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Repairing the long-term damage from Accutane

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#2741 JosephBuchignani

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Posted 13 April 2013 - 09:02 PM

I took a standard low dose course. Not sure the amount. I already had mild IBS and a 3x genetic propensity for IBD and celiacs. 


Accutane - Brief low-dose course ~9 years ago for ~4 months. Liver monitored, no sides. 
 
Symptoms: Gradual onset of symptoms, peaking ~5 years ago. Extreme IBS, lost ability to eat almost everything, unable to work for 4 years. IBD diagnosis might've been possible, but avoided doctors and the prescription meds route, going for diet and supplements instead. Thought it was regular IBS, didn't realize it was Accutane until already had avoided the IBD diagnosis. Decided going back to hell just to get the diagnosis wasn't worth it. Regained enough health to work full time around May-June 2013. 
 
Regimen summary:
Eat only 
1. true free range lean chicken breast (expensive)
2. Lean white-tail shrimp (moderately expensive)
3. Glutinous rice gruel (very cheap)
 
All ad libitum, minimum 150g shrimp/d. 
 
Supplements:
1. Blue Ice CLO / Butter Oil blend
2. Udca ~1-3g /d
3. Source Naturals Essential enzymes 2x per meal
4. Symbiotics Colostrum ~1/8 scoop per meal
5. Cycled topical testosterone cream
6. Topical ACV, tea tree oil (morning) and benzoyle peroxide 10% (night)
 
Zeitgeibers:
1. Aim to nap every 3 hours for 20 minutes
2. Match light exposure to sunrise, sunset
3. Match meals to sun

 


#2742 sbowlchica

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Posted 13 April 2013 - 09:36 PM

I hope that's true. I've been eating dairy like crazy since it's allowed on my diet, and calcium actually impedes oxalate absorption. I douse almost everything with parmesan cheese and love Greek yogurt smoothies.

 

Actually, I think the times my hair loss was the worst was when I was trying some kind of modified paleo... not for me!



Recovering from Accutane-related hair loss.

(over a year and a half after stopping...)


#2743 Gladiatoro

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Posted 14 April 2013 - 09:19 AM

I took a standard low dose course. Not sure the amount. I already had mild IBS and a 3x genetic propensity for IBD and celiacs. 

Ok thanks for the info , good luck on your long term recovery.


Edited by gladiatoro, 14 April 2013 - 09:23 AM.


#2744 and1

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Posted 14 April 2013 - 11:08 AM

http://en.wikipedia....al_applications

 

check it out it is pretty popular in Europe for detox



#2745 AuguriesofInnocence

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Posted 15 April 2013 - 05:04 AM

hello, Im here to add my accutane horror story among the many.

First of all I swore Id never take the stuff, but as we all know when youre desperate we tend to take desperate measures.

Ive had mild acne until last year, when it seemed to take a turn for the worse. I was getting cysts on my jawline, chin and some on my back. I felt ugly and diseased, Id used the usual topicals, been on and off minocyclin (which has its own plethora of problems) and even dramatically changed my diet, which according to some on here is the real cause of acne. All BS. I love how these nutrition geeks like to blame people for their own acne as if  being a vegan raw food palio-ist isnt good enough, eat dirt why dont you?!

Anyway, after jumping through the proverbial hoops and red tape to get the accutane--2 negative pregnancy tests, blood tests, all the disclosure forms etc--I began taking it in August. From the very first pill, it felt wrong to me. WIthin two weeks I had the peeling bloody lips and nosebleeds, along with a hollow feeling. I quickly became very depressed, it was as if all the light was sucked out of m life and I could only see the dark side of things. I felt feverish and my feet felt like lead. My depression grew worse, and I became obsessed with my skin, Id literally spend hours in front of the mirror scrutinizing every pore and finding all kinds of things I hated about myself. My skin was clearing and the oil was going but I felt worse than ever. I constantly asked people around me if my skin looked any better at least 50 times per day. I cried often and spent a lot of time staring into space.

