3269 replies to this topic

[sbowlchica]

Well, over three months after shedding began... I combed my hair for the past two nights with NO HAIRS on the comb!! This is amazing!
Just be patient, guys... it'll stop. I promise.

I think the omega-3 and taurine did the trick. Worth a try, right?

[76ers1985]

Most girls seem to have it grow back... Guys on the other hand......

[keiko1]

guys grow back too.. i've read this countless times and people who had hairloss come back saying it's grown back

[volcom3453]

Hey guys,

It's been a long time since my last update. You can probably check my post history to find some of my prior updates on my hair. I hadn't been taking great care of it for a while. My hair was over a foot long, but I cut a lot of it to donate in late August. Still a bit shaggy, but immediately I noticed an improvement in the look of my hair, because the weight was really holding it down and putting some unneeded pressure on my scalp and hair. My corners have receded ever so slightly to the point where it just seems like the beginning of a maturing hairline. I can safely say my hair shedding seems to be a lot more normal than it was 2 years ago (keep in mind I was growing my hair for almost two years).

Now that I work in a nutrition store I've learned a lot in general, and some new things for my hair. Right now I'm using Biotin, Fish oil, and silica as far as supplement goes (I take more, but those are good for hair). I just started the silica, but I've been researching it and could be great for maintaining strength and perhaps even stimulating a bit of new growth. I can update for that in a few weeks if anyone's interested. I also use my prescription clobetasol once in a while if I get any itchiness. A few times a week I stimulate my scalp by rubbing some essential oils in. My hair is a bit thinner at the temples/sides now, but I'm still holding out hope it could still improve with my new regimen. I know Accutane will cause considerable shedding early on, but don't let your mind trick you too much. I began worrying way too much about the appearance of my hair, when in reality it wasn't nearly as bad as my mind perceived it to be. Just wanted to share some hope with anyone who is suffering, since I'm a guy and I've seen some improvement since stopping Accutane January of 2010.

Edited by volcom3453, 18 November 2011 - 06:06 PM.

[josie8888]

hey everyone... thought i would comment as i know what your all going through.. and how annoying it can be.. ive did a corse of accuane have been off it for about a year now... and i had the thickest hair like a main of it... and started losing my hair as soon as the extreme dryness started to kick in.... about 2 months in i could notice it... 3 months in... no joke i had actually lost half of my hair even bald round cirles at the front.... i was devastated my hair has grown back but no where near the thickness it was..... here are some tips what i would say made mine worse!!! ... dont even wash your hair with shampoo as your scalp is skin aswell... moisterise your scalp with moisterising cream!!!!! even put oils on it every night or a few times a week.... if you think how dry your skin would be if you didnt moisturizer atall on accutane and only shampooed it!!! i think it would have died aswell.. ... also if your a woman like me... seriously dont use hair spray on your hair... as your hair is soooo dry and my hair specialist said hairspray is the most drying damaging thing... i think that is also a reason half my hair was snapped!!!! my little bro went on it the same time as me and his hair still hasnt grown back..so maybe as some men go bald anyway it could be more permanent in men?? i think anyway.... anyway i compensated clear skin for going bald (nearly) only to find that my skin went back to not being perfect the oil came back which i hate!!!!! as it swells my features... and also my friend was on the same course but taking 10mg per day and her skin had exactly the same improvement but hardly any hairloss.... i might get a course again and take like 1 a week... as still with this you see such a massive improvement!!!!!!!!!!!!! as ive tried it.... P.S i still have to moisterize my scalp now ... going from greesy oily... to bone dry still... i use simple which is natural non irritating and doesnt greese hair.... xxx

76ers1985, on 16 November 2011 - 08:00 AM, said:

Most girls seem to have it grow back... Guys on the other hand......

my brother hair hasnt grown back.. but then a year later he is seeing new hairs.. and has a receding hair line through his course... but he was taking extra tablets thinking it would do the job better!!!

sbowlchica, on 11 November 2011 - 01:40 AM, said:

Well, over three months after shedding began... I combed my hair for the past two nights with NO HAIRS on the comb!! This is amazing!
Just be patient, guys... it'll stop. I promise.

