Repairing the long-term damage from Accutane

9,426 posts in this topic

I am doing great, in 2nd round job interviews, working in meantime, tons of travel for interviews, able to do it without problem. Switched from scallops to shrimp for minerals, that worked. Everything else same. I get my life back.

Sorry to hear others are still struggling.

I never thought I'd be ending my participation in this forum by agreeing with Joseph, but he's right.

Diet is truly the key. Bottom line we have to face the fact that consuming once-normal foods like breads and processed foods used to just be unhealthy, but now are actually the underlying causes to all of our symptoms. Switching to yogurt + raw meats/small portions/heavily restricting your diet is not only the only thing I've found to work, it actually does work. If you need further help as I've mentioned previously, you can get your doc to prescribe an antibiotic or disease modifying drug, but diet alone is really enough. It's just how bad do you want it. Do you want to eat what you've always eaten and deal with all of these post-accutant side effects, or do you want to change your diet and be normal again?

I wish everyone the best of luck, but this is really where the road ends.

I hope this forum continues to be a place of comfort and help for sufferers, though. Best of luck to you all.

1 person likes this

What has worked for me in order of safety/effectiveness: Eating small portions of food (no more than 2 fistfuls at any given sitting) *and/or* Low calorie/low fat/low-to-no grain diet while minimizing all dehydrating substances.

What helps: Manganese! Molybdenum, Methyl-B12, Exercise+Water and a Humidifier in your room.

What hasn't: Everything else (so far).

What makes it worse: Multivitamins** for whatever reason. If you need to take supplements, get the single supplement as needed- multivitamins can make your symptoms worse. Do your research on each vitamin! Eating large meals, and eating highly processed/fatty foods.


Share this post


Link to post
Share on other sites

Yes, great advice Nick. One question though: Why did you choose a picture in which it appears you are descending down from Heaven? Is is that you are attempting to subtlety tell us you are doing God's work by undoing the Accutane damage simplistically with diet change: perform a miracle, if you will? It's funny because there are a large number of people who contradict what you have said. People should try the diet change for themselves, but you shouldn't attempt to extrapolate in such a matter of fact manner.

1 person likes this

"Fret not fellas. I've got a 145 IQ, zen pain tolerance, the resilience of a cockroach, the survival instincts of a rat. I'll win; it's what I do. And then I'll help all of you, forgetting no one; I swear."

"I did get some fatigue and minor cramps from taste testing spicy food I was cooking. Even though I didn't swallow and rinsed, the residue got me. This hypersensitivity is annoying."

Thus spoke Joseph Buchignani.


Share this post


Link to post
Share on other sites

Boys. Stop it.



Anyone figured out the joint pain besides the body not producing HA naturally? The only relief i've gotten is from salmon oil and HA. my hip is like a 90 year old woman's hip;.

Share this post


Link to post
Share on other sites

What about GLA or gamma linolenic acid to give it's full title. Its in borage/starflower oil and evening primrose oil i remember someone saying a while back that it specifically helped their skin dryness, has anyone had any experience with this? it's meant to be an anti inflammatory omega 6 fatty acid.

Also what about flaxseed oil, it's an omega 3 without the retinol content of fish oil, but i've heard a poster reference the fact that they don't do well on any omega 3.

Edited by Chico Esposito
1 person likes this

Share this post


Link to post
Share on other sites

@thefrenchguy- It was nearly the same for me. I was lucky enough to experience my emotions, along with my sex drive, nearly disappear all in the same day. A 24 hour chemical labotomy + chemical castration via Accutane. It got a little better for me over the next few months, but nothing has been right since that day.

The depression and lowered libido while on the drug were minor, and my "crash" happened a few weeks after stopping the drug.

I have to ask, were you still taking accutane around/on the day your emotions got wiped-out?

