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The answers I got from my doctor about hair loss

vitamin a biotin

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#3361 redemption2501

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Posted 07 May 2013 - 06:22 AM

@bcbcbc

 

Hey there, bruv. If I have to be perfectly honest with you, avoiding vitamins sounds like a really bad idea to me. Avoiding vitamins means that you would have to inevitably avoid certain foods. This means that you will have a poor diet and eventually you will cause more damage that it's already done. Please think it through before doing anything irrational. There is no way that you could force yourself not to touch a group of foods for a prolonged period of time, not to mention that you shouldn't. And more importantly by doing that you will probably increase the shedding. Balanced diet is key when fighting such irregularities.

 

On the other hand, this theory sounds like...utter bullshit to me. Avoiding all fat soluble vitamins because you have overdosed on one (that has a different structure and effect on the body)? There is no way that could be backed up medically. Please consult with a doctor.


Edited by redemption2501, 07 May 2013 - 06:23 AM.


#3362 killertofutaco

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Posted 15 May 2013 - 08:33 AM

Wow it's depressing to read that even the creator of this threads hair stopped shedding within 9 months.
I've been shedding over two years now with no end it sight, with no regrowth to speak of..and so so dry and brittle now..

I must be compleltey screwed

 

I see your posts all the time, and I am so sorry for all the negative experiences that you have had while on this drug. I'm trying to find experiences of people who have suffered hair loss after discontinuing Accutane. I've seen many posts of people complaining about their hair loss, but I've seen only a handful of people follow up with their original posts, so there really aren't any answers from people yet.

 

You said your hair has been shedding over 2 years now. If that's the case, you're probably bald or very close to it. One cannot lose hair for that long without regeneration, and NOT be bald. If you have pictures, or can clarify what you mean, I would really appreciate it and I'm sure others would, too.



#3363 Livetoregret

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  • Interests:finished taking Roaccutane December 2010.
    Takin this drug has been the worst decision I have ever made and I have regretted it every day since.
    Doseage: 60:40 mg alternating daily for 11/12 months
    Sideffects:None till course was over.
    Now - SEVERE dry/brittle hair.
    HAIRLOSS - lost at least 70% and continues...acne came back in July, worse than I ever suffered from it. I now have back, chest, neck & cheeks that are covered.
    So now Im bone dry with no natural hydration with horrific acne. As a 31 YO woman with now destroyed skin & hair.
    My side effects include: Chronic Dry mouth
    Severe dry,tight,dehydrated, ashy,mottled,discolored (yellow & red),wrinkled,scarred poorly healing skin
    Facial fat atrophy - fatloss. Hollow eyes & cheeks
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Posted 15 May 2013 - 11:44 PM

@killerfutaco - Pictures are on my profile.



#3364 oli girl

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Posted 16 May 2013 - 09:15 PM

Killertofutoca - Do you suffer from hairloss? Also, if you suffer from Chronic TE then yes it can last for years and you not loose all your hair!



#3365 bcbcbc

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Posted 16 June 2013 - 10:31 PM

@bcbcbc

 

Hey there, bruv. If I have to be perfectly honest with you, avoiding vitamins sounds like a really bad idea to me. Avoiding vitamins means that you would have to inevitably avoid certain foods. This means that you will have a poor diet and eventually you will cause more damage that it's already done. 

 

@redemption,  

 

I've experienced a very HEAVY hair shedding for a week after drinking kale shakes daily for a period of 2-3 weeks.  Kale has very HIGH amount of vitamin A in it.  It could be a sheer coincidence, but that experienced has convinced me to at least stay away from vitamin A rich foods.

 

In terms of other fat soluble vitamins (D, E, K), I actually take 2000IU of vitamin D3 daily for energy and mood.  Vitamin D deficiency is quite common for people who do not get a lot of sun light.  I eat a lot of nuts which are vitamin E rich and plus most of population are not vitamin E deficient.  Pretty much same story with vitamin K.  I also take biotin supplement but not even sure if that does anything at this point.

 

Without going into specifics, fat soluble vitamin levels affect each other in our bodies, so I just threw out an blanketed statement about the vitamins.  It wasn't a very well thought out statement, so I do take it back.  I was bit traumatized by the heavy shed after introducing kale to my diet.  Plus, I am a healthcare professional, so no need to consult a doctor here. =P

 

It's been about 3 years since my accutane course.  My hair count and density is about 70% of what it used to be and it doesn't seem to be improving but it doesn't seem to be getting worse either.  My hair is thinned in ALL areas of my body except for my nose hair. (What a twisted joke).  Definitely a case of chronic telogen effluvium.  

 

@Livetoregret,

 

I just saw your pictures and you are one GORGEOUS lady.  I do see that your hair has gotten thinner and brittle but you're still far more prettier than your average girl on the street.  It is a damn shame that your hair volume/density has decreased at young age but I bet you that no one you meet will ever think your hair looks ugly or weird.  