One day after taking my usual xanax and vikodin for my wisdom teeth removal, I had a breakdown, I was alone in the house and crying hysterically. I felt like a worthless freak. I picked up a gun and shot myself. Luckily it only glanced off my ribs, I think my underwire bra saved me, but at this point I was at rock bottom. I ended up in a mental hospital for a week, and frightened my family half to death. I realized, this stuff is poison and its very difficult to get for a reason, cause it can KILL you!

It took me a good three months for the depression to lift. I had to have someone with me day and night as I was still feeling suicidal. I finally began recovering around Christmas.

Also, I diagnosed myself  with PCOS and after my idiot gyno put me on the wrong meds, which gave me very low blood pressure. I went to a different one who gave me yaz. and I began taking anti-DHT supplements,  Within 4 months my skin was clear, and still is.

I cant believe I took accutane, my husband told me not to take it as he believes his taking it as a teenager caused his digesive problems and arthritis. I only took this poison for one month, and that month was complete hell.

I am feeling back to my normal self these days, thank God for allowing me to live and not die by my own hand because when youre in such a dark place you cant bear the thought of another hour, let alone onother day, its nearly unbearable.

I feel for all you who took accutane and suffered in whatever way. Indigo Rush you did warn me but I thought "it wont happen to me". This stuff should be taken off the market, and we should be able to sue the maker. But of course there were all those disclosure forms...

Id advise ANYBODY  considering accutane, just DONT. I believe acne is hormonal anyway, you can find a solution if you keep trying.

God bless and I hope those of you suffering long-term damage find some relief.

AU


Edited by AuguriesofInnocence, 15 April 2013 - 05:08 AM.


#2746 oli girl

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Posted 15 April 2013 - 06:01 PM

hello, Im here to add my accutane horror story among the many.

First of all I swore Id never take the stuff, but as we all know when youre desperate we tend to take desperate measures.

Ive had mild acne until last year, when it seemed to take a turn for the worse. I was getting cysts on my jawline, chin and some on my back. I felt ugly and diseased, Id used the usual topicals, been on and off minocyclin (which has its own plethora of problems) and even dramatically changed my diet, which according to some on here is the real cause of acne. All BS. I love how these nutrition geeks like to blame people for their own acne as if  being a vegan raw food palio-ist isnt good enough, eat dirt why dont you?!

Anyway, after jumping through the proverbial hoops and red tape to get the accutane--2 negative pregnancy tests, blood tests, all the disclosure forms etc--I began taking it in August. From the very first pill, it felt wrong to me. WIthin two weeks I had the peeling bloody lips and nosebleeds, along with a hollow feeling. I quickly became very depressed, it was as if all the light was sucked out of m life and I could only see the dark side of things. I felt feverish and my feet felt like lead. My depression grew worse, and I became obsessed with my skin, Id literally spend hours in front of the mirror scrutinizing every pore and finding all kinds of things I hated about myself. My skin was clearing and the oil was going but I felt worse than ever. I constantly asked people around me if my skin looked any better at least 50 times per day. I cried often and spent a lot of time staring into space.

One day after taking my usual xanax and vikodin for my wisdom teeth removal, I had a breakdown, I was alone in the house and crying hysterically. I felt like a worthless freak. I picked up a gun and shot myself. Luckily it only glanced off my ribs, I think my underwire bra saved me, but at this point I was at rock bottom. I ended up in a mental hospital for a week, and frightened my family half to death. I realized, this stuff is poison and its very difficult to get for a reason, cause it can KILL you!

It took me a good three months for the depression to lift. I had to have someone with me day and night as I was still feeling suicidal. I finally began recovering around Christmas.

Also, I diagnosed myself  with PCOS and after my idiot gyno put me on the wrong meds, which gave me very low blood pressure. I went to a different one who gave me yaz. and I began taking anti-DHT supplements,  Within 4 months my skin was clear, and still is.

