IndigoRush

Repairing the long-term damage from Accutane

11,282 posts in this topic

In relation to your question about milk thistle phytosome, it's different to regular milk thistle. Regular milk thistle is barely absorbed and only very small amounts enter into the bloodstream, likewise they use silimarin which is the active flavanoid responsible for liver regeneration. Within the silimarin is a substance called silibin, which is even more powerful than silimarnin. They isolate the silibin and bind it with two molecules of phosphatidyl choline, this makes it much more absorbable. Phosphatidyl choline is very similar to bile, it emulsifys fat just like bile. In fact chocolate bars and other processed foods always contain soy lecithin (phosphatidyl choline) to emulsify the fat in the bar. Bile contains cholesterol and phosphatidyl choline naturally in high amounts.....it basically makes the milk thistle around 10x more absorbable and as a result more effective.

It's been known to restore bile acid transport in cholestasis or other biliary problems, it's not quite as powerful as UDCA for the same purpose but it's natural and very good for the liver. Replacing your fats with coconuts and coconut oil takes a huge strain off the digestive system as they are MCT's so the body can easily absorb them. Fat causes the liver to purge thats the whole basis of the liver flush........Many people post accutane find it very difficult to get stones out, i've tried many times myself and only been successful once.

Glutathione enhancing supplements which milk thistle is one are also found in NAC, R-lipoic acid and undenatured whey protein concentrate. All are good at raising glutathione although accutane is principally removed through glucuronidation.

Thanks Chico

So before, when you said Milk Thistle doesn't do anything for accutane side effects, you meant regular Milk Thistle? I ordered some anyway. At this point, I'm trying anything that might help.

On a sidey, I've been talking the sensible-health tinctures for a week and have noticed no improvement whatsoever. My BM's are still terrible. It's like, I need to go, but once I'm sitting there I can't push anything out (nice image). I keep farting too, which is fucking shameful. The digestive enzymes I'm taking also seem to do nothing. I'm worried. Do you still think it's a bile-flow issue?

How can we influence glucuronidation? It's something the body does right? Sorry if it's what you've been talking about previously, I don't remember reading about it.

So would a supplement like Glutathione/NAC be useful?

Cheers man

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Hey guys, I just read through the latest posts and would like to make a recommendation for supplements. They ship worldwide, have an incredibly large selection and are VERY cheap. I know I sound like an advert right now, but I just thought it might help you all out. There's only so many things you can get from Amazon :P

http://www.iherb.com/

Also, I recommend this site for the advice given. All the information there is completely free and the forums are brilliant, so give it a shot if you feel like it:

http://www.marksdailyapple.com/

Anyway, I hope you're all doing well and improving; it's difficult to be going through these side effects, but keep your head up. The advice floating around this topic is very good, and I'm certain that these side-effects can be greatly migitated, if not completely reversed.

All the best!

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If i was you indigorush this is what i would recommend......diet- heavy on the organic fruits and vegetables, salads, green juices, lemon ginger celery beetroot juice. Order organic fruit and veg boxes from organic stores and eat clean. Eat some cooked vegetables occasionally like broccoli, potato's, squash etc. I take sunwarrior protein and workout regularly. I eat mostly a raw vegan diet with about 10-20% cooked vegetables/ legumes.

The main point is keep it low fat, try to avoid nuts and seeds and eat young coconuts, normal coconuts and coconut oil instead. I usually eat about 4-5 tablespoons of virgin coconut oil per day. I've found the skin on my face starts tingling after eating the coconut oil and it helps me, cos i have very low bile flow.

I'd recommend Dr khoshbins Livotox for you, i cant vouch for the other brands but i know that works at relieving post accutane constipation. I'd even recommend trying a few liver flushes but replacing the olive oil with coconut oil and seeing how you do.

The constipation and all the other problems are bile related. I just wish i knew about that sooner rather than taking loads of supplements only harming myself in the process. I wish you all the best.

Edited by Chico Esposito
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So it seems those who suffer long term side effects are the ones whose liver could not deal with the dose of accutane and was not able to remove it. So this is the reason it seems they do liver testing during treatment, if your liver enzymes are too high, they take you off the drug as it is an indication that your liver will not able to deal with the drug and you will likely have long term side effects.

Chico and others here, I am wondering if you all were tested for elevated liver enzymes during your treatment?

All of you are so young and I hope you can find something which will remove the accutane from your bodies.

