3018 replies to this topic

[ezuber]

Also, could you recommend a better natural shampoo then?

 

[JosephBuchignani]

"Next day I upped it to 2.4mg and I felt the difference within the hour. More energy. Softer and more hydrated skin. Warmer hands and feet. God damnit, so high doses of retinol depletes iodine? Via overactive thyroid, infection or just some general micronutrient balance? Perhaps this explains the "worse before it gets better" part of Accutane as iodine depletes? Roche can still go fuck themselves for not figuring this out."

 

Correct. I get the same effect from a healthier, bioavailable source by eating shrimp or scallops. I drink the broth for maximum effect. 

 

Sup again fellas. 

 

I have an ebook I'm writing that I could be persuaded to part with for free to those interested here. 

 

Still working, doing well at the job. Updates: 

 

1. Wasn't drinking the broth from shrimp, instead letting it dilute out into boiling pot. Major mistake, led to deficiency. Fatigue, insomnia. Corrected by different cooking method, recovered in 30 min to 1 hour. 

 

2. Yoghurt incubating below 90F can go bad, don't eat it, bad things happen. 

 

3. Overeating, but that was caused by micronutrient deficiency, solved with 1. Gorging to get salt and whatnot, I guess.

 

Westersyl, you are in serious trouble. Get to a doctor, but don't expect much. It's a long road ahead. 

 

Lastly, acne gone with regemin of benzoyl peroxide evenings and bragg's ACV mornings. 

[CHIRON]

Can anyone give a brief list of core supplements that are proven to work for us peeps? I know what works for me...but i kind of want to decrease my supplement load as much as possible since i think my body struggles to even absorb them. ones that i know for a fact that have worked for me are:

 

HA -epicly mobile joints if i drink enough water with it

Salmon oil - insulation, increased temperature regulation, some joint relief

Glutamine - muscle mass

*Biotin---i believe it makes my nails stronger..but hard do say if it's directly the biotin.

glucosamine, chondroitin, collagen--not as good as HA.

Garlic - decreases dehydration, balances blood sugar

Oil of Oregano/MMS - kills pathogens, bacterial infections and increases oxygenation in the body

 

 

*gluten free has alleviated any psychological symptoms...do not get brain fog, better digestion, and better energy overall.

 

I have not noticed a difference with supplementing with anything else.

 

What has definitely worked for you all in the way of symptom management/relief?

As you've found sdro123, going gluten-free is helpful.  Sugar and dairy-free, if you can swing it is also equally beneficial.  The Gerson Therapy juice, cooked veggie and coffee enema diet has been touted to cure late-stage cancers even by essentially re-setting the bodies natural immunity and baseline healthful state.  Either way, I have felt much better enjoying a diet of seeds, nuts, dried fruits, and then a moderate portion of regular foods (minus the gluten).  Other than that, I have found that basic, high quality vitamins and minerals are essential.  In addition... 

 

LITHIUM OROTATE...Recently, I have stumbled upon this little "miracle" substance.  Related to both Sodium and Potassium, Lithium is essential for our bodies to function well.   It has been long-utilized in the treatment of Alcoholism, ADHD, and bipolar depression.  The form of Lithium used by most doctors, available by prescription is a Carbonate version.  Lithium Carbonate frequently causes liver and kidney damage, hypothyroid problems, weight gain and a host of other side effects because it must be prescribed in high doses to be effective (generally 600-1200 mg).  There is a much more bioavailable form of lithium, however called Lithium Orotate that can be effective at doses of only 5-10 mg and is available "over-the-counter".  Lithium Orotate  protects and helps to rebuild the prefrontal cortex region of the brain, which has been shown to be damaged by Accutane.  This, in addition to its ability to increase available serotonin, and probably many other benefits as well is what prompted me to try this supplement.  It can cause a slowing of thyroid function, even at such low doses, though.  So please read up on it...but no other supplement has done so much in such a short time toward making me feel like my old self again, mentally speaking.  My anxiety and depression seem to be in complete remission.  Taking it at night before going to sleep not only helps me to sleep soundly through the night (far better than 5-HTP and without the sometimes unpleasantly intense dreams), but it ensures that the Lithium Orotate won't cause fatigue the next day while still offering me its anti-depressant, anti-anxiety benefits.  I love this stuff.  It cost me about $20 for 200 pills.  One a day seems to be sufficient to feel calm and "normal" again.  In order to help counter the thyroid-slowing effects, I take...

