IndigoRush

Repairing the long-term damage from Accutane

10,982 posts in this topic

Crank 92 , yeah it was a close and good fight indeed I wish Lawler had won too but it is what it is , you know years ago I had severe stomach problems from Accutane I was doing dead sea salt baths for a while I read they were good for you also my dad went to the dead sea when he was young and it healed his arthritis and mild acne so I though what the hell . Anyways after a few weeks of this my stomach literally went to hell I had severe stomach pains and a very soft stool for a month or two what healed me was german beer yeah when I do drink which is not often it is german beer it is all I ever drink as it has the purity law of 1516. No doubt our skin cell receptors are ^&*( up and exposure to salt or most

anything even prolonged rubbing of the skin causes side effects , not to be recommended from personal experience.

Now people who have taken Accutane shouldn't consume much alcohol it's true somehow it causes more problems but anyways I was desperate to cure my stomach problems so I started to drink some Warsteiner beer and sure enough it completely healed my stomach within a two week period , I drank 4 per day no doubt the hops cured me as they are a healing herb perhaps even the barley , beer is very low in alcohol typically 5% so it can be consumed even by accuainted people but I stress moderation as drinking too much can cause things like back pain dizziness etc...

Edited by Gladiatoro

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I had this stomach problem too, i was eating too much meat & wheat, meat require very long digestion time at very low ph and wheat is a strong irritant. Dairy (specially from cow), refined/transformed food & salt to be avoided too. I don't believe those salts helpful, celery juice should be a lot better. Accutane "destroyed" our digestive system too much to permit ourselves to eat trashy foods.
Strange your story with beer, maybe an anesthetic effect from alcohol?

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What do you guys think about goat cheese being permissible? I don't eat any cow dairy but I do have natural goat cheese from time to time. Also seems like eggs may be a controversial food to have? Right now my diet consists mainly of:

-fruits & veggies

-nuts and nut butters

-dried fruits & berries

-mushrooms

-eggs

-occasionally grass fed beef

-plant protein

-fresh juices & wheat grass

Among a few other things of course. Coconut oil and apple cider vinegar are also some daily staples. The only thing I am wary on too is the organic, non-gmo corn chips (sea salt) I have with avocado. Thoughts on that?

Edited by volcom3453
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Back in 2014 in hopes of learning and helping others restore their damage caused by Accutane.

Officially done with Accutane as of 01/05/10


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Hey Volcom.

Not kidding:

That list looks like the healthiest, most well-balanced diet I've seen mentioned on this thread.

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Sooo sorry to interrupt the troll wars, but has any one had their calcium and parathyroid hormone levels tested yet? People have it that haven't taken Accutane ( and Accutane causes higher calcium levels and parathyroid malfunction ironically too ) and parathyroid disease can cause you to feel like hell ( actually it shares every symptom ever described here in the forums).

A couple of people PM'd me that theirs was high when they got it tested, which means they have parathyroid disease and require removal of the glands, which relieves the symptoms of brain fog, sexual malfunction, hairloss etc. Just sayin'. There is really no other disease that elevates calcium levels like that except cancer and then your parathyroid hormone would be through the ROOF.

There is no cure for it other than to removed the either: A) enlarged parathyroid gland ( this is known as parathyroid hyperplasia) or B) Remove a gland that has grown into a full blown tumor. Both make too much parathyroid hormone which slowly makes you miserable ( for sometimes decades). I would sincerely advise most of you to look into this instead of playing with the remedies, because you may have an underlying disease process going on.

Also, again, I emphasize that it's incredibly hard to get diagnosed as doctors are VERY poor at understanding how the disease works at this point in time ( sadly) but a few surgeons in the U.S. are finally figuring out that a ton of people have this and it may very well be a common endocrine disorder.