I took the drug for 2 weeks and at the end of the 2nd I felt something wrong in my body and mind (like I wasn't the same) and so decided to quit the drug. I was constantly improving the week after having stopped but after 7 days off the drug I felt something wrong going on at lunch and at dinner I was a zombie with no more emotions like a machine ( no more happy, no more surprised, no more sad, just empty).

So my side effects really began after having quit the drug which is hardly comprehensible.

However, may be thanks to the low-dose I recovered 90% of what I was before. Another odd thing is that my situation is not stable (some days I'm exactly like before the drug and somedays I'm experiencing side-effects of the drug like chapped lips in summer which can go away the days after

Yes, It has been stated and known that side effects can wax and wane at times! Hopefully since you only took the drug for 2wks you will be able to recover fully over time, though not a gaurantee!


The secret of health for both mind & body

is not to mourn for the past, not to worry about the future, or not anticipate troubles, but to live the present moment wisely and earnestly.

The Buddha


Share this post


Link to post
Share on other sites


Seriously, guys, this is what Roche wants. United we stand, divided we fall. Even our closest friends and family have said that we're overdramatizing, that we're hypochondriacs, that this is all in our heads. This group is all we have, so we need to stick together.

It's okay to think that someone else's supplement/regimen/medicine is BS. That's fine. But if you're going to point it out, do it with facts, not opinions. Post sources: studies, books, something legitimate that backs up your claims. If you think something that someone is doing is going to harm them, let them know why.

In the same vein, just because someone makes a treatment mistake doesn't mean they're stupid/evil/foolish, and does NOT give you the license to provoke them. We're a community, and fighting among ourselves will get us nowhere.

Also, we need to accept that different things work for different people. Just because something didn't work for you doesn't mean it won't work for someone else. Accutane has done different things to all of us; we don't all have the exact same side effects and blood test results. For most of us, Accutane screwed up a whole bunch of things, and we've got a lot of health issues to skate around.

When it comes to cures, I'd say diet is the easiest thing to try, especially if Accutane left you with digestion issues. So many people have had success with it. Just try it for a month and see how you feel.

Also, Chico, if I were you, I'd go with the borage oil. I take evening primrose oil because it raises and helps me metabolize my estrogen… I'm not sure you want that :P

2 people like this


Recovering from Accutane-related hair loss.

(over a year and a half after stopping...)


Share this post


Link to post
Share on other sites

What about GLA or gamma linolenic acid to give it's full title. Its in borage/starflower oil and evening primrose oil i remember someone saying a while back that it specifically helped their skin dryness, has anyone had any experience with this? it's meant to be an anti inflammatory omega 6 fatty acid.

Also what about flaxseed oil, it's an omega 3 without the retinol content of fish oil, but i've heard a poster reference the fact that they don't do well on any omega 3.

I take GLA in liquid form by Nordic Naturals! It does good for me, is it a cure well no! Also, I would tread lightly on the flax as many old suffers and myself who have been around awhile didn't do well with flax. Such as flushing, palpatations etc... It's up to you, though you could start with flax seed in with certian things vs a supplement. I have say diet is crucial at least for me and I feel alot better without sugar, alot of carbs, etc... Digestion has improved alot also :)

1 person likes this

The secret of health for both mind & body

is not to mourn for the past, not to worry about the future, or not anticipate troubles, but to live the present moment wisely and earnestly.

The Buddha


Share this post


Link to post
Share on other sites

.

Edited by sdro123

Share this post


Link to post
Share on other sites

.

Edited by sdro123

Share this post


Link to post
Share on other sites

Seriously, guys, this is what Roche wants. United we stand, divided we fall. Even our closest friends and family have said that we're overdramatizing, that we're hypochondriacs, that this is all in our heads. This group is all we have, so we need to stick together.

It's okay to think that someone else's supplement/regimen/medicine is BS. That's fine. But if you're going to point it out, do it with facts, not opinions. Post sources: studies, books, something legitimate that backs up your claims. If you think something that someone is doing is going to harm them, let them know why.

