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AMVC spontaneous scarring

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#421 Guest_Timehealsall_*

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Posted 26 July 2011 - 10:53 PM

QUOTE (Miyuuki @ Jul 26 2011, 11:26 PM) <{POST_SNAPBACK}>
QUOTE
a question.. did you take any antibiotics before all this shit happened? If so, which ones?

Also, regarding the linear scars, to truly see if these are scars, try treating the seborrheic dermatitsi with either a ketacanozle topical, shampoo, corticosteroid (be careful with these) or elidel and see if the scar goes away. I noticed some areas of my face what looked like a scar, was just scaliness/dead skin from seb derm.

Also, please post a photo of your seborrheic dermatitis.


Thank you for replying smile.gif
I have not taken any antibiotics or any medication. Or maybe i have when i got the flu in january. I can't remember. So what do antibiotics have to do with the scarring? Is there a way to reverse it??

In regards to the linear scars, i think i've had it for over a year. I do not have seb derm where the linear scars are. At first i thought it was just a crease from sleeping, but it never went away. I think i have very mild seb derm/perioral derm?? I'm not sure if it's true because i was diagnosed by a normal GP. To be honest I'm not even exactly sure what i have. But i definitely have rosacea and some sort of dermatitis (because i get dry, scaly, bumpy, itchy skin). I'll be seeing another dermatologist next Wednesday, it's very hard to find one i like. Most of them always try to rush things.

*I am getting spontaneous scars which look like large pores connected together. Somewhat forming triangular, rectangular shapes and stretching out to linear scars. I'm very worried because it seems as though the scars are expanding. I had a triangle-shaped scar but now it has connected to another pore forming a rectangle.

QUOTE
One more thing, do you scar only in areas where you have seborrheic dermatitis? or do the pimples scar regardless if they are on areas of seb derm?


I scar anywhere, regardless of where the seb derm is.

What's worrying me the most are these random scars forming out of nowhere!! I am just hoping these random scars is because of the fish oil, i do not want to live like this for the rest of my life continuously getting scars for no reason. sad.gif

What would you recommend? Just stop the fish oil? Or completely stop all vitamins including the shake? I think the shakes are made out of soybeans etc.

I will post some photos when i figure out how to. Anyone like to help me out?.

I would just like to add - i also started taking vitamin D on and off 3 weeks ago . So some days i would forget and others i would take it. My pores started to enlarge in February and has been since then. What's wrong?!?! sad.gif


upload a photo on a website (like tinypic) than send links here.




#422 Pord

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Posted 22 December 2011 - 02:06 PM

What about a multivitamin that has like 60% Vitamin A? - For those of us that took Accutane.

#423 jay2008

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Posted 23 December 2011 - 09:20 PM

I've been dealing with this issue for about 2 years now. 90% of my scarring came immediately ( within 5 days ) after working out or during extremely hot weather. Nonetheless, I am determine to fine a solutions....

#424 Pord

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Posted 24 December 2011 - 07:50 AM

I've been dealing with this issue for about 2 years now. 90% of my scarring came immediately ( within 5 days ) after working out or during extremely hot weather. Nonetheless, I am determine to fine a solutions....


Maybe I missed this part but . . . what does hot weather and working out have to do with this?

#425 Pord

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Posted 05 January 2012 - 12:01 PM

I am bumping this. It is interesting and it has me trippin' out a little.

I just read this entire thread. Wow, this is strange. . . .

I felt like I was being punished while reading that.

Edited by Pord, 05 January 2012 - 03:29 PM.


#426 Pord

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Posted 06 January 2012 - 09:00 AM

So basically take a 24hr anti-histamine (piriton), lots of omega-6, borage, evening primrose, calcium citrate, and GLA. Also, try not to take a whole lot of Vitamin A (such as supplements) – That was a long read.

Edited by Pord, 06 January 2012 - 09:01 AM.


#427 Greg Estrada 1963

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Posted 10 March 2012 - 07:45 AM

needling works great for AMVC scarring as they are typically very shallow--if near Washington,DC area try Lilian Omar at http://www.lbn-tattoo.com/
she's good at it and doesn't charge a fortune ....

