#81
Posted 13 June 2008 - 06:27 AM
About the remeron... It works totally differently from SSRI's it has drastically reduced my flushing. I have had to cut out the clonidine because i was getting problems with chest pain and my heart....Not good. But anyway yeah it works amazingly for the flushing and it also works as an anti histamine so it seems to relieve alot of general inflammation i have been given from tane.
#82
Posted 13 June 2008 - 07:21 AM
you have a lil bit of SD now huh...hmm...interesting. I highly doubt that IPL caused SD. Its funny that you mention it since my buddy informed me that the flushing does have to do with oil. Even though I told him that most of these sufferers dont have oily skin, he did mention that it is what is underneath. Oily skin isn't always seen by the naked eye. ALL acne is caused by oil.
CHEERS!
#83
Posted 13 June 2008 - 05:14 PM
Thanks Okayz for your response. That gives me a lot of hope that it will go away soon as I am around a year post accutane. If you don't mind I was wondering how bad your flushing was?
Chaseryderz you said that you don't really flush anymore. How long post accutane did your flushing start to improve and then how long after it started to improve did it become relatively nonexistant?
#84
Posted 14 June 2008 - 09:22 PM
#85
Posted 15 June 2008 - 01:03 PM
you have a lil bit of SD now huh...hmm...interesting. I highly doubt that IPL caused SD. Its funny that you mention it since my buddy informed me that the flushing does have to do with oil. Even though I told him that most of these sufferers dont have oily skin, he did mention that it is what is underneath. Oily skin isn't always seen by the naked eye. ALL acne is caused by oil.
CHEERS!
IPL is known to flare seb derm temporarily bud, i didn't believe it either, but if you go onto rosacea forums you will find it true.
Remeron isn't an SSRI either, give it a bash.
#86
Posted 16 June 2008 - 02:36 PM
But anyhow. I have been feeling pretty good about it. I no longer worry about it like I use to. The only down side is now that i'm off the medications. I am beginning to break out again. So I decided I'm gonna try an organic, low fat, low GI diet that should at least help me break out less or not as badly. Also I called the dermatologist and asked her what I could do for my break outs. Now that the flushing has been improving, I don't want to take the chance of going on meds. that will flare it back up again but I want to prevent break outs as much as possible. She said she'd perscribe me Differin gel and that it shouldn't effect the flushing at all and will help keep my skin clear.
So thats that. I'm gonna continue to stay off all medications. As far as keeping my skin clear I'm just gonna use my gentle scrub, apply differin gel, and use my aloe lotion Morning and night. And then just keep a good diet, exercise, and get enough sleep each night.
Also I am considering going to the beach... I know the ocean water always helps clear me up... but I'm a little nervous because I don't want to flush... but I figured I cold always jump in the cold ocean water if I do. I'll probably go in the evening though anyways... so I think I should be fine.
I hope everyone else gets better soon. Stay off medications! It's your best bet. The body is an amazing thing and can heal pretty much anything with time. As long as you are good to your body it will be good to you. Also try not to think about it so much. Just forget about it... we all know the medications that we have been on caused this and that as long as we go off it... it WILL go away. Let your body do the rest on it's own becuase it will. Being axious, upset or angry about it... thats just another trigger... so whats the point??? You know? Don't worry about it.
I know it's scary going off medications with breaking out again.... but if you can find another way to help keep your skin mostly clear... then I would do that instead. I would trade mild break outs over the flushing in a heart beat.
Good luck to everyone. I really hope and want for everyone to get better ASAP. God Bless
#87
Posted 18 June 2008 - 10:04 AM
Were you on Accutane or just BC?
#88
Posted 18 June 2008 - 02:33 PM
Were you on Accutane or just BC?
