AMVC spontaneous scarring

518 posts in this topic

I also took retin-a over the summer to rid myself of some tiny bumps on my ski, I think they were just clogged pores from the heat and sweat. Like that woman reported, I got hit with huge pores all over my cheeks and nose, and a bunch of tiny scars and scarred pores. I had that creeping feeling and itchy feeling on my face as well but I had just started a real job and was googling all kinds of crap about my face at work. My oil production was exploding and I think honestly the feeling was just the sebaceous glands kicking into 10th gear from my hormones and anxiety. I went on accutane after that because all of those enlarged pores clogged up terribly. I said that about the oil and itchyness because I don't get it anymore at all, not nearly as much oil anymore obviously. I am about 2 weeks off accutane. Still seems like new scars are forming but hard to tell, if I take the flashlight on my iphone and hold it to my cheeks I can see like scattered light pink/purple areas and usually (but not always), a shallow scar forms there. I guess I probably shouldn't be exposing my face to a light like that?

What else, uhhhh pores every where for sure however I think I may be improving a tiny bit. Accutane was irritating my skin and perhaps making it worse to a degree, so a little rest and relaxation has been nice for it. Ive noticed the past few months that I seem to have rosacea or something. Any mildly stressful situation and I can feel my cheeks heat up. All of my pores and tiny scars happen to be in the area that gets red and flames up (cheeks and nose). Sucks pretty bad, and I definitely have depressing ass days but I havent given up yet. I am currently using a sulphur wash 1x a day to see if it helps with the (possible) rosacea/face flushing. I think it has helped a little so far, only used for like 1.5 weeks but they seem to be less frequent. I throw on lotion with 70 spf in the am and cetaphil after cleansing at night. I also take this collagen supplement that I bought of gnc online that many people said helped their scars and filled out their face. Before that I was taking vitamin C supplements because they boost collagen as well. I also take tumeric supplements and some stuff for my stomach orally.

Wonder if this sounds familiar to any one or anybody has experienced progress? I was def gonna look at dermastamping and using vitamin C serum later on ( waiting cause of accutane obviously). Can I start using the vita C serum earlier though? Should I?

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I finally ordered a couple Osmosis products. My husband is getting a lot of over time and my birthday is coming up so I asked him to buy them or me :P They are on the way, should be here in a few days. I talked to the founder of the company on Linkedin, told him my story, and he recommended I try Catalyst AC-11 and Clear. He said I should see 30-50% improvment and maybe even more after 3 months. I talked to a woman who had laser damage who said it helped her pitted scarring almost right away so there's got to be something to it. My scars are so shallow that it seems almost any improvement would just about level them out. I also have some discoloration and the Catalyst is supposed to help with that as well. I will let you guys know if it helps me. After having just about no progress these past 8 months I'll take any kind of improvement. Here's hoping.

Edited by *DarkHeart*
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I finally ordered a couple Osmosis products. My husband is getting a lot of over time and my birthday is coming up so I asked him to buy them or me :P They are on the way, should be here in a few days. I talked to the founder of the company on Linkedin, told him my story, and he recommended I try Catalyst AC-11 and Clear. He said I should see 30-50% improvment and maybe even more after 3 months. I talked to a woman who had laser damage who said it helped her pitted scarring almost right away so there's got to be something to it. My scars are so shallow that it seems almost any improvement would just about level them out. I also have some discoloration and the Catalyst is supposed to help with that as well. I will let you guys know if it helps me. After having just about no progress these past 8 months I'll take any kind of improvement. Here's hoping.

Let us know how that goes. I had looked into their products, but I feel a lot of the reviews on their website and Amazon are sketchy...many of them are exact duplicates, usernames sound very unreal, and there are hardly any bad reviews. Just doesn't seem balanced. Not to mention I heard some of their products stain orange.

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I finally ordered a couple Osmosis products. My husband is getting a lot of over time and my birthday is coming up so I asked him to buy them or me :P They are on the way, should be here in a few days. I talked to the founder of the company on Linkedin, told him my story, and he recommended I try Catalyst AC-11 and Clear. He said I should see 30-50% improvment and maybe even more after 3 months. I talked to a woman who had laser damage who said it helped her pitted scarring almost right away so there's got to be something to it. My scars are so shallow that it seems almost any improvement would just about level them out. I also have some discoloration and the Catalyst is supposed to help with that as well. I will let you guys know if it helps me. After having just about no progress these past 8 months I'll take any kind of improvement. Here's hoping.