 

IODINE...After reading that many of my symptoms indicated a thyroid imbalance, I tried liquid iodine in a natural form such as liquid kelp extract.  This helped me to feel calmer, more energized and gets rid of a lot of the achy fibromyalgia-type symptoms.  I noticed that there is an aggravated intensity reflected in the eyes of many post-Accutane patients.  Iodine helps to make my eyes kinder and calmer.  This is probably related to more effective thyroid functioning.  I have read that taking Selenium, which is available as a part of most multi-minerals or in higher dosage on its own protects the thyroid from possible damage from too much iodine in cases of Hashimotos Thyroiditis.  Seeing as the damage to our thyroids from Accutane could be tied to an auto-immune problem, I recommend taking Selenium in addition to the iodine.  The recommended dose for a day seems to work well for me. In fact, Iodine helps to increase thyroid function and helps to alleviate any slowing I see from the use of Lithium Orotate.  

 

N-A-G (N-AcetylGlucosamine)...This is a more bioavailable version of Glucosamine and  is essential for the formation of Hyaluronic acid in the human body, and although expensive, it is heralded as an effective treatment for joint, mucosal lining, connective tissue health.  It has been used to treat colitis and crohns, as well as arthritis and joint problems.  It has improved my joint pain.  Apparently, Shitake mushrooms are a good source of this, so I will probable try to start eating more of those because they are food source and tasty - a good vegetarian substitute for bacon.

[AuguriesofInnocence]

*moi*

however Ive read people having reactions from being on it for 10 days or so...some people cannot tolerate even the smallest amount. Russian Roulette is a good analogy, some people take big amounts and (seemingly) have little lasting effects and some people, like myself, take a low-dose and go absolutely psychotic. Or lose their hair, or whatever the individual case may be. You just dont know.

Are you having symptoms of damage, you havent said...?

Wow this thread is huge...

 

Did anyone here get problems from taking something like the following dosage:

20 mg of accutane 3 times a week for a 7-8 weeks?

Edited by AuguriesofInnocence, 19 May 2013 - 10:22 AM.

[sdro123]

Chiron,

 

Thank you so much for your feedback! very helpful and validating.  I was taking liquid iodine a while back, and it helped smooth my skin and help with stiffness most definitely.  also helped the bulging eyes   After taking it for a while i did notice a more pronounced peak in anxiety. perhaps i was taking too much?? how much do you take? I will try it again for sure since it is a LEGAL pain reliever.  It did help induce sleep somewhat as well. I feared i was going to get that weird reaction to the iodine that some people can get. I could have been taking too much however....

 

Never heard of lithium oratate? very interesting though.  I wonder if it works similarly to MMS?

 

Also, if i might ask, how severe are your symptoms and what dosage did you take of accutane?

 

thanks for your help!

[gladiatoro]

Chiron,

 

Thank you so much for your feedback! very helpful and validating.  I was taking liquid iodine a while back, and it helped smooth my skin and help with stiffness most definitely.  also helped the bulging eyes   After taking it for a while i did notice a more pronounced peak in anxiety. perhaps i was taking too much?? how much do you take? I will try it again for sure since it is a LEGAL pain reliever.  It did help induce sleep somewhat as well. I feared i was going to get that weird reaction to the iodine that some people can get. I could have been taking too much however....

 

Never heard of lithium oratate? very interesting though.  I wonder if it works similarly to MMS?

 

Also, if i might ask, how severe are your symptoms and what dosage did you take of accutane?

 

thanks for your help!

Lithium Orotate is good , I posted a video about it a while back but I'll do it again along with other info , it is good for the mood and it's

 

the natural form of Lithium unlike the synthetic version which is very toxic  , orotate forms of lithium  are approximately 20 fold more

 

effective than toxic synthetic lithium , why does that not surprise me , anyways it made me sleepy when I took it so it would

 

be good to take before bed time , Plus one only needs one pill per day it's that potent .

 

 

 

I think it is better than 5-HTP I've been taking that for a bit and really haven't noticed anything . Here is some good  info on Lithium

 

Orotate , Organic Apple Cider Vinegar  I think I'll buy some of that sounds like it could benefit me.

 

http://www.youtube.c...h?v=ijMbycw2boM

 

http://www.arrowhead...com/lithium.htm

Edited by gladiatoro, 19 May 2013 - 09:19 PM.

[sbowlchica]

As for better shampoos, look for anything that says sulfate-free on it. Read the ingredients on the back: if anything has the word "sulfate" in it, it's too harsh for your hair. Also try to avoid silicones, since they build up on your hair and can only be removed by sulfates. Any word that ends in "cone" is a silicone. Also cyclopentasiloxane.

 

If you have a Dierbergs in your area, there's a whole bunch of them there! I use Nature's Gate Awapuhi Volumizing Shampoo, diluted 1:1 with honey.

