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AMVC spontaneous scarring

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#441 boafriend

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Posted 20 August 2013 - 11:55 PM

Just wanted to do a quick update.  After talking with both a derm and GP, we decided to start her on 10mg of accutane.  She is doing very well.  Neither of them seem to be too concerned with the scarring but more in the prevention of further acne.  What I have discovered is that her scarring is far less noticeable with the application of lots of moisturizer.  Perhaps those with these scars are a result of the harsh chemicals and no moisture to allow the skin to plump and recover successfully.  I have advised her to use copious amounts of moisturizer during this time and WILL NOT put her on a high dose, but a lower one to minimize the side effects.  While I am extremely uncertain as to this path and am worried, so worried, she wants to do this as well.  

Good to see an update from you, finally.

Yeah people have mentioned the whole using more moisturizer thing, but I still find it hard to believe that lack of moisture can cause that type of damage (scarring), because scarring results from an inflammatory response underneath the skin. I mean, there are tons of people in the world with dry skin and tons of people who don't use moisturizer at all....and you're not hearing reports left and right about these people having random scars form on their faces. It's food for thought, but I personally find the lack of moisturizer theory to not make any sense.

Please keep me and others updated in the Essential Day Spa thread that I started because this Acne.org AMVC thread is very dead. Best of luck to your daughter!

Also, try looking into a holistic/naturopath because they might be able to give you some explanations from an internal standpoint. It's worth a shot if most dermatologists aren't able to diagnose or help as far as the scarring is concerned.


Edited by boafriend, 20 August 2013 - 11:57 PM.


#442 lydia2348

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Posted 12 September 2013 - 10:18 AM

I think I have this. I keep finding new scars where there was no previous acne. Has anyone found any new information as to what may cause this? I have never been on Accutane or taken high dose Vit A. Thanks.



#443 boafriend

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Posted 17 October 2013 - 12:19 AM

I think I have this. I keep finding new scars where there was no previous acne. Has anyone found any new information as to what may cause this? I have never been on Accutane or taken high dose Vit A. Thanks.

 

I hate to tell you, but you'll probably find no answer to any of it. I've been to a number of dermatologists (like many stories you'll read here and across the Internet) and everyone has been nothing but helpless. Most dermatologists will just try prescribing you Retin-A or some Vitamin A based topical, saying it can help rebuild collagen or they'll prescribe you antibiotics for acne or your typical prescription acne topical medications. I even went to UCLA and was brushed off rudely as being too obsessed about my appearance and was accused of having picked at my acne when I clearly hadn't (the doctor I saw also regarded some of my linear scars as wrinkles. They clearly were NOT wrinkles. I was 23 at the time, too, and have been a religious sunscreen user since 14).

In general, some dermatologists may have heard about AMVC but the information on it is too little and those who've heard of it will say you don't have it "just because it's rare."

Anyways, my condolences to you if you're pretty sure you have this "disease." I've had it since March of this year and it's permanently destroyed my self esteem and my face. Most of the scars and lines aren't MAJOR but they're noticeable up close, and it just really sucks.


Edited by boafriend, 17 October 2013 - 12:21 AM.


#444 AghhNe

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Posted 17 October 2013 - 05:07 AM

I think I have this. I keep finding new scars where there was no previous acne. Has anyone found any new information as to what may cause this? I have never been on Accutane or taken high dose Vit A. Thanks.

 
I hate to tell you, but you'll probably find no answer to any of it. I've been to a number of dermatologists (like many stories you'll read here and across the Internet) and everyone has been nothing but helpless. Most dermatologists will just try prescribing you Retin-A or some Vitamin A based topical, saying it can help rebuild collagen or they'll prescribe you antibiotics for acne or your typical prescription acne topical medications. I even went to UCLA and was brushed off rudely as being too obsessed about my appearance and was accused of having picked at my acne when I clearly hadn't (the doctor I saw also regarded some of my linear scars as wrinkles. They clearly were NOT wrinkles. I was 23 at the time, too, and have been a religious sunscreen user since 14).
In general, some dermatologists may have heard about AMVC but the information on it is too little and those who've heard of it will say you don't have it "just because it's rare."
Anyways, my condolences to you if you're pretty sure you have this "disease." I've had it since March of this year and it's permanently destroyed my self esteem and my face. Most of the scars and lines aren't MAJOR but they're noticeable up close, and it just really sucks.

