1259 replies to this topic

[CHIRON]

Hi y'all! I have been taking diatomaceous earth (food grade) which has helped my digestion quite ALOT. It is apparently wonderful for hair, nails and bones, as well as for killing any parasites in the gut. Also, it is plentiful and inexpensive which is nice to see in a supplement for a change. Because it is mostly silica with smaller amounts of magnesium and others, it provides the body with usable calcium as opposed to "calcium" supplements which actually can deplete bone mineral calcium somehow from what I have heard from specialists. These diatoms that the "earth" is made up of are really beautiful algae with hard exoskeletons in a fossilized form which acts like glass (silica is what glass is made from). As they pass through the colon, they cleans the matter stuck there as well as shred parasites of all kinds, while not harming the mucosal lining of the human body. Still supplementing with fermented cod liver oil and amino acids, but feeling much better overall since cutting wheat, sugar and dairy out of my diet for the most part. Having some trouble sticking with it, but am trying to eliminate candida and it's working. The diatomaceous earth builds strong bones and joints by providing collagen to bones and hair (which then grows faster) and my local nutritionist swears by it for her dog walks which are no longer painful at all, whereas they used to be before taking the d.e. with water.

I have also found much peace in reading about the spiritual realm through the tens of thousands of accounts by near-death experiencers. These are people who were in terrible car wrecks, suffered illness and disease beyond what any of us have, etc. and have returned to tell of their almost always positive and usually uncannily similar experiences of "dying" in a clinical, no-bull patty sense. They almost always tell a story upon their return of a love so pure, and a feeling of joy so warm that every one of them wants to stay and has to be literally pushed back in many cases into their bodily "reality". So if that is the creative force that we must all return to, it takes the edge off and puts things into a fresh perspective for me a little bit. And suicide is still not cool though ) Sorry if this is "out there" for some. Check out http://www.near-death.com/ if interested. The case of Pam Reynolds is the most well documented in a clinical setting. It's a bit off topic, but I thought some might be curious...

Besides that, I am trying to psychologically accept all aspects of my life and that anxiety is okay in small amounts. It is essential as is every other "negative" aspect of our lives. For every situation and scary emotion, there is an opposite that if recognized then along with the "bad" emotion, can complete a picture that recognizes the fullness of experience and can create in us a sense of calm and appreciation for life. For instance, anxiety about jealousy...so there is jealousy but there is then also security sometimes. So there is illness. But also there is health. See what I am saying? Always there are pairs, not one single emotion to become trapped in. I must sound a bit weird, but I have been reading a lot of freud, so there I go. Before I was blessed with the gift of Isotretinoin therapy (ahem), I was an award-winning art student. After taking the shite, I almost completely lost interest in painting. I have to now force myself to approach the a blank canvas with faith instead of the blind confidence I experienced as a student, pre-Accutane. Nothing to do but get going and take courage in the face of adversity when anxiety arises. "What's the alternative?" my aunt always says.

I apologize for deviating from strictly attacking the Isotrtinoin problem from a biomedical standpoint. Peace y'all...

[humanstate]

So I talked to my dad about my accutane health stuff today and it went well. He listened and tried to wrap his head around everything. He doesn't understand why I have all these symptoms but when I get a blood test everything is fine. He also doesnt agree with my complete distrust of the medical bussiness (I will call it bussiness now). He says it's too extreme. He had me look up some accutane law suit stuff, I called one of the places and talked to a very nice lady. She was sympathetic and understood my situation. The feeling of someone agreeing or even acknowledging what I'm going through was unreal... I can't even put into words my emotions

I told her my symptoms and how my doctors don't listen/don't think it's accutane related and she said that happenes often. She recommended getting a colonoscopy to see if I have crohns or another ibd.

I would hate to have to do that but I will if nessecary.

I told my dad about Dr. Snow and he felt uneasy about how the whole thing with him works(so do I). Everything Dr. Snow says makes sense tho... I was on antibiotics for years before accutane. I feel like it has to be digestion related.

I don't think it stays in your system forever... I think it does for maybe a couple years or until you sweat it out. I think by then there has been significant damage done to your body and your body isn't able to repair itself.