Let us know how that goes. I had looked into their products, but I feel a lot of the reviews on their website and Amazon are sketchy...many of them are exact duplicates, usernames sound very unreal, and there are hardly any bad reviews. Just doesn't seem balanced. Not to mention I heard some of their products stain orange.

yeah, turns out I hate it. The vit c I guess irritated my skin and made my face burn (still a slight burn, though getting better, even after not using it for a day) and it for sure makes your skin orange/brown when it's on. My skin looked irritaed and pores looked bigger while using it. Wouldn't recommend it, sending it back for a refund. Will just try needling eventually. Fml.

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Hi.

I am very sorry for everyone going through this. It is very stressing and heartbreaking. I am 31 and like a month ago, I started noticing small dent scars forming on my face! I first ignored it, but when it happened more, I started searching on internet, and visiting numerous doctors where I live. The first doctor said it has got to be AMVC. I already searched on internet and never thought that this might be the diagnosis as AMVC seemed harsh. Then another one made me have a biopsy of one of the scars which came out to be "Anetoderma", which is actually the same as AMVC. PERFECT! :(

I had (have) absolutely flawless skin. It is my best feature, and I started taking very good care of it once I turned 18, so this happening to me wasn't fair. I always moisture, used sun block and did facial exercise every single day. My skin looks firm and great. So when the scarring happened, I felt like my whole life fell apart. I can't describe the stress I was going through, so I really do understand every one posting about their feeling here. My heart goes out to all of you.

But my scarring has stopped a month ago, and I have like 5 very small dent scars, luckily close to where the hair grows, so it's really not obvious. Actually every person I tried to explain never took me seriously. But this forum was the one I found a month ago, and I read it twice. Followed every step, did my research and it has now stopped. I become stressed once in a while that it might come back, but stress do more harm than good. so I wanna share my experience with you guys, and hopefully you get something out of it, although everything I'm going to say has already been discussed.. in a much better way.

I have had three of these small scars for about years. Two around my chin, and one on my chest. I remember that there was a big acne on my chest which I popped, and kept popping for the next few days, and when it was gone, it left a scar. The two on my chin, I have no idea how it happened, and they didn't seem to bother me.

Before I see the new scars coming, I changed my regime and workout dramatically, so I really have no idea what exactly triggered it, but this is the changes before the scarring:

1. I took swimming classes and started using public pool like twice a week. Although I've worked out regularly, the swimming seemed to be very intense and shaped my muscles in no time. I could feel the heat in my face, head and around my ears after every round of swimming (acute inflammation). Swimming is intense, and the big public pool (perfect for longer swimming) wasn't very clean either.

2. I found kombucha mushroom, and started fermenting it myself and drinking a small amount every morning.

3. I started having painful acne on my head where the hair grows, and started using ketokonazol shampoo religiously (although some of the scars happened before I started using the shampoo).

4. I started weight training for bigger booty before my swimming sessions which left my whole thighs and legs acing for the next week (never did this before in my whole life).

5. I used steamed sauna after every swimming session followed by harsh exfoliating (although some of the scars happened before I started exfoliating, but the harsh exfoliation seemed to accelerate the scarring).

6. I ate a whole egg and lots of protein every day for bigger thighs after every workout session.

7. I got back to milk and cereal after like 4 years (I used to be a cereal monster but tried to quit), and were consuming huge amount of low fat milk right before scarring (allergy and inflammation).

the swimming and public pool, weight training, eating an egg every single day, kombucha and harsh exfoliating were all new in my life, but I stopped them all and instantly. I started taking a calcium supplement, borage oil in the morning, anti histamine at noon, and one capsule of EPO at night. I stopped working out for now, and never take hot shower. I have cooled down my home temperature and avoid heat as much as possible. Also, I am soaking 10-12 almonds in the water for like 12 hours, peel the skin and grind it in water and drink every morning before breakfast and at night before I go to bed. Moreover, I started using Wheat germ oil for my skin. I also adds a capsule of vitamin E to the oil before applying to my face skin once in a while. The overall texture of my skin has improved a lot, and scarring has stopped.

