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Jokerj's Hopeful Log


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#61 jokerj

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Posted 26 October 2008 - 11:02 AM

QUOTE (MisterTwo @ Oct 24 2008, 02:58 PM) <{POST_SNAPBACK}>
How come you cut out Retin-A?


i didnt! its in there!


but
you guys, i've been so scared lately that the reason i keep getting acne is just from putting all this shit on my face

maybe doing this all as a teen is gonna give me a greater risk for acne as an adult!

oh god

what if i am destroying myself?

#62 jokerj

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Posted 28 October 2008 - 09:25 PM

DAY 38

i was jsut looking at pics form about this time last year
i dunno if it was th emake up i was using, but i feel like my skin looked better then...
definatley not end of last year though

oh boy

had a cyst on my chest
but that went down
some new zits around lips (possibly my new gloss) and one on cheek, a few on chin, and some on neck
sighhh
thought i was doing better
what am i saying? this is better, just not as better as i thought!


also, staph infection is spreading on my lower chest upper stomach again
might have to go on a SECOND antibiotic for a while just to clear that up
sure my system will love that
ive been so depressed about my annoying body lately
its really taken a toll on me
and my doctors have no idea what the bumps on my legs are
they don't seem to be staph

been crying wuite a bit lately about my skin, mostly my persistant staph and these mysterious leg bumps, but the acne hasnt been helping
praying for better days, and thanking god for all of the loving people in my life on whom i can depend

#63 jokerj

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Posted 29 October 2008 - 10:30 PM

QUOTE (jokerj @ Oct 28 2008, 10:25 PM) <{POST_SNAPBACK}>
DAY 38

i was jsut looking at pics form about this time last year
i dunno if it was th emake up i was using, but i feel like my skin looked better then...
definatley not end of last year though

oh boy

had a cyst on my chest
but that went down
some new zits around lips (possibly my new gloss) and one on cheek, a few on chin, and some on neck
sighhh
thought i was doing better
what am i saying? this is better, just not as better as i thought!


also, staph infection is spreading on my lower chest upper stomach again
might have to go on a SECOND antibiotic for a while just to clear that up
sure my system will love that
ive been so depressed about my annoying body lately
its really taken a toll on me
and my doctors have no idea what the bumps on my legs are
they don't seem to be staph

been crying wuite a bit lately about my skin, mostly my persistant staph and these mysterious leg bumps, but the acne hasnt been helping
praying for better days, and thanking god for all of the loving people in my life on whom i can depend


still breaking out...


#64 jokerj

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Posted 30 October 2008 - 09:32 PM

even worse break-out-wise, but still nto horrific
staph infection on chest- not much better, but i don't think it's any worse
stopped retin-a last night and tonight to do some serious benzaclin/antibacterial action
and halloween is tomorrow! hope im a bit clearer by then :]

#65 jokerj

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Posted 02 November 2008 - 08:57 PM

DAY 42 ...i think... i feel as if i've lost track a bit, lol



break out is healing really well
a bit of peeling
turned out i didn't have staph at all, i had a gram negative bacteria giving me bumps
...thanks doctors... real helpful...
and now i'm breaking out slightly on my body (mostly right side of my ches tin little wittle zits that leave persistant red marks, and my shoulders, and one or two on my lower back which i haven't had in while, though those seem to be healing already [probably because i'm pretty much just leaving them alone)
and of course the bumps on my legs (some of which i attribute to eczema, i'm starting to realize)
and the bumps between my chest
and two ginormously inflamed bug-bites on my left arm, i think from halloween romping
btw i hope everyone's halloween was great! mine was pweeety scaaaawwwwiii
lol


i have this weird notion that the benzaclin clears me up realy nicely, but makes me break out right next to where i spot treat
but that may just be the p. acnes spreading normally?
who knows
i've been pretty great bout not picking lately, except for popping some ready zits and a bit of absent-mindedness here and there

:]
peace and love
pray for change this fourth

#66 Soapybubbles

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Posted 03 November 2008 - 09:11 PM

Hey jokerj!

Keep hanging in there!

It may seem to get bad and then good and then bad again, but I assure you there is a day when the good will prevail!

I've been pretty happy this past week (week 7 and now beginning of week 8), and I was going through a pretty tough time awhile ago. I'm keeping you in my thoughts!

I also saw that you were looking into the MAMA lotion. I just ordered some yesterday. When it comes in the mail I'll let you know what I think about it.

#67 jokerj

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Posted 04 November 2008 - 09:38 PM

QUOTE (Soapybubbles @ Nov 3 2008, 10:11 PM) <{POST_SNAPBACK}>
Hey jokerj!

Keep hanging in there!

It may seem to get bad and then good and then bad again, but I assure you there is a day when the good will prevail!