Your paras are the buncha little glands you got in your neck ( sometimes thymus or chest ) and they control your calcium levels and are directly related to your nervous system. So if they're out of wack they can also cause muscle spasms, weakness, and a bajillion other things. Parathyroid hormone is very powerful and has a direct effect on stimulating bone to release calcium into the bloodstream. People with high calcium levels can feel like zombies ( I know I did). So yeah! So go get tested. If one or the other is high or BOTH you got it I can say that with confidence. Accutane can kick the shyt out of parathyroids ( thus why I've avoided it for so long ). :/

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My opinion: all milk are to be avoided but goat is the best one. Your diet is really good even if eggs and meat are facultative and slow down the healing process. Chips contain a bad kind of oil + is heated + the salt it has only negative side. Avocado are really fine.
Everything can be healed, don't ever cut off a part of the body.. Stopping dairy, soda, soy & excess meat (+ all secondary others poison as always ofc) and eating raw fresh veggies juice are a first big step to cure this problem. Anyway it's always the same cause and the same solutions.
Edited by anonyy

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A couple of people PM'd me that theirs was high when they got it tested, which means they have parathyroid disease and require removal of the glands, which relieves the symptoms of brain fog, sexual malfunction, hairloss etc. Just sayin'. There is really no other disease that elevates calcium levels like that except cancer and then your parathyroid hormone would be through the ROOF.

That's news.

Can I ask if blood calcium was at normal levels for someone, would that rule out hyperparathyroidism?

Would be nice if people posted this in type of thing in the forum.


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Hey Volcom.

Not kidding:

That list looks like the healthiest, most well-balanced diet I've seen mentioned on this thread.

Good to hear! I guess it's always reasonable to be wary since there are many theories on what foods can cause more problems for post-accutane sufferers. I will be getting a large food panel allergy test soon and some new blood tests. So maybe it will reveal some food intolerance. After all, I am allergic to quite a few things (grasses, weeds, trees, dust, mold, cats). I will surely update my findings once it's done. Thanks for the support.

My opinion: all milk are to be avoided but goat is the best one. Your diet is really good even if eggs and meat are facultative and slow down the healing process. Chips contain a bad kind of oil + is heated + the salt it has only negative side. Avocado are really fine.
Everything can be healed, don't ever cut off a part of the body.. Stopping dairy, soda & excess meat (+ all secondary others poison as always ofc) and eating raw fresh veggies juice are a first big step to cure this problem. Anyway it's always the same cause and the same solutions.

Good advice man. From what I know goat's milk is the closest to human so we can tolerate it better. I usually will just sprinkle some goat cheese on salads or put it with fried/scrambled eggs. Avocados are definitely fine! Probably my (new) favorite food. These are the tortilla chips I use with guacamole from time to time: http://www.salsaxochitl.com/

I seem to be handling eggs, grass fed/free range meat pretty well. Do you think it would still be wise to cut out meat and eggs for a while to speed up the healing process? I will list some snack ideas for some of you transitioning into a better diet looking for new options.

-Bananas, apples and celery with peanut butter. Add raisins to the celery & pb...classic snack

-Mash avocado and mix in garlic & lemon for guacamole....add tomato if you want too

-eggvocado, cut avocado in half the long way and scoop enough space to crack an egg inside. Set oven between 375-400 degrees and bake for 25 minutes

-organic trail mix with all kinds of seeds, nuts, dried berries

-grass fed ground beef with organic mushrooms, dill, garlic and topped with goat cheese

-carrots, cucumber, any veggies you like to snack on

-As mentioned in one of my other posts, buy a big tub of coconut oil and start cooking with it, eating it and even using it as a mouth wash. Buy a cheap bottle of apple cider vinegar and mix 1 tsp with filtered water and drink it 3 times per day (preferably 15min before meals).

Salad:

Spinach, cucumber, carrots, strawberries, blueberries and goat cheese. Could add egg as well if your gut is stronger.

Juice recipes:

1) 5-8 large carrots + 2 apples (granny smith for taste) + small chunk of ginger root

2) 1 apple + 1 pear + 4 stalks celery + 1/2 cucumber + 1/4 lemon + handful of parsley + ginger (you can add any collared greens, spinach, kale. sometimes I do all the "worse tasting" greens in one juice and just down it. Ginger/lemon mask it well though if you prefer to mix which is what I normally do)

3) 4-6 large carrots + 2 beets + 1 apple + ginger/lemon

You can make a bunch of recipes.....those are just some I like. Also be wary of many bottled juices in the store (especially in the states) because they are made from all GMO produce. Juices such as "NAKED" brand. The dense micronutrients from juicing has helped give me some much needed energy and I just look healthier too. I use a masticating style juicer so I do shots of wheat grass once a day. Really an excellent antioxidant and source of micronutrients. If you can find someone that grows & sells fresh wheat grass near you, definitely look into it!

