Negative Accutane Experiences
Posted 19 October 2009 - 01:57 AM
I have been suffering with acne since I was 13 y/o, I am 31 now.
I took Accutane 8 times .. it was only working only when I was on. It was always my last hope to end my acne and get a clear complexion.
The last time I took it I was very very depressed, that's why I am taking the time to warn those who also think it's their only solution.
I beg you to find another cure. I know it seems to work like magic but at the end it's not worth it .. your mental health as well as your overall health is too precious to risk with that poison.
I am available to answer any further questions.
Good luck to you all !
Posted 21 October 2009 - 06:29 PM
even though i stopped accutane two weeks ago, i still experience the side effects.
hair loss, pits in my nails, depression, dry eyes, night vision loss and rectal bleeding which is slowly healing.
i now have many problems including acne (i stopped accutane at the initial breakout phase), all because of my wish for clear skin.
i should have just forgot about acne.. i'm only 15, it's not the acne that's keeping me from enjoying life, it's me.
its not worth all this stress.. which are basically making my side effects worse.
i just don't feel like going outside.. doing the things i usually do.
i now frequently visit my doctor and am on many other pills.
i just wish i could turn back the clock and never have taken that one pill.
for anyone taking or planning on taking accutane, i wish you all the luck. i hope you never experience these things.
acne alone is so much better than acne with hair loss and god knows what else this thing did to me.
Edited by shoes, 21 October 2009 - 06:30 PM.
Posted 05 November 2009 - 04:26 AM
The worst side-effects for me would definitely be the drying of my rectum (really painful when taking a shit) and pretty bad back pain. The painful shits went away thankfully but the back pain never went, it's been about 4 months since my last pill.
I would not suggest for certain people to take Accutane. If you must do so please be healthy and keep it to a very low dosage. If you experience back pain while on Accutane you should immediately get off the drug so you don't end up in back pain 24/7 like me. (I, like any other person, assumed that the back pain would go away when I finished tane but it never did). Even though my face is clear now, I still regret even taking this drug, the pain isn't worth it at all. I used to be the person that would say "psh who cares about side-effects, a clear face is all I want."
I was depressed while on tane but not anymore. Although my face is clear now, I still regret taking Accutane. If you believe its your only option, then go ahead but just be careful
Posted 30 November 2009 - 07:33 PM
Posted 03 December 2009 - 06:45 PM
1. Anxiety/Depression (still experiencing)
2. Dry skin/Chapped Lips (still experiencing)
4. Joint pain (mostly subsided after stopping accutane, but I am very susceptable to injury now. i had a grade 1 shoulder seperation which is not that bad at all---it has been a year and it has still not healed fully--- usually this grade of seperation takes a few weeks to a month)
3. Thinned hair/ Dry scalp and flakes (still experiencing)
4. Ingrown toenails (they absolutely suck, and yes, I started getting them while I was on accutane and I still have them... after two surgeries....
5. Possible stunted growth (took accutane when I was fifteen... I'm a 5'8" guy and haven't grown an inch since my freshman year).
6. Root canal-- dentist said accutane could've caused it... i had perfect teath before accutane, and I've had five cavities discovered after taking accutane...
Let me sum it up for you- Accutane is a chemotherapy agent-- it therefore reduces cell proliferation and increases the rate of cell death... it cannot determine the "good cells" and the "bad cells", it simply targets the rapidly dividing cells (skin cells, osteocytes, etc.)... this is why you get such bad, flaky skin.... not just because of the fact that your sebaseous glands are simoultaneously being shrunk. Don't take the drug, if Roche pulled it off the market, it is obviously pretty damn bad for you.
Write to Congressman Bart Stupak-- Just go on his website- he has a special email for accutane users...
Posted 03 January 2010 - 09:30 AM
- Very painful ankle joints, when i stood up to get out of a chair, or even out of bed in the morning, i struggled at first, very painful and made me feel much older than 24!
-Chronic thrush, the worst side effect I experienced. From march, through to october, I suffered very uncomfortable, it effected my mood, my confidence and mostly my sex life. No medication would stop it because I was continuing to take roaccutane.
-Vision -I have always had perfect vision, and this made me slightly short sighted. It has improved since coming off of the drug, however not completely.
-Back pain, I did experience various pains and discomfort in my back whilst on the medication.
Despite all of those, I would do it all again for my clear skin, because that effected me inside and out. At least with those I could go through the day without making it (overly) evident to others.