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So it seems those who suffer long term side effects are the ones whose liver could not deal with the dose of accutane and was not able to remove it. So this is the reason it seems they do liver testing during treatment, if your liver enzymes are too high, they take you off the drug as it is an indication that your liver will not able to deal with the drug and you will likely have long term side effects.

Chico and others here, I am wondering if you all were tested for elevated liver enzymes during your treatment?

All of you are so young and I hope you can find something which will remove the accutane from your bodies.

Thanks.

But, no, my liver enzymes were fine throughout treatment.

I believe they take you off if they are.

I wouldn't touch accutane with a 10 foot pole.

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If i was you indigorush this is what i would recommend......diet- heavy on the organic fruits and vegetables, salads, green juices, lemon ginger celery beetroot juice. Order organic fruit and veg boxes from organic stores and eat clean. Eat some cooked vegetables occasionally like broccoli, potato's, squash etc. I take sunwarrior protein and workout regularly. I eat mostly a raw vegan diet with about 10-20% cooked vegetables/ legumes.

Ginger, chilli, garlic - open up the capillaries, good for detoxification and opening up the cells.

The main point is keep it low fat, try to avoid nuts and seeds and eat young coconuts, normal coconuts and coconut oil instead. I usually eat about 4-5 tablespoons of virgin coconut oil per day. I've found the skin on my face starts tingling after eating the coconut oil and it helps me, cos i have very low bile flow.

I'd recommend Dr khoshbins Livotox for you, i cant vouch for the other brands but i know that works at relieving post accutane constipation. If that doesn't work then maybe look into Eniva Vibe, but i'd go the route above first. I'd even recommend trying a few liver flushes but replacing the olive oil with coconut oil and seeing how you do.

The constipation and all the other problems are bile related. I just wish i knew about that sooner rather than taking loads of supplements only harming myself in the process. I wish you all the best.

Cheers man.

Livotox isn't available in the UK though. How did you get it? Where do you live?

The site doesn't post outside the US and Canada.

I saw a herbalist the other day and she reduced my supplements and did applied kinesiology on me, which showed I'm dairy intolerant.

I wasn't having dairy much anyway, but it is in soups you can buy which I now have to avoid.

I was having soya instead, but have found out that's not great either, so now take coconut milk/oat milk with my oatmeal.

I don't have tea or coffee, just herbal tea.

Still nothing to report.

I'm concerned that it's more complicated that my liver. I'm doing all I can and can see no improvement. I'm sure it needs support, but the whole penis thing... There's something wrong. Not just low sex drive. It's like I can't feel much at all, and it's shrivelled like an old man's most of the time.

Damn, I just want this fixed. So much potential is going to waste.

Organic foods are so pricey. I don't have a job right now :/

jsmil (I think it was) - if you're about, how are you getting on? Any luck with the eniva vibe?

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Good to se the forum is back open again! I wanted to make a post a few days ago. I've been away for a few weeks...

I took Eniva Vibe for 9 of the last 11 days, with the last time being yesturday, and it might actually be the last time I take it. This stuff has dried me out, gave me headaches, and made me feel sick. For most of these days I only took 1/4 teaspoon, which I worked out is only 1/12 of 1/2 fl oz. I could just manage taking this amount (maybe), but not any higher. But I understand just because it isn't working for me, it shouldn't stop anyone else giving this a go. If it can help some people, then it can help others.

What I've really come to post about, is the telomere shortening theory, which just found out about 3 days ago. Indigo - I saw your post in the forum which this was discussed in, so I assume you read the PDF. I posted around 6 weeks ago when I joined this thread that suicide was on my mind, because although I don't want to die, I refuse to let Accutane take me to the cleaners. And now I've actually found the telomere theory, I'm actually glad I have in a way, because it's what I needed to prove to people how bad Accutane really is. Anyone who reads the document will instantly have their doubts change.

Edited by jmsil
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Jmsil- I know your suffering, but don't let Roche win You have to hang in there! Yes, his theroy on telmomere is compelling, I assuming where found his pdf link, he does have more postings regarding his theory on another fourm also.

I believe I have been reading that they are now looking and studing Accutane & epigentics (sp)...Which will be interesting I might say.......

Hina79- All liver labs just perfect while on accutane and off!


The secret of health for both mind & body

is not to mourn for the past, not to worry about the future, or not anticipate troubles, but to live the present moment wisely and earnestly.

The Buddha


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Good to se the forum is back open again! I wanted to make a post a few days ago. I've been away for a few weeks...