The result of my scar biopsy has mentioned something about chronic inflammation. I've read that egg, milk, exfoliation and heavy workout can initiate inflammation (although workout can improve the chronic inflammation in a long run, it does cause acute inflammation). And that calcium +Vit D, almond and anti-histamine reduce inflammation. I've read that kombucha has anti-inflammatory features, but can't risk taking it at the moment. I really think that it has all being due to internal inflammation which causes autoimmune problems in the body, and an anti-inflammatory regime must be followed.

I am planning on going back to my regular workout (will never use public pool for swimming again!), and see what will happen.

Good luck to all of you. Hugs!!

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Sigh, exfoliating (10% AHA) is what caused my scarring. Recently used vitamin c serum and it made it worse :( I think personally my best bet is to not put anything on my face for a long time.

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I noticed today that I had some sunken scars and indentations in places where I've never had acne. I think for me, the likely culprit is a glycolic acid facia scrub, which I bought a few weeks ago. It's only 2% glycolic acid so I thought it would be be safe. I've not even used it that often, but I have left it on quite a while before washing it off, which may have been a foolish thing to do. Interestingly, it's only on one side of my face (for now, touch wood), but it's in my shaving area, which leads me to wonder whether the glycolic acid was able to seep down into my pores more easily, as I used the scrub a few times after shaving.

I've read the whole thread and there are a few other things that chime with me:

1) I have been eating a lot of leafy green vegetables this summer - more so than normal - so there's potentially that vitamin A overload issue that was mentioned above

2) i also took cod liver oil capsules for the first time in many years. I didn't take them religously - not everyday, and for less than a month, but it is something that I've done differently, that another person mentioned could be the culprit.

3) I've also noticed that the area affected was very dry and dead skin was flaking off after I'd dried my face. I used my moisturiser but it still looked a bit scaly - more so than usual.

I won't be using the facial scrub again, and I stopped taking the cod liver oil capsules a while ago anyway. I'm inclined to go along with the idea of inflammation, be that through topicals, medication and/or systemic, whereby the regular processes that take place below the suface of the skin have been disrupted/damaged and not able able to renew themselves in the usual way.

I'm really crossing my fingers they don't get any worse. I'm trying to be positive and notice that some (not all) of the people who have posted here no longer seem to be around, so I'm hopeful that that means the condition resolved itself.

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Sorry I ended up not getting back with my test results, but the crazy expensive Lyme literate doctor I went to ruled out all tick-born illnesses but from the massive bunch of blood work she had done on me, I basically have a ton of antibodies in my system, have higher than average levels of candida, and have an unknown infection going on detected by ELISA (EBV-VCA and EBV-EBNA). I was prescribe a random medicine to try killing the candida but other than that, I have no idea where to go from here. The doctor says all my twitching and tremors are being caused by these viruses and that these also may have been the cause for my random scarring.

I can't go back to this naturopath though because she charges ridiculous amounts for anything and everything. Anyone have any idea where I should turn to next? I really want to find the root cause of these antibodies and get on a well guided path to healing.

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Still have my lovely scars, no improvement that I can tell, plus I am breaking out now. My skin is just awesome. Really. Don't know what to do about breakouts as I can't use shit on my face (allergic to bp, allergic to things with sulfur, acids even at low concentrations apparently destroy my skin and give me random scars.) What's a girl with zits and highly reactive, sensitive skin to do??? FML.

At least I am not getting new scars, but I am not using any products except CeraVe hydrating wash now and then, so can't really cause more damage that way I suppose.

Still want to try a dermastamp, but not while I'm a pizza face. So fucking sick and tired of dealing with shitty skin, and being afraid of making it worse. I need a face transplant. Sorry, just ranting. Feeling extremely frustrated lately.

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See an actual physician.

I've been to just about any doctor you can tie in to my symptoms (neuros, derms, general doctor, internal doctor, hematologists, endocrinologists, psychiatrists, herbal doctors, naturopaths). I've spent so much money and time to no real results.

Does anyone suggest going to an immunologist? Will they be able to make judgements based off the ELISA test I had done by the lyme literate doctor?

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Still have my lovely scars, no improvement that I can tell, plus I am breaking out now. My skin is just awesome. Really. Don't know what to do about breakouts as I can't use shit on my face (allergic to bp, allergic to things with sulfur, acids even at low concentrations apparently destroy my skin and give me random scars.) What's a girl with zits and highly reactive, sensitive skin to do??? FML.