Smoothie ideas:

1) peanut butter & jelly = 10 strawberries + 1 banana + 1 very large table spoon of peanut butter + ice + water

2) banana + blueberries, strawberries, raspberries + yogurt + water + ice

3) mango + pineapple + yogurt + banana

4) banana + yogurt + almonds + hazelnuts + honey

5) chocolate protein (plant based) + peanut butter + banana + cacao nibs

I'll share more at some point....hope this can give at least one person some ideas!

Edited by volcom3453

Back in 2014 in hopes of learning and helping others restore their damage caused by Accutane.

Officially done with Accutane as of 01/05/10


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Those chips are refined corn, it's almost as bad as wheat. Chips have a stimulating effect who exhaust body energy ressources with time (as all stimulant, coffee, tea, etc.). But craving for chips can be a lack of sodium as fruits & vegs contain a lot of potassium, celery & others vegetal sources are prefered.

It's wise only if your body can tolerate it, if you go too fast too much toxins will be mobilized but not necessarily eliminated. Grass fed meat can be "ok" in low amount and not everyday (chicken is the best form of meat in my opinion). I'll personally avoid eggs, not very digest and highly mucus forming. Air + heat render cholesterol poisonous (oxydation) so the best way of cooking eggs are with their shell intact boiled.

Avoid cooking food as it destroy half of the nutrient, all enzymes and create toxins, specially fatty foods.
Seeds and nuts should be well prepared to reduce phytic acid content (& others things i forgot).


You right bottle juice are a bad idea, contain conservative and are pasteurized so they lost their benefits.

Edited by anonyy
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Sooo sorry to interrupt the troll wars, but has any one had their calcium and parathyroid hormone levels tested yet? People have it that haven't taken Accutane ( and Accutane causes higher calcium levels and parathyroid malfunction ironically too ) and parathyroid disease can cause you to feel like hell ( actually it shares every symptom ever described here in the forums).

A couple of people PM'd me that theirs was high when they got it tested, which means they have parathyroid disease and require removal of the glands, which relieves the symptoms of brain fog, sexual malfunction, hairloss etc. Just sayin'. There is really no other disease that elevates calcium levels like that except cancer and then your parathyroid hormone would be through the ROOF.

There is no cure for it other than to removed the either: A) enlarged parathyroid gland ( this is known as parathyroid hyperplasia) or B) Remove a gland that has grown into a full blown tumor. Both make too much parathyroid hormone which slowly makes you miserable ( for sometimes decades). I would sincerely advise most of you to look into this instead of playing with the remedies, because you may have an underlying disease process going on.

Also, again, I emphasize that it's incredibly hard to get diagnosed as doctors are VERY poor at understanding how the disease works at this point in time ( sadly) but a few surgeons in the U.S. are finally figuring out that a ton of people have this and it may very well be a common endocrine disorder.

Your paras are the buncha little glands you got in your neck ( sometimes thymus or chest ) and they control your calcium levels and are directly related to your nervous system. So if they're out of wack they can also cause muscle spasms, weakness, and a bajillion other things. Parathyroid hormone is very powerful and has a direct effect on stimulating bone to release calcium into the bloodstream. People with high calcium levels can feel like zombies ( I know I did). So yeah! So go get tested. If one or the other is high or BOTH you got it I can say that with confidence. Accutane can kick the shyt out of parathyroids ( thus why I've avoided it for so long ). :/

This could explain a lot. However, from what I understand, hyperparathyroidism can be caused by vitamin D deficiency as well as chronic kidney disease and is therefore a secondary, not primary issue. Kidney disease has a lot of the same symptoms such as depression, fatigue, high blood pressure, brain fog et al. It may be prudent to get tested for kidney disease and vitamin D deficiency as well if you have not already.