I took Eniva Vibe for 9 of the last 11 days, with the last time being yesturday, and it might actually be the last time I take it. This stuff has dried me out, gave me headaches, and made me feel sick. For most of these days I only took 1/4 teaspoon, which I worked out is only 1/12 of 1/2 fl oz. I could just manage taking this amount (maybe), but not any higher. But I understand just because it isn't working for me, it shouldn't stop anyone else giving this a go. If it can help some people, then it can help others.

What I've really come to post about, is the telomere shortening theory, which just found out about 3 days ago. Indigo - I saw your post in the forum which this was discussed in, so I assume you read the PDF. I posted around 6 weeks ago when I joined this thread that suicide was on my mind, because although I don't want to die, I refuse to let Accutane take me to the cleaners. And now I've actually found the telomere theory, I'm actually glad I have in a way, because it's what I needed to prove to people how bad Accutane really is. Anyone who reads the document will instantly have their doubts change.

Hey man.

Yeah I've read it.

Didn't have the same effect on me though.

Because if it's true we're all fucked.

I don't know how I'd cope knowing I can't do anything.

But if eniva didn't do shit for you, I'm not going to spend more money on something that worked for one person.

Someone said they got better by fasting on the erectile dysfunction forum that's active. Fasting, as in not eating for a month - just having water/veg juice. If I knew for a fact that was the way out of this mess, I'd do it, but I'd find it f*cking difficult not eating for that long.

Don't know why I blanked out that fuck.

fuck fuck fuck :/

Oh, and I had a scam interview today... The world is evil!

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It's not really about letting Roche win. It's more about what's best for me.

I googled Eniva Vibe Accutane after Chico posted about it here, and found 3 other people who had positive results, so please don't just judge this product from my experience. Maybe I should give it another go, and just buld up my dose really slowly and hopefully my body will get used to it. 1/4 to 1/2 tsp was all I could take. It dried my skin out, yet I got some whiteheads which was strange.

Testing for our telomere length would tell us if our Telomeres have been shortened. But do they also reveal if you have hit the Hayflick limit?

I remeber reading The Sun 2 years ago ago about someone who had commited suicide after taking Accutane, and I've just found it on the Sun's website. She described that she felt "prematurely aged", and other syptoms - exactly how telomere shortening would work. She also mentions should would never get better, which could hint she actually read the Accutane telomere PDF, as this was a year after the PDF came out. Here's the link. Note the denials of her dermatologist and Roche regarding if Accutane was to blame - it would be almost funny if it wasn't so tragic. I personally don't know if there is a God, but if there is, and these people responsible, aren't bought to justice during this life, we should all take comfort in knowing they will spend eternal life in hell for what they've done.

http://www.thesun.co...st-is-told.html

Edited by jmsil
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Is anyone aware of the theories of 'mind over matter'? Of course I don't mean it's in our heads.

I'm on about stuff like (these are books) The healing code, E.F.T and The secret of instant healing.

A lot of people are saying that energy medicine is the future of health.

Thing is, it's fact that we are made up of energy, just like everything else in the world. So as new a theory as it may seem, it's really not that farfetched. Nobody walking the planet knows how the world works. Nobody knows what really happens when we die, and if there is a purpose to our being. I have trouble believing in God when shit happens, but science doesn't offer a good explaination either. They say we are spacedust that evolved. It's no more believable that genesis, despite what proof they want to shove in our faces. So, what I'm saying is... Hang in there. I think it'd be nice to talk to you guys over the phone. Message me your number if you want and we can talk. I know how lonely you feel, because of accutane. I feel like nobody I see in the real world can understand me.

The energy books though - A lot of reviews on Amazon (the US site has more) back these things up.

What I've found is, the more I think about accutane the worse things get.

I check this site quite regularly now, but for a while (maybe 7 months) I kind of just struggled on. This never improved, and I always had it on my mind, but I was doing other things in my spare time, like reading Harry Potter. Then, I started using all my time looking for answers that aren't there and my penis started having problems (libido, e.d, possible shrinkage - Not fun), and I started having terrible constipation.

I'm almost certain the law of attraction isn't a myth. It's hard to prove wrong. I feel shit, and I get worse. Sure, it doesn't help me stay happy, but it gives me the motivation to think more positively. If this is our only lives, we should make the most of it.

It could be worse. We still have vision. We can enjoy a book. I know how hard it is to take your mind of this crap, but you must, or it'll take you over.

I think that if you spent all your days worrying that you'll get the next problem (like Irritable bowel disease) you'd get it. It's easy to see how stress can age you and play havoc on your body. So, think about it. If you're worrying, you're stressed. That could be the thing with accutane.

