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Repairing the long-term damage from Accutane

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#2621 camaroz28

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Posted 06 March 2013 - 10:02 PM

http://www.naturalne..._sclerosis.html Big Pharma is at it again stealing natures cures from ancient chinese medicine , interesting read. Click on the link.

Yes I agree, they are sneaky. I guess you can't blame them, given the success of past winners like Propecia. Saw Palmetto was already quite nasty, so why not improve on the idea, and remarket for greed? I'm agreeing with you; not that you can see my post.


Edited by camaroz28, 06 March 2013 - 10:05 PM.

"Fret not fellas. I've got a 145 IQ, zen pain tolerance, the resilience of a cockroach, the survival instincts of a rat. I'll win; it's what I do. And then I'll help all of you, forgetting no one; I swear."

 

"I did get some fatigue and minor cramps from taste testing spicy food I was cooking. Even though I didn't swallow and rinsed, the residue got me. This hypersensitivity is annoying."

 

 

Thus spoke Joseph Buchignani.


#2622 Livetoregret

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  • Interests:finished taking Roaccutane December 2010.
    Takin this drug has been the worst decision I have ever made and I have regretted it every day since.
    Doseage: 60:40 mg alternating daily for 11/12 months
    Sideffects:None till course was over.
    Now - SEVERE dry/brittle hair.
    HAIRLOSS - lost at least 70% and continues...acne came back in July, worse than I ever suffered from it. I now have back, chest, neck & cheeks that are covered.
    So now Im bone dry with no natural hydration with horrific acne. As a 31 YO woman with now destroyed skin & hair.
    My side effects include: Chronic Dry mouth
    Severe dry,tight,dehydrated, ashy,mottled,discolored (yellow & red),wrinkled,scarred poorly healing skin
    Facial fat atrophy - fatloss. Hollow eyes & cheeks
  • Joined: 22-October 12

Posted 07 March 2013 - 08:13 PM

Live to regret when you are describing your symptoms it sound exactly as what has happened to me. Every single symptom you are describing is what I am struggling with every day. I used to do little bit of modelling too. I lost 70% of my hair and it falls out every day, it also changed its texture and colour. My skin is fucked. The worst thing is I still have acne which is bizarre as my skin is so dry where is it coming from. It scars so easily and my whole back is covered in spots top to bottom. I never even had back acne before accutane.

Joseph I don't think dry skin and hair loss is caused by an autoimmune response. Accutane affects hair follicles and sebaceous glands. I closes it up, that's it. I don't want to be horrible but i don't think that's reversible. That thought is killing me every day.

I think your right and thats what really fucking scares me....



#2623 oli girl

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Posted 07 March 2013 - 10:49 PM

Live to regret when you are describing your symptoms it sound exactly as what has happened to me. Every single symptom you are describing is what I am struggling with every day. I used to do little bit of modelling too. I lost 70% of my hair and it falls out every day, it also changed its texture and colour. My skin is fucked. The worst thing is I still have acne which is bizarre as my skin is so dry where is it coming from. It scars so easily and my whole back is covered in spots top to bottom. I never even had back acne before accutane.

Joseph I don't think dry skin and hair loss is caused by an autoimmune response. Accutane affects hair follicles and sebaceous glands. I closes it up, that's it. I don't want to be horrible but i don't think that's reversible. That thought is killing me every day.

I think your right and thats what really fucking scares me....

Many Accutane suffers have been found to have autoimmune conditions in which many autoimmune conditons symptoms are dry skin & hair loss....Such as Autoimmune thyroid, diabetes, celiac, etc....That's not saying that some Accutane suffers just have permanant dry skin or hair loss b/c that has happened also.


The secret of health for both mind & body
is not to mourn for the past, not to worry about the future, or not anticipate troubles, but to live the present moment wisely and earnestly.
The Buddha

#2624 Livetoregret

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  • Interests:finished taking Roaccutane December 2010.
    Takin this drug has been the worst decision I have ever made and I have regretted it every day since.
    Doseage: 60:40 mg alternating daily for 11/12 months
    Sideffects:None till course was over.
    Now - SEVERE dry/brittle hair.
    HAIRLOSS - lost at least 70% and continues...acne came back in July, worse than I ever suffered from it. I now have back, chest, neck & cheeks that are covered.
    So now Im bone dry with no natural hydration with horrific acne. As a 31 YO woman with now destroyed skin & hair.
    My side effects include: Chronic Dry mouth
    Severe dry,tight,dehydrated, ashy,mottled,discolored (yellow & red),wrinkled,scarred poorly healing skin
    Facial fat atrophy - fatloss. Hollow eyes & cheeks
  • Joined: 22-October 12

