_Andy_

The answers I got from my doctor about hair loss

3,415 posts in this topic

HI guys,

Im a fellow hair loss sufferer post accutane.

Ended my course in february 2010.

I had very mild hairloss after quitting but in the last 6 months it has speeded up dramatically and iv lost about 60% hair.

My hair on the back and sides is growing thicker than top so it sounds like male pattern baldness?

My hair loss doctor gave me a script for minoxidil and propecia.

But im too frightenned to take propecia after what accutne did.

Does anybody have any advice on treatments or should i accept that i ill be completely bald at 23?

Thanks

Any updates?

Share this post


Link to post
Share on other sites

Well, my hair loss had stopped for a good two months, but now it's coming back as bad as ever. I have no idea why, since I haven't changed anything. I'm adding biotin into the mix and trying to get more protein.



Recovering from Accutane-related hair loss.

(over a year and a half after stopping...)


Share this post


Link to post
Share on other sites

QUOTE (electroshock @ Jul 19 2011, 09:27 AM)

QUOTE (texasboy15 @ Jul 6 2011, 12:33 AM)

electroshock, obviously i have diffuse alopecia areata (the auto-immune disorder), so there is really nothing that can be done but pray that the body corrects itself, but after 21 months of shedding that is unlikely to happen

Just a quick update.

I'm still using clobetosol propinate once nightly and its done wonders for the pain, itchiness, irritation and redness. My scalp feels a lot better.

I was given about 20 subcutaneous steroid injections into my scalp last week, and will need about 4 to 6 weeks to see if they encourage hair growth.

The down side is that neither of the above treatments have done anything to slow down or stop my shedding. The shedding still persists.

I'll be returning in 6 weeks to see Dr. Donvavan, and at that time we will likely discuss using Prednisone and tapering off to another milder oral steroid to see if that does the job.

Will report with my results.

Cheers,

Matt

Any update, electroshock? Also, do you have any pictures? Curious to see what I should expect in a couple years. I think we have a similar situation.

I've gone off the topical steroid because I started DPCP treatment. I had 3 biopsies, and on the 3rd they found indicators of Alopeica Areata. My hair has not improved over the past 3 years and 3 months, so 2 weeks ago I started using Rogaine foam as per my specialists' recommendation, and I continue to do DPCP treatment once a week.

Since i've just reached the right concentration, I will have to give both treatments 6 months to see if they yield results.

All indicators point to Accutane having caused Diffuse Alopecia Areata in my case, both hairloss and chronic fatigue are the side effects I've acquired from Accutane.

Accutane is poison, point blank, and it can screw up your life.

There is no question that Accutane can cause hair loss, I had quite a bit in month 5 on 80 mg a day but was fine after getting off of it. Plus my hair is thick and I didn't miss the hair.

But to the person saying that a mere 9 pills caused this massive hair loss, I have a very hard time believing it was Accutane. 9 pills is simply not enough to build up in your body to do much of anything.

Let's remember, many people are predisposed genetically to baldness or hair loss and in probably "some" or a "few" of the cases, Accutane simply exacerbated what was going to happen anyway.

Uninformed speculation is the crux of the idiot.

Congratulations on winning today's award!

Share this post


Link to post
Share on other sites

my last cotrimoxazole experiment was but a failure although i admit i didnt give it an honest long try,back in august it was one month of contnual use before i noticed a complete cessation of hair fall. it was a coincidence as people here have reported 'honeymoon periods' where they have remitted to shed ziltch hair for a brief duration only to fall back to shedding as much as before if not more-i would have thought;if it was not for the indirectly propotional on and off relation i observed between shedding and the concomittent use of cotrimoxazole. i am eager to give it a sincere shot but am afraid of exhausting my last resort against any future papulopustular attack,

Share this post


Link to post
Share on other sites

I'm getting kind of freaked out by hair loss and other sides. I only took 80 mgs for about 5-6 weeks before I stopped because of sides. It is six months later and I'm still having problems. But I found a new study on this issue. Their conclusion:

topical TGF-

glyph.gif

2/TGF-

glyph.gif

receptor II antagonists deserve to be explored for the prevention and management of retinoid-induced hair loss.

If only I could figure out where to get some of that.

http://www.nature.com/jid/journal/v124/n6/full/5602839a.html#fig1

Share this post


Link to post
Share on other sites

i was on low dosage nimegen some years ago and started on low dosage acnotin (10mg twice a week) + antibiotics in Oct 2010. observed a little hair shedding during Dec 2010 but my doc reassured me it was fine. stopped the antibiotics cos i thought that was the cause of my hairfall but continue to be on acnotin (10mg twice a week) till now. my hair shedding seems to be on and off over this period of time. started getting bad in Dec 2011 again and has been that way since. shed at least 50hair per day and more at times. but one peculiar thing is that i usually don't observe any hairfall during my shower or on my pillow. it only sheds throughout the day. like loose hairs trapped in my long hair. had itchy scalp and some flaking so i started using head and shoulders (used to use it years ago and it worked great but i switched shampoos many times after that) and started using nizoral twice a week this week. seems to have gotten better but im not sure if its psychological... i do shed hair AFTER my shower though. when im airdrying my hair...

any take on that?

ps: i didnt have any issues with taking nimegen or acnotin when i was 15 to 18 but i can't remember how many times i've gone off and on. but its mostly low dosage.