I cant believe I took accutane, my husband told me not to take it as he believes his taking it as a teenager caused his digesive problems and arthritis. I only took this poison for one month, and that month was complete hell.

I am feeling back to my normal self these days, thank God for allowing me to live and not die by my own hand because when youre in such a dark place you cant bear the thought of another hour, let alone onother day, its nearly unbearable.

I feel for all you who took accutane and suffered in whatever way. Indigo Rush you did warn me but I thought "it wont happen to me". This stuff should be taken off the market, and we should be able to sue the maker. But of course there were all those disclosure forms...

Id advise ANYBODY  considering accutane, just DONT. I believe acne is hormonal anyway, you can find a solution if you keep trying.

God bless and I hope those of you suffering long-term damage find some relief.

AU

Thank You for sharing your story! I am truly sorry to what happened to you and glad you are alive and doing better. Your right this poison should be taken off the market.


The secret of health for both mind & body
is not to mourn for the past, not to worry about the future, or not anticipate troubles, but to live the present moment wisely and earnestly.
The Buddha

#2747 Chico Esposito

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Posted 16 April 2013 - 02:00 PM

I just wanna report back with a few things i've tried. I've been taking small amounts of cod liver oil and going into the sauna for an hour to sweat. I've done this for a few months and i haven't noticed any benefit from it, my skin condition is the same, i still struggle to eat the same foods as before, symptoms are not reduced i've actually developed some testicular pain as a result...too much information, i'm sorry but it seems to be a dead end... 

 

Has anyone had any success with B6, B12, biotin, Zinc, Hyaluronic Acid or Kelp? just want to know...

 

Also anything out there that helps the dryness? 

 

it seems my skin is more prone to sunburn now, my skin doesn't produce sebum at all and is very dry, my lips still crack is there anything for this? i was wondering whether anyone had found  a cure or at least partial cure for this side effect.



I'm frankly starting to lose it with all of you.

 

I have handed you the cure on a silver platter so I don't want to see any other absurd responses. 

 

**Starting on an antibiotic/Sjogrens medicine WILL help your side effects whether it be dry skin, heart palpitations, joint paint etc

**Avoiding certain things in your diet like processed foods WILL help your other/the same side effects like mental fog/depression- it's just finding the balance of moderation.. You will have to some nights stay away from all bread and carbs and just have fish for dinner. But that doesn't mean every night. And I promise you, the one day where you avoid it all, you will see a night and day difference the next day if not the same day.


Everyone's body chemistry is different so you will have to find what foods really give you a flare up like wheat/dairy/just eating too much in one sitting

But medicine is pretty straight-forward: any antibiotic seems to work and there are others that will help further if it is required.

STOP talking about other craziness. These two things done together are literally the answer. Period. Any questions, ask them. We are here to help each other.

PS- Almost /all/ of our problems are due to dehydration/the body attacking the moisture producing areas of our body- so DRINK LOTS OF WATER and avoid things that dehydrate you. Inflammation is also a problem both internal and external, especially as it relates to the skin problem so many of us have, so anything that reduces inflammation will also help.

 

So it's all a dehydration / inflammation thing....i can dig that. What do you take specifically?


Edited by Chico Esposito, 16 April 2013 - 02:54 PM.


#2748 Chico Esposito

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Posted 16 April 2013 - 02:26 PM

LONG TEXT BUT WORTH READING

hi everyone,

i just stumbled over your discussion here, thought i register myself and will try to help you!

i'm a roaccutan-victim as well, suffering since years with complete dryness from head to toe(which is a heavy problems, especially eyes), as well as hairloss and liver problems and tons of other little things.

since no doctor is able to help me with my symptoms (of course..) .. i'm reading a lot about alternative healing methods and help myself with it!

this topic can be quite complex (as you know) but i want to try to simplify it extremely (also because my english is not the best, sorry for that btw wink.png

first advise how to get a healthy liver back (yes you heard me right!)