Posted 07 March 2013 - 10:57 PM

 

Live to regret when you are describing your symptoms it sound exactly as what has happened to me. Every single symptom you are describing is what I am struggling with every day. I used to do little bit of modelling too. I lost 70% of my hair and it falls out every day, it also changed its texture and colour. My skin is fucked. The worst thing is I still have acne which is bizarre as my skin is so dry where is it coming from. It scars so easily and my whole back is covered in spots top to bottom. I never even had back acne before accutane.

Joseph I don't think dry skin and hair loss is caused by an autoimmune response. Accutane affects hair follicles and sebaceous glands. I closes it up, that's it. I don't want to be horrible but i don't think that's reversible. That thought is killing me every day.

I think your right and thats what really fucking scares me....

Many Accutane suffers have been found to have autoimmune conditions in which many autoimmune conditons symptoms are dry skin & hair loss....Such as Autoimmune thyroid, diabetes, celiac, etc....That's not saying that some Accutane suffers just have permanant dry skin or hair loss b/c that has happened also.

Jen we know about the auto immune effect, what about somthing harder to detect like pituitary dysfunction, that's what Im exploring now. 



#2625 Livetoregret

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  • Gender:Female
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  • Interests:finished taking Roaccutane December 2010.
    Takin this drug has been the worst decision I have ever made and I have regretted it every day since.
    Doseage: 60:40 mg alternating daily for 11/12 months
    Sideffects:None till course was over.
    Now - SEVERE dry/brittle hair.
    HAIRLOSS - lost at least 70% and continues...acne came back in July, worse than I ever suffered from it. I now have back, chest, neck & cheeks that are covered.
    So now Im bone dry with no natural hydration with horrific acne. As a 31 YO woman with now destroyed skin & hair.
    My side effects include: Chronic Dry mouth
    Severe dry,tight,dehydrated, ashy,mottled,discolored (yellow & red),wrinkled,scarred poorly healing skin
    Facial fat atrophy - fatloss. Hollow eyes & cheeks
  • Joined: 22-October 12

Posted 07 March 2013 - 11:39 PM

Ps Guys in recent months Ive developed a really bad case of keratosis pillaris ALL over my body - neck,chest,arms,legs,butt..just when I though it couldnt get any worse ...



#2626 sbowlchica

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Posted 11 March 2013 - 08:39 AM

I'm trying the low oxalate diet. Two days on it, I felt great-- no more hair loss! skin not dry! It was wonderful!

 

... and now I'm in the detox phase and feel like absolute shit.

 

I feel tired all the time but I can't sleep. I feel anxious. I have brain fog. I'm back to being hypersensitive and irrational. Skin and hair are awful. It's like everything that happened to me on Accutane is coming back in full force.

 

Oxalates are chelators for important nutrients; they also impair the body's ability to rejuvenate and detoxify. They cause inflammation and can negatively impact your thyroid and kidneys (both problems I have.) Magnesium and probiotics are supposed to help the body process oxalates, so I'm taking both and make a point to eat plain Greek yogurt mixed with a banana every morning.

 

I tried my first water fast yesterday and was surprised by how great I felt. It was like I was living in a dream-- I was kind of foggy but absolutely relaxed and at peace... and then I couldn't sleep on an empty stomach and ate something right at the 24 hour mark. Even after that, still couldn't sleep.

 

The diet is tolerable-- it's basically a step up from the kind of diet most of you guys are on. Basically no grains except rice, a limited supply of vegetables and fruits, no legumes, but any meat and dairy is fine. I'll keep you guys updated on how it goes and let you know if it helps me any.

 

More information here: http://lowoxalate.info/index.html



Recovering from Accutane-related hair loss.

(over a year and a half after stopping...)


#2627 oli girl

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Posted 11 March 2013 - 03:21 PM

 

 

Live to regret when you are describing your symptoms it sound exactly as what has happened to me. Every single symptom you are describing is what I am struggling with every day. I used to do little bit of modelling too. I lost 70% of my hair and it falls out every day, it also changed its texture and colour. My skin is fucked. The worst thing is I still have acne which is bizarre as my skin is so dry where is it coming from. It scars so easily and my whole back is covered in spots top to bottom. I never even had back acne before accutane.

