• Content count

  • Joined

  • Last visited

Community Reputation

10 Neutral

1 Follower

About Evelyn25

  • Rank
    New Member
  • Birthday 04/29/1986

Profile Information

  • Gender Female
  • Location London
  • Interests nutrition, science, herbs, film, music

Evelyn25's Activity

  1. Evelyn25 added a post in a topic Repairing the long-term damage from Accutane   

    Westersyl I know exactly what you mean. I can't drink anymore either. Even small amount of alcohol makes me feel like I've drunk loads and next day is a real struggle. All my side effect exacerbate as well after few drinks. My hair shed more, skin gets really dry (which is normal when you drink a lot, cause alco is a diuretic, but why it happens after one glass of wine, heavens know) and I feel extremely tired. It seems like my liver can handle alcohol at all. I know accutane totally destroyed it and nothing really helps. Just to let you know I took accutane 4 years ago for 6 months. I've done few liver flushes and general detoxes since, I eat healthy drink tons of water, but all my symptoms only got worse over time. It is what it is . Don't have the energy to fight it anymore and pretend I'm fine when really I feel exhausted.
    • 0
  2. Evelyn25 added a post in a topic Repairing the long-term damage from Accutane   

    GOOD. Go and work on your social skills.
    • 2
  3. Evelyn25 added a post in a topic Repairing the long-term damage from Accutane   

    Yeah i guess the only way to deal with sad people like camaroz is to ignore them. Shame I can't focus on reading what other people have to say because of his useless posts popping out on every page. Anyway, seems you are very cleaver camaroz or you trying to convince yourself you are, but in terms of giving any sort of advice you are useless. All you do is showing off with fancy words that don't offer anything to anyone. Bet, no one even reads it. I definitely won't. Won't reply to any of your childish posts, either.
    • 2
  4. Evelyn25 added a post in a topic Repairing the long-term damage from Accutane   

    Camaroz28 it seems like you have some kind of problem with yourself. No one ever argued before you came a long. Just shut up and disappear!!!! What is your problem, attacking people?? We are here to help each other, and you are the only useless person here so maybe go away if you have nothing better so say. You are picking at gladiatoro all the time and it is just childish, are you jealous or something?? Grow up or find another forum
    • 3
  5. Evelyn25 added a post in a topic Repairing the long-term damage from Accutane   

    Live to regret when you are describing your symptoms it sound exactly as what has happened to me. Every single symptom you are describing is what I am struggling with every day. I used to do little bit of modelling too. I lost 70% of my hair and it falls out every day, it also changed its texture and colour. My skin is fucked. The worst thing is I still have acne which is bizarre as my skin is so dry where is it coming from. It scars so easily and my whole back is covered in spots top to bottom. I never even had back acne before accutane.
    Joseph I don't think dry skin and hair loss is caused by an autoimmune response. Accutane affects hair follicles and sebaceous glands. I closes it up, that's it. I don't want to be horrible but i don't think that's reversible. That thought is killing me every day.
    • 0
  6. Evelyn25 added a post in a topic Repairing the long-term damage from Accutane   

    I have a question to all the ladies here who suffer with hair loss and acne. Did you try to get rid of your acne post accutane with use of contraceptive pill? It seems that every time i tried a pill my hair loss was getting much worse and scalp itches like crazy.
    After accutane my skin scars so easily I just want to get rid of that f..ing spots. my acne is worse now then before i took that poison and add dry skin to the picture. I read the estrogen prolongs hair cycle so it should really get better on the pill but it doesn't (. If any of you use a pill and it helps can you tell me which one you take and the amount of estrogen and type of progesterone in it. Much appreciated. Thanks
    • 0
  7. Evelyn25 added a post in a topic Repairing the long-term damage from Accutane   