Posted 11 January 2010 - 05:49 AM
However, the lasting side effects of this drug are not only of a sexual nature. With my low libido and other separate depressive symptoms, I rarely experience the range of emotions normally associated with love and happiness. Despite having some otherwise fantastic relationships with some amazing and beautiful people, I feel nothing of the joy and exhilaration one should feel in being close with someone dear. My heart doesn't skip, my mind doesn't race - frankly all of my strong emotions have been blunted and dulled.
Further depressive symptoms I have suffered for years after Accutane include lack of concentration and restlessness. I get little pleasure in having free time; it is not far off the mark to say that I spend most of my time pacing the room. Activities that used to bring me pleasure are now largely pointless. I am nowhere near as interested in or passionate about my many previous hobbies as I used to be.
What's more is that I never attributed these problems to Accutane because of the criminally deceptive and unclear nature of the information published about its effects by Roche, and I actually went on on another course a few months ago. I stopped when I noticed my symptoms worsening, finally able to see the source of my misery after all these years. The way that this drug is marketed to desperate acne sufferers is utterly despicable. It's a crying shame that even healthcare is distorted because of the lure of profit to greedy pharmaceutical companies.
After this second course, I have started to experience different side effects too. None of these occurred during treatment, instead have manifested 2-3 months AFTER finishing treatment. I now have joint pain and muscle weakness, including quite bad back pain. I get tired very quickly after usually mild physical activity. My hair is also thinning and my hairline receding.
Perhaps what hurts the most is that all this was for nothing - I still get very oily skin and although my acne is definitely significantly better than it used to be, I DO get acne still. Accutane is rarely the 'long-lasting cure' that Roche markets it as. Plus, the initial breakout I suffered on Accutane coupled with the slow healing and thinned skin that the drug seems to cause meant that I accumulated some of my worst scars during this treatment. So you could argue that Accutane made me look worse!
Accutane is not the miracle long-lasting cure that Roche say it is. It should be used as a last resort. Try EVERYTHING and with an open mind before trying Accutane, as the information that pharmaceutical companies would like us to believe about acne is distorted by their vested interest in keeping people buying antibiotics and other acne 'treatments'. Try diet, alternative therapies, whatever it takes - just don't rush into this very serious treatment.
Edited by Tequila, 11 January 2010 - 05:57 AM.
Posted 19 January 2010 - 09:58 PM
Before taking accutane acne was a problem but other than that my social life was very healthy and I was a lot more outgoing and enjoyed life a lot more. Anybody who knew me would say I became very reclusive at that time. It isn't an emotional thing, I just feel physically weak and exhausted a lot of the time, regardless of amount of exercise or lack thereof in my lifestyle. My body wants to rest. I expected side effects while taking it but to still feel like this years later
If anyone knows of ways to help counteract the effects of accutane, it would be very much appreciated.
Posted 24 January 2010 - 08:27 PM
and the wikipedia entry for isotretinoin/accutane says:
"High dosages of isotretinoin have been reported to cause rosacea (a disease of severe facial skin redness and irritation)."
however there is no citation for this assertion...can anybody give me information about the link between accutane causing rosacea? any studies?
Posted 29 January 2010 - 04:47 AM
Mild Rosacea(never had that before)
Ithcy and dry skin
I burn very easily in the sun these days!!
Sometimes joint pain(not to bad thou)
seb derm on my face
Ringworm in the groin
Thats all I can come up with now!
And by the way acne came back althou I found a natural way to get ridd of it, which I found out the weeks before I started accutane but I thought it could be good with accutane:(....
EDIT!: I woke up today with 3 linear scars that I have never had before! Guess I have AMVC like lamarr1986
Eddit 2: Removed decreased libido
Edited by PraisethelordforacneNOT, 15 February 2010 - 06:22 AM.
Posted 31 January 2010 - 10:07 PM
Hair seems to be the bane of my existence...
Posted 03 February 2010 - 09:08 AM
Posted 12 February 2010 - 08:12 PM
Compared to the severe side effects that some people have reported, mine are mild. Yet it frustrates me to no end. And no, I don't have erectile dysfunction, nor do I have joint paint. But I have peeling dry skin all over my face and arms. The eczematic patches crack and take, literally, 3-4 months to heal. They bleed, scale over, and the cycle repeats itself. My skin is a desert with no oasis: I can't find any moisturizer or pill that provide relief. In fact, after accutane, I'm afraid of putting anything foreign on my skin or in my mouth, be it supplement or topical.