I've been pretty happy this past week (week 7 and now beginning of week 8), and I was going through a pretty tough time awhile ago. I'm keeping you in my thoughts!

I also saw that you were looking into the MAMA lotion. I just ordered some yesterday. When it comes in the mail I'll let you know what I think about it.


ok thank you so much! youre picture is so cute btw!!!


hmmm... i'm reconsidering the birthcontrol route again everyone... hmmm... ponder, ponder...
it seems better on my system than antibiotics, but i dunno
what does everyone feel is safer?
messing with my immune system or messing with my hormones?
i switch back and forth on my opinion

EDIT: p.s. praying for some real change in this country tonight, and remembering that there are bigger things out there than myself (or at least trying!!! ;])

#68 jokerj

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Posted 06 November 2008 - 09:49 PM

DAY 46
ok- SO MUCH TO TELL YOU GUYS!
and i need opinions PLEASE!!!

first of all, super high anxiety week

so i went to see another doctor who specializes in resistance to antibiotics because i began to develop strange bumps all over my stomach and chest these past few days
he said that it was folliculitis caused by bacteria, though he hypothosized this before even looking at me, just by listening to the resident there, so i was way skeptical
he gave me bactrim to take for 10 days, and i got special probiotics from the vitamin store to take while on them (if i have time ill tell you all a story about that later)
he said if this doesnt work then we could always try accutane which helps to clear up follicultis
he said that it was this amazing drug that gets a real bad rap for minor side effects, and very occasionally worse ones
again i was skeptical
i informed him of my eczema situation, and he agreed that accutane may cause that to worsen, but it would be nothing a little hydrocortisone cream and regular moisturizer couldn't fix right up
then the nice resident doctor took some cultures of some of the bumps on my back

he also said i didn't need to stop doxy, though right now i'm a bit worried that this stuff is the reason i'm getting folliculitis, which he agreed may be possible
he really seemed to be pushing the tane, though, and i don't feel right when doctors push any medication too much, nor do i like it when they assume what a condition is without first testing it out
harumphhh
i really need some opinions please

EDIT: by the way, my face is doing great! looked a bit sallow today, but otherwise just a tiny bit of dryness and a few small, persistant zits. WOOT! yay for retin-a and for clear skin. thank god i stuck this out!


thanks be to love
peace be to all

...and please let my hope not be in vain...

#69 fletch1978

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Posted 07 November 2008 - 01:17 AM

hey...ive been following your log and want to say that you're doing great. i'm glad you got the gram-negative thing dealt with...from what i understand, it can be a side effect of long term antibiotic use. as for the retin-a, it sounds like you are most likely through the worst part smile.gif for me, week 6 was probably the worst, and its been getting better and better since...no active spots at all. and it just seems to keep getting better smile.gif
i would recommend that if the doc is pushing accutane on you because of the folliculitis, that you should try stopping the doxy first (with your doctor's approval, of course) and seeing if that helps. if not, then you have a big decision to make...to 'tane or not to 'tane. on the bright side, at least you have a doctor willing to prescribe you accutane. it certainly has gotten a very bad rap, and i have taken 4 courses without any issues besides dry lips. just my experience of course...anyhow, congrats on the retin-a starting to clear you! wish you all the best!

#70 jokerj

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Posted 09 November 2008 - 06:50 PM

QUOTE (fletch1978 @ Nov 7 2008, 01:17 AM) <{POST_SNAPBACK}>
hey...ive been following your log and want to say that you're doing great. i'm glad you got the gram-negative thing dealt with...from what i understand, it can be a side effect of long term antibiotic use. as for the retin-a, it sounds like you are most likely through the worst part smile.gif for me, week 6 was probably the worst, and its been getting better and better since...no active spots at all. and it just seems to keep getting better smile.gif
i would recommend that if the doc is pushing accutane on you because of the folliculitis, that you should try stopping the doxy first (with your doctor's approval, of course) and seeing if that helps. if not, then you have a big decision to make...to 'tane or not to 'tane. on the bright side, at least you have a doctor willing to prescribe you accutane. it certainly has gotten a very bad rap, and i have taken 4 courses without any issues besides dry lips. just my experience of course...anyhow, congrats on the retin-a starting to clear you! wish you all the best!


thank you SO much for your support
i've been starting to worry that no one was reading this anymore... haha
i have some questions for you accutane-wise, if you have the time to answer them.

did you have body acne?
did you take any vitamins or anything with them?
what were your dosages like?
how long ago did you take them?


also, well, i don't have very dry skin and i sometimes get eczema. as someone who's taken accutane, what would your opinion be on taking it?