[tim12]

^

humanstate, on 21 May 2012 - 10:28 PM, said:

So I talked to my dad about my accutane health stuff today and it went well. He listened and tried to wrap his head around everything. He doesn't understand why I have all these symptoms but when I get a blood test everything is fine. He also doesnt agree with my complete distrust of the medical bussiness (I will call it bussiness now). He says it's too extreme. He had me look up some accutane law suit stuff, I called one of the places and talked to a very nice lady. She was sympathetic and understood my situation. The feeling of someone agreeing or even acknowledging what I'm going through was unreal... I can't even put into words my emotions

I told her my symptoms and how my doctors don't listen/don't think it's accutane related and she said that happenes often. She recommended getting a colonoscopy to see if I have crohns or another ibd.

I would hate to have to do that but I will if nessecary.

I told my dad about Dr. Snow and he felt uneasy about how the whole thing with him works(so do I). Everything Dr. Snow says makes sense tho... I was on antibiotics for years before accutane. I feel like it has to be digestion related.

I don't think it stays in your system forever... I think it does for maybe a couple years or until you sweat it out. I think by then there has been significant damage done to your body and your body isn't able to repair itself.

I can't seem to find your specific posts, but who is Dr.Snow? I'm more than willing to bet that as far as information, you can get all of it from the nutrition section. It sounds like from what you're describing he's going for a sort of intestinal permeability/gut repair/brain-gut connection thing? What's your diet and lifestyle like? How's sleep, stress, social interaction, sunlight, exercise, and things of that sort? Do you practice some sort of heightened self awareness techniques, positive thinking, meditation, or anything like that? Journaling?

I only went on tane for about a month, things didn't go so well for about 4 months after. A lot of it, and let me know if I'm jumping the gun, is the beating up of oneself for a choice that may have heavily changed the way you have to live. However, once you can come to terms with it, and believe in the good amount of data and science as well as mechanistic underpinnings to disease that we have a decent enough understanding of when it comes to implementing the most depth and breadth when it comes to treating these issues, putting your best mindset forward, things will slowly, but surely improve. You find a new normal. I had to get used to drinking more water than I formerly did, tinnitus, and the now long gone side effects of body pain, depression, anxiety, migraines, and even pseudotumorcerebri, one of the more serious side effects for which I was pulled. Pretty much anything health related has a mental component, so the best thing you can do right now is working towards a positive mindset - one that believes in beating this. And truly, believe that you can.

[JosephBuchignani]

@Humanstate I'm back to 100% today after resuming sunlight exposure yesterday.

@Chiron Yes, inner peace is extremely important for my coping regimine, since stress is a trigger.

More info on Dr. Snow here: http://holisticgastroenterology.com/

[IndigoRush]

'The Candida Cure' is a very good book.
I really need some money, but my next move will be following the protocol and eating really good foods.
Not sure if anyone here had tried it, but I don't think it'll work with diet alone.
You also have to kill of the yeast overgrowth and build up the gastrointestinal tract with plenty of good bacteria.
May not be easy, but at least it's not fasting. You still get to eat.
Some of the symptoms listed in the book are interesting.
It mentions Hypothyroidism and lack of sexual desire/pleasure.
I'd bet my life that I have candida to some degree... I just have to hope it holds some of the big answers.

As soon as I have income, I'll get the Candida Clear product by NOW foods, and stock up on good food.
Don't like the idea of one piece of fruit maximum, per day, though!

[oli girl]

Indigo - Is the documentry going to aired on the BBC? I thought I read that on one of your threads from pg 62. If soo most of us in the U.S. get the BBC channel. Also, many other documentries made in the U.K., France, Germany & Ireland were put up on You Tube sooo let us know.

I hope everyoe is doing well, I'd update ya'll, but really don't feel like typing.

[IndigoRush]

oli girl, on 22 May 2012 - 11:20 AM, said:

Indigo - Is the documentry going to aired on the BBC? I thought I read that on one of your threads from pg 62. If soo most of us in the U.S. get the BBC channel. Also, many other documentries made in the U.K., France, Germany & Ireland were put up on You Tube sooo let us know.

