1150 replies to this topic

[soul78]

Hey! didnt mean to upset you

Gues im posting it cause im struggeling with the same issue, and gets quite scared bye reading these posts... I did neither experience any blushing before starting accutane, but now(ive taken 376 out of 500 pills), im both having redness in my face and blushes sometimes. This is however mostly an issue in warm places.

Have an appointment with my dermatologist at friday, so hopefully she can calm me down...

1month: 40mg/day
2month: 60mg/day
3month: 60mg/day
4month: 60mg/day
4,5month: 60mg/day
5month: 40mg/day

Concidering my weight, 176 lbs, im not on a high dose.

You guys probably have read tons about this. Does this often go away after finishing accutane? Ive read both, but many ppl are worried after like 2-3 months. As i understand, it can take up to a year before your skintone is back to normal.

No worries bro, it's all good. Just didn't want to turn this into a battle of wits between Accutane supporters and people who have been screwed by it...there are enough of those threads already.

I had no flushing prior and strated same as you are now with blushes in warm rooms at around month 5. My derm assured me that it is transient and would stop once I finished my course which was 2 more months. I was also on a low dose, never went above 40mg/day. About a month prior to finishing my come and go flushing turned into intense flushes to everything. I was flushing literally 24/7 and forced to sit in front of a fan. My derm again said it would go away but could take up to 6 months. I stopped the medication as soon as this sudden onset took place. The flushing has never resolved. Although better a year and a half later but I am on several meds to combat the flushing so not sure if it is the meds, time or likely a combination but it is still a very big problem.

All I can say is be aware that you are taking a gamble if you are flushing now on Accutane and never have prior to taking it. It could go away a few weeks or months after your course or you could end up like many of us here with a big problem. I know if I could go back I would have stopped when I first started having those transient blushes to warm rooms at month 5. But there is no point in if's and but's for us....but for you it is something to seriously consider.

Good luck and I hope things work out for you.

[A new start :)]

Ok, thx for good answer:) I`ve also noticed, by reading posts on the internet, that there are lots of really lousy dermatologists. Sure there are a risk of getting side-effects, but it must be kinda bitter to get side-effects b/c your derm buts you on a way to high dose.

"I guess it depends on what your definition of blushing is. If you are merely experiencing short bursts of redness due to embarrassment then I would say that you were fine. But if you are flushing for extended periods of time then you are at a higher risk of maintaining the rednes"

Well im probably blushing due to embassasment. Its kinda; im going in a rom, in which it might be hot, and just felles the redness arrive. Then I think like; Oh no, plz dont blush, an then im blushing like hell. BUT its only for a very short periode of time. If I "make some wind" with a paper infront of mye face, well it might be gone after max.15-20seconds. Im aslo getting redness in my face if im working out and stuff, but guess thats quite normal.

So am I experiencing the right kind of blushing?

And thx Raimundo, now im a wiser man

soul78: Ahh, I understand you sadly got the blushes a bit futher. So my conclusion might be wrong, but I think, by reading both here and on other forums, that flushin/blushing is quite normal, and that only a few really unlucky ppl gets it like you


My point in the first post was just that there are sadly only ppl who struggle with the side-effects post accutane that writes about it. The ones who get fine, never bothers.

But what kind of blushing are you talking about? Mine comes maybe a couple of times a day, and last, like I mentioned, a few seconds. Otherwise im only having a red face, but this seems to be normal? Are you blushing like when you are alone in a room, or does it also come as a result of embarrasment?

[soul78]

Ok, thx for good answer:) I`ve also noticed, by reading posts on the internet, that there are lots of really lousy dermatologists. Sure there are a risk of getting side-effects, but it must be kinda bitter to get side-effects b/c your derm buts you on a way to high dose.

"I guess it depends on what your definition of blushing is. If you are merely experiencing short bursts of redness due to embarrassment then I would say that you were fine. But if you are flushing for extended periods of time then you are at a higher risk of maintaining the rednes"

Well im probably blushing due to embassasment. Its kinda; im going in a rom, in which it might be hot, and just felles the redness arrive. Then I think like; Oh no, plz dont blush, an then im blushing like hell. BUT its only for a very short periode of time. If I "make some wind" with a paper infront of mye face, well it might be gone after max.15-20seconds. Im aslo getting redness in my face if im working out and stuff, but guess thats quite normal.

So am I experiencing the right kind of blushing?