#71 fletch1978

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Posted 11 November 2008 - 04:09 PM

QUOTE (jokerj @ Nov 9 2008, 06:50 PM) <{POST_SNAPBACK}>
QUOTE (fletch1978 @ Nov 7 2008, 01:17 AM) <{POST_SNAPBACK}>
hey...ive been following your log and want to say that you're doing great. i'm glad you got the gram-negative thing dealt with...from what i understand, it can be a side effect of long term antibiotic use. as for the retin-a, it sounds like you are most likely through the worst part smile.gif for me, week 6 was probably the worst, and its been getting better and better since...no active spots at all. and it just seems to keep getting better smile.gif
i would recommend that if the doc is pushing accutane on you because of the folliculitis, that you should try stopping the doxy first (with your doctor's approval, of course) and seeing if that helps. if not, then you have a big decision to make...to 'tane or not to 'tane. on the bright side, at least you have a doctor willing to prescribe you accutane. it certainly has gotten a very bad rap, and i have taken 4 courses without any issues besides dry lips. just my experience of course...anyhow, congrats on the retin-a starting to clear you! wish you all the best!


thank you SO much for your support
i've been starting to worry that no one was reading this anymore... haha
i have some questions for you accutane-wise, if you have the time to answer them.

did you have body acne?
did you take any vitamins or anything with them?
what were your dosages like?
how long ago did you take them?


also, well, i don't have very dry skin and i sometimes get eczema. as someone who's taken accutane, what would your opinion be on taking it?

no problem on the support j...its what we're here for smile.gif
now about your accutane questions...yes, i had body acne, on my chest and back, with back being much worse than chest. before accutane i used to use a tanning booth to help hide the acne, and while it sort of worked, i now have freckles all over my back and some moles, so the UV damage is NOT the way to go!
my first course of accutane was , gosh, like 6 years ago. i way a bit less than 80kg, so my dose was average at 80mg/day, split into 40mg in the am and 40mg at night. during my first and second course i was a smoker, and i do believe that it affected the results. i never achieved complete clearing during the first 2 courses. in fact, i always gave up after 16 weeks because i was in such bad shape that i didn't want to take it anymore.
now, the 3rd and 4th times, i had quit smoking quite awhile before. i was nervous about trying again seeing as how the first 2 tries were a disaster, but to my surprise, i think i got maybe 2 big cysts during the IB stage, and from there on out it was crystal clear skin for the rest of the course. my blood panels were always normal, i felt fine, and all i had to deal with was SEVERE dry lips. the answer to that was aquaphor...it will be your best friend if you decide to take accutane smile.gif
the dosage for my 3rd course was the same as the first 2...80mg/day. but for my 4th course, the doc said he wanted to really kick the acne out for good by doing a long, high dose course. the plan was to start with month 1 at 40mg/day, month 2 80mg/day, month 3 120mg/day. months 4-7 160mg/day. now, i can say that at 160mg day, i was not pleased. yes, my skin was perfect (including body). but i was hurting from the side effects. my blood panels were all still ok, but my god was i tired, joint pain and not even aquaphor could help my poor lips. i stopped at month 5 because i simply could not put up with the dose, and lowered it to 40mg/day. i had so much leftover accutane that i stayed on 40mg/day for quite awhile and enjoyed perfect skin with virtually no side effects.
1 year after my last course, the oil came back, and along with it so did the breakouts. but nowhere near as bad as before, and as i can see now, controllable with topical meds.
for me, i think smoking and accutane together were a bad mix, but after quitting, accutane worked beautifully. would i do it again? yes, and this time i'd like to stay on a once weekly 40mg dose to maintain the results. but i'll cross that bridge if/when the retin-a fails.
and i was instructed to not take multi-vitamins or anything else with vitamin-a in it as this could worsen the side effects. i was scared of carrot juice while i was taking it! so i tried to eat healthy foods low in vitamin-a but high in other vits and minerals. it seemed to work just fine smile.gif
sorry for the ultra-super-mega long post sad.gif i hope i answered your questions though! let us know how the retin-a is coming along, and feel free to ask any more questions!

ps- i had an ex who took accutane and also suffered from occasional eczema. it made his eczema much much worse while on the drug. he was also calling me daily to ask if any side effects he was having were normal and whether or not i had them and what he should do about them. he had a rough time during his treatment, but other people ive know who have eczema and took accutane had no problems whatsoever. its all so up to the individual.

#72 jokerj

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Posted 14 November 2008 - 01:27 AM

thanks so much for the info fletch!

sorry guys i haven't been updating much this week as it is tonight was the opening night of my show 9whic went fabulously!)

i have zits on my back and chest right now, probably form all the stress, but they're relatively quite small, and i had a slight break out face-wise

the gram-negative folliculitis seems to be spreading quite rapidly despite the antibiotics and its been the major stressor in my life this past week even with the play
i'm just crossing my fingers through the second half of this course
and trying not to cry every night


god, just as one thing BEGINS to get under control
BAM


but hey, that's life for you


...break a leg...