Hey I was never on Accutane. But I was on SOLODYN (minocycline). When I first went on that.. about 3-4 weeks later the flushing started and it never went away. I was only on the SOLODYN for I think 2 months at the most. The flushing was never that bad until I switched over to Spironalactone. Then it got really really bad. Since I stopped taking it though it has recently gotten a lot better... So i'm just praying and hoping that it will continue to get better and better until it's completely gone forever. Sometimes I get upset and I think it's never going to go away completely... But I just keep thinking about how bad it use to be... and compare that to now... and it's def. a huge improvement.
For some reason though the past week hasn't been as good.... I'm not sure why. I just wonder if it's because of being on my period?... Maybe that makes me a bit more sensitive. I donno. I just want it to go away so badly though. 100% gone forever and always. I'll be so happy when that day comes.
#89
Posted 18 June 2008 - 11:52 PM
AMEN.
LAMARR, you are a crazy fool. I love you, but u are crazy. Just thought id say that, dont know why though. we should chat sometime tho on skype. And get yourself a head set...i got a webcam now, so u can now see my beautiful face. hit me up chap. cheerio.
click the pic for a good laugh
Attached Files
#90
Posted 20 June 2008 - 12:56 PM
Anyways, 3 weeks on the Remeron. Has helped some, not totally eliminated it, but has helped, especially with sleeping. My doctor said it will take 2 months to see the maximum effects for anxiety so I think that will be the same for flushing.
Lamarr,
you're sure that Dr. Chu said 15mg is the best dose for flushing? I just ask because I have come across 2 forums for rosecea/flushing that users have said 30mg is the best dose for flushing and that some people actually flushed more on the 15mg....I may gadge my anxiety and flushing at 2 months (in 5 weeks) and try the 30mg if my anxiety and flushing has hit a plateau.
I am definitely in a lot better shape then I was 3.5 months ago when stopping Accutane, so I hope I see continual improvement. I am staying out of the afternoon sun for the most part on the advice from my doctor and will usually go outdoors from 7 or 8pm onward, so I get a couple hours outside without the sun being harsh. I feel this has helped with the redness.
Chaseryder,
Glad to hear things have improved for you. Just for your information, Remeron is a SSNI - selective norepinephrine reuptake inhibitor, which differs from the SSRI's. Just wanted to add that info for you as you mentioned that you had tried the SSRI's, so not sure if you realized that Remeron is actually an SSNI.
Karyn,
glad to ehar things are improving for you
SeattlJT,
We sound quite similar. I have always had the fluctuating flushing from side to side. My right is usually worse then my left and sometimes I flush both at the same time. Not sure what to make of it to be honest. Remeron had helped. It has been 3 weeks today so the doctor said I should still see improvements up to 2 months. I will keep you posted.
#91
Posted 20 June 2008 - 02:21 PM
click the pic for a good laugh
LOL thanks for that bud!! i like to consider myself pretty normal
you're sure that Dr. Chu said 15mg is the best dose for flushing? I just ask because I have come across 2 forums for rosecea/flushing that users have said 30mg is the best dose for flushing and that some people actually flushed more on the 15mg....I may gadge my anxiety and flushing at 2 months (in 5 weeks) and try the 30mg if my anxiety and flushing has hit a plateau.
I am definitely in a lot better shape then I was 3.5 months ago when stopping Accutane, so I hope I see continual improvement. I am staying out of the afternoon sun for the most part on the advice from my doctor and will usually go outdoors from 7 or 8pm onward, so I get a couple hours outside without the sun being harsh. I feel this has helped with the redness.
Chaseryder,
Glad to hear things have improved for you. Just for your information, Remeron is a SSNI - selective norepinephrine reuptake inhibitor, which differs from the SSRI's. Just wanted to add that info for you as you mentioned that you had tried the SSRI's, so not sure if you realized that Remeron is actually an SSNI.
Karyn,
glad to ehar things are improving for you
SeattlJT,
We sound quite similar. I have always had the fluctuating flushing from side to side. My right is usually worse then my left and sometimes I flush both at the same time. Not sure what to make of it to be honest. Remeron had helped. It has been 3 weeks today so the doctor said I should still see improvements up to 2 months. I will keep you posted.