Share this post


Link to post
Share on other sites

my shedding manifests itself in a manner just opposite to what you have described,that is i only shed hair while in take shower or after shower and on pillow but hardly ever during the rest of the time.My hair texture also determines a great deal of how many hair would i lose during a period say if my hair is straighter during a period that would mean i wouldnt shed as much although it hasnt been straight to the original texture i did feet a tremendous improvement back in october,that was when i thought i had completely gottn over the problem.

now to ponder at it deeply

minoxidil curbs back my shedding and retains straight texture to my hair, but i dont use it much as it also reddens my face to the point that i feel severe flushes at nights.

if i remember correctly i had also taken dilcofenac 100 mg and prednisone when i last saw an improvement.

i used to think it was corimoxazole as i experimented on it with some success but it can be a coincidence since last time it didnt do shit althouh i didnt take it for a longer period as previously, could it just be attributed to the anti-inflammatory effect of it?

Edited by jaysjay

Share this post


Link to post
Share on other sites

i used to think it was corimoxazole as i experimented on it with some success but it can be a coincidence since last time it didnt do shit althouh i didnt take it for a longer period as previously, could it just be attributed to the anti-inflammatory effect of it?

It can be hard to tell with antimicrobials and anti-fungals whether the effects are from the anti-inflammatory action or from the actual killing of pathogens. I would think in terms of hairloss though, unless you have some sort of severe dermatitis, it will be the anti-inflammatory effect.

You said you have Rosacea? A way to test this would be try something like Oracea, which, as far as I know it too-low a dose to have anti-microbial action but still exerts anti-inflammatory effects and is often pescribed for Rosacea for this reason. Have you tried this?

My hairloss sounds similar to yours. I shed most noticeably in the shower if I wash my hair everday and little elsewhere. If I dont wash everyday however I start noticing it on pillows, when running hands through hair etc.

I shed from all over, although my front hairline has diffuse recession all along it. It looks kinda crazy actually. I also seem to have quite bad seborrhoeic dermatits as well however, which no shampoo is able to dent.

Edited by Milano

Whether you think you can or whether you think you can't, you're right - Henry Ford


Share this post


Link to post
Share on other sites

oracea is minocycline i guess,whats the texture of your hair- have you noticed any difference in it, like mine had once urned completely curly and now slowly getting its straightness back

Share this post


Link to post
Share on other sites

I think Oracea is very low dose/timed release Doxycycline.

My hair has always been straight as far as I can tell. There are a lot of 'kinked' hairs though that stick up. Pigmentation is all over the place as well. Quite oily hair that needs washing regularly.

Took Accutane for one week one and a half years ago.


Whether you think you can or whether you think you can't, you're right - Henry Ford


Share this post


Link to post
Share on other sites

i dont know if accutane could do that in one week ,my hair as oppose to your description turned dry from the original state of oily ,before i couldnt pass one day without washing my hair after accutane i could do without washing a whole week., although the oiliness is regained to a point but nowhere near the pre-accutane days.

Share this post


Link to post
Share on other sites

Oh believe me, it is only one thing that Accutane has done in a week.


Whether you think you can or whether you think you can't, you're right - Henry Ford


Share this post


Link to post
Share on other sites

just a point for women that are experiencing hair loss on accutane, if you had to start birth control pills for it, they could also be the cause.

I am quite sure my hairloss was in fact due to the BCP(and stress), rather than accutane.

Share this post


Link to post
Share on other sites

i really hope that my hair shedding is due to stress cos i cannot stop thinking about it every single day and my head feels kind of heavy and burdened whenever i stress myself over it. i ever tried not thinking about the problem for one whole day and it seems that i shed lesser hair on that day overall.... psychological effect maybe?

1 person likes this

Share this post


Link to post
Share on other sites

i really hope that my hair shedding is due to stress cos i cannot stop thinking about it every single day and my head feels kind of heavy and burdened whenever i stress myself over it. i ever tried not thinking about the problem for one whole day and it seems that i shed lesser hair on that day overall.... psychological effect maybe?