In the same vein, just because someone makes a treatment mistake doesn't mean they're stupid/evil/foolish, and does NOT give you the license to provoke them. We're a community, and fighting among ourselves will get us nowhere.

Also, we need to accept that different things work for different people. Just because something didn't work for you doesn't mean it won't work for someone else. Accutane has done different things to all of us; we don't all have the exact same side effects and blood test results. For most of us, Accutane screwed up a whole bunch of things, and we've got a lot of health issues to skate around.

When it comes to cures, I'd say diet is the easiest thing to try, especially if Accutane left you with digestion issues. So many people have had success with it. Just try it for a month and see how you feel.

Also, Chico, if I were you, I'd go with the borage oil. I take evening primrose oil because it raises and helps me metabolize my estrogen… I'm not sure you want that tongue.png

Yes I fully agree united we stand , divided we fall , arguing over what one person tries to improve there situation and cutting them down is childish and

I won't play that silly game , try what you like whatever helps you but DON'T cut down other people for there trials and errors , you can point out your

opinion but you don't have to be rude , I am referring to Z 28 , grow up man. This forum is to help each other period.

What about GLA or gamma linolenic acid to give it's full title. Its in borage/starflower oil and evening primrose oil i remember someone saying a while back that it specifically helped their skin dryness, has anyone had any experience with this? it's meant to be an anti inflammatory omega 6 fatty acid.

Also what about flaxseed oil, it's an omega 3 without the retinol content of fish oil, but i've heard a poster reference the fact that they don't do well on any omega 3.

Chico , I agree the retinol is very bad for us , a few years ago I took fish oil for a month or so a fair amount per day interestingly enough it said

on the bottle it was Vitamin A free , that's why I bought it , it was carlsons fish oil , yet my back seized up for three days (not fun)after ingesting

this stuff again a giant failure in my treatment plan lol... for obvious reasons I avoid any kind of fish oil now , this drug is fun fun fun. ha. I still

don't understand how a synthetic drug can cause all these side effects years later , certainly our gene expressions have been changed perhaps

even our DNA. Live and learn I guess.

Edited by gladiatoro

Share this post


Link to post
Share on other sites

Seriously, guys, this is what Roche wants. United we stand, divided we fall. Even our closest friends and family have said that we're overdramatizing, that we're hypochondriacs, that this is all in our heads. This group is all we have, so we need to stick together.

It's okay to think that someone else's supplement/regimen/medicine is BS. That's fine. But if you're going to point it out, do it with facts, not opinions. Post sources: studies, books, something legitimate that backs up your claims. If you think something that someone is doing is going to harm them, let them know why.

In the same vein, just because someone makes a treatment mistake doesn't mean they're stupid/evil/foolish, and does NOT give you the license to provoke them. We're a community, and fighting among ourselves will get us nowhere.

Also, we need to accept that different things work for different people. Just because something didn't work for you doesn't mean it won't work for someone else. Accutane has done different things to all of us; we don't all have the exact same side effects and blood test results. For most of us, Accutane screwed up a whole bunch of things, and we've got a lot of health issues to skate around.

When it comes to cures, I'd say diet is the easiest thing to try, especially if Accutane left you with digestion issues. So many people have had success with it. Just try it for a month and see how you feel.

Also, Chico, if I were you, I'd go with the borage oil. I take evening primrose oil because it raises and helps me metabolize my estrogen… I'm not sure you want that tongue.png

Yes I fully agree united we stand , divided we fall , arguing over what one person tries to improve there situation and cutting them down is childish and

I won't play that silly game , try what you like whatever helps you but DON'T cut down other people for there trials and errors , you can point out your

opinion but you don't have to be rude , I am referring to Z 28 , grow up man. This forum is to help each other period.

>What about GLA or gamma linolenic acid to give it's full title. Its in borage/starflower oil and evening primrose oil i remember someone saying a while back that it specifically helped their skin dryness, has anyone had any experience with this? it's meant to be an anti inflammatory omega 6 fatty acid.

