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About ezuber

  • Rank
    New Member
  • Birthday 10/16/1991

Profile Information

  • Gender Female
  • Location Texas
  • Interests running, swimming, reading, television (Sherlock, Dr. Who, Supernatural, New Girl, LOST, PRETTY LITTLE LIARS!, etc.), animals, school

ezuber's Activity

  1. ezuber added a post in a topic Accutane Hairloss Recovery + My Story   

    I know how you feel. I don't really know the reason behind mine as well. I have been having just high DHEAS. Still waiting on my progesterone test. Hang in there!
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  2. ezuber added a topic in Prescription acne medications   

    Accutane Hairloss Recovery + My Story
    I wanted to make a generally positive post on this website because when I was having bad anxiety over my acne I scoured this website looking for someone exactly like me. I looked for some post that would lift my spirits and make it easier to deal with. I didn't really find anything like that so I wanted to help anyone who might find hope in this.

    First, I want to talk about hair loss and my recovery. I took Accutane the first time when I was in high school. I lived overseas in Malaysia with my parents so there were less restrictions on the drug in that country. I did not have to do iPledge and my doctor did not really explain to me any side effects of the drug. He didn't even tell me to be abstinent or to use protection when having sex. Luckily I wasn't having any sex. I took the drug (at a low dose) for about 6 months and my acne did clear really slowly and I only had chapped lips and one nosebleed. I didn't even take the drug every day because a lot of the times I didn't care or just forgot. I then started college with clear skin and this lasted for about my first 6 months of college. After that, my acne slowly started coming back.

    I went to a dermatologist in America while in college and he put me on really good antibiotics and this kept me pretty clear for about a year and a half. I tried birth control in combo with the antibiotic for about 3 months in the middle, but ultimately I thought the antibiotic was enough and didn't care to be on BC. However, the dermatologist wanted me to try other antibiotics after the year and a half so my acne started getting worse because they did not respond as well to the new antibiotics.

    At one Christmas break my face just like exploded with really bad acne, especially on my chin like under my jaw where no one could really see it. But it really bothered me and I was starting to have anxiety attacks about it (but I've always been prone to anxiety). So I freaked out and tried to see my derm as soon as possible to get me on Accutane. It had worked before so I didn't see a problem. However, I started researching it more on the internet and realized how scary it is, so then the whole time I was wrestling with myself if I should even go through with it or not.

    So then I started Accutane after doing the whole iPledge thing and waiting 30 days. I only took Accutane for 11 days and I started losing my hair!! At the same time I was on Spironolactone 100 mg and Diane 35 BC. I don't exactly know what made my hair fall out. All of those medications I was on have the side effect of temporary (or permanent in the case of Accutane) hair loss. Plus, anxiety can cause hair loss. I had already had one hair loss episode my freshman year of college when my parents got divorced and I wasn't eating right. I lost my hair for a good 5 or 6 months and then it slowly started coming back to normal after about a full year of regrowth. So obviously I stopped every single medication I was on and started antibiotics again and hoped for my hair to stop falling.

    At the same time that my hair started falling, my scalp was SUPER inflamed, like I couldn't even sit there and do my homework and concentrate because my scalp was on FIRE. I think this may have been what caused my hair loss, but I am still not entirely sure. Again, there was about five different things going on in my life that could've caused the hair loss or it could've just been the combination of them all. I don't know.

    I am almost 4 months after stopping accutane and my hairloss has really slowed down and I hope it never comes back. I have been running, eating healthy, and just trying to relax. I do stuff for myself that makes me happy like reading good books, seeing my family, and watching good TV shows. This is the best stuff you can do for hairloss. I don't think you should try to get caught up in the supplement game trying to take this and that to cure yourself. I made that mistake and it honestly did nothing. I tried Vitamin E, Taurine, TUDCA, Fish Oils, Biotin, Vit B12. I really just wasted my money on stupid stuff like this.