 

You sound very distressed and I would recommend some counseling therapy or even low dose SSRIs for a while if you think the stress/depression is keeping you from being functional and enjoying life.  Best wishes.



#3366 redemption2501

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Posted 18 June 2013 - 03:18 AM

@bcbcbc

 

Hey there, thanks for getting back to me on this one. I hope I haven't offended you with my previous post on the vitamin subject. I do see your point and I agree with what you've said. I do avoid vitamin A as well because of the same reasons. At first, when I was really depressed and desperate to prevent further shedding, I was doing the same thing - avoiding all vitamins but at a certain stage of the whole drama I decided to stop doing that. Anyways, I wish you a speedy recovery :)

 

Quick update on my situation - still shedding, probably the same amounts, no further recession just shedding all day long. I guess with chronic TE this is expected to happen. Overall, I keep my spirit high and refuse to give into the fear of getting bald. I had enough of that.



#3367 redemption2501

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Posted 12 September 2013 - 06:33 AM

Hey guys,

 

What's going on with you all? Any updates from anyone?



#3368 bcbcbc

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Posted 16 September 2013 - 07:10 PM

Hey guys,

 

What's going on with you all? Any updates from anyone?

 

 

Nothing new to report.  I'm 3 years post accutane.  No signs of recovery of yet.

 

I'm still shedding and my hair is just as thin as it was last year.  

 

I did start this "no poo" method and only using water to wash my hair.  I think natural oil does keep my hair in better shape.

 

I really miss my thick hair... =(  

 

At this point, I don't think my hair will recover.  I think accutane permanently miniaturize my hair follicles all over my body.

 

It's a god damn poison and I'm so stupid for taking it.

 

I'm hoping for some stem cell break through or miracle in next decade to restore my hair follicles at this point.



#3369 sunsetblvd

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Posted 10 December 2013 - 06:21 PM

Hey guys I think we should start this thread back up. This is easily the most important accutane hair loss thread on the site. Any updates on people's situations or new methods to counter the shedding and kick start re-growth?



#3370 infamousboo95

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Posted 02 January 2014 - 02:08 PM

Hello guys! My name is Lucas Im 18 and i have been lurking on this site for a whilewavey.gif . Anyways I am on my 6th and final month of accutane (this is my second course since 2010 in which i was on a very low dose at that time) On this course which i started back in June I started off the first half of my course with 40mg a day and then on my second half i was bounced up to 60mg a day. I noticed on my 5th month my hair was looking thin and looked very limp and noticed my hair was shedding about 30 hairs in the shower and another 10 when i would proceed to towel dry, i also noticed that the back of my hair where my crown is looks very weird and i can see it more then before which freaks me out. When i went in to see my derm, she conducted a hair plucking test? I don't know what she did that for, but she the shedding will stop once I have completed my course but she lowered me to 40mg for the last month which i am currently taking. I am afraid that my hair might not go back to its original look it looks very dull and thin and not as bouncy no more! sad.png . I shed every time i shower and i shower every other day. I feel like stopping my course now, i just don't know what to do.. PLEASE HELP biggrin.png



#3371 sunsetblvd

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Posted 02 January 2014 - 11:05 PM

Hello guys! My name is Lucas Im 18 and i have been lurking on this site for a while:wavey: . Anyways I am on my 6th and final month of accutane (this is my second course since 2010 in which i was on a very low dose at that time) On this course which i started back in June I started off the first half of my course with 40mg a day and then on my second half i was bounced up to 60mg a day. I noticed on my 5th month my hair was looking thin and looked very limp and noticed my hair was shedding about 30 hairs in the shower and another 10 when i would proceed to towel dry, i also noticed that the back of my hair where my crown is looks very weird and i can see it more then before which freaks me out. When i went in to see my derm, she conducted a hair plucking test? I don't know what she did that for, but she the shedding will stop once I have completed my course but she lowered me to 40mg for the last month which i am currently taking. I am afraid that my hair might not go back to its original look it looks very dull and thin and not as bouncy no more! :( . I shed every time i shower and i shower every other day. I feel like stopping my course now, i just don't know what to do.. PLEASE HELP :D


You should stop immediately. Accutane hair loss is not easily reversible. The sooner you stop the more chance you'll have for recovery.