[acne1776]

SWIM tried cannabis oil and it was starting to work but SWIM couldn't handle the mental side effects that came with it. SWIM had a fixed thyroid as a result though

[sdro123]

cannabis has induced: increased sex drive, much deeper sleep contrary to old findings from studies on cannabis, better breathing the day after, no joint pain for one day or two after smoking, and more stable mood...if taken in MODERATION....key word. If overdone, you may notice more manic episodes...not full blown for me, but more towards cyclothymia...laypeople's terms less severe bipolar symptoms..cyclothymia is like a less severe form of bipolar, less extreme swings. Anyways, can't say enough about this plant.  I broke my vaporizer...very sad day so I had to go back to the bowl. not the same! smoke is no good, but the effects are well worth it. 

 

As for lithium oratate....are we sure this is safe?? how long have you been taking it and where do you purchase it, what brand?? etc.

[acne1776]

moderation to anything is key. cool knowing SWIM doesn't have to take thyroid meds anymore but SWIM does have to take abilify as a result for a while unfortunately.

 

so theres very good news people. not sure if SWIM should try it again or what though

Edited by acne1776, Yesterday, 08:59 AM.

[gladiatoro]

cannabis has induced: increased sex drive, much deeper sleep contrary to old findings from studies on cannabis, better breathing the day after, no joint pain for one day or two after smoking, and more stable mood...if taken in MODERATION....key word. If overdone, you may notice more manic episodes...not full blown for me, but more towards cyclothymia...laypeople's terms less severe bipolar symptoms..cyclothymia is like a less severe form of bipolar, less extreme swings. Anyways, can't say enough about this plant.  I broke my vaporizer...very sad day so I had to go back to the bowl. not the same! smoke is no good, but the effects are well worth it. 

 

As for lithium oratate....are we sure this is safe?? how long have you been taking it and where do you purchase it, what brand?? etc.

Yeah lithium orotate is safe , did you watch the video I posted? I think I'll buy some more it really did help with my "moodiness" I would say isotretinoin

 

is like PMS for men lol...  If you buy some I would take one per day and see how it goes. Here is a link on where to buy it.

 

http://bioveacanada....CFWHZQgod204AiA

 

I always wondered why there are so many lawsuits against the drug manufacturer Roche , after reading 151 pages and from my input I know why now.

[oli girl]

hmm...You know I always thought about taking Iodine, but I am not sure if it would do me any good as shortly after accutane the right side of my thyroid is almost completly gone and the other side there is quite a bit left. For thoose who know and read my story which was linked, you will know that I was in really bad shape after accutane to point I could barely walk for almost a year and that accutane caused Grave's disease and when it hit it hit hard and fast! Grave's is a lot harder to treat and control vs hasimotos or low thyroid!

 

Anyways I was just curious on anyone thoughts???? - Jen

[AuguriesofInnocence]

what do you mean the one side of your thyroid is gone? Was it removed or did it disappear somehow?

hmm...You know I always thought about taking Iodine, but I am not sure if it would do me any good as shortly after accutane the right side of my thyroid is almost completly gone and the other side there is quite a bit left. For thoose who know and read my story which was linked, you will know that I was in really bad shape after accutane to point I could barely walk for almost a year and that accutane caused Grave's disease and when it hit it hit hard and fast! Grave's is a lot harder to treat and control vs hasimotos or low thyroid!

 

Anyways I was just curious on anyone thoughts???? - Jen

[bamdaze]

Too much Iodine might trigger/worsen autoimmune thyroiditis. Not sure about Graves', but many people with Hashimoto's don't tolerate Iodine supplementation or even Iodine in fish or dairy.

Iodine deficiency is unlikely. Interestingly there are people (google Dr. Brownstein) who advocate high-dose Iodine for thyroiditis and claim it's safe. If symptoms arise or worsen then that's surely just detox and the dose isn't high enough . At that point my bs detector ticked off. Yet I tried it and got diarrhea for days. Good thing was I needed less sleep. 

 

Still taking a few supplements. Especially prebiotics (psyllium husks and inulin) have improved my digestion. I don't feel particularly different after gluten but plan to eat gluten-free nevertheless.

[oli girl]

what do you mean the one side of your thyroid is gone? Was it removed or did it disappear somehow?

hmm...You know I always thought about taking Iodine, but I am not sure if it would do me any good as shortly after accutane the right side of my thyroid is almost completly gone and the other side there is quite a bit left. For thoose who know and read my story which was linked, you will know that I was in really bad shape after accutane to point I could barely walk for almost a year and that accutane caused Grave's disease and when it hit it hit hard and fast! Grave's is a lot harder to treat and control vs hasimotos or low thyroid!