Edited by Nick Ryan
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What has worked for me in order of safety/effectiveness: Eating small portions of food (no more than 2 fistfuls at any given sitting) *and/or* Low calorie/low fat/low-to-no grain diet while minimizing all dehydrating substances.

What helps: Manganese! Molybdenum, Methyl-B12, Exercise+Water and a Humidifier in your room.

What hasn't: Everything else (so far).

What makes it worse: Multivitamins** for whatever reason. If you need to take supplements, get the single supplement as needed- multivitamins can make your symptoms worse. Do your research on each vitamin! Eating large meals, and eating highly processed/fatty foods.


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Those chips are refined corn, it's almost as bad as wheat. Chips have a stimulating effect who exhaust body energy ressources with time (as all stimulant, coffee, tea, etc.). But craving for chips can be a lack of sodium as fruits & vegs contain a lot of potassium, celery & others vegetal sources are prefered.

It's wise only if your body can tolerate it, if you go too fast too much toxins will be mobilized but not necessarily eliminated. Grass fed meat can be "ok" in low amount and not everyday (chicken is the best form of meat in my opinion). I'll personally avoid eggs, not very digest and highly mucus forming. Air + heat render cholesterol poisonous (oxydation) so the best way of cooking eggs are with their shell intact boiled.

Avoid cooking food as it destroy half of the nutrient, all enzymes and create toxins, specially fatty foods.

Seeds and nuts should be well prepared to reduce phytic acid content (& others things i forgot).

You right bottle juice are a bad idea, contain conservative and are pasteurized so they lost their benefits.

Thanks for your thoughts. I agree there are still some things on the list I need to eat in moderation. I'm happy to say my gut and GI system are doing much better lately. I've come a long way with what I used to consume and what I do now. So the change has been very fast, but still a gradual transition.

When you mention "well prepared" nuts, what do you advise I do? Should I soak them? Is there anything I didn't mention in my list that you would suggest I look into? I've stayed away from all grains, even some of the "better" ones now like quinoa, buckwheat, red lentils, etc.


Back in 2014 in hopes of learning and helping others restore their damage caused by Accutane.

Officially done with Accutane as of 01/05/10


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No problem ^^
Yes i was talking about soaking, forgot to mention it. Pseudo-grains are acceptable even if it's not very physiologic, should be soaked too.

I don't presently think about something missing in your list, maybe add some others detox plants like artichoke, milk thistle, black radish even if parsley is already very good. You can add curcuma roots in your juice.

I'll just mention again that milk should be avoided but if you really want it the best way is milk kefir in my opinion (with goat milk, raw if possible but risky ofc).

The "master of juice" is norman walker: http://aquariusthewaterbearerblog.files.wordpress.com/2013/08/fresh-vegetable-and-fruit-juices-by-norman-walker.pdf

Edited by anonyy
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** The regimen:
wake sunrise
eat pot: 1x chicken breast, 1.5-2 cups rice, 1-2 handfuls small shrimp, bottled water. take with .5-1g UDCA (for liver damage) and thumbnail (dead nail, not cuticle) of Blue Ice. Stir Blue Ice well into pot, take UDCA separately. Reuse same pot and spoon to avoid dishes.
afternoon: eat pot (same)
pre-sundown (optional): pot 1 cup plain rice
blue blocker glasses sundown
start winding down.
blindfold and bed early enough to wake without alarm
This gets me a baseline with no cyclicality. Last pieces were figuring out bottled water and taking small dose Blue Ice with meals to dilute.
Optimized for those with severe fat malabsorption and IBS/IBD. But it doesn't seem anyone else here is still suffering from gastro.
Agree that Cannabis is wave of the future. Smoke em if you got em. Drink em if you're Heisenberg.
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Accutane - Brief low-dose course ~2004 for ~4 months. Liver monitored, no sides.

10 years of IBD debilitation followed.  Symptoms: Fatigue, severe IBS-D, gradually shrinking diet, insomnia, depression.  No indication of anything medically wrong.  Took up smoking handrolled tobacco to improve focus at work.  Tried tons of IBS remedies and strategies, to no avail.

A fecal calprotectin test finally revealed the problem - I scored off the scale.  I researched that angle, found LDN, took it for a month or two, and abruptly recovered in March-April 2016.  

