3022 replies to this topic

[Dubya_B]

@Indigo- Nice find about isotretinoin and the liver.

 

I think the metabolites of 13 cis-retinoic acid (isotretinoin) are stored in the liver instead of the actual drug itself. It gets turned into all-trans retinoic acid(tretinoin) and other retinoids by the body. It has been said that most effects of isotretinoin are due to it being isomerized into the active form all-trans retinoic acid(tretinoin).

 

The idea that that the drug or it's metabolites are stored in the body for years is totally baseless.

It enters the body, does its sometimes permanent damage, then is metabolized and excreted out.

 

 

[sdro123]

Hello All,

 

Figured I would update you guys.  I started taking the MMS (without the activator, since it's acidic), and have been on it for two days now. One drop in the morning diluted in 8oz of water and one drop at night...stays in the system approximately 4-5 hours.  Let me tell you....I can suddenly breathe again, think clearly, and blood flow everywhere has improved.  I can instantly tell when it starts to wear off, thus I don't know that it will fix my symptoms so to speak, but if it can allow me to be active, then it IS fixing an aspect of my life.  I am no longer scared of all the bullshit, and FDA assholes saying what is safe and what is not.  It is not industrial bleach or chlorine, anyone who says that does not understand chemistry.  The active ingredient is sodium chlorite, which has been used by many people before.  My scalped instantly stopped burning after taking it, my sinuses were clear, and i had sooo much energy.  The first time i took it I got really dehydrated, so I drank extra water.  I also think I may have diabetes, in which I have been using cloves of garlic to quench my thirst (garlic mimics insulin).  When i took the garlic and the MMS, I became outrageously optimistic and energetic.  I felt a little manic since I wasn't used to that amount of energy and oxygen intake.  I am going to keep taking it at the amount that Nathan takes it, as it seems to control the awful symptoms.  I noticed it does help with the joint pain as well, everything just seems looser.  It's not a cure all, I still have symptoms, but my do I feel better on this stuff.  Side effects include a little gas, for me it turned to belching...but my stomach inflammation instantly went down.  I didn't so much get nauseous as just a little gassy.  As i've been taking it there is a small degree of reflux, but it's settled down a bit. I'll take that over pain and not feeling like I can breathe when i walk upstairs.  If anyone does decide to take it, please read the directions. Start with one drop at a time, and dilute with water always.  My yoga practice has been amped to the next level, as I feel blow flow may improve my muscles, and muscle tone.  I'm very excited about this! FUCK THE FDA! They can suck my *****.  Of course, I have only been on it for 2.5 days now, but it's all been gravy.  I will keep you updated.  Let me know of any updates you guys!! Take care.

 

[sdro123]

has anyone got any gum grafts done?! I'd be afraid to fuck up my teeth even more....but just curious...it's gonna need to happen soon...

[JosephBuchignani]

Great news about MMS! 

 

Oof, I finally figured out the problem since coming to China. I thought their chicken was less factory farmed due to developing status; turns out they're the worst offender. They contain caffeine, antihistamines, acetaminophen, fluroquinolones (banned antibiotics), arsenic, and even Prozac, plus the usual horrible omega 3:6 ratio. NO WONDER. 

 

Now I have to find some organic meat in Shenzhen, should be interesting. 

[JosephBuchignani]

Figured it out. Herbivorous fish like tilapia and catfish are ok when farmed on grains. So I can go with those for my bulk cheap protein source, even if I can't find anything decent that's organic around here. http://www.marksdail.../#axzz2LtZQPfqX

[Livetoregret]

Wow some people are getting really far out with the theories here, If you consistently feel shit all the time which I do, how can you gauge how a particular food or supplement effects you? Forgive me, but there is nothing that improve my symptoms whether it be a food, a supplement or anything.