Hi!
I read a thread of yours long time ago. It was about dermarolling.
May i ask how much improvement you got with it and how long the needles were?

#445 boafriend

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Posted 24 October 2013 - 10:10 PM

 

I think I have this. I keep finding new scars where there was no previous acne. Has anyone found any new information as to what may cause this? I have never been on Accutane or taken high dose Vit A. Thanks.

 
I hate to tell you, but you'll probably find no answer to any of it. I've been to a number of dermatologists (like many stories you'll read here and across the Internet) and everyone has been nothing but helpless. Most dermatologists will just try prescribing you Retin-A or some Vitamin A based topical, saying it can help rebuild collagen or they'll prescribe you antibiotics for acne or your typical prescription acne topical medications. I even went to UCLA and was brushed off rudely as being too obsessed about my appearance and was accused of having picked at my acne when I clearly hadn't (the doctor I saw also regarded some of my linear scars as wrinkles. They clearly were NOT wrinkles. I was 23 at the time, too, and have been a religious sunscreen user since 14).
In general, some dermatologists may have heard about AMVC but the information on it is too little and those who've heard of it will say you don't have it "just because it's rare."
Anyways, my condolences to you if you're pretty sure you have this "disease." I've had it since March of this year and it's permanently destroyed my self esteem and my face. Most of the scars and lines aren't MAJOR but they're noticeable up close, and it just really sucks.

Hi!
I read a thread of yours long time ago. It was about dermarolling.
May i ask how much improvement you got with it and how long the needles were?

I had a dermastamp (3, actually). I stopped doing it because I had subcision and filler for the 2 pockmarks that were on my cheek. It's been over a year now, and the fillers have faded, and the pockmarks are visible once again.

And because I have spontaneous scarring now, there's no point in attempting to stamp when my skin is going to deteriorate on its own. I have various indentions and little linear lines all over, including some spontaneous wrinkle looking creases on my forehead. It's very depressing.



#446 AghhNe

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Posted 25 October 2013 - 08:41 PM

 


 


I think I have this. I keep finding new scars where there was no previous acne. Has anyone found any new information as to what may cause this? I have never been on Accutane or taken high dose Vit A. Thanks.

 
I hate to tell you, but you'll probably find no answer to any of it. I've been to a number of dermatologists (like many stories you'll read here and across the Internet) and everyone has been nothing but helpless. Most dermatologists will just try prescribing you Retin-A or some Vitamin A based topical, saying it can help rebuild collagen or they'll prescribe you antibiotics for acne or your typical prescription acne topical medications. I even went to UCLA and was brushed off rudely as being too obsessed about my appearance and was accused of having picked at my acne when I clearly hadn't (the doctor I saw also regarded some of my linear scars as wrinkles. They clearly were NOT wrinkles. I was 23 at the time, too, and have been a religious sunscreen user since 14).
In general, some dermatologists may have heard about AMVC but the information on it is too little and those who've heard of it will say you don't have it "just because it's rare."
Anyways, my condolences to you if you're pretty sure you have this "disease." I've had it since March of this year and it's permanently destroyed my self esteem and my face. Most of the scars and lines aren't MAJOR but they're noticeable up close, and it just really sucks.