#428 girlie

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Posted 11 March 2012 - 08:20 AM

miyuuki

stop the fish oil.

have you taken accutane before?

read up on lamarr's posts. very informative

you can take EPO as its omega 6. the omega 3's are bad for spontaneous scarring

and stop any and all vit A intake

Again, did you take Accutane?

EPO is Evening primrose oil

#429 Greg Estrada 1963

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Posted 15 March 2012 - 11:17 AM

went to Derm today to see what they would say about this new weird "plot-twist" in the Accutane story...
i took Accutane 15 yrs ago and this AMVC stuff is just starting a few months ago...very strange and unexpected. Thought i was done with this stuff but i'm back in it in a big way--ugh.
the doc was clueless as to what-how-why this is happening (as i knew he would be--i just went for the fun of it, fully expecting no solution).
This is still too new of a phenomenon for the derms to get what is really going on. so we're on our own until the medical establishment catches up ....

#430 Guest_Timehealsall_*

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Posted 22 April 2012 - 08:09 PM

to those who are spontaneously scarring

How is your calcium intake like?

What about your vitamin A intake?

Did you take accutane?

#431 pokerlady888

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Posted 23 July 2012 - 11:33 PM

I believe I have some form of AMVC. My problems began either after I used Duac acne gel or after I used the Z Pack antiobiotic pills. Since then, I have been battling terrible skin problems starting with red/pink patches of skin and then after that, my entire face started getting tiny tiny bumps visible in good lighting, and then after that the skin texture mainly on my forehead, front cheeks and chin starting changing and causing spontaneous linear scarring and scarred pores....It's like the skin is so weak. My skin hurts most of the time. I feel strange pricking, tingling, slight sharp pains. It used to be much worse though and the skin was extremely red and tight. I felt intense crawling on my face and slightly on my scalp too. Sometimes on my body as well. I want to know if anyone on this board with AMVC has experienced such sensations? Or no?

My dermatologist found demodex mites through a skin scraping which I demanded because I had an odd hunch that the skin was inflamed from these parasites.

Here is my somewhat theory on what's going on: Antibiotics or certain drugs and factors caused an autoimmune reaction that overpopulated these mites. Basically setting of a demodicosis or rosacea like problem...but a demodectic rosacea. I'm wondering if everyone here with AMVC experiences flushing and has had pink skin before the scarring occured/occurs?

The demodicosis is an overpopulation of these mites on our faces and they breed mainly on the face....and scalp....they love the oily parts of the skin so if you are getting scars in the t zone area...that would make sense too because they are mainly surviving and breeding and bunching together in those areas.

Their bacteria and their overpopulation is causing the skin to be compromised and have a horrible immune reaction created lines, scars, dents, bumps, etc. It's also making the skin weaker that it is susceptible to this kind of trauma happening.

It is possible for the mites to be traveling around the whole body too....I would like to know if anyone on these boards with AMVC has also had some light crawling sensations on their body? Or itching?

These mites can overpopulate so much for some that eczema starts to show up and other skin rashes and problems. AMVC sufferers, demand dermatologists to do biopsies and skin scrapings for these mites and find out the demodex count in your skin also.

I am dealing with these problems too. I have been battling the demodex mites for a long time now and it quite unnerving. So far, I have found a few things that help....being less stressed, not using moisturizer or lotion as this will create more dents and lines because the mites love moisture, not washing the face with water too much, metronidazole pills at 375mg twice a day for 2 weeks was helpful, metorgel, demodex solutions ZZ cream and fumangling day cream with the metrogel 3% in it, a bactericide cleanser, and permethrin. Permethrin seemed to helped a lot with the dents and lines, but I had to stop for fear of the neurotoxicity of it. The sun and sun bathing perhaps also helped.

I have felt strange tingling in my body and slight pangs, but after learning to ignore them, I am not sure whether to say this is a problem anymore. It's possible this was a strung out side effect of the permethrin.

Anyway, I would love to hear back from AMVC people responding to the questions I have asked in this post. That would really help me more.