[sdro123]

Livetoregret,

 

I think part of it comes down to figuring out what's going on in the body.  My research and experience has supported that something autoimmune is occurring, as supplements/drugs that stop the auto-immune response include oil of oregano, MMS, cannabis (a lot of research, oral ingested form) and some others instantly stop my body in its tracks and hits the reset button.  What's going on in my body may be slightly different than others, but i think the underlying inability to fight off anything, and the body attacking itself non-the-less is the real issue...for me at least.  I've experimented tirelessly and there are things that DO work.  I'm sorry if they do not work for you, as I only hope that someday you can find relief as well.  I am still struggling immensely, but I have to have hope that the symptoms will stop getting worse and will eventually plateau which has happened for some people.  MMS has drastically improved things for me.  Currently waiting on labs to get done for diabetes, hypothyroid, etc. to get more information too.  Yoga and MMS has gone a LONG way for me.  If you don't have searing joint pain, my gosh that's one thing to be grateful for. I have it all over my body...only thing that's helped is staying mobile, doing yoga, taking HA, and yoga.  Started taking iodine as well, instantly smoother skin.  Lots of things were apparently damaged.  It's all a matter if finding what went wrong in the body, and how to manage or fix it.  It is possible! Don't stop questioning!

[acne1776]

Livetoregret,

 

I think part of it comes down to figuring out what's going on in the body.  My research and experience has supported that something autoimmune is occurring, as supplements/drugs that stop the auto-immune response include oil of oregano, MMS, cannabis (a lot of research, oral ingested form) and some others instantly stop my body in its tracks and hits the reset button.  What's going on in my body may be slightly different than others, but i think the underlying inability to fight off anything, and the body attacking itself non-the-less is the real issue...for me at least.  I've experimented tirelessly and there are things that DO work.  I'm sorry if they do not work for you, as I only hope that someday you can find relief as well.  I am still struggling immensely, but I have to have hope that the symptoms will stop getting worse and will eventually plateau which has happened for some people.  MMS has drastically improved things for me.  Currently waiting on labs to get done for diabetes, hypothyroid, etc. to get more information too.  Yoga and MMS has gone a LONG way for me.  If you don't have searing joint pain, my gosh that's one thing to be grateful for. I have it all over my body...only thing that's helped is staying mobile, doing yoga, taking HA, and yoga.  Started taking iodine as well, instantly smoother skin.  Lots of things were apparently damaged.  It's all a matter if finding what went wrong in the body, and how to manage or fix it.  It is possible! Don't stop questioning!

 

I like the attitude. Happy to hear you're having some success

[Livetoregret]

Livetoregret,

 

I think part of it comes down to figuring out what's going on in the body.  My research and experience has supported that something autoimmune is occurring, as supplements/drugs that stop the auto-immune response include oil of oregano, MMS, cannabis (a lot of research, oral ingested form) and some others instantly stop my body in its tracks and hits the reset button.  What's going on in my body may be slightly different than others, but i think the underlying inability to fight off anything, and the body attacking itself non-the-less is the real issue...for me at least.  I've experimented tirelessly and there are things that DO work.  I'm sorry if they do not work for you, as I only hope that someday you can find relief as well.  I am still struggling immensely, but I have to have hope that the symptoms will stop getting worse and will eventually plateau which has happened for some people.  MMS has drastically improved things for me.  Currently waiting on labs to get done for diabetes, hypothyroid, etc. to get more information too.  Yoga and MMS has gone a LONG way for me.  If you don't have searing joint pain, my gosh that's one thing to be grateful for. I have it all over my body...only thing that's helped is staying mobile, doing yoga, taking HA, and yoga.  Started taking iodine as well, instantly smoother skin.  Lots of things were apparently damaged.  It's all a matter if finding what went wrong in the body, and how to manage or fix it.  It is possible! Don't stop questioning!

what's your experience with oil of oregano? Thats one I havent tried..

I have searing burning throughout my body as if I am burning from the inside, but at the same time my body is covered in chicken skin and I have the chills,I went and saw a lady today who has 25 yrs experience in treating medical and cosmetic problems holistically - she looked me over from head to toe, she says my circulation is impaired, my body can not eliminate red blood cells she looked at my labs and says I basically need to rebuild my entire system my skin and hair are reflective of internal destruction..I plan on doing cosmetic accupuncture among other things. 

I dont ecen know anymore, Ive lost faith in everything and am feeling very suicidal at the moment.

[JosephBuchignani]

Livetoregret, I figured out that my symptoms followed eating and digestive pattern, so I tried various elimination diets. I'd recommend seeing if fasting helps. If so, the problem may be resolved by diet changes. 