Also what about flaxseed oil, it's an omega 3 without the retinol content of fish oil, but i've heard a poster reference the fact that they don't do well on any omega 3.

Chico , I agree the retinol is very bad for us , a few years ago I took fish oil for a month or so a fair amount per day interestingly enough it said

on the bottle it was Vitamin A free , that's why I bought it , it was carlsons fish oil , yet my back seized up for three days (not fun)after ingesting

this stuff again a giant failure in my treatment plan lol... for obvious reasons I avoid any kind of fish oil now , this drug is fun fun fun. ha. I still

don't understand how a synthetic drug can cause all these side effects years later , certainly our gene expressions have been changed perhaps

even our DNA. Live and learn I guess.

Some Suffers have been okay eating salmon! I eat it about 3x a wk and I am okay! Just make sure it is GMO FREE!


The secret of health for both mind & body

is not to mourn for the past, not to worry about the future, or not anticipate troubles, but to live the present moment wisely and earnestly.

The Buddha


Share this post


Link to post
Share on other sites

Seriously, guys, this is what Roche wants. United we stand, divided we fall. Even our closest friends and family have said that we're overdramatizing, that we're hypochondriacs, that this is all in our heads. This group is all we have, so we need to stick together.

It's okay to think that someone else's supplement/regimen/medicine is BS. That's fine. But if you're going to point it out, do it with facts, not opinions. Post sources: studies, books, something legitimate that backs up your claims. If you think something that someone is doing is going to harm them, let them know why.

What on Earth? There are a handful of people playing fast and loose with the term ‘poison,’ but then straight out turn around and take another ‘poison.’ Of course, it is an inconvenient truth, so now I am the bad guy. Your parents and friends are right to label you however they want if you subscribe to the aforementioned reasoning. You shouldn’t be on Spironolactone, if you are having serious side effects. Spironolactone is going to compounds things, and there is no escaping that. The truth is even after being decimated by a pharmaceutical, people will stop at nothing to retain there hair and curb any remaining acne with whatever else they can get their hands on. Fine, do that, but don't cry wolf. Have a look at the conversation I had with the user Aussieface. He had E.D., digestion issues, depression, etc. He ended up in E.R., he then proceeded to lambast his dermatologist with incriminating literature on side effects, only to then jump back on the Accutane, because as he claims, he had to "listen to his body."

I have made my point clear over and over again; don’t claim poison, and then turn around and ingest another. If I have to explain why DHT inhibitors and herbs and pharmaceuticals that are considered anti-androgens should not be tolerated in this thread, you are beyond reasoning. I may have been a little smug (entertaining) given the amount of pandering that is done here, but I have been honest and factual. Many here have been delusional and deceitful and straight out dangerous to this community (Gladiatoro: I have shown over and over again). This behavior would not be tolerated at Propeciahelp.com, and I bet it would be nigh on impossible to get $100 from most of you (there are exceptions I know) to commit to research. That speaks volumes.


"Fret not fellas. I've got a 145 IQ, zen pain tolerance, the resilience of a cockroach, the survival instincts of a rat. I'll win; it's what I do. And then I'll help all of you, forgetting no one; I swear."

"I did get some fatigue and minor cramps from taste testing spicy food I was cooking. Even though I didn't swallow and rinsed, the residue got me. This hypersensitivity is annoying."

Thus spoke Joseph Buchignani.


Share this post


Link to post
Share on other sites

On day 2 of gluten-free! man do i want a burger. Feeling great though. Still have reynauds and dry skin, but my digestion is sooo good. Oregano oil and gluten free is looking up, but the diet is hard! I need you guys to motivate me!! smile.png

Have the burger with just NO bread :) ! Give it some time and it will become a norm :) I feel sooo much better with low carb and gluten free, and if you have a craving for some bread then do gluten free!