Hi!
I read a thread of yours long time ago. It was about dermarolling.
May i ask how much improvement you got with it and how long the needles were?
I had a dermastamp (3, actually). I stopped doing it because I had subcision and filler for the 2 pockmarks that were on my cheek. It's been over a year now, and the fillers have faded, and the pockmarks are visible once again.
And because I have spontaneous scarring now, there's no point in attempting to stamp when my skin is going to deteriorate on its own. I have various indentions and little linear lines all over, including some spontaneous wrinkle looking creases on my forehead. It's very depressing.

Why is it happening? Does fish oil cause this?


Edited by AghhNe, 26 October 2013 - 07:07 PM.


#447 boafriend

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Posted 02 November 2013 - 07:44 PM

 

 


 


I think I have this. I keep finding new scars where there was no previous acne. Has anyone found any new information as to what may cause this? I have never been on Accutane or taken high dose Vit A. Thanks.

 
I hate to tell you, but you'll probably find no answer to any of it. I've been to a number of dermatologists (like many stories you'll read here and across the Internet) and everyone has been nothing but helpless. Most dermatologists will just try prescribing you Retin-A or some Vitamin A based topical, saying it can help rebuild collagen or they'll prescribe you antibiotics for acne or your typical prescription acne topical medications. I even went to UCLA and was brushed off rudely as being too obsessed about my appearance and was accused of having picked at my acne when I clearly hadn't (the doctor I saw also regarded some of my linear scars as wrinkles. They clearly were NOT wrinkles. I was 23 at the time, too, and have been a religious sunscreen user since 14).
In general, some dermatologists may have heard about AMVC but the information on it is too little and those who've heard of it will say you don't have it "just because it's rare."
Anyways, my condolences to you if you're pretty sure you have this "disease." I've had it since March of this year and it's permanently destroyed my self esteem and my face. Most of the scars and lines aren't MAJOR but they're noticeable up close, and it just really sucks.

Hi!
I read a thread of yours long time ago. It was about dermarolling.
May i ask how much improvement you got with it and how long the needles were?
I had a dermastamp (3, actually). I stopped doing it because I had subcision and filler for the 2 pockmarks that were on my cheek. It's been over a year now, and the fillers have faded, and the pockmarks are visible once again.
And because I have spontaneous scarring now, there's no point in attempting to stamp when my skin is going to deteriorate on its own. I have various indentions and little linear lines all over, including some spontaneous wrinkle looking creases on my forehead. It's very depressing.

Why is it happening? Does fish oil cause this?

 Well, I wish I knew why it was happening, but I don't.

And people have said fish oil causes it, but there's no solid research or medical evidence to support this claim.



#448 LauraLeesa

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Posted 18 March 2014 - 04:38 AM

Hello. I came across a message where you were expressing your dilemma with random lines, indents, holes, scars appearing on the face for no apparent reason. I'm experiencing exactly that. I'm so struck with anxiety over this and have become severely depressed. I find new scars each day that vary from size and shape.

I only use emu oil or Argan oil on my face, epiduo interchangeably, and had been taking high doses of evening primrose oil to help with cramping and dry skin. I remember reading on acne.org and essentialdayspa of people with the same issues, but they were consuming high doses of omega 3's as opposed to omega 6 (evening primrose oil in my case. Could I have caused the opposite problem of now being deficient in omega 3?

I also took two doses of fluconazole for candida, and supplementing with oregano oil. I'm not sure what's contributing to this abnormality. I feel so helpless and scared. This bizarre scarring is spreading day to day. Please help if you have any answers or have found relief.

I pray anyone out there who has endured this or is dealing with this currently has found hope or healing.

#449 boafriend

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Posted 05 May 2014 - 11:41 PM

Hello. I came across a message where you were expressing your dilemma with random lines, indents, holes, scars appearing on the face for no apparent reason. I'm experiencing exactly that. I'm so struck with anxiety over this and have become severely depressed. I find new scars each day that vary from size and shape.