there is a russian doctor called "michail tombak" who was very sick in his early years and managed to get completely healthy with alternative healing methods.

there is a russian healing method where you are fasting and at a certain point, drink vegetable oil and lemon juice in a specific amount and with a specific instruction on an empty stomach. that's extremely simplified! in his book is a proper instruction which one should follow step by step since we are talking about our inner organs. what it makes it cleans you liver, like no drug in the world or no doctor in the world could achieve! maybe you can find some of his texts or books in english (available in polish, russian, german, thats for sure). or just google about russian liver cleaning. with his techniques and a bit time you can highly probable get a quite good liver back. i did it already two times and made great improvements! you can't imagine what is inside our organs, it's full of toxic stuff through alcohol, drugs, cigarettes, bad food, what ever, but especially of course through this fucking roaccutan!
it basically comes out when you go to toilette, after you have done this method, and you will see stuff that comes out (big as hazelnuts for example) in different colors etc. etc. .. mouldy stuff and what not. this is all in our liver and possible to clean!

second thing to get better!

it's actually quite simple. our body is running at a specific ph-value. through drugs,alc, bad food, and especially through such a toxic poison like roaccutan, the body/blood gets acid (hope thats the right word for it). the acid blood / bad ph-value needs to be cleared by the body, otherwise we would die. how does the body that? by taking minerals from all over the body to create a good and alkaline ph-value. the thing is, if there are not enough minerals anymore (magnesium,calcium etc.) to keep the good value, we get sick because our "depots" of minerals are getting empty. this is basically how diseases develop over years. when you get older, you mostly get sick this way.

we are not old, but we took roa and we are so poisoned probably that our depots are empty and the body quite fucked. so we need to detox and to refill! to get healthy again. and it doesn't matter which disease you have, it's good against all of them.

the liver method is of course a good thing to detox already. apart from that though we need a right nutrition. this nutrition creates an alkaline ph value in ous. it's called alkaline nutrition, who is the healthiest above all others. i can just recommend to read about all that stuff, it's quite simply at the end. there are charts with alkaline food on the whole web, unfortunately the most are not perfect or even wrong! they need to be perfect though, this is really important.

allowed is: fruits,vegs,almonds,potatoes,milo/millet,sprouts, cream, butter, good plant oils. don't even ask the rest is just not allowed. to drink only water and herbal tees. plus, fresh pressed juice and green smoothies are perfect. vegs+fruits only fresh and uncooked! if cooked not too long and tomatoes never cooked at all. everything organic of course, we don't want more toxic stuff in our body, right?

this nutrition tries keep the body with a good ph value, free from toxic bad food and tries at the same time to refill your depot with minerals. it's quite hard though to achieve that in a short time. so that all takes a while. plus you need good(!) quality supplements, they are mostly quite expensive.

3 litre water, herbal tee and three 1 hour detox baths a week (with special detox salt) is apart from the special nutrition the way to slowly get everything out over the kidneys, skin, etc. etc.

for hairloss i can highly recommend this nutrition in combination with the baths, plus a light, small towel wrapped around your hair which was soaked in 0,5l water + a tablespoon of this salt, to detox the skin under the hair, which causes the hairloss.

you have to be super-strict with this nutrition and all detoxing methods, otherwise it won't bring anything.

i can tell you though that i made improvements over the past couple month trying all this. hairloss stopped for example, skin in the face got better, and i am improving liver values. to get completely healthy again, it probably will take years, but it's the only way when you are interested in getting it back.

i feel sorry for you all, it's terrible what happened, but we need to try everything. spend time with natural healing, read about it, it's the only way!

if someone has any helpful advice for me in terms of eyes / dryness in general, i'm happy for all infos.

all the best!

 

how many days do you fast before the vegetable oil and lemon juice are ingested? is it olive oil with lemon juice?