2 people like this

The secret of health for both mind & body

is not to mourn for the past, not to worry about the future, or not anticipate troubles, but to live the present moment wisely and earnestly.

The Buddha


Share this post


Link to post
Share on other sites

Buddy, you belong on a hair loss website. You obviously know nothing about herbs and you shouldn't be offering advice. You straight out lie as I have proven, when you talk about taking beneficial herbs for "detox" purposes when you obviously have ulterior motives. That is just pathetic. Also, you don't have to space your writing that far apart. This is not grade school, where you need to draw pictures next to your words to clarify your point. On second thought, perhaps you should ignore my last statement.

Yes I fully agree united we stand , divided we fall , arguing over what one person tries to improve there situation and cutting them down is childish and

I won't play that silly game , try what you like whatever helps you but DON'T cut down other people for there trials and errors , you can point out your

opinion but you don't have to be rude , I am referring to Z 28 , grow up man. This forum is to help each other period.


"Fret not fellas. I've got a 145 IQ, zen pain tolerance, the resilience of a cockroach, the survival instincts of a rat. I'll win; it's what I do. And then I'll help all of you, forgetting no one; I swear."

"I did get some fatigue and minor cramps from taste testing spicy food I was cooking. Even though I didn't swallow and rinsed, the residue got me. This hypersensitivity is annoying."

Thus spoke Joseph Buchignani.


Share this post


Link to post
Share on other sites

Buddy, you belong on a hair loss website. You obviously know nothing about herbs and you shouldn't be offering advice. You straight out lie as I have proven, when you talk about taking beneficial herbs for "detox" purposes when you obviously have ulterior motives. That is just pathetic. Also, you don't have to space your writing that far apart. This is not grade school, where you need to draw pictures next to your words to clarify your point. On second thought, perhaps you should ignore my last statement.

Yes I fully agree united we stand , divided we fall , arguing over what one person tries to improve there situation and cutting them down is childish and

I won't play that silly game , try what you like whatever helps you but DON'T cut down other people for there trials and errors , you can point out your

opinion but you don't have to be rude , I am referring to Z 28 , grow up man. This forum is to help each other period.

I space my writing far apart so you can easily read it , I figured you needed help with that ha , and yeah I still take saw palmetto ciclically ,

and I have benefited from it as have others with NO ill effects to speak of , like oily girl said we are all different some things work some things

don't for others , I have made my point to you many times on this herb and I do know a bit about herbs in fact I study them and am currently

working on around 2000 different herbs that I research , a hobby of mine. If you think saw palmetto is so harmfull then don't take it , but I will

and I'll take whatever benefits me. Z28 face it no one likes you .

Edited by gladiatoro
1 person likes this

Share this post


Link to post
Share on other sites

I am doubtful you graduated high school. If you ever do cut out that herb you are in so much denial about, you will probably come to realize you are driving what Justin Bieber considers a real Mustang. Clueless!


"Fret not fellas. I've got a 145 IQ, zen pain tolerance, the resilience of a cockroach, the survival instincts of a rat. I'll win; it's what I do. And then I'll help all of you, forgetting no one; I swear."

"I did get some fatigue and minor cramps from taste testing spicy food I was cooking. Even though I didn't swallow and rinsed, the residue got me. This hypersensitivity is annoying."

Thus spoke Joseph Buchignani.