I think the omega-3 and taurine did the trick. Worth a try, right?

did your hair grow back fully ???? and did you do anything to help it grow back apart from omega 3?? x

[josie8888]

ithappens, on 10 May 2007 - 01:08 AM, said:

I too have suffered a tremendous bout of TE that started on the last month of tane and has gone on for awhile. My experience is very similar to GD's in that it is starting to let up now, and my hair seems to be doing a little better in the texture and all. I too have been using Nizoral almost everyday and it has helped tremendously. I do think that I am going to cut back and use it only 2-3 times a week as it can irritate the scalp and all. Hopefully my shedding remains at a stand still and starts to eventually stop. Today I lost around 20-25 hairs mostly in the shower and my hair doesn't seem to be coming out at all pretty much during the day like it used to. I too am hoping for some noticeable regrowth and hair texture recovery in the upcoming months. I will keep everyone posted on my experience etc. And as for those of you reading reading this with severe acne who are concerned about hair loss, but want to do accutane etc my suggestion would be to do the accutane but KEEP IT AT A LOW DOSE NO MORE THAN 20mg. At 20mg all my acne cleared up and i was doing fine for two months till I went up to 40mg. I feel that derms underestimate it's power, and tend to overcompensate the doseage in hopes of long term remission which is good, but at the risk of increased sides. New studies are finding that in many people 20mg is enough to work well and the extra large doses of 40mg may not be necessary to achieve long term remission. Other than that I highly suggest not taking any more than 40mg at all and wouldn't even think about going towards 60-80mg or higher. It seems people with permanent hair loss were on an extremely high dose for their weight. Just stick with 20mg, and the worst that can happen is that you have to go on it again eventually if it comes back, but at 20mg you should barely have any sides. hope this helps.

HEY PLEASEEE CAN YOU TELL ME IF YOU LOST YOUR HAIR ON THE LOW DOSE OR THE HIGH DOSE ?? AS I LOST MINE ON 40MG A DAY AND 1 YEAR LATER I WANT TO TRY THE LOW DOSE ?? X

[jaysjay]

i don't know why but cotrimoxazole has done wonders for my accutane induced hairfall, at first i thought it was just a fluke or coincidence but then i switched on and off too many times just to find out if there reallly is a connection between cotrimoxazole intake and reduced hair fall and everytime i have taken it i have found it has curbed the number of hair fallen back to 4 or 5 at first, and then to almost none within a fortnight- this might just be my curious case but i thought i should share it.

[76ers1985]

jaysjay, on 11 December 2011 - 12:45 PM, said:

i don't know why but cotrimoxazole has done wonders for my accutane induced hairfall, at first i thought it was just a fluke or coincidence but then i switched on and off too many times just to find out if there reallly is a connection between cotrimoxazole intake and reduced hair fall and everytime i have taken it i have found it has curbed the number of hair fallen back to 4 or 5 at first, and then to almost none within a fortnight- this might just be my curious case but i thought i should share it.

Why did you try cotrimoxazole? I see it helps the intestines.. I'm starting to wonder if a lot of accurate based hairloss is due to digestive damage. Have any of you been tested for celiac? It makes sense in that it can cause canker sores (Lamar), vitamin deficiencies which can cause the brain fog, bone and muscle pain... Etc....

It's a shot in the dark, but it can't hurt to try...

Edited by 76ers1985, 15 December 2011 - 08:40 AM.

[jaysjay]

i tried it while coming off from accutane in an desperate attempt to combat rosacea and to prevent any papule or pustule. not only started to fall lesser number of hair within few days or weeks ,my hair texture again reverted back to straight from what it had turned waivy because of accutane. i have stopped cotrimoxazole usage a few times in between fearing its side effects only to find my hair problem coming back, i now am facing the same condition as i had given it up two months ago,today is the first day where i am going back on it not just to find out if it controls hairfall or not- if it does i will post my progress here and would owe it to antiinflammatory effects of this antimicrobial ; since hairfall due to accutane has some autoimmunological malfunction at its base, anyway right now i can only guess about what it is but few days from now i will post again about how it went for me this time.