Stress is a major factor. The more i think about it the more I shed

Share this post


Link to post
Share on other sites
i really hope that my hair shedding is due to stress cos i cannot stop thinking about it every single day and my head feels kind of heavy and burdened whenever i stress myself over it. i ever tried not thinking about the problem for one whole day and it seems that i shed lesser hair on that day overall.... psychological effect maybe?
Stress is a major factor. The more i think about it the more I shed

then lets just try to stop stressing about it and lead a normal life for once! i think stressing abt your hair loss is the worst thing that you can ever do about it. i mean, if its gonna shed, its gonna. stress may just accelerate it!

Share this post


Link to post
Share on other sites

I think more people need to post photos in this thread so we can actually see what we're dealing with here. Otherwise I'm convinced that most of the people who post here are in a panic and meanwhile their hair doesn't look bad at all apart from perhaps a very slight thinning.

More pics. please! I want to see real comparisons to get an idea of what Accutane did to your hair.

Edited by theGreyhound

21YO MALE / Completed Accutane (5 months @ 80mg/day) in 2009 / 95% CLEAR

Clean face morning + night with SpectroGel / Lukewarm showers (not hot water)

Use humidifier in winter / 50mg Zinc Citrate daily!!! / Shave with electric foil razor

Low glycemic/sugar, Low-wheat, Dairy-free diet / Launder pillow cases regularly

One drop of tea tree oil mixed into Complex 15 moisturizer morning and night


Share this post


Link to post
Share on other sites

This is my first post. I am a 24-year-old female and was on Accutane for 7 months. For the first 3 months, I was on 40 mg twice a day and on 60 mg twice a day for the last 4 months. I started experiencing hair loss in the 4th month. The thinning while I was on Accutane was severe. However, I have been off of the medicine for 3 weeks and the thinning/shedding has GREATLY increased and has become very noticeable.

Pre-Accutane, I didn’t have particularly thick hair it was just normal thickness and certainly not thin! I thought (and have been told many times) that I had great hair. I am REALLY upset about this dramatic hair loss. I have posted some pictures of what it looks like today (3 weeks after ending a 7 month treatment). My problems are centered around the crown of my head although there is thinning everywhere; this is where the major issues are. (Please be kind)

Picture 1

Picture 2

Picture 3

I have an appointment with my doctor soon but was told over the phone that this is normal and I need to “wait it out.” I was told I am in the “shedding phase” and it should grow back. I fear that I will be bald soon.

Have others had similar patterns of behavior? Have other women had this happen to their hair? How long did it take to recover and is there anything I can do now?

Share this post


Link to post
Share on other sites

Greetings.

It's been a while since my last post but I thought I'd drop in and update. I began experiencing shedding in my last month of accutane. Since then the shedding has come to a slow but I have had zero regrowth. My hairline has receded atleast 1cm and has thinned considerably along the top and sides above my ears. I am currently 1 year and a few months post accutane. Hoping for the best though.

Share this post


Link to post
Share on other sites

It's been about a year since my hair started shedding on Accutane. I stopped late July, and my hair loss has been going away and coming back in cycles since then. Taurine and a high-protein diet have helped significantly, but my hair's still a lot thinner than it was pre-Accutane.

I've been doing research on vitamin D and bought 2000 IU capsules of D3 yesterday. I think this website is worth looking into...

http://wholehealthsource.blogspot.com/2008/11/is-vitamin-toxicity-concern.html

Hair pre-Tane

http://i48.tinypic.com/23vnvc1.jpg

http://i49.tinypic.com/14y03nk.jpg

Look how thin my hair is post-Tane!

http://i48.tinypic.com/2poqnvt.jpg

Hair loss... 2 months

http://i47.tinypic.com/1693v9h.jpg



Recovering from Accutane-related hair loss.

(over a year and a half after stopping...)


Share this post


Link to post
Share on other sites

Hey guys,

I want to try to revive this thread by posting my story in regards to accutane and hair-loss. Just a brief background – I had moderate acne (clogged pores and very oily skin) and decided to resort to accutane since I was losing hope and was becoming very depressed. Took the drug during 2011 (started with 40 mg and eventually moved to 80 mg) under the supervision of a doctor. My hair was very thick and I had never experienced any issues with it.

I was aware that accutane could cause hair-loss and was constantly monitoring my hair for any changes. Still, nothing significant happened and my hair was fine until the very end of my course. Around September last year I noticed that it looked differently and that I was shedding excessive amounts. Shortly after that I decided to discontinue the drug (two or three weeks before the end of my course). I don’t want to get emotional but I went through an awful period of hair shedding and within a year lost more or less around 60% of my hair. cry.gif I was and still am devastated, because I thought that this side effect was completely reversible and temporary.