And thx Raimundo, now im a wiser man

soul78: Ahh, I understand you sadly got the blushes a bit futher. So my conclusion might be wrong, but I think, by reading both here and on other forums, that flushin/blushing is quite normal, and that only a few really unlucky ppl gets it like you


My point in the first post was just that there are sadly only ppl who struggle with the side-effects post accutane that writes about it. The ones who get fine, never bothers.

But what kind of blushing are you talking about? Mine comes maybe a couple of times a day, and last, like I mentioned, a few seconds. Otherwise im only having a red face, but this seems to be normal? Are you blushing like when you are alone in a room, or does it also come as a result of embarrasment?

No dude, flushing and blushing on accutane is not normal and a lot of those who get this (like me and the other dozen or so posters in this thread) end up with it becoming intense and permanent. Redness is normal NOT flushing.

From what you describe I would say you are starting to flush. Several times a day, the feeling of it coming on and trying to fight it off mentally and then having to fan your face with paper is not what I woud call blushing, there is heat associated with it, so it is flushing.

Not much more we can say, you are describing what we all started out with (minor trasnsient flushes) and then ended up with a permanent flushing problem.

I would say you are at a stage where I would seriously consider stopping. It's a roll of the dice and a big gamble in my opnion. I was told by my derm that it was normal and would go away, but it never did.

I don't know, it could remain transient and minor and go away after your course OR it could turn intense at the blink of an eye and stay permanent after your course.

Not trying to scare you, just giving you the facts on how it is and how it could play out. Ultimately it is up to you as it is your body.

[A new start :)]

Fuck!!!!! Not what I wanted to hear. Well, derm in like 9houers, dont know what the fuck to expect

[soul78]

Fuck!!!!! Not what I wanted to hear. Well, derm in like 9houers, dont know what the fuck to expect

Like I said, not trying to scare you or stress you out but just giving you facts as we see them. At the very least, I would consider reducing your dose over the next few weeks to see if these flushes upi are getting let up in frequency and intensity and if they do not, perhaps stop.

As the others have said, derms are pretty limited when it comes to Accutane side effects and will likely pass it off as something that will go away once you stop, which it very well could but it also very well couldn't.

Just take some time after you talk to your derm and weigh the pros and cons.

I hope everything works out for you.

[A new start :)]

Well went to the derm and she didnt seem worried at all. I couldnt really relaxe with her answer and told her to get the "superior-derm". It was a old lady who had lots of experience with accutane. She didnt seem worried either, and recommended me to finish the cource as planed. Their explanation was that my skin is much thinner and therefore the blood-vains are more visible. To me, this seems natural. I have sent in an question to another derm, and are waiting for his reply.

Unless he recommends me to do otherwise im going to maintain a 40mg/day cure. I was originally on a 60mg/day cure, so it might make it a bit better.

It looks like we might got some of the same, and this worries me, but there is no doubt that you have it much harder than me. And yeah it might develop in that direction to me asvel, but until im noticing this, im continuing and praying it will go well.

[Seattle JT]

Well went to the derm and she didnt seem worried at all. I couldnt really relaxe with her answer and told her to get the "superior-derm". It was a old lady who had lots of experience with accutane. She didnt seem worried either, and recommended me to finish the cource as planed. Their explanation was that my skin is much thinner and therefore the blood-vains are more visible. To me, this seems natural. I have sent in an question to another derm, and are waiting for his reply.

Unless he recommends me to do otherwise im going to maintain a 40mg/day cure. I was originally on a 60mg/day cure, so it might make it a bit better.

It looks like we might got some of the same, and this worries me, but there is no doubt that you have it much harder than me. And yeah it might develop in that direction to me asvel, but until im noticing this, im continuing and praying it will go well.

As I told you before most derms do not have experience with post accutane side effects so you really have to take it upon yourself. It is fine if you go forward with your treatment, but be sure to understand that if you were to start getting the flushing badly there is no guarantee that it would subside even if you immediately stopped taking accutane. As soul said flushing and blushing are completely different. Blushing only lasts for a couple of seconds whereas flushing is a constant state of burning/redness for hours...

[A new start :)]

As I told you before most derms do not have experience with post accutane side effects so you really have to take it upon yourself. It is fine if you go forward with your treatment, but be sure to understand that if you were to start getting the flushing badly there is no guarantee that it would subside even if you immediately stopped taking accutane. As soul said flushing and blushing are completely different. Blushing only lasts for a couple of seconds whereas flushing is a constant state of burning/redness for hours...