The combination of remeron and clonidine is something chu does pretty frequently. He says that from experience most people get on better on the 15mg, but some do benefit from an increased dose. Often the interaction between clonidine and mirtazapine can become more apparent with the higher dose of mirtazapine.
The combo worked amazingly for me but even 15mg i was having problems, i will be trying it again at 10mg with the normal clonidine.
#92
Posted 20 June 2008 - 04:22 PM
click the pic for a good laugh
LOL thanks for that bud!! i like to consider myself pretty normal
you're sure that Dr. Chu said 15mg is the best dose for flushing? I just ask because I have come across 2 forums for rosecea/flushing that users have said 30mg is the best dose for flushing and that some people actually flushed more on the 15mg....I may gadge my anxiety and flushing at 2 months (in 5 weeks) and try the 30mg if my anxiety and flushing has hit a plateau.
I am definitely in a lot better shape then I was 3.5 months ago when stopping Accutane, so I hope I see continual improvement. I am staying out of the afternoon sun for the most part on the advice from my doctor and will usually go outdoors from 7 or 8pm onward, so I get a couple hours outside without the sun being harsh. I feel this has helped with the redness.
Chaseryder,
Glad to hear things have improved for you. Just for your information, Remeron is a SSNI - selective norepinephrine reuptake inhibitor, which differs from the SSRI's. Just wanted to add that info for you as you mentioned that you had tried the SSRI's, so not sure if you realized that Remeron is actually an SSNI.
Karyn,
glad to ehar things are improving for you
SeattlJT,
We sound quite similar. I have always had the fluctuating flushing from side to side. My right is usually worse then my left and sometimes I flush both at the same time. Not sure what to make of it to be honest. Remeron had helped. It has been 3 weeks today so the doctor said I should still see improvements up to 2 months. I will keep you posted.
The combination of remeron and clonidine is something chu does pretty frequently. He says that from experience most people get on better on the 15mg, but some do benefit from an increased dose. Often the interaction between clonidine and mirtazapine can become more apparent with the higher dose of mirtazapine.
The combo worked amazingly for me but even 15mg i was having problems, i will be trying it again at 10mg with the normal clonidine.
You mean sides? What kind of sides were you getting? I seem to be ok (knock on wood), aside from having to sleep for 10+ hours daily, but I'm ok with that for now anyways.
I have been cutting Clonidine down. I was taking 1.5 tabs twice daily, but have cut that down to 1 tab in the am and .75 in the evening. I am hoping to get back down to .5mg of Clonidine (half a tab) twice daily and maybe even stop it altogether if the Remeron continues to work. The Clonidine gives me dry mouth and what not.
Keep me posted and drop me a PM if you ever want to talk off the record.
Peace
#93
Posted 20 June 2008 - 08:23 PM
click the pic for a good laugh
LOL thanks for that bud!! i like to consider myself pretty normal
you're sure that Dr. Chu said 15mg is the best dose for flushing? I just ask because I have come across 2 forums for rosecea/flushing that users have said 30mg is the best dose for flushing and that some people actually flushed more on the 15mg....I may gadge my anxiety and flushing at 2 months (in 5 weeks) and try the 30mg if my anxiety and flushing has hit a plateau.
I am definitely in a lot better shape then I was 3.5 months ago when stopping Accutane, so I hope I see continual improvement. I am staying out of the afternoon sun for the most part on the advice from my doctor and will usually go outdoors from 7 or 8pm onward, so I get a couple hours outside without the sun being harsh. I feel this has helped with the redness.
Chaseryder,
Glad to hear things have improved for you. Just for your information, Remeron is a SSNI - selective norepinephrine reuptake inhibitor, which differs from the SSRI's. Just wanted to add that info for you as you mentioned that you had tried the SSRI's, so not sure if you realized that Remeron is actually an SSNI.