Fast forward to the present – I got a very short haircut and decide to keep my hair like that until I see an improvement. So far, I’ve seen none. On the contrary, my shedding persists and my hair has become extremely thin to the point that the individual hairs are almost invisible. One more VERY IMPORTANT thing – I am losing hair from ALL OVER MY BODY, not just from my head. Everywhere – arms, legs, eyebrows, public area, you name it. The hair loss is identical everywhere – defused and thinning hair. Also I see tiny pigmented hairs everywhere that stay the same size and they never grow. I don’t think that this is MPB and I don’t know anymore if I am suffering from a chronic TE (I thought so in the past).

I would like to ask you guys if anyone has experienced similar symptoms and what do you think about my condition in general. Any opinions, insights or suggestions will be highly appreciated!

P.S. No one in my family has MPB. My grandfather (from my mother’s side) has a full head of hair at the age of 78. My mother and father have a very think and strong hair as well.

Share this post


Link to post
Share on other sites

Hey everybody. I am male 23yrs old. Sorry for my english, i am polish biggrin.png. redemption2501 - hair loss is fucked up. Listen to my story. My 1 course started october 2010. I was on 40mg for 7 months. I notice hair loss and stopped immediately. It was May 2011. I used minodixill for 2-3 months. My shedding stopped after 5 months but my overall condition improve so i don't think minodixill helped. My face became greasy and my acne got back, but like 20% it used to be. In march 2012 my derm decided to go on a low dose 2Omg for a month. She said that i shouldnt loss any hair but if i will it will got better how it did before. After 3 weeks - start of april 2012 i started shedding. I got off it. My skin become dry, and acne gone away. Since then it is 6 months and i still loss hair in the same amount like 50 a wash every day + 20 pillow. I am using very expensive supplements for hair - there is zinc, taurine etc, biotin. I used to use amminexil. I did tests for everything...really. All came great. DHT low, no history of MPB. I lost mostly hair on the top, receding hair line in bank - a lot. On the top i lost like 70% of my hair. Also i have hair loss on the back and sides, my eyebrows. I used to loss hair on legs and hands, but now i think i am loosing normal amount. Remember that hair in hands or legs are thinner then on head, so think about it like per sq inch - how many are u loosing. My face and head was dry, now it's oily so maybe the situation is like year ago. One test that gone bad is retinol serrum. I tested it in june and it was 800, i didnt eat any vit a or beta caroten - only in really small amounts like in pasta or grapes apples - and 3 weeks ago i had 1000 which is toxic level. I am going tommorow to my derm ask her about that i will post an update. My hair was like big in diamater, now is really small - all over body. I have new hair all over my body - biotin i think -> also my nails are strong as never they been. But there is no grow on my head. Really none. I loss hair with no grow. Some of my hairs stop growing, they are same size as 6 months ago. I loss 80% hair with white bulb. I loss all of my hairs once - chemotherapy, but it came back. I know that it is diffrent type, but my scalp is exacly the same now as it was when then. So i think that i and u also - we can be sure that in places where there is no hairs now - like banks - hairs can go back. I am not saying that all of us will recover and regrow, but there is no matter to think that it is imposible to grow hair in that area.

Also i have from 2-3 months and continue to be worst - headache every day, insomnia, sight problems, depresion, high body temprature, i lost 25lbs in 6 months - it is 1/7 my body weight - am eating normal - like i used to - being on isotret i gain 14lbs, i didn't lose any weight after my first iso run.

I think that hipervitaminosis is the case in my case, maybe yours too.

I don't know medical language in my native language so it can be tricky in english. -> Cells in hair cells are the weakest cells in body. When something is going wrong with body they are first to colapse. Also might be the case with water in body. When there is not enough water in body, the water is leaving the cells and going to more precious organs. I found that i drink a lot of water in one day and a very little in the other. I dont know why. I just need more water one day and less the other while doing the same things. I read that water fucked up distribution and thirst is hypervitaminosis case. After showing derm my results i will post some news, also i plan to check the retinol serrum level as well as calcium, b12 on thursday - the last two will be known on friday, the retinol after ten days. I will post it.

Loosing hair from entire body was my case also. But it slow down. It slow down to normal levels. I comparing with my brother and with my memory of myself from pre iso and i remeber that i was loosing hair from entire body every day at slow pace. I found some in my bed, some in my bath. It was normal to shed like 2O everyday. Also i used to shed like 2O while washing head and styling. I dont style now. Year ago i was sheeding after iso like 3O while washing and 2O while styling. It stopped - or rather slow down to normal levels in 2 weeks. It was like bam. I was sheeding same number for 5 months. This year i see it is slowing for 3-4 days and day going back to more shed. I am 1OO% sure it has some cause. But i dont know what yet. Maybe it is water, maybe other vitamins from food. I have steady and healthy diet. I cant go bald. I will look like retard. I will find cause and kill it.

I dont recall it not growing new or stop growing in lenth on my head after 1 iso run. But i have full head of hair. Now everything is easier to spot.

Edited by sztuka1988

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a New Account

Sign in

Already have an account? Sign in here.


Sign In Now