I hope everyoe is doing well, I'd update ya'll, but really don't feel like typing.

Cool..
I heard you have BBC America, but wasn't sure if it aired UK shows...
It's meant to be on BBC3 in November.
I'll let you know the official date etc, when I can.

[humanstate]

tim12, on 21 May 2012 - 10:39 PM, said:

^

humanstate, on 21 May 2012 - 10:28 PM, said:

So I talked to my dad about my accutane health stuff today and it went well. He listened and tried to wrap his head around everything. He doesn't understand why I have all these symptoms but when I get a blood test everything is fine. He also doesnt agree with my complete distrust of the medical bussiness (I will call it bussiness now). He says it's too extreme. He had me look up some accutane law suit stuff, I called one of the places and talked to a very nice lady. She was sympathetic and understood my situation. The feeling of someone agreeing or even acknowledging what I'm going through was unreal... I can't even put into words my emotions

I told her my symptoms and how my doctors don't listen/don't think it's accutane related and she said that happenes often. She recommended getting a colonoscopy to see if I have crohns or another ibd.

I would hate to have to do that but I will if nessecary.

I told my dad about Dr. Snow and he felt uneasy about how the whole thing with him works(so do I). Everything Dr. Snow says makes sense tho... I was on antibiotics for years before accutane. I feel like it has to be digestion related.

I don't think it stays in your system forever... I think it does for maybe a couple years or until you sweat it out. I think by then there has been significant damage done to your body and your body isn't able to repair itself.

I can't seem to find your specific posts, but who is Dr.Snow? I'm more than willing to bet that as far as information, you can get all of it from the nutrition section. It sounds like from what you're describing he's going for a sort of intestinal permeability/gut repair/brain-gut connection thing? What's your diet and lifestyle like? How's sleep, stress, social interaction, sunlight, exercise, and things of that sort? Do you practice some sort of heightened self awareness techniques, positive thinking, meditation, or anything like that? Journaling?

I only went on tane for about a month, things didn't go so well for about 4 months after. A lot of it, and let me know if I'm jumping the gun, is the beating up of oneself for a choice that may have heavily changed the way you have to live. However, once you can come to terms with it, and believe in the good amount of data and science as well as mechanistic underpinnings to disease that we have a decent enough understanding of when it comes to implementing the most depth and breadth when it comes to treating these issues, putting your best mindset forward, things will slowly, but surely improve. You find a new normal. I had to get used to drinking more water than I formerly did, tinnitus, and the now long gone side effects of body pain, depression, anxiety, migraines, and even pseudotumorcerebri, one of the more serious side effects for which I was pulled. Pretty much anything health related has a mental component, so the best thing you can do right now is working towards a positive mindset - one that believes in beating this. And truly, believe that you can.

I believe diet does play a big role in overall health.
But if I'm supposed to only eat raw foods for the rest of my life have I been healed? I don't think going raw or doing something like that is for me. Not that I wouldn't go Raw or follow a healthy diet but I don't think it's the right corse of treatment...

Idk guys I dont think going raw or doing the candida diet is the answer. It may help but it won't get you back 100%

I've been getting stomach pains the last few days, in addition to my intestinal pain...

What do people know about candida over growth?

Are there any of our symptoms related to that?

[batman2]

Hello fellow sufferers.

Sometimes it strikes me as weird, scary and counterproductive to be searching for accutane side effects remedies, by exploring various supplements etc. I guess keeping a good diet, living a healthy life, sleep etc is always the basic foundation to be sought.

Anyways I have been following this forum since it started, after having suffered multiple long term side effects.

I have tried most supplements sometimes reccomended here, to no avail...

Not too long ago though someone here mentioned trying Creatine, as it apparently increases testosterone and IGF-1 levels slightly. I have been taking this 100% pure (and most likely harmless (I hope) ) creatine, which is a common weight lifters supplement for muschle energy.

Anyways, just thought i'd mention that among all the supplements i have tried, it is by far the single one that has worked best for me. Of course things such as moderate back ache is still present today, but energy, libido, immune system, among other things all seem to have improved.