There must be some people who took accutane 10 years and are fine. Surely? Wouldn't this telomere thing effect everyone? If not, why not?

Don't focus too much on telomere. I know it's scary. I read it and couldn't take my mind off it. I was scared. I felt like I didn't have control.

What's one thing you always have control over though? Yeah, your mind.

Nice design that. Maybe we are the cause of our own fate.

Don't you find it odd though, that accutane and that hair loss drug both cause the same effects? I think saw palmetto (a natural herb) does the same.

It's like 'Hey, you're being vain about your looks, so we are going to punish you'.

Just my thoughts.

My Grandad died very recently. My family are so upset. I am too, obviously. I can't cry easy these days though. It's weird.

But seeing how upset my family got, I could never commit suicide.

Sure it crosses my mind.

But I couldn't.

It'd be giving up.

I'm grateful to still have the hair I have. And I can get up and go for a walk still. It's all about perspective. We have access to food. Nobody's life is perfect.

I've said it a few times now but: I know it's hard, but worrying doesn't make things any easier. I expect within 5 years, everyone will know about accutane and it's effects.

Perhaps we'll be understood better.

My family were taking the piss about me being a hypercondriact (if I spelt that wrong, sorry). I broke down in tears, and suddenly they stopped laughing about it.

I think they believe me, but my Mum doesn't want me wasting my life thinking about things I can't change.

I'm unemployed right now, and have been at home for 8 weeks (though I've been out about about).

I actually had a job interview yesterday. A very funny story about that, so I'll link you a YouTube video I made today...

http://www.youtube.com/watch?v=2w6acnqR-jI&feature=feedu

It'll probably cheer you up. I found it funny.

I'm out of things to say now.

Bye

Edited by IndigoRush

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Indigo - I appreciate you trying to help but that won't work...

Chico - I want to take Eniva again but I really need your help to be motivated enough to do it. The only way would be if you tell me as much about your experience with Eniva Vibe as possible, like how long you took it for before you saw real improvements, how long you have been taking it in total, and if you still take it today. It's hard to continue taking it when you get negative effects like feeling sick, headaches and dehydrated and don't know if it's doing any good in return...

Edited by jmsil
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Hey guys. I just wanted to join you guys in the search for answers. I took Accutane for 24 days at 80mg about two months ago. I stopped after my hair started thinning and it's still thinning to this day.

I'm still confused as to a couple things. I doubt the telomere shortening really has anything to do with my hairloss, but I'm still confused as to why it's dropping out. Some say it's TE, some say it's diffuse aa, but whatever it is seems to respond differently to everyone. Some people have gotten it to stop with the use of supplements, and some have just waited it out. Then people always talk about eating healthy and avoiding certain things. Well, if the Accutane is out of your system, why would that even matter? If Accutane is still in your system, then wouldn't that be the issue? Not diffuse AA?

If telomere shortening is the cause of the problem, then why would some people say they've recovered? Why do people say changing their diet or taking a certain supplement made a change?

Also, I haven't really noticed any other side effects other than the hairloss. I hope that's all I have at the end of the day. I hope after only three weeks of the drug, that my body will be able to adjust back (maybe aside from the hairloss).

My biggest problem now seems to be similar to yours. I sit around an think about all the what ifs. What if my joints start to hurt, why if I get IBS, what if I've aged myself 20 years just by taking this drug. Will I ever live a happy life? Can I even think about a future?

All I can say to you guys (and I need to follow my own advice) is that you only have one life. So as long as your not crippled in bed by horrible arthritis, you shouldn't be reminding yourself of these issues every day. Indigo, I know the side effects are horrible, but you have a girlfriend (I saw from other posts), you're a good looking dude (no homo), and you could be bald without an issue. Don't waste anymore of your life being depressed about what has happened to you. Make the most of your life, and sure do what you can to fight the symptoms. You don't have cancer and you're not dying.

There are people that have taken this drug 25 years ago and have had no side effects. Based on the dosage they used in the early goings, how could other people be completely fine 25 years afterwards if the drug was bound to give everyone some sort of problem?

I'm not going to sit here and say that the side effects you're having are not caused by Accutane. Obviously some of them are. My hairloss is definitely Accutane related. BUT, I can tell you that I have GAD, and most of your systems could be attributed to an anxiety disorder.