#3372 infamousboo95

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Posted 02 January 2014 - 11:42 PM

Hello guys! My name is Lucas Im 18 and i have been lurking on this site for a while:wavey: . Anyways I am on my 6th and final month of accutane (this is my second course since 2010 in which i was on a very low dose at that time) On this course which i started back in June I started off the first half of my course with 40mg a day and then on my second half i was bounced up to 60mg a day. I noticed on my 5th month my hair was looking thin and looked very limp and noticed my hair was shedding about 30 hairs in the shower and another 10 when i would proceed to towel dry, i also noticed that the back of my hair where my crown is looks very weird and i can see it more then before which freaks me out. When i went in to see my derm, she conducted a hair plucking test? I don't know what she did that for, but she the shedding will stop once I have completed my course but she lowered me to 40mg for the last month which i am currently taking. I am afraid that my hair might not go back to its original look it looks very dull and thin and not as bouncy no more! sad.png . I shed every time i shower and i shower every other day. I feel like stopping my course now, i just don't know what to do.. PLEASE HELP biggrin.png


You should stop immediately. Accutane hair loss is not easily reversible. The sooner you stop the more chance you'll have for recovery.

I want to stop but then again I just want to finish the course and get it over without a chance of remission since I only have 20 days left in my course.  I do remember my derm telling me that if i quit early there will be a greater chance for remission and a possibility of reduced "limited results" she says that my hair only looks the way it is because of how the oil glands have shrunken and that they will go back to normal once im off tane. 



#3373 sunsetblvd

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Posted 03 January 2014 - 06:36 PM

 

Hello guys! My name is Lucas Im 18 and i have been lurking on this site for a while:wavey: . Anyways I am on my 6th and final month of accutane (this is my second course since 2010 in which i was on a very low dose at that time) On this course which i started back in June I started off the first half of my course with 40mg a day and then on my second half i was bounced up to 60mg a day. I noticed on my 5th month my hair was looking thin and looked very limp and noticed my hair was shedding about 30 hairs in the shower and another 10 when i would proceed to towel dry, i also noticed that the back of my hair where my crown is looks very weird and i can see it more then before which freaks me out. When i went in to see my derm, she conducted a hair plucking test? I don't know what she did that for, but she the shedding will stop once I have completed my course but she lowered me to 40mg for the last month which i am currently taking. I am afraid that my hair might not go back to its original look it looks very dull and thin and not as bouncy no more! sad.png . I shed every time i shower and i shower every other day. I feel like stopping my course now, i just don't know what to do.. PLEASE HELP biggrin.png


You should stop immediately. Accutane hair loss is not easily reversible. The sooner you stop the more chance you'll have for recovery.

I want to stop but then again I just want to finish the course and get it over without a chance of remission since I only have 20 days left in my course.  I do remember my derm telling me that if i quit early there will be a greater chance for remission and a possibility of reduced "limited results" she says that my hair only looks the way it is because of how the oil glands have shrunken and that they will go back to normal once im off tane. 

That isn't always the case man. Tons of peoples' hair loss never comes to a halt after they finish taking accutane. You shouldn't risk it. Since you only have 20 days left I'm assuming your face is mostly clear. I would say stop the drug and wash your face twice a day and avoid oily/fatty foods to prevent acne. More accutane in your liver will only prolong the hair loss and lessen your chance of recovery. Accutane is not something you play around with and if your body is already giving you signs of discomfort (i.e hair loss) I think it's time to stop.



#3374 ivmi

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Posted 11 March 2014 - 10:50 AM

Hi all! 

 

I haven't post in here for a while...

Now, 3 and a half years post accutane (i took it for 9 days) , I have a few words to say. So, as you remember I was complaining about skin thinning, slow healing, joint stiffness, body and scalp hair thinning. two years ago I got some tests done, but none of them gave me an answer about my problem. I have to say that i still have problem with my thin skin that is healing very slowly and my hair is still thinner than it was in the beginning (before accutane),  i still have bald spots on my legs, underarms and etc. but it is not getting worse...! I was taking KAL's Selenium supplement, and sometimes,but very rarely, vitamin D3 with calcium, and that's it. I noticed that my skin is healing way much better when on Selenium and even my bald patches on legs and underarms are better. I noticed summer days are great for my problems - hair looks better, underarm has no bald spots rolleyes.gif ...and my skin complexion is great (healing just fine and stuff) Three months ago i stopped taking Selenium ( i wanted to take a break) and now i see that my hairline is starting to recede once again slowly, and my underarm and legs are much balder...so I get the point badgrin.gif . Can anyone explain what is that miracle connection between Selenium and hairloss&skin healing?My joint pain is not interfering in my everyday activities, so i'm not much complaining on it... anyway...i got my blood tested last week, and my doctor told me I have low platelets...so I told her that i think that i have some autoimmune stuff going on in my body and that i want to find out am I wrong or not, and she gave me a recipe to immunology lab...so I will inform you about it...anyway I managed to brighten myself up since i last posted in here...i stopped worrying so much and decided that i will not spend my life sad and miserable, and since i decided to be happy- I really am happy! If my hairline continues to recede i will order a few wigs and change my hairstyles every day cool.png






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