I only use emu oil or Argan oil on my face, epiduo interchangeably, and had been taking high doses of evening primrose oil to help with cramping and dry skin. I remember reading on acne.org and essentialdayspa of people with the same issues, but they were consuming high doses of omega 3's as opposed to omega 6 (evening primrose oil in my case. Could I have caused the opposite problem of now being deficient in omega 3?

I also took two doses of fluconazole for candida, and supplementing with oregano oil. I'm not sure what's contributing to this abnormality. I feel so helpless and scared. This bizarre scarring is spreading day to day. Please help if you have any answers or have found relief.

I pray anyone out there who has endured this or is dealing with this currently has found hope or healing.

 

Hi, yeah I'm really sorry to hear that you are experiencing this hell as well. I thought my scarring stopped a few months back because I had stomach discomfort for a while and an internal doctor found that I had clostridium difficile toxin A and B, which is essentally antibiotic poisoning (although this relates in no way to my skin). I was given antibiotics and the stomach discomfort went away, and around that time I thought the random scarring had stopped but....I check my face every now and then, and I've noticed that the damage continues. Now, it's mainly small holes and small pockmarks, but still...it is abnormal scarring nonetheless.

 

I still have never been helped for this nor the twitching, prickling, static-like sensations that I've been experiencing for over a year now. I believe that there is something abnormal with my thyroid (previous blood test result numbers, while in the "normal" range, are still on the low end and I've seen fluctuating in the measurement levels) and that there is also some type of parasite or bacteria at play, but I am still waiting until my appointment for an endocrinologist at USC. Skin wise, yeah....I've scoured the Internet and seen multiple dermatologists and no one has been able to help me. Most dermatologist immediately just prescribe me anti-acne topicals and the worst I've come across was a dermatologist at UCLA, who told me I was looking into mirrors too much.

 

If you find anything, please let me know.



#450 Greg Estrada 1963

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Posted 06 May 2014 - 06:02 AM

after much research I'm convinced its Demodex mites gone wild--went to a bunch of docs here in Wash,DC and they were all stumped as they are all specialists who don't see the "whole body" -just their little part--this is an immune system problem. It started when I hit about 48 years old-middle age-when your immune system starts to weaken. Anyone else had this start at middle age? Anyone in DC area found a doc that knows how to treat this?(other than the obvious solution of "strengthen your immune system", which I am doing)



#451 u1971

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Posted 06 May 2014 - 08:29 AM

after much research I'm convinced its Demodex mites gone wild--went to a bunch of docs here in Wash,DC and they were all stumped as they are all specialists who don't see the "whole body" -just their little part--this is an immune system problem. It started when I hit about 48 years old-middle age-when your immune system starts to weaken. Anyone else had this start at middle age? Anyone in DC area found a doc that knows how to treat this?(other than the obvious solution of "strengthen your immune system", which I am doing)

 

Are you the stand up comedian who organized that Washington DC acne scar support group? I remember you posted on Voy Message Board more than a decade ago. I didn't post but I used to read that site daily.

Did you or your friends find any solution for acne scars over the years?

There were many knowledgeable people posting there and they all vanished. I wonder if they eventually fixed their acne scars and moved their attention to other issues in their lives or if they just accepted living with scars.

 

Sorry for being off topic but we don't have many long-term reports here. People try different treatments, post a lot for a while and then disappear.



#452 Julian1

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Posted 21 October 2014 - 07:40 PM

Hey...I have started to have this amvc scarring aswell, and Im freaking out! I got a new scar today and I dont know what the fuck is happening! I dont take anything unusual, the only thing I take is Multivitamin(yes with vitamin a), but I have used that multivitamin for 4 years, so thats not the problem...I had a dermarolling session a week ago, could this be the reason for the scars???

Here is a picture which shows 3 out of the 4 amvc scars i have...

The only thing thats new in my life is the schampoo Ketokonazol...

Edit: It was 2 years ago since i was on accutane

Man! I also used Ketokonazol on my face and head when I started get white marks and lots of scarring.. This was also in a period when I had just dermarolled my face :'(






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