[76ers1985]

Oh I was reading on my phone so I couldn't dig into too much detail at the time. I didn't realize exactly what it was. Let us know how it goes.

[76ers1985]

Any updates?

[Rodallega]

HI guys,
Im a fellow hair loss sufferer post accutane.
Ended my course in february 2010.
I had very mild hairloss after quitting but in the last 6 months it has speeded up dramatically and iv lost about 60% hair.
My hair on the back and sides is growing thicker than top so it sounds like male pattern baldness?
My hair loss doctor gave me a script for minoxidil and propecia.
But im too frightenned to take propecia after what accutne did.
Does anybody have any advice on treatments or should i accept that i ill be completely bald at 23?
Thanks

76ers1985, on 09 January 2012 - 08:28 AM, said:

Any updates?

[sbowlchica]

Well, my hair loss had stopped for a good two months, but now it's coming back as bad as ever. I have no idea why, since I haven't changed anything. I'm adding biotin into the mix and trying to get more protein.

[electroshock]

76ers1985, on 14 September 2011 - 07:54 AM, said:

QUOTE (electroshock @ Jul 19 2011, 09:27 AM)

QUOTE (texasboy15 @ Jul 6 2011, 12:33 AM)
electroshock, obviously i have diffuse alopecia areata (the auto-immune disorder), so there is really nothing that can be done but pray that the body corrects itself, but after 21 months of shedding that is unlikely to happen

Just a quick update.

I'm still using clobetosol propinate once nightly and its done wonders for the pain, itchiness, irritation and redness. My scalp feels a lot better.

I was given about 20 subcutaneous steroid injections into my scalp last week, and will need about 4 to 6 weeks to see if they encourage hair growth.

The down side is that neither of the above treatments have done anything to slow down or stop my shedding. The shedding still persists.

I'll be returning in 6 weeks to see Dr. Donvavan, and at that time we will likely discuss using Prednisone and tapering off to another milder oral steroid to see if that does the job.

Will report with my results.

Cheers,

Matt


Any update, electroshock? Also, do you have any pictures? Curious to see what I should expect in a couple years. I think we have a similar situation.

I've gone off the topical steroid because I started DPCP treatment. I had 3 biopsies, and on the 3rd they found indicators of Alopeica Areata. My hair has not improved over the past 3 years and 3 months, so 2 weeks ago I started using Rogaine foam as per my specialists' recommendation, and I continue to do DPCP treatment once a week.

Since i've just reached the right concentration, I will have to give both treatments 6 months to see if they yield results.

All indicators point to Accutane having caused Diffuse Alopecia Areata in my case, both hairloss and chronic fatigue are the side effects I've acquired from Accutane.

Accutane is poison, point blank, and it can screw up your life.

Brad1972, on 27 June 2011 - 03:19 PM, said:

There is no question that Accutane can cause hair loss, I had quite a bit in month 5 on 80 mg a day but was fine after getting off of it. Plus my hair is thick and I didn't miss the hair.

But to the person saying that a mere 9 pills caused this massive hair loss, I have a very hard time believing it was Accutane. 9 pills is simply not enough to build up in your body to do much of anything.

Let's remember, many people are predisposed genetically to baldness or hair loss and in probably "some" or a "few" of the cases, Accutane simply exacerbated what was going to happen anyway.

Uninformed speculation is the crux of the idiot.

Congratulations on winning today's award!