Karyn,
glad to ehar things are improving for you
SeattlJT,
We sound quite similar. I have always had the fluctuating flushing from side to side. My right is usually worse then my left and sometimes I flush both at the same time. Not sure what to make of it to be honest. Remeron had helped. It has been 3 weeks today so the doctor said I should still see improvements up to 2 months. I will keep you posted.
The combination of remeron and clonidine is something chu does pretty frequently. He says that from experience most people get on better on the 15mg, but some do benefit from an increased dose. Often the interaction between clonidine and mirtazapine can become more apparent with the higher dose of mirtazapine.
The combo worked amazingly for me but even 15mg i was having problems, i will be trying it again at 10mg with the normal clonidine.
You mean sides? What kind of sides were you getting? I seem to be ok (knock on wood), aside from having to sleep for 10+ hours daily, but I'm ok with that for now anyways.
I have been cutting Clonidine down. I was taking 1.5 tabs twice daily, but have cut that down to 1 tab in the am and .75 in the evening. I am hoping to get back down to .5mg of Clonidine (half a tab) twice daily and maybe even stop it altogether if the Remeron continues to work. The Clonidine gives me dry mouth and what not.
Keep me posted and drop me a PM if you ever want to talk off the record.
Peace
I was getting chest pain, irregular heartbeat and difficulty breathing. It is definitely the combo of the two that does it for me because i dropped the clonidine slowly over a week and it went away. At the moment im on 25mcg of clonidine a day, but im slowly lowering the remeron to see if i can re add the clonidine again with a lower dose of remeron.
I never thought i was getting a great deal of benefit from the clonidine, but a few days without it proved me wrong!!
#94
Posted 20 June 2008 - 09:42 PM
I am glad that you are getting better. With regards to the differin I would monitor that closely just to make sure that it doesn't aggravate the flushing, but yeah I think you should be ok if you are able to sit in 90F without flushing.
Soul,
I don't have fluctuating flushing. It was just that one time. I always flush on both sides. The main difference for me is that the left side definitely feels tighter/sticky and is noticeably hot when I flush while the right is not, even though it is also flushed. Also, while I think stress causes my worst flushes, most of my flushing is due to heat so you might be lucky in that regard. I'll appreciate if you keep me updated on the remeron. Two months ago my general doctor gave me clarinex in an attempt to alleviate the flushing, but after only taking one pill I got heart palpitations which lingered for like a month so I am pretty skeptical about taking other pills right now, but if the remeron REALLY improves your flushing I will be consdering it.
#95
Posted 30 June 2008 - 02:42 PM
I just want to say... That I believe that no one has to just accept things the way they are. I don't care what it is. Anything is possible if you have the will to find out how to make it possible... and the determination to strive for what ever it is you want... and never give up even when you feel hopeless.
I will not... nor will any of these people on here... just live with flushing for the rest of their lives. I don't care what anyone says. Though it may take a while... which more than likely it will... even a year or so... the body is such an amazing thing... and a wonderful healer. No matter what.... Your body is capable of healing... you have to trust your body and trust in what you know in your heart it is capable of doing. I know my body will go back to normal.... I have some bad days here and there... but mostly... since I've stayed positive, stayed off meds, toke good care of my body... I've been doing soooo much better. I know that eventually I will get to a point when this flushing is completely gone... and I'm completely recovered and back to normal. I believe everyone else on this board will recover eventually too.
So... I'm done getting on this forum. I really hate it when someone tries to tell me that I am just going to have to live with this or that.... it's just not going to happen. I am not going to learn to live with something... that I dont deserve... and no one else does either. It's only here to stay for a little while... I believe it's here to somehow... in someway teach us a lesson of some kind... and thats it. But it is not something that will last forever. Because I wont let it.