I've been dealing with this issue for about 2 years now. 90% of my scarring came immediately ( within 5 days ) after working out or during extremely hot weather. Nonetheless, I am determine to fine a solutions....


Maybe I missed this part but . . . what does hot weather and working out have to do with this?


As exhibited by this person, the demodex mite's bacteria increases when moist and hot. They are happier in warm, hot, environments. So if you flush from working out or are in hot weather, they will be happy and your skin may be compromised yet again and start forming scars from the immune reaction and bacteria.

Edited by pokerlady888, 23 July 2012 - 11:34 PM.


#432 jay2008

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Posted 28 February 2013 - 09:59 AM

I believe I have some form of AMVC. My problems began either after I used Duac acne gel or after I used the Z Pack antiobiotic pills. Since then, I have been battling terrible skin problems starting with red/pink patches of skin and then after that, my entire face started getting tiny tiny bumps visible in good lighting, and then after that the skin texture mainly on my forehead, front cheeks and chin starting changing and causing spontaneous linear scarring and scarred pores....It's like the skin is so weak. My skin hurts most of the time. I feel strange pricking, tingling, slight sharp pains. It used to be much worse though and the skin was extremely red and tight. I felt intense crawling on my face and slightly on my scalp too. Sometimes on my body as well. I want to know if anyone on this board with AMVC has experienced such sensations? Or no?

My dermatologist found demodex mites through a skin scraping which I demanded because I had an odd hunch that the skin was inflamed from these parasites.

Here is my somewhat theory on what's going on: Antibiotics or certain drugs and factors caused an autoimmune reaction that overpopulated these mites. Basically setting of a demodicosis or rosacea like problem...but a demodectic rosacea. I'm wondering if everyone here with AMVC experiences flushing and has had pink skin before the scarring occured/occurs?

The demodicosis is an overpopulation of these mites on our faces and they breed mainly on the face....and scalp....they love the oily parts of the skin so if you are getting scars in the t zone area...that would make sense too because they are mainly surviving and breeding and bunching together in those areas.

Their bacteria and their overpopulation is causing the skin to be compromised and have a horrible immune reaction created lines, scars, dents, bumps, etc. It's also making the skin weaker that it is susceptible to this kind of trauma happening.

It is possible for the mites to be traveling around the whole body too....I would like to know if anyone on these boards with AMVC has also had some light crawling sensations on their body? Or itching?

These mites can overpopulate so much for some that eczema starts to show up and other skin rashes and problems. AMVC sufferers, demand dermatologists to do biopsies and skin scrapings for these mites and find out the demodex count in your skin also.

I am dealing with these problems too. I have been battling the demodex mites for a long time now and it quite unnerving. So far, I have found a few things that help....being less stressed, not using moisturizer or lotion as this will create more dents and lines because the mites love moisture, not washing the face with water too much, metronidazole pills at 375mg twice a day for 2 weeks was helpful, metorgel, demodex solutions ZZ cream and fumangling day cream with the metrogel 3% in it, a bactericide cleanser, and permethrin. Permethrin seemed to helped a lot with the dents and lines, but I had to stop for fear of the neurotoxicity of it. The sun and sun bathing perhaps also helped.

I have felt strange tingling in my body and slight pangs, but after learning to ignore them, I am not sure whether to say this is a problem anymore. It's possible this was a strung out side effect of the permethrin.

Anyway, I would love to hear back from AMVC people responding to the questions I have asked in this post. That would really help me more.
 

 


I've been dealing with this issue for about 2 years now. 90% of my scarring came immediately ( within 5 days ) after working out or during extremely hot weather. Nonetheless, I am determine to fine a solutions....


Maybe I missed this part but . . . what does hot weather and working out have to do with this?

 


As exhibited by this person, the demodex mite's bacteria increases when moist and hot. They are happier in warm, hot, environments. So if you flush from working out or are in hot weather, they will be happy and your skin may be compromised yet again and start forming scars from the immune reaction and bacteria.