Maybe it's just the passing of time that is healing me, it's been 4 years since my last accutane episode now.

But maybe the creatine (along with some 3 sesssions of workout at the gym/week) really does help with accutane side effects.

Really guys, all the best, good luck to all of you. But perhaps it's worth a try with creatine, it's a cheap and common supplement (you can get it at any protein shake store : )

Let me know if this does wonders for anyone else.

It's also good to wake up once again, with morning boners...

[Lukez]

Yeah, I've mentioned creatine before. It's a good one.

I've tried candida cures. There's some drug you can get that wipes out all candida in your system, then you can re-populate with good bacteria. No diff whatsoever.

Quote

But if I'm supposed to only eat raw foods for the rest of my life have I been healed?

xactly.

What a lot of garbage out there, preying on the sick for money. It's time for a great cleanse alright, and I don't mean the health food store kind.

[jonesbev]

veggies really does it again!! yey!!! a healthy life can give you glowing skin

[karansinghal]

For back ache try boswellia serrata (indian herbal medicine) good for all types of pain .
It doesn't have any side effects, try it.
It cured my all type of pains

Edited by karansinghal, Yesterday, 05:28 AM.

[JosephBuchignani]

I discovered a new rule: No napping.

I have to consolidate my sleep into one block.

Your body can only sustain muscle sleep for x hours. Due to the way the REM cyclical nightly pattern ramps up and down over a longer period, this means that breaking up muscle sleep leads to insufficient brain sleep, and a spike in stress.

So if you break up your sleep blocks, your muscles get enough rest, but your nervous system doesn't.

Polyphasics pass through an adjustment period and overcome this, but frankly an "adjustment period" would destroy my constitution long before I reached adaptation.

[tim12]

humanstate, on 22 May 2012 - 05:16 PM, said:

tim12, on 21 May 2012 - 10:39 PM, said:

^

humanstate, on 21 May 2012 - 10:28 PM, said:

So I talked to my dad about my accutane health stuff today and it went well. He listened and tried to wrap his head around everything. He doesn't understand why I have all these symptoms but when I get a blood test everything is fine. He also doesnt agree with my complete distrust of the medical bussiness (I will call it bussiness now). He says it's too extreme. He had me look up some accutane law suit stuff, I called one of the places and talked to a very nice lady. She was sympathetic and understood my situation. The feeling of someone agreeing or even acknowledging what I'm going through was unreal... I can't even put into words my emotions

I told her my symptoms and how my doctors don't listen/don't think it's accutane related and she said that happenes often. She recommended getting a colonoscopy to see if I have crohns or another ibd.

I would hate to have to do that but I will if nessecary.

I told my dad about Dr. Snow and he felt uneasy about how the whole thing with him works(so do I). Everything Dr. Snow says makes sense tho... I was on antibiotics for years before accutane. I feel like it has to be digestion related.

I don't think it stays in your system forever... I think it does for maybe a couple years or until you sweat it out. I think by then there has been significant damage done to your body and your body isn't able to repair itself.

I can't seem to find your specific posts, but who is Dr.Snow? I'm more than willing to bet that as far as information, you can get all of it from the nutrition section. It sounds like from what you're describing he's going for a sort of intestinal permeability/gut repair/brain-gut connection thing? What's your diet and lifestyle like? How's sleep, stress, social interaction, sunlight, exercise, and things of that sort? Do you practice some sort of heightened self awareness techniques, positive thinking, meditation, or anything like that? Journaling?

I only went on tane for about a month, things didn't go so well for about 4 months after. A lot of it, and let me know if I'm jumping the gun, is the beating up of oneself for a choice that may have heavily changed the way you have to live. However, once you can come to terms with it, and believe in the good amount of data and science as well as mechanistic underpinnings to disease that we have a decent enough understanding of when it comes to implementing the most depth and breadth when it comes to treating these issues, putting your best mindset forward, things will slowly, but surely improve. You find a new normal. I had to get used to drinking more water than I formerly did, tinnitus, and the now long gone side effects of body pain, depression, anxiety, migraines, and even pseudotumorcerebri, one of the more serious side effects for which I was pulled. Pretty much anything health related has a mental component, so the best thing you can do right now is working towards a positive mindset - one that believes in beating this. And truly, believe that you can.