Well, i have a little constant redness, which is normal. Then some days i do get some incidents of blushing, BUT this only last for a couple of seconds, and the blushing-redness goes away in a mather of seconds after that. I have almost nevner blushed before. It really is a difference, and to me it seems like i do got the light version, and cant by any means relate to a flushing that burns, or stays red for hours.

[soul78]

Well went to the derm and she didnt seem worried at all. I couldnt really relaxe with her answer and told her to get the "superior-derm". It was a old lady who had lots of experience with accutane. She didnt seem worried either, and recommended me to finish the cource as planed. Their explanation was that my skin is much thinner and therefore the blood-vains are more visible. To me, this seems natural. I have sent in an question to another derm, and are waiting for his reply.

Unless he recommends me to do otherwise im going to maintain a 40mg/day cure. I was originally on a 60mg/day cure, so it might make it a bit better.

It looks like we might got some of the same, and this worries me, but there is no doubt that you have it much harder than me. And yeah it might develop in that direction to me asvel, but until im noticing this, im continuing and praying it will go well.

As we said, no derm is going to recognize flushing as a potential problem unless you are seeing Dr. Chu or someone who is versed in post Accutane flushing issues. IF there is heat associated with your blushing as you said you need to fan you face with a paper etc. I would take that as a big red flag personally because as far as I know, blushes do not have heat associated with them but flushes do.

Just be aware of the risks and that I was also on 40mg per day and had mild transient flushes that were brief and was also told it would go away and at the blink of an eye it turned intense and did not let up even when I stopped within a couple days of it happeneing.

The odds are in your favour that it will likely not get as bad as ours as I do believe we are in the lower percentile of side effects, but continuing with your course could pose a risk if you are experiencing heat associated flushing and are only half way through. I respect your decision...I really hope things do not take a turn for the worst but if I could go back in time and be at the point again where you are at I would stop (obviously) or at the very least cut my dose in half.

A few more similar accounts I came across the other day you may want to read over;

http://www.rosaceagroup.org/The_Rosacea_Fo...934&page=19

http://www.rosaceagroup.org/The_Rosacea_Fo...8890&page=2

You have informed yourself of the risks so just be sure you are 100% comfortable with your decision and best of luck and I hope things work out!

[A new start :)]

Thx for the fast and informative post guys. I appriciate it, I truly do.
I am almost done with month 5, and will try to continue approximately one and a half month futher. Sadly none of us can look into the future, and therefore we must do what we belive is the right thing.

I will not be posting updates on this forum, thus this posts make me to worried. I will however come back after ending the curse and either be one hell of a happy man, or joining your club.

Thanks for trying to help me, and may we all get rid of our skin problems sometime in the future.

[scooby32]

Hey, everyone.. i've followed this thread for awhile but this is my first time posting.. it seems liker y'all on the thread know more than any dermatologists i've ever spoken to..

anyway here's my problem.. i was on 40 mg 2x daily for 6 months and 1 month prior of 10 mg 2x a day.. i'm currently 5 months post tane..

after my course was done, i as well got the intense flushing, where i'd always be flushed unless i was sitting in front of a fan.. but the flushing has greatly decreased, almost completely.. now i only get flushed when i drink and it's not nearly as bad..

however i also have another problem.. everytime and i mean everytime i sweat, almost my whole face breaks out in a rash.. the rash is the worst close to my eyes and nose on my cheeks and not really anything around my mouth and jawline..

after 1-2 hours of sitting in the ac and relaxing the rash goes away, unless i take a shower then it will come back for another hour, but it isnt as bad as the initial rash i got when i was sweating.

my dermatologists told me she wouldnt be surprised at all if i had rosacea (actually i showed her a pic of when i had rashed out and she said if she didnt know that it went away in 1-2 hours, she would have thought it was lupus.. i dont really know anything about lupus)..

but since i never had any of these problems before accutane, i really dont think i have rosacea.. i will say this: before accutane i would get decently red when i exercised hard, but everyone in my family does and no one has rosacea..

my dermatologists told me to try metrogel which is a topical treatment for rosacea and if that doesnt work or irritates my skin more, we would try doxycycline, and if that didnt work we'd probably i have to do lasers once i am a year post tane..

anyway sorry for the long post, but i'm pretty hesitant to try any of this stuff since i dont think i have rosacea..

what do y'all think? (esp. lamar and soul, they seem to really know their stuff).. has anyone ever heard of facial rashing caused my sweating on a post taner?