I went from being able to eat almost nothing (3 ingredient elimination diet) to being able to eat most things.  Gained back my lost weight (~30 lbs below healthy).  Was able to quit smoking thanks to cessation of chronic pain and fatigue.  

You can get LDN from LDNconsult.com for $2-300 in 1-3 weeks total.  Titrate the dose upwards gradually for at least a month and don't expect results until full strength.  The main side effect is disrupted sleep from too-rapid titration.  It's super safe and should be OTC.  It deepens REM sleep (vivid dreams) and reduces inflammation.  See http://www.lowdosenaltrexone.org/

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Volcom I'm definitely a bit jealous of that diet, sounds lush!

MovingOn your one person who has sexual dysfunction and vape's regularly. I remember last time we spoke you said you only had improvements when you were high, is that still the case? Quite strange if it is, simply because when I'm high its like I've crashed all over again. My D won't function at all.

ElkHoundGold Interesting, but I'm probably going to pass on all these analytical tests because everyones got a different opinion and I just don't have time to research and then convince doctors (currently). But yea as Dubya said, anyone getting tests done. Defo helpful if you start posting your results and comparisons can be made.

JoeBuchignani good to see you back! Strange how different diets work for different people. I don't need more convincing that your diet worked for you, but honestly your diet would slay me just because of the rice.

Anyway, super busy so I don't know why I keep checking in! Laters.

Edited by Crank92

Do your part to raise awareness:

For new individuals PM'ing me, I will reply IF you report all your side effects to the links below and screenshot each one once you have completed it. PM me with your email and I will message you and you can send the screenshots over with whatever questions you like.

Report side effects to organisations here:

Rxisk
https://www.rxisk.org/Explore-Side-Effects/About.aspx
FDA
https://www.accessdata.fda.gov/scripts/medwatch/index.cfm?action=consumer.reporting1
NHS
http://yellowcard.mhra.gov.uk/
Roche
http://www.roche.co.uk/portal/uk/xxxcontactxxx

Report side effects to accutane sympathetic MP's here (UK):

mail@nickharveymp.com

vaizeye@parliament.uk

I encourage people to copy this signature into their own.


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Any diet that avoid dairy and gluten/grains will bring improvement even if they are not really good.
I took blue ice skate liver oil long time ago and it was very helful for me too, nice too see i'm not the only one x). I believe this oil contain a lot of pre-fabriced molecules who greatly help the liver like glucuronic acid for exemple. And i believe that years after accutane people have a huge vitamin A deficiency too, at least it was the case for me.

But had to rely entirely on all of those animal product with pre-fabriced hormones, neurotransmitters, other pre-fabriced molecules + big protein amount is just stimulation, surviving and not a true "healing", this way is clearly the best symptomatic treatment, i did more or less the same as you and i saw very good improvement too, but it's only symptomatic without a true feeling of pure health if you know what i mean. This diet has a huge lack of nutrient (cooked + lack raw vegs), is mucus forming, contain toxins (cause cooked, too much meat/purines/maillard-reaction/AGE/dioxins/etc. & non-organic if im wrong) and require far too much energy & time for digestion.

Edited by anonyy

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Just FYI, it does appear that hyperparathyroidism is the cause of hypercalcaemia in the large majority of cases.

My calcium level was tested at 9.5 mg/dl and 9.7 mg/dl with a reference range of 8.5-10.1mg/dl for both tests.

Does anyone else here have blood work showing high calcium levels that they wouldn't mind sharing?

Even hyperparathyroidism could be secondary to something else caused by Accutane.


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Right I've been vaporizing for less than a week now, but actually believe this shit might be working!!! Just knocked one out this evening and my dick felt like it hasn't felt for about 3 years, and had an orgasim that was at least 10 x better than any post tane! Actually sat here grinning!

Literally only been vaporizing for 4-5 days now and I was just thinking at work earlier how this doesn't seem to be helping at all, and wondering if I was getting the technique wrong, but maybe it is and just needs more time.

