oli girl

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About oli girl

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  • Gender Female
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  1. I am a veteran per say being around these boards for many years. I have to admit I haven't read the following posts. However, with that said Eczema post Accutane is not abnormal,,,,being you tried diet etc...( I am curious on what type of diet) I will do some digging and let you know what helped others :)
  2. Did Accutane produce rosacea?

    raf97- I am not sure if you still come on acne.org, but you are not alone with Accutane induced flushing. I advise you to look at this link and browse Lamarr1986 posts amongst others! I wish I had an answer, but I don't. http://www.acne.org/messageboard/topic/193804-post-accutaneminocycline-facial-flushing/
  3. Accutane hair loss update

    Meg117- Did you have any hormonal testing? Thyroid etc..... Even with previous suffering of Anorexia which can cause issues, is that resolved completely? Have you had iron or b12 or biotin checked? How is your diet? What have you tried to help the hair loss...it would help others! Jen/ oli girl
  4. I have to be honest, I didn't read all of your post. I will say this if your male and there is a hx of mpb then it will accelerate the process. I have copied a link regarding hair loss. It is long but worth the read. http://www.acne.org/messageboard/topic/152239-the-answers-i-got-from-my-doctor-about-hair-loss/either you will experience early mpb or TE from Accutane. If your acne was hormonal to begin with then fixing the hormonal issues may help. GoodLuck!
  5. prednisolone whilst on accutane

    I would say your biggest concern in taking Accutane and a prednisone isbone issues. Both are known toeffect the bones. It is common when taking Accutane to have the initial breakout. In fact some do not clear up till after theircourse is over.It isstated by Roche themselves that the drug continues to work 2-4 months after stopping. Along with the other long list of side effects that can become a reality. Good Luck!
  6. Chest pain

    There are reports of Pleurisy and sarcoidosis! Some have had reports of just pseudo chest pain that either went away or continued with no answer. I would suggest letting your derm know, though be advised they may not attribute Accutane as the problem. at 8 months 30mg you might consider stopping. Especially if your it has not helped your acne. Roche as even stated that the drug continues to work once stopping at least 2months -4 months. Good Luck!
  7. Accutane ruined my life

    Have you looked in the thread of post Accutane minocycline/Accutane flushing thread. You can access it by this link! http://www.acne.org/messageboard/topic/193804-post-accutaneminocycline-facial-flushing/ I would advise against huge amounts of Vit A especially in retinol form. For many Omega's have been a no no and any fish oil with cod liver oil! You can also look up Seattle Jt and Lamarr1986 who have posted in this thread. take the time and read the thread and just know you are not alone, well you can go rounds of doctors who deny Accutane caused your issues. I advise at this point Accutane is irrelevant and you need to start focusing on the issue on hand. Good Luck from a long time suffer Jen/ oli girl
  8. I am returning back home from out of town this evening! Dr. Chu is a fern who spoke out against accutane in UK hearings and has helped some who have suffered from accutane! Sheefa and Lamarr1986 are just 2!
  9. Were you ever testedfor Hyperparathyroidism. Also, I see you TSH is .85 here in the U.S. that is close to hyperthyroidism. Though your T4 and T3look okay. Did they mention anything about your platelets being low etc.?
  10. Have you tried to get in to see Dr. Chu? Sheefa saw him and some other Accutane victims. He even spoke in the hearings against Accutane years ago. There is no magic cure, but he might be able to help! I will send you a pm in a couple days on some other things to try :)
  11. Doesn't surprise me your deficient in Vit D.... Accutane Victims are! I posted way back on this thread the relationship between Vitamin A and Vitamin D. If your going to supplement make sure it's in liquid form :)
  12. Is it the lower spine/back that you are having issues with?
  13. I find it so interesting when I see the same story over and over again. Same thing happened to me 3 months after Accutane everything went to hell! I would say most if not all of us have our symptoms and problems wax and wane. The come and go and then there's those that don't go away Jpop- Are you from the U.S. and if not what country are you from. Also, have you seen a specialist, had any testing, taking any supplements?
  14. Is your hair very dry at the moment. Sometimes it can cause T.E. which can take up to 6-12 months to recover. Some people have cycles of shedding that never goes away. I am glad you stopped Accutane. Also Accutane can disrupt hormones and other vitamins like iron, b12, vit d, etc. Stress will make it worse. Also do a search on the board and you will find some advice regarding dry hair, thinning etc. Good Luck
  15. Accutane hot flashes Cured?