Joseph I don't think dry skin and hair loss is caused by an autoimmune response. Accutane affects hair follicles and sebaceous glands. I closes it up, that's it. I don't want to be horrible but i don't think that's reversible. That thought is killing me every day.

I think your right and thats what really fucking scares me....

Many Accutane suffers have been found to have autoimmune conditions in which many autoimmune conditons symptoms are dry skin & hair loss....Such as Autoimmune thyroid, diabetes, celiac, etc....That's not saying that some Accutane suffers just have permanant dry skin or hair loss b/c that has happened also.

Jen we know about the auto immune effect, what about somthing harder to detect like pituitary dysfunction, that's what Im exploring now. 

Well thyroid is one that is part of pituitary and hypothalumus. There is hypopituitarism, which could included failure of the pituitary. Usually either, thyroid disruption, tumor, adenoma, Diabetes Insipidus (diffrent from regular diabetes)  It can effect growth hormone, female hormones, acth etc... Usually lab work and a scan of the pituitary gland if it is not thyroid related. I forgot did what were your iron levels high or low????

 

I really believe with you have a high RA factor and some thyroid off that this is your main problem, the thing is you have stupid doctors there! Look up RA and you will see that it causes KP and other skin disorders not just pain. If I could I'd fly 24hrs there and bring you back to the U.S. for treatment.


The secret of health for both mind & body
is not to mourn for the past, not to worry about the future, or not anticipate troubles, but to live the present moment wisely and earnestly.
The Buddha

#2628 Livetoregret

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  • Gender:Female
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  • Interests:finished taking Roaccutane December 2010.
    Takin this drug has been the worst decision I have ever made and I have regretted it every day since.
    Doseage: 60:40 mg alternating daily for 11/12 months
    Sideffects:None till course was over.
    Now - SEVERE dry/brittle hair.
    HAIRLOSS - lost at least 70% and continues...acne came back in July, worse than I ever suffered from it. I now have back, chest, neck & cheeks that are covered.
    So now Im bone dry with no natural hydration with horrific acne. As a 31 YO woman with now destroyed skin & hair.
    My side effects include: Chronic Dry mouth
    Severe dry,tight,dehydrated, ashy,mottled,discolored (yellow & red),wrinkled,scarred poorly healing skin
    Facial fat atrophy - fatloss. Hollow eyes & cheeks
  • Joined: 22-October 12

Posted 11 March 2013 - 07:55 PM

 

 

 

Live to regret when you are describing your symptoms it sound exactly as what has happened to me. Every single symptom you are describing is what I am struggling with every day. I used to do little bit of modelling too. I lost 70% of my hair and it falls out every day, it also changed its texture and colour. My skin is fucked. The worst thing is I still have acne which is bizarre as my skin is so dry where is it coming from. It scars so easily and my whole back is covered in spots top to bottom. I never even had back acne before accutane.

Joseph I don't think dry skin and hair loss is caused by an autoimmune response. Accutane affects hair follicles and sebaceous glands. I closes it up, that's it. I don't want to be horrible but i don't think that's reversible. That thought is killing me every day.

I think your right and thats what really fucking scares me....

Many Accutane suffers have been found to have autoimmune conditions in which many autoimmune conditons symptoms are dry skin & hair loss....Such as Autoimmune thyroid, diabetes, celiac, etc....That's not saying that some Accutane suffers just have permanant dry skin or hair loss b/c that has happened also.

Jen we know about the auto immune effect, what about somthing harder to detect like pituitary dysfunction, that's what Im exploring now. 

Well thyroid is one that is part of pituitary and hypothalumus. There is hypopituitarism, which could included failure of the pituitary. Usually either, thyroid disruption, tumor, adenoma, Diabetes Insipidus (diffrent from regular diabetes)  It can effect growth hormone, female hormones, acth etc... Usually lab work and a scan of the pituitary gland if it is not thyroid related. I forgot did what were your iron levels high or low????

 

I really believe with you have a high RA factor and some thyroid off that this is your main problem, the thing is you have stupid doctors there! Look up RA and you will see that it causes KP and other skin disorders not just pain. If I could I'd fly 24hrs there and bring you back to the U.S. for treatment.