[jaysjay]

my last cotrimoxazole experiment was but a failure although i admit i didnt give it an honest long try,back in august it was one month of contnual use before i noticed a complete cessation of hair fall. it was a coincidence as people here have reported 'honeymoon periods' where they have remitted to shed ziltch hair for a brief duration only to fall back to shedding as much as before if not more-i would have thought;if it was not for the indirectly propotional on and off relation i observed between shedding and the concomittent use of cotrimoxazole. i am eager to give it a sincere shot but am afraid of exhausting my last resort against any future papulopustular attack,

[gboyle138]

I'm getting kind of freaked out by hair loss and other sides. I only took 80 mgs for about 5-6 weeks before I stopped because of sides. It is six months later and I'm still having problems. But I found a new study on this issue. Their conclusion:

topical TGF-

2/TGF-

receptor II antagonists deserve to be explored for the prevention and management of retinoid-induced hair loss.

If only I could figure out where to get some of that.

http://www.nature.co...2839a.html#fig1

[juliezxzx]

i was on low dosage nimegen some years ago and started on low dosage acnotin (10mg twice a week) + antibiotics in Oct 2010. observed a little hair shedding during Dec 2010 but my doc reassured me it was fine. stopped the antibiotics cos i thought that was the cause of my hairfall but continue to be on acnotin (10mg twice a week) till now. my hair shedding seems to be on and off over this period of time. started getting bad in Dec 2011 again and has been that way since. shed at least 50hair per day and more at times. but one peculiar thing is that i usually don't observe any hairfall during my shower or on my pillow. it only sheds throughout the day. like loose hairs trapped in my long hair. had itchy scalp and some flaking so i started using head and shoulders (used to use it years ago and it worked great but i switched shampoos many times after that) and started using nizoral twice a week this week. seems to have gotten better but im not sure if its psychological... i do shed hair AFTER my shower though. when im airdrying my hair...

any take on that?

ps: i didnt have any issues with taking nimegen or acnotin when i was 15 to 18 but i can't remember how many times i've gone off and on. but its mostly low dosage.

[jaysjay]

my shedding manifests itself in a manner just opposite to what you have described,that is i only shed hair while in take shower or after shower and on pillow but hardly ever during the rest of the time.My hair texture also determines a great deal of how many hair would i lose during a period say if my hair is straighter during a period that would mean i wouldnt shed as much although it hasnt been straight to the original texture i did feet a tremendous improvement back in october,that was when i thought i had completely gottn over the problem.

now to ponder at it deeply

minoxidil curbs back my shedding and retains straight texture to my hair, but i dont use it much as it also reddens my face to the point that i feel severe flushes at nights.

if i remember correctly i had also taken dilcofenac 100 mg and prednisone when i last saw an improvement.

i used to think it was corimoxazole as i experimented on it with some success but it can be a coincidence since last time it didnt do shit althouh i didnt take it for a longer period as previously, could it just be attributed to the anti-inflammatory effect of it?

Edited by jaysjay, 17 March 2012 - 07:48 AM.

[Milano]

jaysjay, on 17 March 2012 - 07:40 AM, said:

i used to think it was corimoxazole as i experimented on it with some success but it can be a coincidence since last time it didnt do shit althouh i didnt take it for a longer period as previously, could it just be attributed to the anti-inflammatory effect of it?

It can be hard to tell with antimicrobials and anti-fungals whether the effects are from the anti-inflammatory action or from the actual killing of pathogens. I would think in terms of hairloss though, unless you have some sort of severe dermatitis, it will be the anti-inflammatory effect.

You said you have Rosacea? A way to test this would be try something like Oracea, which, as far as I know it too-low a dose to have anti-microbial action but still exerts anti-inflammatory effects and is often pescribed for Rosacea for this reason. Have you tried this?

My hairloss sounds similar to yours. I shed most noticeably in the shower if I wash my hair everday and little elsewhere. If I dont wash everyday however I start noticing it on pillows, when running hands through hair etc.

I shed from all over, although my front hairline has diffuse recession all along it. It looks kinda crazy actually. I also seem to have quite bad seborrhoeic dermatits as well however, which no shampoo is able to dent.

Edited by Milano, 17 March 2012 - 08:38 AM.

[jaysjay]

oracea is minocycline i guess,whats the texture of your hair- have you noticed any difference in it, like mine had once urned completely curly and now slowly getting its straightness back