I've been off accutane for almost half a year now. My skin has been getting a bit more oily, but the patches still don't heal. If you have normal or dry skin to begin with, PLEASE DO NOT TAKE ACCUTANE. Trust me, you do not want to suffer what I'm dealing with now. I'm an Asian Male in his 20s. I've noticed that many similar cases as mine in this thread.
Posted 05 March 2010 - 12:55 AM
Cleared my acne in about 2 months, and I only got like 3 pimples the whole rest of the time.
Got rid of my oily skin.(hopefully permanantly but from what i hear probably not)
-I turned from brown to white. Yes I'm serious. I used to be brown[skinned] and now my face is a pale white. The derm told me i probably scrubbed my face too hard while washing my face and with the sensivity of my skin while on accutane, I washed the brown off my skin. Same with my hands. So now I look like a freak with white face/hands and brown arms and legs. Disgusting.
-My hair falls out a lot more than before.
-I used to have hyperpigmentaion before accutane, but now it has gotten worse.
That's my expierince wrapped up quickly.
My skin wasn't horrible before, It just wasn't great. I really regret taking accutane. I would rather have 5 pimples on my brown face, than having an ugly pale one.
Edited by homersimpson, 05 March 2010 - 12:57 AM.
Posted 09 March 2010 - 06:27 PM
Posted 17 March 2010 - 01:54 AM
Edited by fnaccutane, 17 March 2010 - 02:14 AM.
Posted 30 March 2010 - 04:37 PM
Posted 13 April 2010 - 03:54 PM
Dude, im so sorry for you, the worst of all is that u've got the impotence-this must really suck! i'm 5 month post accutane and guess what? i'm getting scars out of nowhere, i've recently passed a through a laser treatment for my acne scars, 2 month after accutane (the doctor-bitch, never told me that u cant do a laser unless a year after accutane).
1- I have a pain all over my body, my muscles are paining as hell, especially legs.
2- My skin is so fuckin dry and thined out like a paper
3- I'm 21 but I feel 60
4- And the worst of all is the continious depression which just doesn't leave me alone.
I wonder how da f*ck is this drug still legal
Posted 26 April 2010 - 05:07 PM
Posted 29 April 2010 - 06:51 PM
Initially put on 3x 10mg day
- Massive breakout and extreme inflammation surrounding acne over first 3 months
- Acne starting to clear but massive severe flushing begins so dosage dropped significantly to 1x 10mg day which helped immediately
- Dosage dropped to 3x 10mg week as beginning to get flushing again
Month twelve and for next 2 years (no flushing at all)
- Extra low-dose course of 1x 10mg per week
Finished Christmas/Summer Jan 2010- ONLY THEN DID I EXPERIENCE POST ACCUTANE SIDE EFFECTS.
Now 3 months post stopping treatment I have been diagnosed with:
- Rosacea (Constant mid-face redness and flushing- cannot even eat warm or hot food anymore). I've tried Rosex gel (didn't work), Minocycline (made flushing even worse, severe reaction), Roxythromycin (macrolide antibiotic- didn't really do anything), and have now just been put on Doxycyline (day 4 so a while to see if anti-inflammatory properties help)
- Seborrheic Dermatitis on skin of nose (On 1x daily Sporanox antifungal capsules at the moment and use metroconizole cream). This arose when oil started comming back in this face area.
- Constant dry body skin everywhere except nose where I have the Seb Dermatitis.
- Fragile, thin and very sensitive facial skin
- Constant cold hands and feet
- Difficulty breathing sometimes e.g. even with just making up the bed the other day- had to have a rest.
- No energy
- Odd random suicidal thoughts, but these have lessened over last month. Of course I know this is one other drug side-effect and the cause of these thoughts.
- Extreme photosensitivity (hibernated this Summer really)
- Temperature sensitivity
Acne is gone but the flushing and redness side-effect is unbearable at times and now I have to face the facts that i'll likely have to deal with the Accutane induced-Rosacea for the rest of my life. I wish i'd stopped when the first signs of flushing appeared but I had no idea this would ever happen and Derms don't believe these issues are related. Having read so many other's post accutane experiences Accutane clearly is the culprit of my skin issues.
UPDATE OCT 2010: After being tested for connective tissue disease and some tests comming back abnormal, have been on Plaquenil medication since July. Am being monitored by the Rheumatologist team at my local hospital over the next 6 months for either SLE or DILE Lupus. Thankfully Plaquenil seems to be having a good effect so far on some of my symptoms; it is my hope things will continue to get better for me over time as this drug accumulates in my system and helps decrease level of inflammation in my body.
Edited by Shantelle, 09 October 2010 - 02:53 AM.