Share this post


Link to post
Share on other sites
"Awesome Joseph; I take it you will now be cancelling your subscription, and moving on. I hope you don't completely forget about us, but I would understand if you did. Greener pastures and all that. I mean, I do watch reality television."
Of course not. Obviously I'm getting busier now that I'm not lying around all day trying not to go crazy from pain and boredom. So I'll post less. But neither do I want to continue to eat a 1000 calorie 3 ingredient diet for the rest of my life. As I build up cash I'll begin cautious experimentation with exotics like deer antler spray, rick simpson oil, and many other ideas I've saved but been too sick to properly test. I intend to get a book out of this eventually.
I do find your avatar amusing.
"I never thought I'd be ending my participation in this forum by agreeing with Joseph, but he's right.
Diet is truly the key. Bottom line we have to face the fact that consuming once-normal foods like breads and processed foods used to just be unhealthy, but now are actually the underlying causes to all of our symptoms. Switching to yogurt + raw meats/small portions/heavily restricting your diet is not only the only thing I've found to work, it actually does work."
Heh, word bud. I'm not sure this will address hair loss and skin and eye dryness. Most other things it should at least help.

Accutane - Brief low-dose course ~9 years ago for ~4 months. Liver monitored, no sides.
Symptoms: Gradual onset of symptoms, peaking ~5 years ago. Extreme IBS, lost ability to eat almost everything, unable to work for 4 years. IBD diagnosis might've been possible, but avoided doctors and the prescription meds route, going for diet and supplements instead. Thought it was regular IBS, didn't realize it was Accutane until already had avoided the IBD diagnosis. Decided going back to hell just to get the diagnosis wasn't worth it. Regained enough health to work full time around May-June 2013.
Regimen summary:
Eat only
1. true free range lean chicken breast (expensive)
2. Lean white-tail shrimp (moderately expensive)
3. Glutinous rice gruel (very cheap)
All ad libitum, minimum 150g shrimp/d.
Supplements:
1. Blue Ice CLO / Butter Oil blend
2. Udca ~1-3g /d
3. Source Naturals Essential enzymes 2x per meal
4. Symbiotics Colostrum ~1/8 scoop per meal
5. Cycled topical testosterone cream
6. Topical ACV, tea tree oil (morning) and benzoyle peroxide 10% (night)
Zeitgeibers:
1. Aim to nap every 3 hours for 20 minutes
2. Match light exposure to sunrise, sunset
3. Match meals to sun


Share this post


Link to post
Share on other sites

But it's the dryness that is at the root cause of all physical symptoms if we can't address that then what hope do we have?

Share this post


Link to post
Share on other sites

.

Edited by sdro123
1 person likes this

Share this post


Link to post
Share on other sites

Why is it only some of the guys on here fight? Let's just tone it down a notch. Let it go...accutane should be uniting us...and no I'm not gonna say world peace too, because I just want to be able to go on here and get some helpful information without getting anxious about who is bashing who. just stop please. thank you!! I'm sure I've given some advice that wasn't spot on, but it is ADVICE. I always say it's MY experience but to try it at your own risk. MOVE ON.

But it's not me Z28 keeps harassing me lol... he started it all it's true . He has to go sit in the corner of the room now for a while and put on a dunce cap ha...

Share this post


Link to post
Share on other sites

Why is it only some of the guys on here fight? Let's just tone it down a notch. Let it go...accutane should be uniting us...and no I'm not gonna say world peace too, because I just want to be able to go on here and get some helpful information without getting anxious about who is bashing who. just stop please. thank you!! I'm sure I've given some advice that wasn't spot on, but it is ADVICE. I always say it's MY experience but to try it at your own risk. MOVE ON.

Well this is the thing: You have never said anything which I find even remotely problematic in the context of this thread. That is the point. If you decided to take DHT inhibitor herbs at home to combat whatever you like I really have no problem; just don't come on here, and twist the facts to suit your warped agenda. I mean I even like your musical taste; I am big fan of Radiohead and Beach House, but not so much Death Grips. I would have preferred Elliott Smith, but I have no right to bring that up here because that would be completely decontextualized point to bring up, and you are certainly not harming anyone. If the inappropriately named Gladiatoro can forget his own little problems in the setting of this important thread, you will not hear a murmur out of me. If he continues to act with disregard, I propose a forced name change to something more apt like Gladiola.