    Hi sorry for the late reply! I took Plaquenil which is the U.S.version and it helped with my flushing. It did eventually go away, butanylittle thing now that goes wrong with my body I flush. You right it could be related if you have some gut issues. Have you tried fixing that yet? Are you taking any supplements?
  16. HAND RASH ON Accutane

    hmm not sure! I got eczema on my hand while taking Accutane, but swelling that not good. I hope you followed your derms request and stopped Accutane. It is know to effect the joints and bones. Maybe see a doctor that specializes in or your regular doctor. Good Luck!
  17. Swollen face, great.

    allergic reaction?? I would call the derm office and speak to a nurse or something to be on the safe side!
  18. Well it is possible that you Accutane has effected your joints and bones. To what extent is hard to say! Many have tried certain things that have helped and your old injury you might want to have that looked at, though Accutane is known to cause a delay in wound healing et. Sheefa who was a long time member on this board has a post from way back when on suggestions for joint pain etc. Your probably low in Vit D which most are after Accutane. if you decide to take fish oil make sure it's not cod liver oil or it doesn't have any Vit A in it. If you have MPB that runs in your family then it will speed up the process or you could just be dry brittle hair or T.E. For a lot of us we don't do well ingesting Vit A there is a los a hair loss thread and you can google on different things like coconut oil etc. for your hair and body. Also remember Roche themselves states the drug continues to work up to 2-3 months after you have stopped. It's really hard to say if your side effects are permanent or not. I eat a very clean diet, no processed foods, sugar etc. you can try GLA, or Hyaluronic Acid (baxyl) you can try cumin, Vit D, etc. Do stretching. Do your bones crack?
  19. Accutane hot flashes Cured?

    I hate to tell you this, but some have recovered and some have not. If you have gut issues you should try and get them resolved and see if that helps. good diet, do you take any supplements or eat a lot food high in retinol. When do you get these hot flashes?
  20. hair lose on Accutane

    I am not sure if your male or female, but if male and a history of MBP in the family well then it can speed up the process. Sometimes Accutane can just thin hair, some recover and some do not. It can also cause T.E. which should in most cases resolve in 6 months to 12 months after your course. take a look on the board at what some have done to help their hair thinning or dryness. hopefully it will help. just do a search. In the end it depends how bad your acne is, age and is it hormonal....What's more important your hair or possibly temporary acne. You must also note that many have had their acne come back after Accutane and it continues to work up to at least 2-3 months after stopping. This is coming from Roche themselves. Good Luck
  21. Accutane and ED/Low Libido

    You can go to all things maleAccutane by dr. Crisler. You can also look dr. Kevin Pezzi who suffered, but I forgot what he did. Also, back in the day on the ragfourm some had their urethra dry up. In other words it castrated them from the inside out. Interstitial cystitis Not sure if you suffer, but good luck
  22. This would be correct! I actually suffer from 2 them thanks to Accutane. Graves (hyper thyroid and type 1 diabetes) I am almost certain you could add sjorgren's!
  23. Hi Deletemyacne - If you already had MPB before taking Accutane, then chances are it made it worse. Most that have recovered or gotten somewhat better from hair loss had hormonal issues or TE. You can look at some of Lamarr1986 and there is a hair loss thread you look on this link! I do know that there are some Accutane victims who have taken propecia etc. with success for MPB, but I would NOT recommend it as some have suffered worse etc.Also, someone mentioned about Accutane staying in the system...I don't know many theories out there vice versa. I do know Roche themselves claims that the medication continues to work up to 3 months after stopping your course. Of course they claim mechanisms unknown! Lovely I know!!!!!!!!!!!!
  24. I will pm you his email address. also the brand for Hyaluronic acid that many suffers have tried or take is Baxyl. Some have had relief. Though you probably won't learn anything new regarding Accutane here is a link to the the e-book from Bill Sardi and Matthew Hamilton (suffer) regarding Hyaluronic Acid. For some it has helped and other maybe not. My things is you have to try something for at least 6 months to see improvement. If you have a host of issues it may not just be one things. Outside of diet I had a host of deficiencies so I take quite a bit. http://vitaminsupplementanalyzer.com/ebook.asp?page=Accutane I am not sure either but those with fibromyalgia type symptoms or joint pain you can always look at Sheefa's posts. He saw the top derm in the U.K. that has treated some Accutane victims. For eye issues and body wide dryness you look at some of Lamarr1986 post or if you have flushing and hair loss. He had some success with some issues though no cure. It truly is a shame that the old rag forum disappeared. It was very organized and beneficial. In fact many of these things that are being tried, theories etc. where on there...whether it be copper deficiency or something else. Those you who aren't familiar with Max proboards on Accutane, you look through it! He was a suffer and was a member on here a long long time ago. I haven't been able to find his postshere on acne.org Spammers have taken over post wise, like most old timers we tend to get tired! I think his last post was in 2009! I myself have permanent damage from Accutane...I will never get my height back, I will never get my pancreas back, part of my thyroid not to mention my lacrimal glands or the other eye problems. You just have to keep going and do the things you love life is to short!