 

Also is it a water fast or a vegetable juice fast? thanks for your input in the topic, it's very valuable.



#2749 Chico Esposito

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Posted 16 April 2013 - 02:53 PM

I sure many have read her story, but I thought I would post a link to it on here! I go and meet Patti once a yr and talk to her periodically throughout the year on the phone she is truly a extrodinary women who was damaged by accutane in the 80's! http://www.scribd.co...ccutainted-Life

 

 


Wow so powerful that story about Mary Lou, i've done the same things as her, gone the same routes.... only 40 years later. Thanks for sharing this Oil girl your such a credit to this forum, people don't tell you that enough your a great poster. Thank you for this it means alot to me.

Edited by Chico Esposito, 16 April 2013 - 03:03 PM.


#2750 Chico Esposito

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Posted 16 April 2013 - 03:40 PM

I'm in a really dark place right now emotionally and physically. Fuck this drug and fuck this Nazi corporation Roche that pay off patients whose lives they've fucking devastated. Fuck their doctored studies on accutane's safety, paid for and sponsored by their own company. Fuck them passing the buck after patients commit suicide, refusing to accept blame even when people directly reference accutane as the cause in their own suicide notes. "Well acne causes depression so maybe it wasn't the drugs fault after all" or "accutane is proven safe in the treatment of adult acne and has no link to depression" 

 

Accutane doesn't cause depression but it messes your life up so badly, you'd wish you had the worst case of manic depression because what you will feel is so much worse. You feel vacant, like every ounce of emotion in the cortex of your body has been taken from you. Like a hollow husk of a once living human being. Without the energy or passion to fight it anymore. Accutane you win, you've beaten me into the floor, made me a non believer in god and well and truely scavenged my body into the pits of the afterlife.


Edited by Chico Esposito, 16 April 2013 - 03:44 PM.


#2751 oli girl

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Posted 16 April 2013 - 09:50 PM

I just wanna report back with a few things i've tried. I've been taking small amounts of cod liver oil and going into the sauna for an hour to sweat. I've done this for a few months and i haven't noticed any benefit from it, my skin condition is the same, i still struggle to eat the same foods as before, symptoms are not reduced i've actually developed some testicular pain as a result...too much information, i'm sorry but it seems to be a dead end... 

 

Has anyone had any success with B6, B12, biotin, Zinc, Hyaluronic Acid or Kelp? just want to know...

 

Also anything out there that helps the dryness? 

 

it seems my skin is more prone to sunburn now, my skin doesn't produce sebum at all and is very dry, my lips still crack is there anything for this? i was wondering whether anyone had found  a cure or at least partial cure for this side effect.



I'm frankly starting to lose it with all of you.

 

I have handed you the cure on a silver platter so I don't want to see any other absurd responses. 

 

**Starting on an antibiotic/Sjogrens medicine WILL help your side effects whether it be dry skin, heart palpitations, joint paint etc

**Avoiding certain things in your diet like processed foods WILL help your other/the same side effects like mental fog/depression- it's just finding the balance of moderation.. You will have to some nights stay away from all bread and carbs and just have fish for dinner. But that doesn't mean every night. And I promise you, the one day where you avoid it all, you will see a night and day difference the next day if not the same day.


Everyone's body chemistry is different so you will have to find what foods really give you a flare up like wheat/dairy/just eating too much in one sitting

But medicine is pretty straight-forward: any antibiotic seems to work and there are others that will help further if it is required.

STOP talking about other craziness. These two things done together are literally the answer. Period. Any questions, ask them. We are here to help each other.

PS- Almost /all/ of our problems are due to dehydration/the body attacking the moisture producing areas of our body- so DRINK LOTS OF WATER and avoid things that dehydrate you. Inflammation is also a problem both internal and external, especially as it relates to the skin problem so many of us have, so anything that reduces inflammation will also help.