"Fret not fellas. I've got a 145 IQ, zen pain tolerance, the resilience of a cockroach, the survival instincts of a rat. I'll win; it's what I do. And then I'll help all of you, forgetting no one; I swear."

"I did get some fatigue and minor cramps from taste testing spicy food I was cooking. Even though I didn't swallow and rinsed, the residue got me. This hypersensitivity is annoying."

Thus spoke Joseph Buchignani.


Share this post


Link to post
Share on other sites

You guys are seriously great fun.

Life really does suck in so many ways now, but at least we can still have a laugh.

Hey, in a normal world we might even have a round of drinks imagine that?!

3 people like this

Share this post


Link to post
Share on other sites

^^Haha, you certainly paint a picture. Could you imagine Joesph after a few drinks and cigarettes on a belly filled with homemade yoghurt? Priceless!


"Fret not fellas. I've got a 145 IQ, zen pain tolerance, the resilience of a cockroach, the survival instincts of a rat. I'll win; it's what I do. And then I'll help all of you, forgetting no one; I swear."

"I did get some fatigue and minor cramps from taste testing spicy food I was cooking. Even though I didn't swallow and rinsed, the residue got me. This hypersensitivity is annoying."

Thus spoke Joseph Buchignani.


Share this post


Link to post
Share on other sites

Seriously, guys, this is what Roche wants. United we stand, divided we fall. Even our closest friends and family have said that we're overdramatizing, that we're hypochondriacs, that this is all in our heads. This group is all we have, so we need to stick together.

It's okay to think that someone else's supplement/regimen/medicine is BS. That's fine. But if you're going to point it out, do it with facts, not opinions. Post sources: studies, books, something legitimate that backs up your claims. If you think something that someone is doing is going to harm them, let them know why.

In the same vein, just because someone makes a treatment mistake doesn't mean they're stupid/evil/foolish, and does NOT give you the license to provoke them. We're a community, and fighting among ourselves will get us nowhere.

Also, we need to accept that different things work for different people. Just because something didn't work for you doesn't mean it won't work for someone else. Accutane has done different things to all of us; we don't all have the exact same side effects and blood test results. For most of us, Accutane screwed up a whole bunch of things, and we've got a lot of health issues to skate around.

When it comes to cures, I'd say diet is the easiest thing to try, especially if Accutane left you with digestion issues. So many people have had success with it. Just try it for a month and see how you feel.

Also, Chico, if I were you, I'd go with the borage oil. I take evening primrose oil because it raises and helps me metabolize my estrogen… I'm not sure you want that tongue.png

Yes I fully agree united we stand , divided we fall , arguing over what one person tries to improve there situation and cutting them down is childish and

I won't play that silly game , try what you like whatever helps you but DON'T cut down other people for there trials and errors , you can point out your

opinion but you don't have to be rude , I am referring to Z 28 , grow up man. This forum is to help each other period.

>>What about GLA or gamma linolenic acid to give it's full title. Its in borage/starflower oil and evening primrose oil i remember someone saying a while back that it specifically helped their skin dryness, has anyone had any experience with this? it's meant to be an anti inflammatory omega 6 fatty acid.

Also what about flaxseed oil, it's an omega 3 without the retinol content of fish oil, but i've heard a poster reference the fact that they don't do well on any omega 3.

Chico , I agree the retinol is very bad for us , a few years ago I took fish oil for a month or so a fair amount per day interestingly enough it said

on the bottle it was Vitamin A free , that's why I bought it , it was carlsons fish oil , yet my back seized up for three days (not fun)after ingesting

this stuff again a giant failure in my treatment plan lol... for obvious reasons I avoid any kind of fish oil now , this drug is fun fun fun. ha. I still

don't understand how a synthetic drug can cause all these side effects years later , certainly our gene expressions have been changed perhaps

even our DNA. Live and learn I guess.