Yes I now have a doctor that looking into pituitary function as well as hormonal imbalance/thyroid (again)/RA/ etc etc - never ending merry go round of nothingness..being sent for bone scan and an MRI.



#2629 Milano

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Posted 12 March 2013 - 03:49 PM

I'm trying the low oxalate diet. Two days on it, I felt great-- no more hair loss! skin not dry! It was wonderful!

 

... and now I'm in the detox phase and feel like absolute shit.

 

I feel tired all the time but I can't sleep. I feel anxious. I have brain fog. I'm back to being hypersensitive and irrational. Skin and hair are awful. It's like everything that happened to me on Accutane is coming back in full force.

 

Oxalates are chelators for important nutrients; they also impair the body's ability to rejuvenate and detoxify. They cause inflammation and can negatively impact your thyroid and kidneys (both problems I have.) Magnesium and probiotics are supposed to help the body process oxalates, so I'm taking both and make a point to eat plain Greek yogurt mixed with a banana every morning.

 

I tried my first water fast yesterday and was surprised by how great I felt. It was like I was living in a dream-- I was kind of foggy but absolutely relaxed and at peace... and then I couldn't sleep on an empty stomach and ate something right at the 24 hour mark. Even after that, still couldn't sleep.

 

The diet is tolerable-- it's basically a step up from the kind of diet most of you guys are on. Basically no grains except rice, a limited supply of vegetables and fruits, no legumes, but any meat and dairy is fine. I'll keep you guys updated on how it goes and let you know if it helps me any.

 

More information here: http://lowoxalate.info/index.html

 

I've looked into the Oxalate connection also. There is definitely a chance of good things coming from such a diet.

 

Oxalates are a the problem for those with a damaged gut, which we all well aware is a major Accutane side effect. There is also an inverse relationship between Oxalates and Biotin and we also already know that Accutane negatively affects Biotin activity.

 

I'm half-assed trying to implement the diet as well. Its too bad I ate a ton of spinach and almonds daily after Accutane, might have made my situation worse.

 

I appear to incredibly sensitive to Biotin. Tiny amounts, I'm talking 150mcg (I've heard some people on this diet take up to 50,000mcg) every couple of days seems to give me dry skin and bad acne/folliculitis, but also helps with hair shedding and grows back the hair on the side of my head. This happens every time I try it. I once got up to 600mcg and woke up with heart palipitations and incredible pressure behind my eyes. No idea what is happening here, only guess is some sort of die off, becuase I suspect I have pretty bad fungal issues. If I could get up to the higher amount, I think my hair would definitely improve.

 

At the moment I'm taking calcium before meals (eggshell) and magnesium citrate at the end of the day. Gelatin/broth/slippery elm/ kefir water and zinc to try and heal my gut. B6 is also worth looking into. Going incredibly slowly with Biotin seems to be the only option for me.

 

Look forward to updates from you about this diet.


Edited by Milano, 12 March 2013 - 03:52 PM.

Whether you think you can or whether you think you can't, you're right - Henry Ford

#2630 MovingOn

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Posted 12 March 2013 - 07:44 PM

That's it, I'm going gluten-free.  I tried it for a week a while back and gave up, but I felt great on it.  I really think all of my problems are from diet. End of story. I will report back after a few weeks on how the gluten free is going.  I think I overestimated how difficult it is, but with the right supplies I can do it easily...going to stop making excuses.  Several individuals have tried gluten-free after accutane and have seen amazing results. I hope i cant fit that category.



also important that even if you don't have celiac, you can have gluten intolerance,personally I feel like shit after eating wheat products.



#2631 oli girl

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Posted 12 March 2013 - 09:25 PM

That's it, I'm going gluten-free.  I tried it for a week a while back and gave up, but I felt great on it.  I really think all of my problems are from diet. End of story. I will report back after a few weeks on how the gluten free is going.  I think I overestimated how difficult it is, but with the right supplies I can do it easily...going to stop making excuses.  Several individuals have tried gluten-free after accutane and have seen amazing results. I hope i cant fit that category.



also important that even if you don't have celiac, you can have gluten intolerance,personally I feel like shit after eating wheat products.

Just becareful with the U.S. Gluten free Craze some of it has more sugar, fat and perservatives. I try to eat a paelo diet not a strict one, which is pretty much gluten free. Since I am a lovely Accutane type 1 diabetic I make a lot of gluten free meals homemade and if it calls for sugar I use stevia smile.png

 

I agree though that I feel sooo much better when I eat very well & no wheat!



