and will update all of you how it goes.

 



#4197 anonyy

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Posted 07 January 2014 - 02:45 PM

The main interesting thing about (medicinal) cannabis for us is that it stimulate the nervous system. Nervous energy is what do action in our body, detoxification/elimination among them. With tired surrenals & low nervous energy the body can't do any action, he's trap in his own defects. Tired surrenals can cause sugar metabolism (& other problems) too. Long term side effect of accutane came from a congestioned body, a destroyed & hyperpermeable digestive system and mainly a bad intoxicating & acidifying diet. Cannabis is a great help but it's not enough.. you need to cleanse your body (liver, intestine, kidney detox by moritz or some other technique) & stop poisoning him with a bad diet to let your body do his job to repair himself. With low nervous energy the body can't do anything (especially repair), even more when all the energy is used to digest & endure the resulting toxicity of those crap enzyme-free/life-free full of toxins food especially: grains (specially modern wheat), legumes, meat, dairy, refined sugar & table salt mainly. It take time to get our health back so, don't give up and understand that it's possible but not with a closed mind & insufficient motivation.

Maybe what i'm saying will make some people angry (like always)... that you have your own responsability for your problems, but experience & testimony prove it's true. We can recover from accutane, all of us, there is no special person with special problems, all health problem have the same sources and are surmountable, even if they want you to believe that they are not with different complicated names and different crap synthetic treatment without explaining how the body really work and how to physiologically & intelligently help him.

I'm linking what i've already linked before: http://curezone.com/...usless_Diet.pdf
http://www.soilandhe...ygienedict.html

More (general information): http://www.andreasmo...congestion.aspxhttp://www.ener-chi....to-weight-gain/http://www.ener-chi....onal-imbalance/


Edited by anonyy, 07 January 2014 - 08:20 PM.


#4198 oli girl

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Posted 07 January 2014 - 09:55 PM

Volcano- I remember you pretty well! Have you had any lab work done recently? This is why I believe everyone should have labs work periodically who have multiple symptoms that resemble autoimmune.  

 I have to be honest with you that I had a lot of the same problems you did and add a few other strange things. Anyways, I had always had really dry eyes since about 4 months after Accutane. Though I finally got to a Rheum who did the schirmer test which should 0% production and inflammation. I had numerous of labs, saw the Rheum and then bam outside of my thyroid issues, possible sjrogren's, then all of sudden the dryness got worse, red eyelids, blurry vision and so and then all of sudden by a fluke with labs after years of okay sugar labs I got dx with type 1 autoimmune diabetes. I had gone for almost a year every month back and forth from Rheum to eye doctor etc. Started insulin and I produced a tear for the first time in 4yrs, my blepheritis cleared also.

 

Also, Restasis only works for those that have autoimmune induced inflammation that results in dry eye, outside of that it doesn't work and also it is not for long term use, if it doesn't work off the bat then it shouldn't be continued. Said so by my eye doc. However, I don't take it and only did first off Accutane and wouldn't suggest it.  

I am sorry your not doing better!



JTM88 - Have you tried melatonin? You can also try Cherry Juice 100% concentrated in water which a natural form of melatonin :) I would not suggest Benzo's that Assuie claims he takes.


Edited by oli girl, 07 January 2014 - 09:52 PM.

The secret of health for both mind & body
is not to mourn for the past, not to worry about the future, or not anticipate troubles, but to live the present moment wisely and earnestly.
The Buddha

#4199 shadeo14

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Posted 08 January 2014 - 08:06 AM

On the topic of RSO, anyone hear of this site www.the-former-cana-med.ca ? It was recommended by the original RSO creator, but I can't help but think the site is a scam..



#4200 Crank92

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    I've recovered fully I believe from the emotional blunting and fatigue. The gastric issues are continuing to improve with the SCD diet. The sexual dysfunction and associated ED is improved with cannabis therapy. The genital numbness persists, for now.

    If you would like my research documents on Accutanes link to sexual dysfunction/ED and/or how cannabis could be beneficial PM me your email address. The former document is very handy for convincing douchebag Dr's your sides are legitimate.
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Posted 08 January 2014 - 03:18 PM

On the topic of RSO, anyone hear of this site www.the-former-cana-med.ca ? It was recommended by the original RSO creator, but I can't help but think the site is a scam..


I could be wrong but I seem to remember explicitly that on the Phoneix Tears website Rick Simpson explains that he does not endorse any suppliers and that he is simply supplying information.


Do your part to raise awareness:

For new individuals PM'ing me, I will reply IF you report all your side effects to the links below and screenshot each one once you have completed it. PM me with your email and I will message you and you can send the screenshots over with whatever questions you like.

Report side effects to organisations here:

Rxisk
https://www.rxisk.or...ects/About.aspx
FDA
https://www.accessda...umer.reporting1
NHS
http://yellowcard.mhra.gov.uk/
Roche
http://www.roche.co....k/xxxcontactxxx

Report side effects to accutane sympathetic MP's here (UK):

mail@nickharveymp.com

vaizeye@parliament.uk

I encourage people to copy this signature into their own.





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