 

 

I literally read your post several months ago without replying. Two weeks ago, after I started back working out again, I realized portions of your post  were identical to my situation. 1) The scarring started after taking Bactrim 2) Exercising, Sweating, or Heat would cause flushing ( skin redness, tightness, slight burning), which resulted in scarring 2-3 days later). After a long battle simply trying to figure out what was going out, I'm delighted to hear that someone else experienced the same sequence of symptoms. Also, the face that the scarring is isolated on the cheek area makes me believe that it is some form of rosacea also. 


Edited by jay2008, 28 February 2013 - 01:09 PM.


#433 panos

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Posted 28 February 2013 - 11:43 AM

PLEASE people stop getting crazy...if you see those dark lines you can obviously see that 

the skin close to this line is very new/white... can you observe that ? its like your body is  pushing the old skin to right or left and creating new skin....

the problem is why the body doesnt reject and  exfoliate this skin? maybe because it is fibrotic tissue? 

the same lines have been observed from users of retin a...its like removing partially the hyperpimentation but a line remains and the cells are being acccumulated.

any comments?



#434 boafriend

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Posted 25 July 2013 - 04:43 PM

So I know I'm reviving a very old thread, but my attention has recently been redirected to this thread since I've been experiencing random, spontaneous scars since March. I've gone to many dermatologists only to be given no answer. I had skin scrapings for fungal/yeast infections as well as scabies done and all came back negative. I had a blood test for autoimmune disorders done as well, which came back negative - I am however, waiting on the results of a second blood test done recently since my initial blood test, done by a LabCorps office back in April, contained many errors in the patient info section (gender, age, etc) so a nurse suggested I get another test done to ensure that the blood is even mine. Also since April, I've been experiencing prickling and tingly sensations all over my body. It's been a very rough 5 months coming for me and I'm desperate for help and an end to this madness.

I scoured the contents of this thread since I was referred from my thread on EssentialDaySpa (http://www.essential...d.php?tid=49123). And I hope frequent posters such as freedom will be able to assist me, but from what I've gathered so far, I could possibly have calcium deficiency (I avoid dairy for the most part, at least in its most direct forms, such as milk) and I definitely overdosed on omega 3's since I ate fish for about 7 months straight or so (I've stopped fish cold turkey since April, though). What I'm gathering is that I should start taking calcium citrate along with some type of GLA supplement (such as evening primrose oil)? If someone could clarify for me, it'd be great. Thanks so much


Edited by boafriend, 25 July 2013 - 04:44 PM.


#435 WorriedMom4Ever

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Posted 27 July 2013 - 04:35 AM

Boafriend,

 

I stumbled across this thread and have spent hours reading it from start to finish all through the night.  Boy, was surprised to see you are the latest post - I had earlier posted on your thread at EDS!  I wish I could say that I feel encouraged, but honestly am sick to my stomach!  My daughter is a beautiful 17-year-old about to go off to college and her derm is prescribing accutane.  She recently had some blood work and things were slightly off - High EOS 6 and a low neutrophil...docs said it could be allergies.  The scarring is getting worse, especially after exposure to the sun.  The are small dots and keep connecting to form small lines.  She also had some mild acne, but honestly this has all but cleared up except an occasional pimple here and there.  I am FREAKING OUT that she may have AMVC!!!  Or a form of lupus. I don't know what to do.  

 

She has had Lyme and been on many, many oral antibiotics.  Most recently a long-term treatment that I encouraged, which now I am experiencing incredible guilt over if this the reason this is happening!!   

 

I have been trying to repair her system with probiotics - but also using the omega 3 (at a very low dose), zinc w/copper; and B complex, D and C 500mg (recommended by gyno).  I will take her off these supplements and start using the calcium.  

 

There are so many new posters here and I am hoping that some of the previous ones will come back and update... OMG - PLEASE HELP!!!  I am so torn as to weather to start her on the accutane!!!!  ANYONE?



#436 Hiddy Cheeks

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Posted 27 July 2013 - 05:03 AM

I have a couple of these scars. They are very shallow and quite neat and symmetrical. They remind me of the imprint that small fossils leave in rocks. Mine are all on the right side of my face, which is the side that gets the most sun when I drive.  I have been on accutane several times. 