    I totally agree with camaroz28. Live to regret your looks are NOT gone. Trust me I am a girl i know what I'm saying.
    I think is seems a little bit worse in our heads (mine as well) then it really is. I know how you feel. I'm loosing so much hair every day
    is unbelievable I'm not bald yet. My skin is very dry, I have acne on my back, which I didn't even have before accutane (what the f**)
    Nothing works, but the more I worry about it the worse I feel. Furthermore on the pictures before accutane you are wearing some make up
    which you don't have on the after pictures. I think you are beautiful and I love your style. You still have some hair left, mine are short and dry now, and there is nothing I can do to style it.
    I have just finished my first liver flush, feel like shit today, I don't know if it's because of all the toxins getting released or what, but I'm planning to do next ones. We will see how it works. I thinks drugs and supplements are just putting more pressure on our livers.
    Please hold on, you are not alone, I know this doesn't help with how you are feeling right now, but at least we can all try to find some sort of solution one day. If only I could live in Australia, I think sun would help my mood a great deal.
    • 2
  8. Evelyn25 added a post in a topic Repairing the long-term damage from Accutane   

    Believe, you said that the only thing that has truly helped was liver flushing. How many did you do? I am preparing for the liver flush and I read you have to continue till all stones are out. Did you pass any stones? Did your side effects improved? If you have good experience with liver flush, I am just wondering to what degree did it help and for how long. Sorry I am asking all these questions but to me liver flush sounds like only cure, it's the only thing that makes sense. Accutane is fat soluble so it needs bile for absorption, i think some of it could be still lodged with stones in our livers. Any info appreciated. thanx
    • 0
  9. Evelyn25 added a post in a topic Repairing the long-term damage from Accutane   

    Life to regret, my skin and hair never improved. I was thinking of a wig many times. I also cut my hair short so it doesn't look that bad when I wash it. The only good news is some of it must be growing back as I would be bald by now. It's really weird, feels like the hair growth cycle is shortened. It falls out and some of it grows back, than it falls out again in clumps.
    Although I am not keen on supplements try high dose of hyaluronic acid ( at least 100-200 mg a day), that should help with skin dryness and tightness. Someone suggested SSRI antidepressants. I would not recommend that. Almost all antidepressants have hair loss listed as one of the side effects. I know what you going through right know is really scary, but try to focus on improving the symptoms rather than looking for solutions as that will just stress you out even more. Consider liver and colon flush. I've heard peoples symptoms improving a lot on these.
    • 0
  10. Evelyn25 added a post in a topic Repairing the long-term damage from Accutane   

    Live to regret, I know exactly how you feel. It's been 4 years since I stopped accutane. I didn't have many side effects while on it. Just expected dry skin, lips. Hair loss developed during 4th month. It started shedding, itchy scalp, change in texture, even colour became so washed out and shine totally disappeared. I continued for another 2 months as my dermo told me it will stop after treatment. Since then I spent hundreds of pounds on shampoos, treatments ,private visits and tests. My hair never stopped to fall out. I shed loads every day in the shower, I stopped brushing it as it was making me hysterical seeing my once beautiful, dark, wavy hair, come out in clumps. Itching makes it even worse, as it constantly reminds me of what is happening to my hair. My skin also looks horrible. Acne came back, I also developed severe back acne which I never had before. My skin started to wrinkle progressively since the treatment. My confidence is no existent. I tried many supplements and diets with zero effect. I turned myself into zombie mode, trying to survive each day and not to think how I used to look and what I did to myself just because of some moderate acne. I am not even mentioning joint pain, fatigue and anxiety. My only advice is to try not to think about it to much. I spent days on research and trust me I do understand scientific writing. In my opinion accutane done something to our bodies which is not reversible,and certain symptoms lessen with time, some appear over time out of nowhere. I don't think synthetic supplements are going to help. They just put pressure on our livers furthermore.
    If you want to do anything to ease your symptoms colon and liver flushes could improve how you feel and make some of the symptoms more manageable.
    At the moment I stopped trying to understand what is happening to me. No one will understand how we feel, as much as they try. Hold on and remember you are not alone in this.
    • 1
  11. Evelyn25 added a post in a topic Repairing the long-term damage from Accutane   