Chico - First just breath, postive thoughts my friend, postive thoughts!  I know easier said then done! Yesterday as I watched the coverage of the attack/bombing in Boston, innocent people who lost thier lives, limbs etc... It took me back to being grateful that I am at least alive, I have my friends, family! I can still walk, though we were innocent and damaged and it was sensless, there are others worse off! However, it is good to vent, I had a flare of tendonitis a couple weeks ago at 2 am for no reason and I start getting angry again, however, it just brings me down health wise and such so I have to regroup!

 

Nick Ryan is taking Mino, in which I do know some victims who have had to live on bactrim ( accutane induced sarcoid) and antibotics to function, but I wouldn't recommend it. Some of us old timers who had severe flushing took a anti malaria that is used in lupus, sjrogrens, Rhuematoid! It helped for the flushing and mouth dryness for me, but I stopped taking it not to long ago.

 

As for the supplements, I take b6, b12, folate and Vit C or if you can a drink with vit C and Iron everyday together. You could try a b-complex. It helps with my energy, nerves in my foot, and shortly after accutane, my body felt like it was on fire and would turn beet red with any exertion and it helped me a lot.

 

As for H.A. & Bioton - I take both of thoose and it acutally has helped me, some say that they felt no diffrence. They are both safe and couldn't hurt. I was acutally borderline low in bioton this last  yr. As for H.A. it has been recommened Baxyl is a very good brand. As for Zinc, I couldn't handle it, it caused worse issues for me not sure why, but alot have said they are okay with it!

 

I would also try if you haven't Gamma Linoic Acid - It is omega 6 and it is diffrent from the other ones. I know many suffers who have benifited from this, I take a liquid form from nordic naturals. I would also stay away from acidic foods and drinks, Many sjrogren's pts live by this, such as tomatos, chocalate, caffeine, etc... It has helped me.

 

Don't take any more Cod Liver oil, I don't care what anyone says, as there have been thoose from the 80's that did this not knowing and things were great at first, but then they turned for the worse, and they were left off worse then accutane. Too much overload of Vit A. You could try regular fish oil in liquid form, just be careful,  I can't handle flax so not sure on that.

 

I can't remember, but is your dryness body wide or just the face? Also, I suggest every suffer have labs done at least once a yr. Look at me pristine sugar levels and then bam I am a type 1 autoimmune diabetic out of the blue.

 

And Chico thanks by the way I knew shortly after I was in this for life, and I know many who helped get me through a very scary, dark time and I will post till I kill over dead! If I can save 1 person from ingesting this poison then I feel it's 1 life saved.

 

Hang in there wacko.png


The secret of health for both mind & body
is not to mourn for the past, not to worry about the future, or not anticipate troubles, but to live the present moment wisely and earnestly.
The Buddha

#2752 Gladiatoro

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Posted 16 April 2013 - 10:13 PM

If anything isotretinoin brought me closer to GOD  , he hears our pain and suffering , all will be judged one day ALL  especially ROCHE , the systematic poisoning

 

of teenagers (for life) and young adults is what has happened , justice must be served in this life or the next. All our posts have made a difference and have exposed the

 

pure evil of this drug and have stopped countless future victims of ever taking it , something we should all be proud of .



#2753 AuguriesofInnocence

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Posted 17 April 2013 - 03:58 AM

I hope that's true. I've been eating dairy like crazy since it's allowed on my diet, and calcium actually impedes oxalate absorption. I douse almost everything with parmesan cheese and love Greek yogurt smoothies.

 

Actually, I think the times my hair loss was the worst was when I was trying some kind of modified paleo... not for me!

hi, what have you done for hair loss?

I found a natural recipe for helping grow back hair. 2 cups jojoba oil, 10 drops each of lemon balm, rosemary and lavendar oil, and 5 drops of cedar atlas oil.

You spray/rub it into your scalp, I let  it sit on my head for half and hour but you can put on a shower cap and sleep with it in.