[Livetoregret]

And can you tell me what you man by your skin becoming smoother after taking iodine? Are we talking liquid?

How did it become smoother? 

[Livetoregret]

Livetoregret, I figured out that my symptoms followed eating and digestive pattern, so I tried various elimination diets. I'd recommend seeing if fasting helps. If so, the problem may be resolved by diet changes. 

Joseph - In the first year off it I ate my regular diet, whatever I liked really but Ive always eater healthily just with alot more bread & sugar and stuff. I never increased my water intake or eliminated anything and I was sort of cruising, everything went to shit in May last year for me., I started eliminating any bad stuff eating lots more fruit & veg, supplementing my diet, drinking tonnes of water and I have become so sick I feel Im hanging by a thread and death would be a blessing..

Im scared to fast I dont want to then become deficient in anything Ive worked so hard to have all the optimal nutrition for hair growth I dont want to traumatize my body anymore, Ive been through so much..I just feel and look so sick and poisoned

[JosephBuchignani]

Pain is merciless, that's a given here. 

 

Just because you think you're eating healthy, doesn't mean you're eating right for your damaged system. 

 

Go on a 24-48 hour water fast. If you improve, you'll know that what you're eating is causing at least part of the problem. If there's no change, then you'll know that removing foods won't help. 

 

You won't become deficient in anything from a 24-48 hour water fast. Humans can go a long time without food. 

[IndigoRush]

Joe's probably right on that account.

48 hours without food won't harm you.

But, it likely won't do much good either.

 

Livetoregret, you need to change your attitude if you want to stop feeling the way you do. I'm not going to say some bullshit about people worse off than you in Africa, but in perspective, things could be worse.

You've obviously tried very hard to fix things, and that obviously hasn't helped.

You're looking for the answers in all the wrong places, and you've become obsessed with your health to the point where you're making yourself worse because of the stress.

 

I don't know the answers to why we have these problems.

Theories suggest:

 

1) Drug is still in body and causing these issues (only reason I say this is possible is because some people get side effects after stopping the 'treatment')

2) The drug flat-out just damages the body, because it's chemotherapy (however, some people seem to get none of these symptoms, so that's unexplained)

3) The drug causes autoimmune issues (It obviously can do this, because Oligirl has diabetes) in some patients

4) The drug fucks up the endocrine (hormonal) system... (Could make sense)

5) Accutane damages the intestinal lining and weakens our ability to digest what we're eating (or makes us prone to allergies/ food sensitivities)

 

Bear in mind there are a few people who have improved without resulting to fasting. Diet clearly plays a part because this drug does something to the G.I. Tract.

There are things you can do to help your body though.

First, you need to stop spending every waking moment trying to find a way out of this. You won't because you don't even know the problem. You're not going to be better today, tomorrow, in a month. Maybe not for a year or longer.

But if someone told you you would get better and don't have to do anything, and you knew for fact that your body would heal in it's own time, you'd probably relax and realise you can't do anything about it right now.

Well, that's probably true. 

Have patience because you're wasting what little energy you do have on this.

That's not to say stop trying - Just don't expect something to cure you.

If you have money, and if you're like most of us you're probably lacking, you shouldn't waste it on random supplements.

Get a saliva test for your adrenals and follow a nutritionist's advice on what to eat.

Get a test for digestive issues, as this could be why your skin looks like shit. 

I don't know, but stop searching in the dark and come up with a plan where you make the decisions, not fate.

 

And quit feeling sorry for yourself, it won't do you any good.

[TaneAbomination]

@LiveToRegret:  Have you researched stem cell therapy?  Burn victims have healed completely from stem cell therapy.  Have you tried cannabis oil? This could relieve your pain at a minimum.  You  need to be very aggressive & start contacting universities / or neurologists to get the help you need.  

 

I spoke with a neurologist in Colombia who actually recommended stem cell therapy as a last resort for my issues. 

[Livetoregret]

@LiveToRegret:  Have you researched stem cell therapy?  Burn victims have healed completely from stem cell therapy.  Have you tried cannabis oil? This could relieve your pain at a minimum.  You  need to be very aggressive & start contacting universities / or neurologists to get the help you need.  