I'm trying the low oxalate diet. Two days on it, I felt great-- no more hair loss! skin not dry! It was wonderful!

 

... and now I'm in the detox phase and feel like absolute shit.

 

I feel tired all the time but I can't sleep. I feel anxious. I have brain fog. I'm back to being hypersensitive and irrational. Skin and hair are awful. It's like everything that happened to me on Accutane is coming back in full force.

 

Oxalates are chelators for important nutrients; they also impair the body's ability to rejuvenate and detoxify. They cause inflammation and can negatively impact your thyroid and kidneys (both problems I have.) Magnesium and probiotics are supposed to help the body process oxalates, so I'm taking both and make a point to eat plain Greek yogurt mixed with a banana every morning.

 

I tried my first water fast yesterday and was surprised by how great I felt. It was like I was living in a dream-- I was kind of foggy but absolutely relaxed and at peace... and then I couldn't sleep on an empty stomach and ate something right at the 24 hour mark. Even after that, still couldn't sleep.

 

The diet is tolerable-- it's basically a step up from the kind of diet most of you guys are on. Basically no grains except rice, a limited supply of vegetables and fruits, no legumes, but any meat and dairy is fine. I'll keep you guys updated on how it goes and let you know if it helps me any.

 

More information here: http://lowoxalate.info/index.html

 

I've looked into the Oxalate connection also. There is definitely a chance of good things coming from such a diet.

 

Oxalates are a the problem for those with a damaged gut, which we all well aware is a major Accutane side effect. There is also an inverse relationship between Oxalates and Biotin and we also already know that Accutane negatively affects Biotin activity.

 

I'm half-assed trying to implement the diet as well. Its too bad I ate a ton of spinach and almonds daily after Accutane, might have made my situation worse.

 

I appear to incredibly sensitive to Biotin. Tiny amounts, I'm talking 150mcg (I've heard some people on this diet take up to 50,000mcg) every couple of days seems to give me dry skin and bad acne/folliculitis, but also helps with hair shedding and grows back the hair on the side of my head. This happens every time I try it. I once got up to 600mcg and woke up with heart palipitations and incredible pressure behind my eyes. No idea what is happening here, only guess is some sort of die off, becuase I suspect I have pretty bad fungal issues. If I could get up to the higher amount, I think my hair would definitely improve.

 

At the moment I'm taking calcium before meals (eggshell) and magnesium citrate at the end of the day. Gelatin/broth/slippery elm/ kefir water and zinc to try and heal my gut. B6 is also worth looking into. Going incredibly slowly with Biotin seems to be the only option for me.

 

Look forward to updates from you about this diet.

Yes Biotin can be effected by accutane, there is even a few studies. I had mine checked recenlty 4yrs after accutane and I wasn't abnormal but on the cusp of low! It's a enzyme and a important one at that. Also, it can cause acne in some and not sure what brand your taking for it to cause palipitations etc... B6 & B1 I take both of thoose also.


Edited by oli girl, 12 March 2013 - 09:22 PM.

The secret of health for both mind & body
is not to mourn for the past, not to worry about the future, or not anticipate troubles, but to live the present moment wisely and earnestly.
The Buddha

#2632 sbowlchica

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Posted 13 March 2013 - 01:26 PM

@sdro123: I'd suggest going one step further than gluten-free. I didn't have much improvement on gluten-free, but on this diet, I'm already seeing promising signs.

 

@Milano: I take a prenatal vitamin with biotin in it. Biotin alone broke me out in horrible cystic acne-- if you take one B vitamin alone the ratio of B vitamins will be screwed up, and boom! acne! 

Today marks one week on the low-oxalate diet! I'm cutting out all foods marked "Very High" or "High" according to this website: http://lowoxalate.info/recipes.html

I've definitely been experiencing some detox symptoms: insomnia, brain fog, lack of energy, weakness, dehydration, chills, temperature sensitivity, super sensitive burning skin and eyes, anxiety, feeling "blah", emotional sensitivity... Usually, I can drink a lot of water and my head feels better-- not anymore. Also, on the emotional front, I've been more irritable and brash.