No change in brain fog, and I don't think libido is really any higher - but the sensation in my dick just felt so different then - definitely the biggest single step forward in sides I've had. I don't think that's come as a coincidence that I've been vaping weed all week, but I'll report back in a few weeks to say if it was just a one off, or sustained improvement!

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A couple of people PM'd me that theirs was high when they got it tested, which means they have parathyroid disease and require removal of the glands, which relieves the symptoms of brain fog, sexual malfunction, hairloss etc. Just sayin'. There is really no other disease that elevates calcium levels like that except cancer and then your parathyroid hormone would be through the ROOF.

That's news.

Can I ask if blood calcium was at normal levels for someone, would that rule out hyperparathyroidism?

Would be nice if people posted this in type of thing in the forum.

It would not rule out hyperparathyroidism. It is like this: If your calcium is high, and parathyroid hormone is normal, you likely have parathyroid disease. If your parathyroid hormone is abnormal and calcium's normal, you still do. That's the interesting thing about it. They only perform this function with the calcium levels, and so either abnormality in them means there's something wrong with them. If they're BOTH high then it's even more obvious. This is research and personal experience, by the way. I actually posted about this before...but I think my account got hacked for some reason, so I had to make another one.

In my case, my parathyroid disease runs in the family. Doctors ignored mom's calcium ( it hoovered at 10.4 with a normal parathyroid hormone) for years and she had two large tumors. Oh and we both suffer acne..joy. It could be though that these little glands are sensitive to the effects of Accutane. They are the size of a grain of rice after all.

Sooo sorry to interrupt the troll wars, but has any one had their calcium and parathyroid hormone levels tested yet? People have it that haven't taken Accutane ( and Accutane causes higher calcium levels and parathyroid malfunction ironically too ) and parathyroid disease can cause you to feel like hell ( actually it shares every symptom ever described here in the forums).

A couple of people PM'd me that theirs was high when they got it tested, which means they have parathyroid disease and require removal of the glands, which relieves the symptoms of brain fog, sexual malfunction, hairloss etc. Just sayin'. There is really no other disease that elevates calcium levels like that except cancer and then your parathyroid hormone would be through the ROOF.

There is no cure for it other than to removed the either: A) enlarged parathyroid gland ( this is known as parathyroid hyperplasia) or B) Remove a gland that has grown into a full blown tumor. Both make too much parathyroid hormone which slowly makes you miserable ( for sometimes decades). I would sincerely advise most of you to look into this instead of playing with the remedies, because you may have an underlying disease process going on.

Also, again, I emphasize that it's incredibly hard to get diagnosed as doctors are VERY poor at understanding how the disease works at this point in time ( sadly) but a few surgeons in the U.S. are finally figuring out that a ton of people have this and it may very well be a common endocrine disorder.

Your paras are the buncha little glands you got in your neck ( sometimes thymus or chest ) and they control your calcium levels and are directly related to your nervous system. So if they're out of wack they can also cause muscle spasms, weakness, and a bajillion other things. Parathyroid hormone is very powerful and has a direct effect on stimulating bone to release calcium into the bloodstream. People with high calcium levels can feel like zombies ( I know I did). So yeah! So go get tested. If one or the other is high or BOTH you got it I can say that with confidence. Accutane can kick the shyt out of parathyroids ( thus why I've avoided it for so long ). :/

This could explain a lot. However, from what I understand, hyperparathyroidism can be caused by vitamin D deficiency as well as chronic kidney disease and is therefore a secondary, not primary issue. Kidney disease has a lot of the same symptoms such as depression, fatigue, high blood pressure, brain fog et al. It may be prudent to get tested for kidney disease and vitamin D deficiency as well if you have not already.

It is more likely that having undiagnosed parathyroid disease is causing the kidney disease in the first place. It is the chicken or the egg scenario. It can cause kidney stones/kidney failure due to constant circulating calcium in the body. In many patients I've talked to directly none had secondary. In fact, the vitamin D thing is now being considered more of a myth sort of thing really. Little edit here: They also thought I had secondary due to low vitamin D. Wasn't true. It's more of your body is lowering your vitamin D levels in response to the high calcium levels in your body. Without D, you can't absorb calcium as easy, so it's kinda protecting you in a way.