 

I spoke with a neurologist in Colombia who actually recommended stem cell therapy as a last resort for my issues. 

Yes I have looked into stem cell therapy and am seriously considering this as the only option to reair the damage done to my cell division capabilties, lets face it thats what it all boils down to.

I have made inquiries with this company:http://www.macquarie...dney-australia/

I am contacting various professors in the dermatology field but I am thinking I need to see an oncoligist

[sdro123]

And can you tell me what you man by your skin becoming smoother after taking iodine? Are we talking liquid?

How did it become smoother? 

I'm sorry to hear that you're feeling suicidal.  Please hand in there, you have a lot to live for.  The thoughts cross my mind everyday, but i tell them t fuck off.  It's been really hard lately as well.  I can't imagine exactly what it is like for you, but I have an idea.  and yes, it is liquid iodine. I just bought it off amazon.  My skin is just smoother and silkier.  Doesn't decrease wrinkles, but yes, smooth and silky.

[Livetoregret]

Joe's probably right on that account.

48 hours without food won't harm you.

But, it likely won't do much good either.

 

Livetoregret, you need to change your attitude if you want to stop feeling the way you do. I'm not going to say some bullshit about people worse off than you in Africa, but in perspective, things could be worse.

You've obviously tried very hard to fix things, and that obviously hasn't helped.

You're looking for the answers in all the wrong places, and you've become obsessed with your health to the point where you're making yourself worse because of the stress.

 

I don't know the answers to why we have these problems.

Theories suggest:

 

1) Drug is still in body and causing these issues (only reason I say this is possible is because some people get side effects after stopping the 'treatment')

2) The drug flat-out just damages the body, because it's chemotherapy (however, some people seem to get none of these symptoms, so that's unexplained)

3) The drug causes autoimmune issues (It obviously can do this, because Oligirl has diabetes) in some patients

4) The drug fucks up the endocrine (hormonal) system... (Could make sense)

5) Accutane damages the intestinal lining and weakens our ability to digest what we're eating (or makes us prone to allergies/ food sensitivities)

 

Bear in mind there are a few people who have improved without resulting to fasting. Diet clearly plays a part because this drug does something to the G.I. Tract.

There are things you can do to help your body though.

First, you need to stop spending every waking moment trying to find a way out of this. You won't because you don't even know the problem. You're not going to be better today, tomorrow, in a month. Maybe not for a year or longer.

But if someone told you you would get better and don't have to do anything, and you knew for fact that your body would heal in it's own time, you'd probably relax and realise you can't do anything about it right now.

Well, that's probably true. 

Have patience because you're wasting what little energy you do have on this.

That's not to say stop trying - Just don't expect something to cure you.

If you have money, and if you're like most of us you're probably lacking, you shouldn't waste it on random supplements.

Get a saliva test for your adrenals and follow a nutritionist's advice on what to eat.

Get a test for digestive issues, as this could be why your skin looks like shit. 

I don't know, but stop searching in the dark and come up with a plan where you make the decisions, not fate.

 

And quit feeling sorry for yourself, it won't do you any good.

Stef - to watch yourself physically fall apart and look like a completely different person within 2 years is beyond devastating, to lose your hair, to have the skin of someone twice my age, I cant accept these things. I know the damage is done, to have your skin over your entire body burn from the inside and have nowhere to turn, to feel hideous and disfigured and poisoned with no way out - how can I not become obsessed with getting my health back?

[sdro123]

Stefan,

 

Would a nutritionist be the best person to get a food allergy test done? or a gastroenterologist? or both? I havn't explored that realm yet, but i definitely believe i have food allergies. I also have a strange addiction to sushi....like real sushi...not the cooked crapped...talking raw fish and rice. I think it may have to do with the fact that it's a natural source of iodine and fatty acids....yum. 

 

The other Stef.

[Livetoregret]

9 grand for stem cell therapy - Im booked for a consult on the 12th March.

Everyone - please give me your opinions, do you think that this may help?

The doctor said he had treated one person before that had accutane sides, he's going to pull her file and we can discuss symptomatic relief at the consult.

 

I dont care I would do anything to normalize my body again - Im just scared that re injecting the same polluted cells into me may do nothing.