The weirdest symptom so far is my teeth and gums hurting... a couple days ago I could barely chew my food! Apparently that means I'm detoxing too fast and could cause harm, so I ate some hummus with pretzels and some chocolate covered almonds (just a few!) and my teeth don't hurt as much anymore.

However, some things have gotten better. Somehow, my skin and hair are softer and less dry... dandruff is going away. I'm losing a bit less hair than I usually do. No change to my IBS/poor digestion, but I don't have to go to the bathroom as frequently, which is definitely a plus.

Today has been unusually good. I woke up feeling-- not that bad, actually, tired and foggy... When I combed my hair, I only lost about 15 or so hairs, which is a huge improvement. I felt kind of dreamlike, at peace; even when I got up to give my French presentation I felt like I was laying on a couch talking to one of my good friends. (This never happens.) Yesterday, I lost a ton of hair, and when I got up and narrated a 30 second cheese commercial, I was a nervous wreck. I wonder if the diet is helping already or I've just had a couple of freaky good days where everything goes right amidst all the detox craziness.

The people I've heard from online say it could take a month or two to start seeing real effects, and the detox symptoms come and go in waves, sometimes even years in! I can definitely put up with this; it isn't much worse than what I normally go through-- the only big change is my unusual drop in mood. People online describe sandy stool with specks in it and cloudy urine to mean you're getting rid of oxalates. When I ate spinach every day I had cloudy urine all the time, but recently, I haven't had any of that.

For your information: I take a prenatal vitamin, magnesium oxide, evening primrose oil, MSM, and acidophilus.

Warning if you're going to try this diet: different food lists online have conflicting information! Some food I have found conflicting information for are grape juice, oranges, kale, broccoli, peaches... I've decided to trust the website above since it is run by a group I've joined that send me daily helpful emails... they really know their stuff! (Even so, to be safe, I try to limit these foods, anyway.) Here's the link to the group: http://health.groups...g_Low_Oxalates/
 


Edited by sbowlchica, 13 March 2013 - 01:29 PM.


Recovering from Accutane-related hair loss.

(over a year and a half after stopping...)


#2633 MovingOn

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Posted 13 March 2013 - 06:38 PM

Does anyone have hip pain or knee pain that has gotten better??? i'm going to PT now for hip bursitis, and I also had inflammation in my knees but no visible damage.  Has anyone got any help with similar problems? and no I am not fishing for doomsdayers/debbie downers to tell me i'm fucked...i want some honest feedback though.



#2634 oli girl

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Posted 13 March 2013 - 08:58 PM

FYI everyone....I sure you have noticed they combined all prescrption acne treatments into one fourm. Our pinned Accutane negative and postive threads gone. Accutane pinned thread on studies gone. If someone posts a topic looking for help it may be missed and we have to keep up with this thread otherwise it will get lost in the shuffle! Not liking this sad.png

 

Sdro123- I don't know if I have a good answer there's a lot of things, but have tried taking a bath in epsom salt? Might help with the pain & inflamation.


Edited by oli girl, 13 March 2013 - 08:59 PM.

The secret of health for both mind & body
is not to mourn for the past, not to worry about the future, or not anticipate troubles, but to live the present moment wisely and earnestly.
The Buddha

#2635 Gladiatoro

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Posted 13 March 2013 - 10:00 PM

FYI everyone....I sure you have noticed they combined all prescrption acne treatments into one fourm. Our pinned Accutane negative and postive threads gone. Accutane pinned thread on studies gone. If someone posts a topic looking for help it may be missed and we have to keep up with this thread otherwise it will get lost in the shuffle! Not liking this sad.png

 

Sdro123- I don't know if I have a good answer there's a lot of things, but have tried taking a bath in epsom salt? Might help with the pain & inflamation.

Yeah I noticed that the negative threads are  GONE ,  hmmm.... wonder why could we be inflicting too much damage$$$ on the maker of this poison??? . Too bad suckers  the truth will be told.