If you choose to just live with it forever... well thats on you. But that to me is sad... and you and everyone else should have the determination and the positivity to find what ever it is that will help you get better.
I don't believe in seattling for less than I want. No one should do that.
Goodbye and good luck to all of you. I know you all can make it through and find a way to get better.
GOD BLESS
Life is what you make it.... and nothing is impossible
#96
Posted 04 July 2008 - 04:18 AM
My intentions of my previous post was to provide an accepting approach to dealing with the flushing. Almost being a 2 year veteran to this wonderful affliction, I have learned that constant struggle in trying many different treatments, usually only brings more grief and despair. What I meant to say was that having a more accepting attitude with the situation, and learning to live with it in a controlled manner may be a safe means in "treating" the problem.
From personal help from another acne.org member, as I will mention his name" Dr.Neal, he has immensely saved me. From first having acne problems, which lead to a psychological tornado of body dismorphia, accutane casued me not only flushing but also Seb dermatitis as well. I have many hills to climb, and I continue to through my journey in life. I am not a quitter, nor did I intend to illustrate that notion in my earlier post. All I was trying to say was try to become accepting. The time of frustration that flushing brought me, I believe only added to the situation and more problems for me. But now I can comfortably say that I am comfortable and happy where I am. I am not a quitter. If you knew me, you would know that. And I know I am now getting all personal and defensive here, but I just really wanted to express my disagreement with your previous words. Cause "quitting" is not in my vocab.
Good luck tho Karen, You obviously have the right attitude, and I only wish you the best of luck, along with all these other fine chaps on this board.
PEACE
#97
Posted 05 July 2008 - 11:30 AM
I guess I just miss understood what you meant. I understand now that you only meant to be encouraging. I thought you basically meant to jsut give up and learn to live with it. ANd that broke my heart honestly. Ther is so much I love to do..... and this prevents me from doing those things. I have worked so hard my whole life to become a professional dancer. Of course when I dance I get hot... when I'm hot, I flush. And one of the biggest things I am pasionate about and have been working so hard on since age 3... I feel like it's become a night mare now... I don't enjoy it at all anymore. My life dreams and plans are being taken away from me. Thats how I feel. And I have no one in the whole world that understands. My mother thinks I'm making a big deal about it.
Every single day is so hard for me. I have nothing and no one. I have to go to work so I can live... so I can eat. I can't stay home when I'm all beat red in the face. I have to go out and face all these people every day. It's so freaking hot in Delaware and I don't have a car. I ride the bus everywhere and walking from bus stop to bus stop... my face gets beat red.
For a while there I was doing sooooooooo unbelievable good. Now it's like living in hell again. And when I cry and get upset... I have nothing and no one. I just cry my self to sleep every night. I am in college now too... tyring to pay my way. NO one knows what this is like. Or how hard this is.
Sometimes I truly wonder why I keep trying.
I'm tired of this. I'm tired of crying all the time... in the bathroom at work or school. Every night. All alone. With people looking at me funny or sometimes they even say things.... like are you ok? Are you hot? Or your face is really red... like I don't know. I can feel the it... my face is burning so bad.
I'm so tired of everything... and tired of having to try and fight for something that just doesn't seem to ever go away.
#98
Posted 06 July 2008 - 10:29 PM
I am sorry that your flushing has gotten worse again. The summer heat has definitely increased my flushing as well. One thing that I have had some success with is taking one ibuprofen a day. I still feel overly sensitive to heat, but it doesn't result in as much burning/flushing. I don't know if it will help you at all, but its easy to test.
I know that it is hard not to get emotional when you flush, but, for me at least, getting emotional increases my flushing dramatically so I do my best not to get too emotional when I have a bad flush because there is nothing we can do, right then, to stop it.
Before you said that you were doing better. Did you change anything when your flushing started to get worse again? What is your current skin regimen?