In a few months my hair was growing back better. These oils help scalp circulation.



If anything isotretinoin brought me closer to GOD  , he hears our pain and suffering , all will be judged one day ALL  especially ROCHE , the systematic poisoning

 

of teenagers (for life) and young adults is what has happened , justice must be served in this life or the next. All our posts have made a difference and have exposed the

 

pure evil of this drug and have stopped countless future victims of ever taking it , something we should all be proud of .

 

 

If anything isotretinoin brought me closer to GOD  , he hears our pain and suffering , all will be judged one day ALL  especially ROCHE , the systematic poisoning

 

of teenagers (for life) and young adults is what has happened , justice must be served in this life or the next. All our posts have made a difference and have exposed the

 

pure evil of this drug and have stopped countless future victims of ever taking it , something we should all be proud of .

I have to agree with that. I never hit rock bottom until I took accutane (only 1 month of 10 mg!)

I attempted suicide twice, and at some point I remember asking God to save me because I couldnt live like that anymore.

Well he must have known I was at my breaking point because I did get better. It took 3-4 months after getting off accutane to feel normal again. I also found a simple way to fix my acne (yaz, plus herbal supplements).

I have always been a believer in God but a somewhat complacent one. I know He exists He heard me and if He hadnt lifted me from that despair, Id be dead today.



I'm in a really dark place right now emotionally and physically. Fuck this drug and fuck this Nazi corporation Roche that pay off patients whose lives they've fucking devastated. Fuck their doctored studies on accutane's safety, paid for and sponsored by their own company. Fuck them passing the buck after patients commit suicide, refusing to accept blame even when people directly reference accutane as the cause in their own suicide notes. "Well acne causes depression so maybe it wasn't the drugs fault after all" or "accutane is proven safe in the treatment of adult acne and has no link to depression" 

 

Accutane doesn't cause depression but it messes your life up so badly, you'd wish you had the worst case of manic depression because what you will feel is so much worse. You feel vacant, like every ounce of emotion in the cortex of your body has been taken from you. Like a hollow husk of a once living human being. Without the energy or passion to fight it anymore. Accutane you win, you've beaten me into the floor, made me a non believer in god and well and truely scavenged my body into the pits of the afterlife.

The way you describe accutane making you feel is exactly how I felt--hollow, despairing, completely beaten. I only took 10 mg for one month and by the end of that month I had no will to live. It was like I could only see the dark side of life. My friends and family didnt matter, I thought I was a burden and theyd be better off without me.

I tried to kill myself twice. Ill never forgive myself, my  6 year-old son and husband thought they were going to lose me and had no idea why.

I think Roche is horrible for allowing this drug still. Even the so-called 'success" stories--those people often come up with side effects 5, 10 years down the line.

I would love to speak to the people who make this poison and tell them how I shot myself and tried to OD and tried my damndest to leave this world because, I never felt like that until the moment I put that pill in my mouth.

Thank God Im still alive, He and my family and friends saved me. It wasnt my time to die.



#2754 Livetoregret

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  • Interests:finished taking Roaccutane December 2010.
    Takin this drug has been the worst decision I have ever made and I have regretted it every day since.
    Doseage: 60:40 mg alternating daily for 11/12 months
    Sideffects:None till course was over.
    Now - SEVERE dry/brittle hair.
    HAIRLOSS - lost at least 70% and continues...acne came back in July, worse than I ever suffered from it. I now have back, chest, neck & cheeks that are covered.
    So now Im bone dry with no natural hydration with horrific acne. As a 31 YO woman with now destroyed skin & hair.
    My side effects include: Chronic Dry mouth
    Severe dry,tight,dehydrated, ashy,mottled,discolored (yellow & red),wrinkled,scarred poorly healing skin
    Facial fat atrophy - fatloss. Hollow eyes & cheeks
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Posted 17 April 2013 - 05:21 AM

We're all in the pit of despair aren't we.
I've tried everything for the dryness- thing is its not just dryness, the skin all over the body just shrivels up for lack of water and loss of lipids they are the key to subcutaneous tissue health.
For the dryness the best thing is topical b3 or niacidimide.
I'm now using b3 serum from rationale it's practitioner only products you can purchase through cosmetic clinics.
Other products I'd recommend are post laser products like hydration status and bio lipod balm and a full on hyralonic acid mask for the face.