Just FYI, it does appear that hyperparathyroidism is the cause of hypercalcaemia in the large majority of cases.

My calcium level was tested at 9.5 mg/dl and 9.7 mg/dl with a reference range of 8.5-10.1mg/dl for both tests.

Does anyone else here have blood work showing high calcium levels that they wouldn't mind sharing?

Even hyperparathyroidism could be secondary to something else caused by Accutane.

All I pretty much study is this disease having lived through it, and you tane victims sound just like it. You don't need JUST calcium tested--test your parathyroid hormone alongside it then report your results. Just trying to help.

Edited by elkhoundgold

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Hey guys! I'm really interested in finding ways to cope with problems after accutane or even to repair them. I took accutane for 9 days (30mg per day) 4 years ago. One month after stopping it, my symptoms started. My skin got much thinner and slower healing after pimples, I have itching, scaling scalp with some hair loss, body hair loss, sometimes dry eyes, and mild joint pain. So my problems are not that serious like some people here are facing, but enough to worry me (especially losing hair has been very stressful)

3 years ago i started taking selenium-daily, and i noticed that it reduces body hair loss and scalp hair loss...but, past 6 months i stopped taking it...just to see if there is need for still taking it...and, my hair started to fall off rapidly (again)...and all above mentioned symptoms (that were somewhat resting) magnified... So i panicked and started taking selenium again. Last week i started "anti parasite program" by dr. Clark since it is mentioned that it also flushes toxins out of body...(it includes liver flush also )

If you have any suggestions for me...i'm willing to try everything non synthetic and chemically non invasive...Since accutane i'm not willing any risking...lesson learned...

P.S. last year I took some tests for thyroid-and everything was just fine...my blood tests are fine (excluding platelets- they are a bit low...but it seems everything is just great...i'm waiting for my immune test results...because i'm suspicious in autoimmune disorders...)

Edited by ivmi

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That's interesting that Selenium stopped or reversed your hair loss.

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Well, I didn't say it reversed it...it just stop it...or really slowed it down. My hair never went dense like it was prior accutane...but I know it stopped shedding after some time when taking Selenium. Although, it never helped much with joint stiffness and eye dryness...i had it sometimes despite Selenium.

But, Selenium is definitely a saver!! who knows how much hair I would lost up until now!! I just want to know if anyone knows how to get rid of this symptoms once and for all?

I don't like the idea of taking some vit. supplement my whole life...it means something is wrong in my body and i want to really fix it, not just diminish symptoms...if you know what i mean....P.S. Does anyone have a clue why would Selenium have such result on post accutane victim?

Have a nice weekend all of you!

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Well, I didn't say it reversed it...it just stop it...or really slowed it down. My hair never went dense like it was prior accutane...but I know it stopped shedding after some time when taking Selenium. Although, it never helped much with joint stiffness and eye dryness...i had it sometimes despite Selenium.

But, Selenium is definitely a saver!! who knows how much hair I would lost up until now!! I just want to know if anyone knows how to get rid of this symptoms once and for all?

I don't like the idea of taking some vit. supplement my whole life...it means something is wrong in my body and i want to really fix it, not just diminish symptoms...if you know what i mean....P.S. Does anyone have a clue why would Selenium have such result on post accutane victim?

Have a nice weekend all of you!

Pretty much everything useful about accutane side effects has been covered from page 200 onward on this thread. Read from there. Info is scattered with arguments and non-relevant stuff but to be honest it's the best that there is currently. I got severe side effects with less than you (20mg for 10days)


Do your part to raise awareness:

For new individuals PM'ing me, I will reply IF you report all your side effects to the links below and screenshot each one once you have completed it. PM me with your email and I will message you and you can send the screenshots over with whatever questions you like.

Report side effects to organisations here:

Rxisk
https://www.rxisk.org/Explore-Side-Effects/About.aspx
FDA
https://www.accessdata.fda.gov/scripts/medwatch/index.cfm?action=consumer.reporting1
NHS
http://yellowcard.mhra.gov.uk/
Roche
http://www.roche.co.uk/portal/uk/xxxcontactxxx

Report side effects to accutane sympathetic MP's here (UK):

mail@nickharveymp.com

vaizeye@parliament.uk

I encourage people to copy this signature into their own.