I hope things will start to improve for you as I feel your pain. There is nothing more depressing, to me, about flushing than to get a blad flush while I just sit in a class. Not when the teacher is addressing me or if I am giving a presentation, but just when I am sitting there doing nothing. I sometimes feel like I am trapped in my body. My parents also don't really seem to understand how bad the flushing feels and why it is depressing. I don't really blame them as flushing is kind of a crazy problem, but it makes fighting this battle very lonely...
I hope this helps,
James
#99
Posted 07 July 2008 - 06:51 AM
To me i just want to have normal skin like my Twin who almost has a perfect complexion....and an active lifestyle that i cant have. The worse thing being a twin.... People COMPARE even i Compare =_=!!! I was always the ugly twin, not because of my facial features, but becoz of my skin complexion.
Sigh*
But some how i got over that............
i Use to have even skin tone 18 months ago, and had battle it with all types of typical for rosasea which had just worsen it over time. May be becoz i dont have rosacea after all. Went to Specialist a few times, prescribed me with minomycin and Advantan Cream, that seems to had totally cured me for a few weeks until i stopped use it. At that time i had already used Advantan cream for 30 weeks which is only meant to be used for 5 weeks. Once i stopped my butterfly facial redness came back uglier than Ever!! i figured antibotic is only the treatment, the only way to permanently cure it is to find the cause.
Thats when i stopped using all the chemical stuff that i put on my face and take internaly. i went to focus on my diet and supplements and any treatment natural.
i cut out most dairy and refine foods
I eat up to 75%alkeline food like veges and fruit a day
i drink a cup of carrot juice a day
Take three 1000mg Omega 3 fish oil and Vitamin C everyday.
Try to eat less red meat and more fish like salmon.
i also jog 30min 4 times a week.
After around 3 weeks, i can see dramatic improvements...my face is no longer so sensitive, less red and most of all no more cystic pimples, skin smoother and look more natural.
its been a little bit more than a month now, and i know it is only going to get better!!! Progress had slow down, but Hey ... it is still much better than before!!...
For more information go to the nutriention part of this forum or PM me
DON'T GIVE UP PPLzzzzzzzzzzz
#100
Posted 07 July 2008 - 07:41 AM
I did add a cleanser.... but that was only in the past week. And I've used it in the past... I really don't think it has anything to do with it. Other than that... I've kept my regimen all the same.
And I def. understand what you mean... about this being a lonely battle. It's so hard. Especially because I am going away to college soon and I'll be dorming with people I don't know. I really dont want my room mates seeing me beat red in the face... or wondering why I sleep with a fan on me. I'm gonna feel so embarrassed... which makes me distant... and then I wont make any friends. I really want to figure out a way to make this go away before I go to college in the fall.
I will be talking with two different doctors today. I am thinking about trying Paxil. I don't know if you ever went to the forum for KP.... but there is a guy on there that went on paxil for flushing... and has had no side effects with 100% good results. And no longer flushes at all.
I don't know if it would work for me... but I do know that non-the-less the flushing still is not as bad as it once was.... I think between thinking about it a lot more... since it hasn't been as great as it was for while... I just got so dissapointed and upset about which only mad it worse... like you said. So... After I talk to my doctors and see what they have to say... I'm gonna try and keep my mind off of the flushing... and stay more positive again. And just keep hoping for the best.
Are you on any medications right now???? Do you think I shouldn't go on any medications? Like paxil?
NTK8989
Because I am a dancer... and I watch my weight and also try to be as healthy as I can. I've always had a good diet. I eat all organics, a ton of fruits and vegigies, lean fish like salmon, tons of water, and only non fat diary and whole grains.
I don't use any chemicals on my face... the cleanser, exfoliater, and lotion are all for sensative skin types and also with no harsh chemicals.
My skin has stayed mostly clear even with being off all medications for 31/2 months now. Which I'm really happy about. I only ever break out during my cycle. Which usually goes a way pretty quickly.
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