I believe in this range from rationale, it was developed by someone who has first hand knowledge of this drug and hey ate all botanical and organically sourced ingredients.

Ok so my skin is still dry as hell and I have fine lines etc but I've only been using these products a few weeks now but I'm feeling confident and believe me when I say I've tried everything.

I'm combining this new product regime with omnilux light therapy to stimulate collagen and fibroblasts and hopefully hydration.
I've had 6 so far 4 more to go and I'll update.
Hairloss is still out of control I'm at a loss and am trying to accept having to shave my head and wear a wig for now.
I just pray my hair starts to grow again, but things are very very bleak

Cue morrissey singalong..

#2755 Robert1000

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Posted 17 April 2013 - 10:40 AM

I tested my estradiol today, the result is :

 

 

152,8 pmol/L   (normal values are 28 - 156).

 

 

 

My costisol level is  588 nmol/L  (normal is between 171 - 536)

 

 

What do u recommend me now guys? please, some advices, my hair is falling so much!


Edited by Robert1000, 17 April 2013 - 10:45 AM.


#2756 CHIRON

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Posted 17 April 2013 - 01:06 PM

Has anybody done Gerson Therapy for any extended period?  For those who haven't heard of it:  Gerson is a whole body healing technique that was developed in the 1920s and has been used to cure everything from metastitized cancers to arthritis to diabetes to almost anything you can imagine.  It involves drinking 13 glasses of organic veggie juices, eliminating salt, supplementing with potassium and doing regular coffee enemas.  It sounds like it would be capable of restoring and healing tissues that were damaged by Accutane.  It requires a total commitment to the therapy but sounds promising.  Wondered if anyone has done it yet. Supposedly, it takes about two years to totally heal the human body.  http://gerson.org/gerpress/



#2757 oli girl

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Posted 17 April 2013 - 02:41 PM

Juicing yes! Mostly veggies though since iam a diabetic! Potassium a must for me! Coffee enema nope haven't tried that interest read though!

I have heard that people with tummy issues they blend to keep the fiber and blend when using certain fruits as juicer is more for veggies!

If you can stay committed juicing is good!,
The secret of health for both mind & body
is not to mourn for the past, not to worry about the future, or not anticipate troubles, but to live the present moment wisely and earnestly.
The Buddha

#2758 Gladiatoro

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Posted 17 April 2013 - 07:51 PM

http://www.naturalne...ts_dangers.html



#2759 CHIRON

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Posted 17 April 2013 - 07:56 PM

Juicing yes! Mostly veggies though since iam a diabetic! Potassium a must for me! Coffee enema nope haven't tried that interest read though!

I have heard that people with tummy issues they blend to keep the fiber and blend when using certain fruits as juicer is more for veggies!

If you can stay committed juicing is good!,

 Here is an interesting documentary on natural cancer cures/treatments... 



#2760 oli girl

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Posted 17 April 2013 - 09:20 PM

Yep it is interesting! I watched Food Matter documentary recently and one female was dx with cancer at 33 and she changed her diet and started jucining etc... She was slightly overweight and eat a lot of sugar. It is hard to do, but if it makes you feel better and you are desperate you will do anything :)

 

Thanks for sharing the video :)



http://www.naturalne...ts_dangers.html

To Bad Accutane isn't mentioned unless I missed it eusa_wall.gif


The secret of health for both mind & body
is not to mourn for the past, not to worry about the future, or not anticipate troubles, but to live the present moment wisely and earnestly.
The Buddha


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