At least I am not getting new scars, but I am not using any products except CeraVe hydrating wash now and then, so can't really cause more damage that way I suppose.

Still want to try a dermastamp, but not while I'm a pizza face. So fucking sick and tired of dealing with shitty skin, and being afraid of making it worse. I need a face transplant. Sorry, just ranting. Feeling extremely frustrated lately.

I feel for you, because I have this condition myself (the spontaneous scarring). I haven't posted here before, because I I haven't found anything that helps, but if I do, i will post here straight away. I do believe that avoiding flushing, exposure to heat or stress, etc. slows down the progression though. I strongly recommend a low dose accutane course for your acne.

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Still have my lovely scars, no improvement that I can tell, plus I am breaking out now. My skin is just awesome. Really. Don't know what to do about breakouts as I can't use shit on my face (allergic to bp, allergic to things with sulfur, acids even at low concentrations apparently destroy my skin and give me random scars.) What's a girl with zits and highly reactive, sensitive skin to do??? FML.

At least I am not getting new scars, but I am not using any products except CeraVe hydrating wash now and then, so can't really cause more damage that way I suppose.

Still want to try a dermastamp, but not while I'm a pizza face. So fucking sick and tired of dealing with shitty skin, and being afraid of making it worse. I need a face transplant. Sorry, just ranting. Feeling extremely frustrated lately.

I feel for you, because I have this condition myself (the spontaneous scarring). I haven't posted here before, because I I haven't found anything that helps, but if I do, i will post here straight away. I do believe that avoiding flushing, exposure to heat or stress, etc. slows down the progression though. I strongly recommend a low dose accutane course for your acne.

thanks for replying...I was actually just considering this last night, thinking about asking for maybe 10mg/day accutane but I am so scared as I have even heard that accutane can cause spontaneous scars (as well as other permanent side effects). Also not sure if my derm would give me this since my acne isn't severe at all. If it gets to where it is out of control I might just ask, though. Acne would be so much easier to deal with without the scars and crap on top of it all. I always hated when I broke out, but nothing brought me down into this awful depression like getting random scars on my face. So sorry you are dealing with this as well, it really is horrible. Have you had it for a while? For me it has been just over 9 months since I got my first scars. As long as I use no harsh products it doesn't seem to get much worse, but it isn't getting better either, I still look like crap. For me it all started when I used 10% glycolic acid. I guess that, with all the harsh products I used over the years previous to that, maybe my skin had enough. I wasn't always allergic to sulfur or bp, and used them daily, on and off since I was 14 (27 now) then I stopped bp for a while, and when I started using it again it made my face swell up, turn red and itchy. Same with sulfur. I regret using all that crap on my face over the years. I hope my skin can recover.

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We have many things in common. Whatever I put on my face irritates it right now, when some months ago (before the spontaneous scarring) did not. In fact, the oilier the product, the harsher is for me. I have examined many theories about what this is and how could be treated, but I have no conclusion yet. Right now I myself take accutane 40mg/d (I started it for my latest acne breakout which happened during this condition). It doesn't help with the scarring, but doesn't harm either. I suggest it to you, acne gives nasty scars too, at least for me...

I really wanted this to be an autoimmune disorder, but the 2 oral prednisolone courses I had had no effect.

often face washes with cold or cool water, with or without soap help me

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Anything new guys? It seems to me that existing medical knowledge is poor. Any new personal experience? Anything, really! Even slight information could be helpful...

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I am dealing with all the same things.  It began with some post inflammatory hyperpigmentation.  I began used retinol, acids, everything to lighten them.  They of course got much worse, then my skin began developing holes and pits and whats worse, is that they're have hypo and hyper pigment mask like patterns over the scars.  I look worse than a burn victim.  therefore, I was considering getting stem cell fat transfers...hoping it would give my skin a second life.  No doctor has ever told me anything correct, just "use more of these horrible topicals and lasers."  Stem cell fat transfers are highly risky.  Again, going into the unkown with how your skin will respond and it's my own personal diagnosis because drs are utterly worthless.  Also, my t-zone stays red and inflamed, then center of cheeks are where the scarring persists, then side cheeks are brown splotches...I got it all...hit the jackpot:/  I also noticed my t-zone has stop making oil, which is sign of healthy functioning skin.  My forehead still "works" and has no marks.  Please keep sharing so we can figure this out.

Edited by ssulli3

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