    So instead of reading the internet and trying to fix yourself, trust a doctor and get your HORMONES tested, especially if you are a female who has acne at an older age. I didn't start getting severe acne until age 17 which seemed odd to me, but I tried not to think about it. I am 21 now and I have mild scarring from all of this stuff I've tried and picking at my face. I wish I had tested my hormones sooner because I have a mild imbalance that is obviously causing my acne problems. I also have had problems with dark hair growth recently. So if you have anything like this, don't try to convince yourself it's normal like I did, because it's not!!

    After getting my hormones tested, cleaning up my diet, and reducing stress, I have really seen an improvement in my face. I still get some pretty bad ones about the time of my period, so I'm thinking of starting BC again, but I am really more worried about clearing up my scarring now.

    My message is this: don't freak out about acne, no one cares about it more than you. Don't freak out about hair loss, it will only make it last longer/get worse. If you have hormonal/adult acne, get your hormones tested by an endocrinologist or a gynecologist and don't take no for an answer. DON'T ever take Accutane because it is horrible for your body. I personally have had horrible luck talking to male gynecologists. No offense, but you really don't understand what it's like to be a girl unless you're actually a girl. So I went and talked to a FEMALE endocrinologist and felt WORLDS better about my health.

    I talked to my dermatologist about the hair and the acne and you'd think he'd be smart enough to tell me to go to an endocrinologist, but he wasn't. So take your health into your own hands. And don't let those Accutane success stories convince you that it's safe. Those people are just stupid lucky and they may have worse problems than acne later. I have read so many posts that said I wish I still had acne compared to what is going on with my body now.
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  3. ezuber added a post in a topic Repairing the long-term damage from Accutane   

    Also, could you recommend a better natural shampoo then?

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  4. ezuber added a post in a topic Repairing the long-term damage from Accutane   

    Yes I had my thyroid tested and I got it tested again at the doctor this week. Still haven't seen the results from the retest. Also, no, I was no anemic. I had it tested twice, once when I was giving blood and once when I decided to ask a doctor myself.
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  5. ezuber added a post in a topic Repairing the long-term damage from Accutane   

    Ok thank you very much. I do have dandruff problems that I've had since before Accutane. Accutane pretty much just made it worse. And the day that my scalp was most on fire and flaking (day 11 of Accutane aka when I quit) was when the hair shed started. So perphaps you are correct. I think the dandruff is caused by my high male hormones however, especially since I've had it as long as I can remember. After the Accutane, I tried using my steroid shampoo and an old Stieprox shampoo I had before the Accutane and those have seemed to help. I also tried hemp oil and coconut oil. I don't think those made the dandruff any worse, I think they actually calmed my scalp down, at least temporarily. I have a Dr. Brommer's natural shamppo as well, although I've been hesitating to use it. I don't know why my eyebrows would be falling out tho....I don't have any itchiness or flaking in those. I think the taurine has been helping me so far. It has helped my digestion. How did you know those supplements were affecting you negatively? Have you been getting your hormones retested regularly? I know I've had this high hormone problem before I took Accutane due to other symptoms I've had for a couple of years that I'll spare the details of. But have you known you had PCOS before you took Accutane or are you afraid that Accutane gave you PCOS?? I was unsure from your postings.

    Oh, also, if the EPO was helping your hormonal acne, why did you decide to quit it??
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  6. ezuber added a post in a topic Repairing the long-term damage from Accutane   

    @ sbowlchica or anyone else:

    I took Accutane about three months ago for only 11 days. I stopped immediately because of the changes in my hair - changes in hair texture and increased hair shed. My hair texture improved rapidly after stopping, but my hair shed continues to this day, three months after stopping. I have been taking supplements to help such as vit B12 and biotin almost immediately after I quit Accutane. I recently have been experimenting with other things such as Taurine, TUDCA, vit D3, and fish oils. I mainly addressed this to sbowlchica because I have almost the exact same DHEAS levels as you - last time I was tested about a month ago it was 443. My testerone was slightly high as well, although I get regular periods, so I am unsure that I have PCOS - still waiting for results to come in next week from a hormone "restest" with a different doctor. I have recently noticed eyebrow shed and possibly eyelash shed. I was just wondering what supplements you avoided due to your high hormone levels and what ones you noticed helped with your hair.

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