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Well I'm glad selenium helped you , I may consider some too as I got lots of hair loss but I took 2500 mg so much more , as for a permanent fix everyone is different , hemp oil seems to be a good start avoid alcohol that would be good advice for you , accutained victims do not respond well to it. Also try BAXYL for dryness joint pain and or bone broth soup .

Edited by Gladiatoro

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Volcom I'm definitely a bit jealous of that diet, sounds lush!

MovingOn your one person who has sexual dysfunction and vape's regularly. I remember last time we spoke you said you only had improvements when you were high, is that still the case? Quite strange if it is, simply because when I'm high its like I've crashed all over again. My D won't function at all.

ElkHoundGold Interesting, but I'm probably going to pass on all these analytical tests because everyones got a different opinion and I just don't have time to research and then convince doctors (currently). But yea as Dubya said, anyone getting tests done. Defo helpful if you start posting your results and comparisons can be made.

JoeBuchignani good to see you back! Strange how different diets work for different people. I don't need more convincing that your diet worked for you, but honestly your diet would slay me just because of the rice.

Anyway, super busy so I don't know why I keep checking in! Laters.

Ya know, you're too busy to convince doctors but you have time for this forum. I would highly suggest you get it tested. Not to be mean, but if this is that important to you ( it is your health you have all been complaining about, after all ) then what does it hurt to get it tested? If you don't have insurance that's another story. But it's vital you rule out EVERYTHING. And parathyroid disease is a completely separate entity in itself that is frequently overlooked.

Trust me...I would know, and it sucked. Didn't know why I lost my short term memory, couldn't think, brain fog, hair loss..cracking ass bones, the works. You name your symptoms, I probably had them. They sound just like me and that's why you all sound so alarming to me. Again, I'm just trying to help you. If you get the chance, just google parathyroid disease or something. I'm getting PM's of high parathyroid hormone levels, which means that people are turning up with this. Now I'm starting to think this Accutane stuff is damaging people's parathyroids. I mean, many emphasize it is a chemo drug, and they can do that.

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I'll bear it in mind. However, I've managed to overcome the fatigue, emotional blunting with no help from doctors already. I'm 95% of the way there with my gastric issues now, again no help from doctors. Now the sexual dysfunction + ED are fading too, once again without the help of doctors. All the doctors have wanted to do is either tell me I'm a hypochondriac or shove drugs down my throat.

I don't have time to rule out 'everything', that would literally cost 100's of thousands of pounds. If you have research to suggest this is parathyroid related, post it up (more convincing than 'they have the same side effects', because if we were judging by that alone everything is problematic). I will have a look over it and make a decision from there. Currently what I'm betting my money on is 5AR inhibition as it is comparatively well researched and makes sense in explaining the sexual side effects.

I can't remember your name, but the MS sufferer this might be handy for you:

http://link.springer.com/article/10.1007/s00213-004-2084-3

Dubya is still being a boss and doing his research. He mentioned MS and accutane can both alter allopregnanolone levels and might be the cause of 'some' of the related sides. He's just sent me this study showing 'the green' can actually increase alloprgnanolone which may be why smoking up can improve symptoms. I can't seem to access the full transcript currently as for some reason my laptop does not like Springer journals -_-

EDIT: This would explain why benefits can be seen without high CBD I would imagine.


Edited by Crank92
3 people like this

Do your part to raise awareness:

For new individuals PM'ing me, I will reply IF you report all your side effects to the links below and screenshot each one once you have completed it. PM me with your email and I will message you and you can send the screenshots over with whatever questions you like.

Report side effects to organisations here:

Rxisk
https://www.rxisk.org/Explore-Side-Effects/About.aspx
FDA
https://www.accessdata.fda.gov/scripts/medwatch/index.cfm?action=consumer.reporting1
NHS
http://yellowcard.mhra.gov.uk/
Roche
http://www.roche.co.uk/portal/uk/xxxcontactxxx

Report side effects to accutane sympathetic MP's here (UK):

mail@nickharveymp.com

vaizeye@parliament.uk

I encourage people to copy this signature into their own.


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