I believe diet does play a big role in overall health.
But if I'm supposed to only eat raw foods for the rest of my life have I been healed? I don't think going raw or doing something like that is for me. Not that I wouldn't go Raw or follow a healthy diet but I don't think it's the right corse of treatment...

Idk guys I dont think going raw or doing the candida diet is the answer. It may help but it won't get you back 100%

I've been getting stomach pains the last few days, in addition to my intestinal pain...

What do people know about candida over growth?

Are there any of our symptoms related to that?

Diet plays a huge role, yes! As do things like sleep, stress, exercise, socializing, relaxing, positive thinking, and a number of other things.

I can't seem to find much on Snow's protocol, but honestly imo the whole ALL raw food thing is a bit BS. Most foods are better digested when cooked, and you get better absorption of the nutritional content. Meats are best cooked rare to medium rare, and absorb better than overcooked and raw.

The thing is with things like Candida and a host of other (largely internet promoted) diseases is that they have a ton of overlapping symptoms with many diseases - how do you know which one is which? Is it a food intolerance? leaky gut? gut dysbiosis? A combination of things? The best thing you can do is a comprehensive regimen that addresses all of these things. Most naturopaths/doctors will put you on a similar regimen that has you basically doing a few things...

1. Avoid potential autoimmune foods (gluten, nightshades, dairy, seeds, legumes, nuts), as well as pro-inflammatory foods (rancid omega 6 PUFA vegetable oils, sugars [candida regimens pretty much cut out all sugars, as do many other regimens])

2. Nutrient dense diet of bioavailable nutrients & foods specifically for GI health, like fermented foods, aloe, bone broth, etc

3. Supplements such as Vitamin D3, and especially probiotics

4. Improve lifestyle habits like sleep, exercise, positive thinking, stress reduction, etc.

[Believe]

Exercise is crucial for me as well.

JosephBuchignani, on 23 May 2012 - 08:59 AM, said:

I discovered a new rule: No napping.

I have to consolidate my sleep into one block.

Your body can only sustain muscle sleep for x hours. Due to the way the REM cyclical nightly pattern ramps up and down over a longer period, this means that breaking up muscle sleep leads to insufficient brain sleep, and a spike in stress.

So if you break up your sleep blocks, your muscles get enough rest, but your nervous system doesn't.

Polyphasics pass through an adjustment period and overcome this, but frankly an "adjustment period" would destroy my constitution long before I reached adaptation.

Have you tried power napping, that is, taking naps of 20 to 30 minutes. Helps me a great deal to increase my productivity. Take a look at the following chart, it shows the average capacity/performance of humans throughout the day.



Guess when I take the nap, when I am least productive. Usually I have lunch at 1:30 in the afternoon, thereafter I take a quick nap and I am ready to go. It resets my brain.

Edited by Believe, Yesterday, 03:23 PM.

[JosephBuchignani]

Yes, that is a smart and correct idea, Believe. I was taking much longer, multi hour naps. But I'm just going to completely eliminate naps until I can stabilize it out.

[Believe]

For me napping for longer than 30 minutes kills it, no benefit at all, quite the opposite.

[JosephBuchignani]

Boom, back at 100% 1 day after cutting out naps. Woohoo!

Man, taking a nap made me physically ill. Nuts.

[tim12]

Believe, on 23 May 2012 - 03:54 PM, said:

For me napping for longer than 30 minutes kills it, no benefit at all, quite the opposite.

I'm the same way. I wake up feeling dehydrated and not so great overall, but under 30 and it's pretty refreshing.

[oli girl]

I can't remember who posted it on here recently, but I could of swore I saw someone is taking cod liver oil....Who ever that is please STOP NOW! Cod liver oil is full Vit A and not the Beta Form.... Just ask Patti Lodes, She felt good at first (she took accutane back in the 80's and we get together 1x a year) But then all hell broke loose......