 

Anyways I was just curious on anyone thoughts???? - Jen

I developed a huge goiter to the point I could not swallow and my heart rate was 190 and it kept attacking my eyes (luckily my eyes went back in, but left with some lazy eye)  I tried natural treatments and standard medication (indocin, proprandol etc.)  for Graves, however it was full force attacking my body to point I had a small amt of radiation iodine and I mean very small! In Hasimoto's people and take synthyroid to control thier goiter and some are lucky that synthyroid stops the body from attacking the thyroid in Hasimoto's, Grave's not soo much! It was all very strange I might say

[gladiatoro]

For anyone considering taking prescription antidepressant drugs , read this first.

http://www.naturalne...ternatives.html

[gladiatoro]

http://www.naturalne..._drug_list.html

[CHIRON]

hmm...You know I always thought about taking Iodine, but I am not sure if it would do me any good as shortly after accutane the right side of my thyroid is almost completly gone and the other side there is quite a bit left. For thoose who know and read my story which was linked, you will know that I was in really bad shape after accutane to point I could barely walk for almost a year and that accutane caused Grave's disease and when it hit it hit hard and fast! Grave's is a lot harder to treat and control vs hasimotos or low thyroid!

 

Anyways I was just curious on anyone thoughts???? - Jen

Jen~

I have read some accounts that lithium orotate is sometimes used to treat Graves and other hyper-thyroid issues, as one of the side effects of lithium is to slow thyroid function.   Check it out: http://www.livestron...m-orotate-uses/ . Also for those with issues regarding Hahimotos: some clinical trials have indicated that taking Selenium in adequate amounts protects the thyroid from damage from excess iodine in those patients.  Selenium and zinc are a good idea to protect against hair loss and the like in anyone.

Chiron,

 

Thank you so much for your feedback! very helpful and validating.  I was taking liquid iodine a while back, and it helped smooth my skin and help with stiffness most definitely.  also helped the bulging eyes   After taking it for a while i did notice a more pronounced peak in anxiety. perhaps i was taking too much?? how much do you take? I will try it again for sure since it is a LEGAL pain reliever.  It did help induce sleep somewhat as well. I feared i was going to get that weird reaction to the iodine that some people can get. I could have been taking too much however....

 

Never heard of lithium oratate? very interesting though.  I wonder if it works similarly to MMS?

 

Also, if i might ask, how severe are your symptoms and what dosage did you take of accutane?

 

thanks for your help!

Hi~

I take a liquid version of the iodine at the recommended dosage (3-4 drops per day).  As far as Accutane, I was on a single 3 month course in the mid to late 90's .   I am not sure the original dosage I was given although symptoms continue to linger.  I like the promise that the lithium orotate works to protect and even possibly rebuild the pre-frontal cortex, as this has been studied in regards to Accutane where it was shown to reduce metabolism in that specific part of the brain to a significant degree.  I like finding things such as the lithium because I have discovered that when my anxiety is reduced, the other effects of having taken 'tane don't SEEM quite so bad, i.e. I am not continually obsessing over other symptoms, nor am I acting in a way that creates new problems such as: if I am overly anxious I might have trouble sustaining relationships or holding down a job, thus creating new reasons to become even more anxious.  I am hoping the Lithium Orotate will continue to work in my favor without too many detrimental effects.  I'll continue to research it more thoroughly but for now I am enjoying and benefiting enormously.

Edited by CHIRON, Today, 02:37 PM.

[AuguriesofInnocence]

good god.

I hope you get a break soon Oli girl, you have certainly been through the ringer over and again.

 

what do you mean the one side of your thyroid is gone? Was it removed or did it disappear somehow?

hmm...You know I always thought about taking Iodine, but I am not sure if it would do me any good as shortly after accutane the right side of my thyroid is almost completly gone and the other side there is quite a bit left. For thoose who know and read my story which was linked, you will know that I was in really bad shape after accutane to point I could barely walk for almost a year and that accutane caused Grave's disease and when it hit it hit hard and fast! Grave's is a lot harder to treat and control vs hasimotos or low thyroid!

 

Anyways I was just curious on anyone thoughts???? - Jen

I developed a huge goiter to the point I could not swallow and my heart rate was 190 and it kept attacking my eyes (luckily my eyes went back in, but left with some lazy eye)  I tried natural treatments and standard medication (indocin, proprandol etc.)  for Graves, however it was full force attacking my body to point I had a small amt of radiation iodine and I mean very small! In Hasimoto's people and take synthyroid to control thier goiter and some are lucky that synthyroid stops the body from attacking the thyroid in Hasimoto's, Grave's not soo much! It was all very strange I might say