#2636 Livetoregret

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  • Gender:Female
  • Location:SYDNEY, AUSTRALIA
  • Interests:finished taking Roaccutane December 2010.
    Takin this drug has been the worst decision I have ever made and I have regretted it every day since.
    Doseage: 60:40 mg alternating daily for 11/12 months
    Sideffects:None till course was over.
    Now - SEVERE dry/brittle hair.
    HAIRLOSS - lost at least 70% and continues...acne came back in July, worse than I ever suffered from it. I now have back, chest, neck & cheeks that are covered.
    So now Im bone dry with no natural hydration with horrific acne. As a 31 YO woman with now destroyed skin & hair.
    My side effects include: Chronic Dry mouth
    Severe dry,tight,dehydrated, ashy,mottled,discolored (yellow & red),wrinkled,scarred poorly healing skin
    Facial fat atrophy - fatloss. Hollow eyes & cheeks
  • Joined: 22-October 12

Posted 14 March 2013 - 02:36 AM

Has anyone emailed mods about this???!

#2637 Gladiatoro

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Posted 14 March 2013 - 12:08 PM

Has anyone emailed mods about this???!

I noticed you started a new " negative accutane experience" good job , let's hope it remains for a while before they delete it.



#2638 Milano

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Posted 14 March 2013 - 06:38 PM

@oli girl

 

Yeah, I'm fairly confident that I will be low in Biotin, just wish I could tolerate higher doses. I would try another brand but its pretty difficult to find small dosages, they are usually up in the 1000s and I struggle on 150mcg.

 

@sbowlchica

 

Yeah I think I will try your suggestion of taking it with the other b vitamins. I've been meaning to get some anyway.

 

Oh and I definitely get painful and sensitive teeth when I go really low oxalate, really annoying actually. Hair shedding is less and acne is better but other symptoms seem to be subtle. I'm not sure I've experienced any of these major 'dumps' they speak of.


Whether you think you can or whether you think you can't, you're right - Henry Ford

#2639 IndigoRush

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Posted 17 March 2013 - 04:44 PM

Hi Guys...
Few things to say.


I've been making progress on the depression/anxiety front, but once again I've fallen again because these f*cking side effects take any joy from my life.

Gums (mostly around back teeth) keep bleeding every time I floss and brush.

My girlfriend keeps joking that my breath smells.

I find it hard to laugh though, as I don't want to have to be conscious about something ELSE.

I usually have a bad taste in my mouth, like blood.

I can assure you I'm not a Vampire... or Zombie.

 

I was considering going to my doctor's too get a fasting blood test done to check if I have diabetes.

Because Oil girl has it, it's always at the back of my mind, especially as food seems to make me sleepy and I generally have no energy.

 

Another thing that I'm worried about is moobs.

Nothing major, but if anything I'm underweight and yet my pecs are a bit boobish.

 

I pulled out some old blood test results and noted a few things:

 

1) Testosterone level is 12.6. The range is 9-35.00. Clearly this is a problem and my T. level is probably much lower than average for my age-range.

2) Bilirubin level is 19.00 (though I know it's been higher). The range is 0-20. I looked into this and beyond mere jaundice, this could indicate liver cell damage and obstruction to excretion of bile.

3) Neutrophil count is 1.75. The rage is 2.5-7.5. Low reading like this can mean body is less able to prevent/fight infections.

4) High Estradial level. I couldn't find the paperwork, but I know this was high for me. Not sure what it indicates, but I think it has to do with high estrogen... possibly causing moobs.

 

Erggh, sick of this fucking shit.


You may be stuck in a rut, but that's just how you feel today.
Never ever give up, because help is on it's way...

#2640 Livetoregret

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    Posts: 295
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About Me
  • Gender:Female
  • Location:SYDNEY, AUSTRALIA
  • Interests:finished taking Roaccutane December 2010.
    Takin this drug has been the worst decision I have ever made and I have regretted it every day since.
    Doseage: 60:40 mg alternating daily for 11/12 months
    Sideffects:None till course was over.
    Now - SEVERE dry/brittle hair.
    HAIRLOSS - lost at least 70% and continues...acne came back in July, worse than I ever suffered from it. I now have back, chest, neck & cheeks that are covered.
    So now Im bone dry with no natural hydration with horrific acne. As a 31 YO woman with now destroyed skin & hair.
    My side effects include: Chronic Dry mouth
    Severe dry,tight,dehydrated, ashy,mottled,discolored (yellow & red),wrinkled,scarred poorly healing skin
    Facial fat atrophy - fatloss. Hollow eyes & cheeks
  • Joined: 22-October 12

Posted 18 March 2013 - 02:56 AM

Navigating this site really sucks. I'm going to start a website.
What do you say?
Once the site once it's up and running we should move all content over and it can be solely focused on accutane. There is not functional website currently and this place has become pointless since everything been moved around.




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