For Indigo all of these are things I commonly noticed when I have bad anxiety:

- E.D/ Low Libido (Started last year and has gone on consistently since)

- Brain Fog/ Memory problems - Somewhat minor

- Anxiety (mainly because of the other side effects - i.e. dry eyes causing me to feel embarassed about eye contact)

- Joint/Muscle problems - Aches/ Slow recovery

- Excessive sweating.. Terrible if I go running at the gym, for example.

- Dry mouth

- Fatigue

- Overall depression and confusion (*Rhetorical question* Is this a direct symptom or am I like it because of all the other side-effects stressing me out?)

Maybe instead of listing out 20 things you have as side effects, those could all be clumped into one simple anxiety/depression side effect. Noticing the other side effects and becoming obsessed with them has caused more anxiety and more severe side effects. Stress can do just as much damage as Accutane. Instead of listing it the way you did, you could simple say this:

- Dryness (Hey I still have acne and my oil came back with a vengeance, that sucks too)

- Hair-loss (sucks, but it's just hair)

- Excessive hair (who cares)

- Depression/anxiety (can be fixed when you stop letting Accutane control your life)

That looks a lot easier, and less stressful to deal with. Think positively. Don't let Accutane take over your life.

Anyways, that was my rambling for the day...

Edited by 76ers1985

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Here are my conditions as of now:

- Hairloss/thinning

- Blurred vision

- Red/Dry eyes

- Very dry flaky skin

- Back/Joint/Muscle pains

- Osteoporosis

- Thickening of the skull - (Whaaat? How would you know that?)

- Cranial pressure

- Brain fog (could be anxiety)

- Veins on eyelids and under eyes

- Lethargy, extreme fatigue (could be anxiety)

- Lowered Libido (could be anxiety)

- Genital pigmentation lightened - (Again, how would you know that?)

- Numbness feeling in genitals - (could be unrelated)

Oh, and I wanted to quote this one directly because I know you didn't take the drug very long, similar to me. Again, obviously you have side effects, and obviously this drug can cause crazy things to happen, but I can honestly sit here and write down a million things to blame on Accutane. I'm feeling a little tired today, so it must be Accutane.

I'm not AT ALL defending the drug. I wish I could go back in time and stop myself from ever taking it. I wish it was off the market. I'm just saying that we need to look at the things that are really affecting us, and not the things that COULD happen, or MAY be caused by the drug. How bad are your symptoms, and how do they affect your daily life? Try to think about the people that got joint/muscle pain for other reasons, and how they manage to live normally.

Unless you can point out other things that you guys have come across, I have only ever heard of ONE person that died from using Accutane. On one forum someone said their sister (I believe) got liver cancer from using it and then died. That is ONE person, and who knows the full truth behind that story. Point being that Accutane will take you down if you let it. The suicide stories are horrible, but don't ever let yourself even think about that. It could be much worse. There are people that have the worst side effects I've ever seen and they have children, a spouse, and an otherwise normal life 20 years later. Live your life to the fullest.

Other comments:

You only took it for a couple weeks and you're still dry? My oil came back in about 2 weeks after stopping the drug. I just wish my hair did.

Also, a general question. Does it seem that those that have the joint/muscle pain are usually the ones that still have dryness?

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Hey guys. I just wanted to join you guys in the search for answers. I took Accutane for 24 days at 80mg about two months ago. I stopped after my hair started thinning and it's still thinning to this day.

I'm still confused as to a couple things. I doubt the telomere shortening really has anything to do with my hairloss, but I'm still confused as to why it's dropping out. Some say it's TE, some say it's diffuse aa, but whatever it is seems to respond differently to everyone. Some people have gotten it to stop with the use of supplements, and some have just waited it out. Then people always talk about eating healthy and avoiding certain things. Well, if the Accutane is out of your system, why would that even matter? If Accutane is still in your system, then wouldn't that be the issue? Not diffuse AA?

If telomere shortening is the cause of the problem, then why would some people say they've recovered? Why do people say changing their diet or taking a certain supplement made a change?

Also, I haven't really noticed any other side effects other than the hairloss. I hope that's all I have at the end of the day. I hope after only three weeks of the drug, that my body will be able to adjust back (maybe aside from the hairloss).

My biggest problem now seems to be similar to yours. I sit around an think about all the what ifs. What if my joints start to hurt, why if I get IBS, what if I've aged myself 20 years just by taking this drug. Will I ever live a happy life? Can I even think about a future?