#437 boafriend

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Posted 27 July 2013 - 07:29 PM

Boafriend,

 

I stumbled across this thread and have spent hours reading it from start to finish all through the night.  Boy, was surprised to see you are the latest post - I had earlier posted on your thread at EDS!  I wish I could say that I feel encouraged, but honestly am sick to my stomach!  My daughter is a beautiful 17-year-old about to go off to college and her derm is prescribing accutane.  She recently had some blood work and things were slightly off - High EOS 6 and a low neutrophil...docs said it could be allergies.  The scarring is getting worse, especially after exposure to the sun.  The are small dots and keep connecting to form small lines.  She also had some mild acne, but honestly this has all but cleared up except an occasional pimple here and there.  I am FREAKING OUT that she may have AMVC!!!  Or a form of lupus. I don't know what to do.  

 

She has had Lyme and been on many, many oral antibiotics.  Most recently a long-term treatment that I encouraged, which now I am experiencing incredible guilt over if this the reason this is happening!!   

 

I have been trying to repair her system with probiotics - but also using the omega 3 (at a very low dose), zinc w/copper; and B complex, D and C 500mg (recommended by gyno).  I will take her off these supplements and start using the calcium.  

 

There are so many new posters here and I am hoping that some of the previous ones will come back and update... OMG - PLEASE HELP!!!  I am so torn as to weather to start her on the accutane!!!!  ANYONE?

 

Apparently all we have right now is to take calcium (try one that contains magnesium, but not magnesium stereate) and add some type of GLA supplement such as evening primrose oil or borage oil.

You didn't mention Lyme and any of that in the EssentialDaySpa thread, so that's interesting because I suspected Lyme for myself since I have had prickling/tingly sensations all over, but I've never been bitten by said bug because I never had the bullseye like mark anywhere on me.

If her acne isn't bad, I'd say stay clear of Accutane for now, especially since she is experiencing this random scarring as well. Accutane is very powerful and cause many bodily changes, so don't risk anything right now.



#438 WorriedMom4Ever

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Posted 01 August 2013 - 05:48 AM

Thank you for the advice.  I have stopped the omega 3 and I swear that some of her scarring has also improved.  We also have cut back on her zinc, which shuts down the sebaceous glands - hoping this will start the oils to slowly reproduce and fill in the pits. This is so depressing - praying for a solution is all I can do!!  



#439 boafriend

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Posted 01 August 2013 - 02:02 PM

Thank you for the advice.  I have stopped the omega 3 and I swear that some of her scarring has also improved.  We also have cut back on her zinc, which shuts down the sebaceous glands - hoping this will start the oils to slowly reproduce and fill in the pits. This is so depressing - praying for a solution is all I can do!!  

 

That's wondrous to hear. Compass from the EDS Forum claims her daughter's scarring seemed to have improved via oral evening primrose oil as well as topical application. I'm still experiencing those dot-line dents, though. I applied evening primrose oil two nights and have taken it for a few days orally, but I'm not seeing any immediate improvements. :( The fact that those line-dents are continuing is a sign enough.

Keep everyone updated in the EDS thread as well, since it seems this thread here on Acne.org isn't gaining any momentum.


Edited by boafriend, 01 August 2013 - 02:03 PM.


#440 WorriedMom4Ever

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Posted 18 August 2013 - 04:24 PM

Just wanted to do a quick update.  After talking with both a derm and GP, we decided to start her on 10mg of accutane.  She is doing very well.  Neither of them seem to be too concerned with the scarring but more in the prevention of further acne.  What I have discovered is that her scarring is far less noticeable with the application of lots of moisturizer.  Perhaps those with these scars are a result of the harsh chemicals and no moisture to allow the skin to plump and recover successfully.  I have advised her to use copious amounts of moisturizer during this time and WILL NOT put her on a high dose, but a lower one to minimize the side effects.  While I am extremely uncertain as to this path and am worried, so worried, she wants to do this as well.  






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