[mebe]

I read this awhile ago and only now came back after realizing I have accutane-induced rosacea (ended course 2 years ago) The flushing only seemed to start the last half year but I probably just never noticed as i didnt know what it was. I suffer from severe form and have begun with rhinomphyma. Many papules and pustules plagued me for a few months but got on tetracycline and metro gel and those have ended however the flushing seems harder and longer than ever before and Im freaking breaking down mentally. I've never been able to deal with acne or then the small bumps that formed on my nose
(rhinophyma - which I only figured out recently was caused by rosacea) and now having to deal with something that is so sporadic and lifelong is mindnumbing. Not only that but my nose has swelled up seemingly in the last month and my whole face is transformed and I'll never look normal again. And plus it will likely just get worse and worse with time and im still flushing even while on these meds.
I would do anything to not have taken the accutane. It's ruined my life and I can never be the person I was ever again. I can never even be normal looking. Im scared and I'm sick of all of this.

[soul78]

Lamarr, did you find that Mepacrine helped with your joint stifness and hairloss as well as the flushing?

Also, where did you purchase your grape seed oil from?

Thanks

Edited by soul78, 14 September 2009 - 07:45 PM.

[lamarr1986]

Hey bro,

Yeah it did/does help the joint stiffness/pain and muscle soreness. Hairloss it doesn't really help though. With tane hairloss it may prevent the long term miniturization of the hairshafts but i'm not gonna rely on it doing that so i continue to use my other treatments for the hairloss.

I get my grapeseed oil from ebay lol. I tend to trust the highly rated people on ebay more than a random shop on the internet... Grapeeed oil is one of the cheaper ones, i remember knocking up the esential oil mix used in the alopecia areata study and things like cedarwood tyme etc ending up being the ones which cost more. Getting a good quality lavender is worth while imo. Emu oil you just want your standard stuff, no tripple refined etc etc.


Sorry to the people who i haven't replied to via pm's i get so many and i don't like to reply to one over any other so i havent responded for quite a while now.

Edited by lamarr1986, 18 September 2009 - 04:03 PM.

[Seattle JT]

Lamarr,

Hey man. Can you give me Dr. Chu's contact information please? My doctor wants to contact him in regards to anti malarials and accutane side effects. I would really appreciate it because it would go a long way towards helping me get an anti malarial here in the states.

[lamarr1986]

Try him on his email first....

a.chu@imperial.ac.uk

I'll give you a phone number if that doesn't work (it does work it just depends if he will respond or not).


Cheers

[Max-]

It's ruined my life and I can never be the person I was ever again. I can never even be normal looking. Im scared and I'm sick of all of this.

I feel your pain.

[jordan1234]

Hey guys sorry it's been so long. Still improving on the HGH. Lamarr I had a scare with the HGH regarding the legitimacy of the source. You were right man there's a lot of sketchy stuff out there. I just wanted to ask a general question. Does everyone here sweat? I fee like the days that I am better I am sweating instead of flushing and the days when I am worse, I am flushing because I am unable to sweat. My problem seems to be a lack of sweat and hydration. Does anyone feel like they have a similar issue?

[Seattle JT]

Try him on his email first....

a.chu@imperial.ac.uk

I'll give you a phone number if that doesn't work (it does work it just depends if he will respond or not).


Cheers

Thanks man.

[Seattle JT]

Hey guys sorry it's been so long. Still improving on the HGH. Lamarr I had a scare with the HGH regarding the legitimacy of the source. You were right man there's a lot of sketchy stuff out there. I just wanted to ask a general question. Does everyone here sweat? I fee like the days that I am better I am sweating instead of flushing and the days when I am worse, I am flushing because I am unable to sweat. My problem seems to be a lack of sweat and hydration. Does anyone feel like they have a similar issue?

I never have been a big sweater, but post-accutane I sweat a lot more in the armpits. This is probably due to the increased amount of stress I am under with the flushing, but its definitely much more than pre-accutane. I don't really sweat much in the face. However, my face used to get pretty oily when stressed/etc. pre-accutane so that might be similar(i don't know?). But to answer your question directly I don't think sweat is a factor in my flushing.