All I can say to you guys (and I need to follow my own advice) is that you only have one life. So as long as your not crippled in bed by horrible arthritis, you shouldn't be reminding yourself of these issues every day. Indigo, I know the side effects are horrible, but you have a girlfriend (I saw from other posts), you're a good looking dude (no homo), and you could be bald without an issue. Don't waste anymore of your life being depressed about what has happened to you. Make the most of your life, and sure do what you can to fight the symptoms. You don't have cancer and you're not dying.

There are people that have taken this drug 25 years ago and have had no side effects. Based on the dosage they used in the early goings, how could other people be completely fine 25 years afterwards if the drug was bound to give everyone some sort of problem?

I'm not going to sit here and say that the side effects you're having are not caused by Accutane. Obviously some of them are. My hairloss is definitely Accutane related. BUT, I can tell you that I have GAD, and most of your systems could be attributed to an anxiety disorder.

For Indigo all of these are things I commonly noticed when I have bad anxiety:

- E.D/ Low Libido (Started last year and has gone on consistently since)

- Brain Fog/ Memory problems - Somewhat minor

- Anxiety (mainly because of the other side effects - i.e. dry eyes causing me to feel embarassed about eye contact)

- Joint/Muscle problems - Aches/ Slow recovery

- Excessive sweating.. Terrible if I go running at the gym, for example.

- Dry mouth

- Fatigue

- Overall depression and confusion (*Rhetorical question* Is this a direct symptom or am I like it because of all the other side-effects stressing me out?)

Maybe instead of listing out 20 things you have as side effects, those could all be clumped into one simple anxiety/depression side effect. Noticing the other side effects and becoming obsessed with them has caused more anxiety and more severe side effects. Stress can do just as much damage as Accutane. Instead of listing it the way you did, you could simple say this:

- Dryness (Hey I still have acne and my oil came back with a vengeance, that sucks too)

- Hair-loss (sucks, but it's just hair)

- Excessive hair (who cares)

- Depression/anxiety (can be fixed when you stop letting Accutane control your life)

That looks a lot easier, and less stressful to deal with. Think positively. Don't let Accutane take over your life.

Anyways, that was my rambling for the day...

Hey man,

Welcome aboard.

First of all, thanks for joining in and trying to help us out.

I agree with you. We absolutely should look at it in the way of: One life, one chance.

We all know this, but still we find ourselves stuck thinking thoughts like 'Why me?' or 'It's not fucking fair' etc.

I, personally, find I need to work on the depression, because what we're looking for is happiness overall.

We thought acne was the cause of our unhapiness and tried to get rid of that.

Look what happened.

So, we still need to work on our thinking, and feeling more positive despite what we now face.

Perhaps you're right about the problems being made worse, or even caused, by anxiety/stress.

Thanks for your kind words, but my life is certainly in a mess.

I applied to do modelling at the weekend, through an agency.

Sometimes I feel good about myself.

Now I'm having second thoughts.

When I think of bright lights, I think 'my eyes will be red and I will feel ugly'.

This shit takes work.

Seeing as you didn't take it long should mean you have a better chance of recovery, but it doesn't seem to work that way.

Hopefully you'll be alright dude.

Some people say their hair grows back.

The hair loss isn't a huge problem for me.

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Hey man,

Welcome aboard.

First of all, thanks for joining in and trying to help us out.

I agree with you. We absolutely should look at it in the way of: One life, one chance.

We all know this, but still we find ourselves stuck thinking thoughts like 'Why me?' or 'It's not fucking fair' etc.

I, personally, find I need to work on the depression, because what we're looking for is happiness overall.

We thought acne was the cause of our unhapiness and tried to get rid of that.

Look what happened.

So, we still need to work on our thinking, and feeling more positive despite what we now face.

Perhaps you're right about the problems being made worse, or even caused, by anxiety/stress.

Thanks for your kind words, but my life is certainly in a mess.

I applied to do modelling at the weekend, through an agency.

Sometimes I feel good about myself.

Now I'm having second thoughts.

When I think of bright lights, I think 'my eyes will be red and I will feel ugly'.

This shit takes work.

Seeing as you didn't take it long should mean you have a better chance of recovery, but it doesn't seem to work that way.

Hopefully you'll be alright dude.

Some people say their hair grows back.

The hair loss isn't a huge problem for me.

I know after taking Accutane, you probably don't even want to think about more medication, but have you thought about taking any anti depressants/anti anxiety? Maybe some therapy sessions? I had a really bad battle with anxiety last year after buying a house, and the meds helped a little, but the therapy helped a lot. If you find a good doctor, they can get you to think a different way. It would suck that they wouldn't really understand the Accutane side of it, but they can attack your mental side. I mean, I understand you feel your life is a mess, but look at it this way:

  • You're good enough looking that you are applying to be a model
  • You're not dying any time soon
  • You have a girlfriend that I'll assume cares about you

and that's only what I know off of reading a couple posts...