    Girlie, I've tried all the oils in the world, all vits, herbs, etc. I think accutane work differently on everyone. My sister took it twice and her scalp and hair is normal as it was before the treatment. I've been struggling for 3.5 years now. Nothing works, so I guess it is not going to improve (.
    Was reading some research about psoriasis today and found some evidence that apparently l-carnitine and niacin help with retinoids induced side effects. Whatever... Tired of trying supplements and spending money on things that don't do anything, may as well spend it in the pub hehe
    • 0
  12. Evelyn25 added a post in a topic Repairing the long-term damage from Accutane   

    Was trying to stay positive for the past few days. I'm kinda forcing my thoughts away from accutane but my itchy scalp is a constant
    reminder of what is happening. I also developed red scaly patches on my neck that look like psoriasis (what the ..???). Was thinking of buying some good strength fish oil, but than I researched vit A content in fish oil and that's a big no no for us. Also my hair continue to shed like crazy. Is it my impression or it actually gets worse with time????????
    For anyone who suffers with depression/anxiety check out ALPHA STIM. Don't know if u heard about this device but psychotherapist at my uni demonstrated it to me on some stress free lessons last year and I bought it few months ago. It is quite expensive but at least it's natural and can be used for the rest of your life. It works by stimulating alpha waves in your brain which are responsible for concentration, and induce state of relaxation. It also help with insomnia. It takes about two weeks of 15 min. sessions a day to really notice the effect but that's better than taking SSRI or similar shit, trust me I've been there. I also take Siberian ginseng which is supposed to help with adrenal fatigue, but I'm just starting with that.
    Other than that I feel crap today, ugly, depressed, achy and don't want to live my house. God what happened to me I could party day and night before accutane, now I feel like 80 year old. But hey, enough was said, trying to focus on how to improve my health ( and my hair (
    so scared I will end up bald ) and increase my energy.
    • 0
  13. Evelyn25 added a post in a topic Repairing the long-term damage from Accutane   

    Hi, I've been reading up those posts for a while and decided to share my story. I took accutane roaccutane (whatever they call this shit in England) back in 2009. I don't remember exactly what was the dose but i think it was 60 mg I am quite skinny so I don't think it was more than that. Yes sure I had acne like all of as. Was it bad? Not bad enough to be prescribed this drug, I would say common acne which could maybe be controled with diffrent measures. I did try so many things over the years bc pills, antibiotics, creams blah blah, I was fed up.
    My sister who suffered with severe cystic acne told me about accutane. I couldnt belive it could be this simple, pop few pills and your shity skin will be beautiful forever, yoop yoop. So I went to dermatologist and got my prescription, boy that was my mistake.
    So during the tratment it was kinda ok, just usuall dry lips, dry scalp, nothing major. After about 4th month I started losing hair.
    As u can expect my derma told me it will go after treatment. It didnt!!! It was three years ago. I also developed sebborheic dermatitis on my scalp and I just cant fucking belive it! The way I loose my hair is really strange, it comes and goes in cycles. I am sheddding massive amounts than it grows and few weeks later falls out again. Latley it just got worse. My scalp itches like hell and there is always some scales and dundruff present even though i wash my hair every day. I am 25 and my once beautiful wavy hair is thin and frizzy. I lost all my confidence, just cant belive it and feel like crying every day.
    Other symptoms I developed is extreme joint pain, fatigue and loss of libido. Joint pain though is a killer. My hips and lower back hurt every day and I struggle at work so much I just wana cry sometimes.
    People I spoke to about this dont belive me or just dont wana listen. Ive been to numerous doctors, dermatologists etc., now I reached the point i dont do anything. I know what happened to me is accutane, I know basis of how it works and what it does to cells, liver, joints and muscles. I dont know how to reverse it.
    Things that I can share, which helped me are
    celadrin, glucosamine and hylauronic acid for joints
    For hair I tried everything, vits, herbs, shampoos, nothing works so maybe wig in the future. Just so unhappy at the moment i cant thing or enjoy anything. By the way my acne came back, only is on my back now, so yep i have acne and lots of diffrent crap, so thanks roche hope u fucking choke. Happy I found this forum though and thanks Indigo for your videos you made my day so many times.
    I will continue my pointless reaserch and keep u posted. Good luck everyone
    • 0