I know it's weird, theres some connection with omega 3 and retinol in the body. It could be that trace amounts of the retinol are still in the product and thats what affected you. Even flax contains beta carotene, i was looking through udo's choice ingredients and it contains wheat germ oil which is full of beta carotene, the oil itself is bright orange because of the carotenoids it contains. Likewise with pumpkin seed oil....it's retinol and foods high in carotenoids that we seem to react too.

What about GLA or gamma linolenic acid to give it's full title. Its in borage/starflower oil and evening primrose oil i remember someone saying a while back that it specifically helped their skin dryness, has anyone had any experience with this? it's meant to be an anti inflammatory omega 6 fatty acid.

Also what about flaxseed oil, it's an omega 3 without the retinol content of fish oil, but i've heard a poster reference the fact that they don't do well on any omega 3.

I take GLA in liquid form by Nordic Naturals! It does good for me, is it a cure well no! Also, I would tread lightly on the flax as many old suffers and myself who have been around awhile didn't do well with flax. Such as flushing, palpatations etc... It's up to you, though you could start with flax seed in with certian things vs a supplement. I have say diet is crucial at least for me and I feel alot better without sugar, alot of carbs, etc... Digestion has improved alot also smile.png

I'm going to order borage oil, thank you for your advice Oil Girl.

But it's the dryness that is at the root cause of all physical symptoms if we can't address that then what hope do we have?

Theres two types of dryness, most accutane sufferers have both. The first is there is no production of sebum, so the skin on the face / body looks very dry, as does the hair because it's not lubricated. The second is the internal dryness which is the lubrication of the joints, cartilage and bones of the body, which creates joint cracking, pain, weakness.

Edited by Chico Esposito

Share this post


Link to post
Share on other sites
Things that may address the lack of sebum are high dose biotin 15-20mg of the stuff per day has been known to increase sebum production in the body. The body makes sebum with linoleic acid and oleic acid. Oleic acid is undesirable and is usually used by the body in the absence of linoleic acid, it's partly the reason why people have acne and other skin complaints in the first place. The body wants to use linoleic acid and that creates a healthy skin barrier and healthy sebum.
Sources high in linoleic acid are flax oil, hemp oil, borage oil, evening primrose oil......olive oil is very high in oleic acid so i tend to stay away from that one. These may help you produce more sebum but you may react to flax, it seems to cause some problems with accutane sufferers.
The internal dryness is more about hyaluronic acid, chondroitin sulfate and collagen, which are the lubricating components of the joints. I've heard people reference baxyl liquid for it's hyaluronic acid content as a help. Theres also a very inexpensive way to do it. All you'll need is a slow cooker and some bones, i order mine online, you can use chicken, lamb or beef bones it's really non specific. I have one like this
You put the bones in the slow cooker, then add 2 tablespoons of apple cider vinegar (i use braggs) add water until the bones are submerged then switch the heat on.........you leave it too cook on the low setting for 24 hours or the high setting for about 12 hours. Once it's finished you put the broth into mason jars, i use a sieve to make sure non of the bones or cartliage get through.Then put it in the fridge for the next day. In the morning you'll see that the fat in the broth has risen to the top and formed an almost wax like substance, remove all of that and you should be left with a gelatin rich broth that looks almost jelly like if you've done it correctly.
Empty the broth into a small pan and heat for about 4-5 minutes until it's liquid and warmed through. Then just drink it, it's full of gelatin, collagen, hyaluronic acid and chondroitin sulfate. Bone broth daily maybe adding something like baxyl liquid to the regimen will go some way to helping the internal dryness.
Word of warning if you order chicken carcasses they come with giblets usually wrapped in film in the cavity of the bird, throw them out they contain a lot of vitamin A, just discard them and use the body of the bird. Also make sure to remove the wax on the top of the broth which is fat. If there are any fat soluble vitamins present thats were they'll be so discard. The gelatin is what you want.
2 people like this

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a New Account

Sign in

Already have an account? Sign in here.


Sign In Now