You're doing better than most people out there. You may not be down the road if there are more side effects that jump up, but I guarantee you'll be kicking yourself if they do pop up. You'll be pissed that you wasted your 20s obsessing over this. Looking back you're going to regret how red eyes stopping you from doing what you wanted, just as much as you regret taking Accutane.

I guess my point is that sure, we all want to find something that will cure our side effects, but in doing so we're obsessing to the point where our lives are going to shit. "Why me" and "it's not fair" are understandable thoughts, but again you don't have a life threatening disease. The only one holding you back from living your life right now is you.

I don't believe in the power of positive thinking, but I also don't believe that being guinea pigs with a million different vitamins is going to solve our problems either. Of course that doesn't mean stop trying to make yourself better. It just means stop letting it control your life. Enjoy your youth.

Edited by 76ers1985

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I have to agree 76ers1985, as a person who has been severley damaged by this drug and yes crippled at times from tendon, nerve, bone and arthritis damage and that's just the tip of the iceberg.... you have to keep living your life. I refuse to let this drug win. Read my signature........ read my story Sheefa posted it on here from another fourm. After almost 4yrs am I 100% no, but a lot better.

As for taking supplments or anything elese you have to give it time,patience things aren't just going to go back to normal with a snap of a finger, also things may get better, but not be 100% back to normal.

Jsmil- You would have to have them tested before and after taking accutane to truly know. There's a lot more info on retnoids and telemeres etc...It's hard as there are a lot of theroies that acutally make sense, but epigentics will be interesting and very much plausible. Hang in there!

76ers1985- I have to read back through some of your posts regarding your hair problem, It may just be you have accutane induced hair loss. I do have to say though I just saw your more recent post, I do agree w/ what you have to say, but remember hairloss compared to what others may suffer from may be hard to comprehend and Accutane is known to deplete certian vitamins, etc.....

Indigo- If some of your issues are related to anxiety etc...there are 2 supplements that many suffers from way back had sucess with if you are against taking antidepressants.

Edited by oli girl

The secret of health for both mind & body

is not to mourn for the past, not to worry about the future, or not anticipate troubles, but to live the present moment wisely and earnestly.

The Buddha


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'Ello ...

I went to a group therapy workshop for what must of been 6-8 weeks a year or so ago.

Didn't help at all.

Annoyed me if anything.

There were people who had such small worries.

One was a super fit girl and she thought she was spotty.

Even with makeup you can tell if someone good looking or not.

She had nothing to worry about.

Then there was someone who had anxiety about a wedding coming up (their daughters).

Then, I had to explain my 'issue(s)' and lo and behold - Nobody knew what I was on about. ("Roaccutane? Never heard of it.")

I wouldn't bother again.

You don't need a therapist, with all the books out there.

I've read A LOT of self-help/ positive thinking books.

They can be helpful, within areas.

As for drugs - Heck no.

Don't you see? Drugs are what got us here. When our body developed Acne it was down to either bad eating/stress or hormones.

It wasn't craving a drug, was it? Don't mess with nature.

It's the same with anti-depressants.

First, I'm not paying the same doctors who advised me to take roaccutane.

Second, anti-depressants cause side effects (no thanks).

Third, they have a very low working rate.

NATURE, my friends, is best.

I've very recently started taking St Johns Wort tea 2 x a day.

It's meant to have effect after a month.

We'll see.

But, I think it's obvious you shouldn't expect life to work for you, just by taking something.

You have to work on the emotional side yourself.

And fuck yeah, it's hard sometimes.

Anyone going through this, remember, you're not alone.

And Oli girl, go on ... tell me what they are. But I expect I've tried them already.

I'll guess one of them is 5HTP.

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Acutally I was going to suggest St. Johns Wort! Then there is also TRANSCENDENTAL MEDITATION...I think you find info on youtube. If not let me know and I will pm you the girl from France's info...It helped her and a few others. Also some have tried Tai Chi with sucess.

I am NOT a believer in anti depressants, that is unless you have acute physicatric issues from accutane, most of my side effects have been relieved by supplements and natural remidies, minus the tendon & nerve issue, in which I have been procrastanting on getting mild hyper baric oxygen tx for....I usually spend alot in Physical Therapy & such


The secret of health for both mind & body

is not to mourn for the past, not to worry about the future, or not anticipate troubles, but to live the present moment wisely and earnestly.