#73 jokerj

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Posted 14 November 2008 - 06:14 PM

DAY 54

While the acne problem on my face is now incredibly minimal to the point where I'm ALMOST confident enough to go without makeup, new spots from the "gram-negative" folliculitis seem to be appearing every morning and night with out fail

also still breaking out on my body

ugh

btw, ive been taking some antibiotic-safe probiotics lately
also still taking garlic, fish oil, and calcium supp.'s intermittenly

#74 jokerj

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Posted 15 November 2008 - 01:34 AM

goddmn skin
why won't these antibiotics work on this "folliculitis" if thats what it is?!

#75 jokerj

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Posted 16 November 2008 - 03:32 AM

ok you guys
i finish my antibiotic course tomorrow and i'm still getting weird red splotches on my stomach
wtf

end of my play tonight
cast party was tonight
strike tomorrow
breaking out on cheeks and collar, and some cysts on my shoulders
thought i was done with that shit


ughhh
skin
just pllllease behave


if these stomach thingies don't go away i'm gonna take a pistol to that damned derm

#76 jokerj

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Posted 17 November 2008 - 08:41 PM

ok guys, can someone please help me decide on whether i should start bcps and slooowwwlllyyy wean off the doxy?
whats your opinion?
thanks

#77 jokerj

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Posted 20 November 2008 - 08:17 PM

QUOTE (jokerj @ Nov 17 2008, 09:41 PM) <{POST_SNAPBACK}>
ok guys, can someone please help me decide on whether i should start bcps and slooowwwlllyyy wean off the doxy?
whats your opinion?
thanks


DAY 60

knock on wood, but the skin on my face looks GREAT
no noticeable active pimples and marks are slowly healing
but it swings back and forth a bit
overall great though- just the tiniest bit of dryness but easily moisturized

as for my stomach-
today, the damn derm tells me- oh well maybe its just eczema!!! wtf
i'm so confused
it has seemed to go down quite a bit on the antibiotics, but then also now there are these tiny bumps that look like the start of the staph infection i had from before
oh god
not this all over again
im hydrcortisoning my stomach and antibacterial-geling the little bumps

oh lord please let this all clear up safely, effectively, and quickly!!!

back and chest- relatively great but there but still getting over breakouts there from alst week

also, i will be starting bcps soon and slowly weaning myself off of the doxy
my doctor thoguth this was a great idea, but, then again, wtf does he know?

#78 jokerj

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Posted 22 November 2008 - 03:49 PM

hi everyone
saw my regular doctor today to get some tests done
the eczema, or whatever it is, is now just some flat, faded red patches. hope they clear up even more!

had some blood tests drawn today, and my regular doc was not super pelased with me going on bcps
she prescibed me 50mg spiro to take instead for the 3 weeks until my period starts, and then to decide form there, so her we go with new meddies!

just a few tiny zits on face, thank gosh, and they went down significantly with some benzaclin
yayy
still breaking out on collarbone and such

been really dehydrated lately
trying to drink more water

love and peace
jokerj

EDIT: btw, lately i've been taking naturemade vitamin b stess complex in addition to fish oil, garlic, and probiotics (and calcium + vitamin d when i can)

#79 frustratedgirl

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Posted 22 November 2008 - 04:34 PM

Hi Joker

I also have the same bumps on my legs. They look like little blisters. My legs are modeled looking and dry. I also have acne looking stuff all over my neck which itches bad. You can read some of my previous posts and get a greater understanding of all I have been through with it. Mine started in August and is still going strong. I was just recently prescribed an antifungal oral med, cant think of the name. The doc said it would wipe it out. I have a totol of 9 pills to take but I havent started it yet for fear It will bring something new. I believe all of my skin problems came from starting an antibiotic which I only took for 4 days. I know it is making my life miserable!! Please keep us updated on your progress.

#80 jokerj

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Posted 22 November 2008 - 07:26 PM

QUOTE (frustratedgirl @ Nov 22 2008, 05:34 PM) <{POST_SNAPBACK}>
Hi Joker

I also have the same bumps on my legs. They look like little blisters. My legs are modeled looking and dry. I also have acne looking stuff all over my neck which itches bad. You can read some of my previous posts and get a greater understanding of all I have been through with it. Mine started in August and is still going strong. I was just recently prescribed an antifungal oral med, cant think of the name. The doc said it would wipe it out. I have a totol of 9 pills to take but I havent started it yet for fear It will bring something new. I believe all of my skin problems came from starting an antibiotic which I only took for 4 days. I know it is making my life miserable!! Please keep us updated on your progress.


ahh i hope yours gets better!
mine arent so blistery- more patchy, which makes me think its more eczema related

good luck!





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