The Buddha


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This drug ruined my qualify of life and I don't think I'll ever mentally recover. I'm down right ugly and have cancer hair I can't believe I involuntarily ruined my life.

My hair won't even grow up! My sides are patchy and my hairline is permanently glued to my forehead, I literally have straw man hair.


I still have a soul


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This drug ruined my qualify of life and I don't think I'll ever mentally recover. I'm down right ugly and have cancer hair I can't believe I involuntarily ruined my life.

My hair won't even grow up! My sides are patchy and my hairline is permanently glued to my forehead, I literally have straw man hair.

I know how difficult it must be, but at the end of the day, it's just hair. Shave it off, and stop worrying about it. Yeah, I've read almost all your posts and I know you said you look goofy with a shaved head. Who cares? I'm sure a goofy looking shaved head is better than what you describe and allowing it to take over your life...

Also, didn't you say you've only lost 20% of your hair? I would LOVE to have 80% of my original hair.

Edited by 76ers1985

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Hi Guys.

As much as I believe we need to make the most of what we have, I need to feel like I'm doing something about it all.

First of all: This poison is still out there - Don't you understand? Innocent, young people are still out there thinking 'Accutane will fix it for me'. We have to raise awareness of this. Right NOW. Forget about yourselves for a moment. At the very least, this drug should only be prescribed to people who are over the age of 18. The side effects are listed now, and I believe they've noted that they can be permanent. This wasn't the case with me, 5 years ago, but at least it's out there now. Do you know what people do these days? Go on sides such as YouTube and watch people making videos while on the drug. It's hard to find much negative on there. People will say 'All these people got rid of their Acne with Accutane and they're happier'. Nobody has the guts to put their dignity on the line and reveal the long-term effects.

I don't feel ready for this just yet either. I sort of did it before, and a load of those 'Accutane saved me' people disliked the video and made me look like I was talking shit.

But, today, I submitted a draft of 'My story' surrounding what this has done, to a site which finds out which Newspaper (The Sun, etc) is interested in publishing it. I know I'll have to put myself out there, including my name and picture. People will know about my problems and I'm sure some will try and upset me because of it. However, this isn't about me. It's much bigger than that. Right now, Roche, is okay. He's had to pay out a bit in lawsuit claims, but he's still sitting up in his Mansion. Nobody really knows what Accutane is, apart from us and people with Acne. We need to blow this thing up. I recommend you find your own way to spread the word.

The fact of the matter is, we're up against the odds. Some people take this stuff and somehow don't get side effects (though I still wonder if years down the line they do). The FDA approved this. It's already been on the market for over 20 years, despite the complaints. This is THE next drug to be heard about. But we need to narrow that time. I'm sure within the next 5 years it'll be banned, but why should we wait? We can't do this on our own. I don't think anybody has ever cured the side effects of this drug. There are theories out there, but we're guessing. We're spending OUR money looking for answers and getting nowhere. This shouldn't be OUR problem. We need to shift the focus onto the people who did this.

What are we going to do about it? Hope someone fixes us? That's what we did with Acne. Look what happened.

I know nobody, including me, wanted this to be our life's purpose, but we have the potential to do something. Why aren't we?

Who cares if you're 'found out'. So what if people know your secret?

People aren't all bad.

If someone laughs at you for having troubles with your sex drive at this age, does it matter?

You already feel like shit.

You may as well do something for the good of humans.

Moping about and feeling sorry for ourselves will do fucking nothing.

STOP feeling like a Victim.

START doing something about it.

There's a saying that goes something like 'Evil men can carry on what they're doing because others stand by'.

Don't stand by. Look what's happened to you. There's some motivation.

Those of you thinking 'I should just kill myself'... Think about it. In 100 years time, when we're all dead, will it matter if you felt embarrassed?

Would you rather just die, or die after doing something heroic?

Here's your chance.

Roche has metaphorically kicked you down and thrown sand in your face. You're just lying there on the floor, letting it happen.

Get up, and fight for what's right. How many friends have you lost because of this? What about your connection with your family? What are you missing out on?

EXACTLY! Yet Lawyers will only fight the Irritable Bowel Disease cases. Well, instead of waiting to bleed from your ass, or have your large intestine removed, why don't you stop pretending things are going to be okay and make your voice heard.

I've been Stefan,

And I've got your fucking back when you do this.

Let's start a movement. What we're doing isn't working.

It's time to try something different.

I'm motivated, are you?

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